Suicide is the biggest killer in #ME @ashleydaltonmp.bsky.social @wesstreeting.bsky.social @alastaircampbell2.bsky.social

Dear @who.int, I appreciate you having a dedicated myth-busting page outlining counters to key misconceptions about long COVID: www.who.int/europe/event... who.canto.global/v/P238EIPA70... However, the messaging that COVID vaccines *point blank* do not cause long COVID seems misleading 🧵

If any of you Scots do fit the criteria of no formal public health quals & no involvement in campaigns/groups, but you ARE impacted by poor infection prevention, I URGE you to apply: www.alliance-scotland.org.uk/blog/news/he... Email: [email protected]

Isn't wanting to support public health and improving infection control in and of itself AN AGENDA? Isn't "I want evidence based infection control measures" AN AGENDA? Aren't the people campaigning often the ones who are most passionate, well-read, and directly impacted?

Help Improve Infection Prevention in Scotland’s NHS www.alliance-scotland.org.uk/blog/news/he... This looks like an exciting role for a lay member of the public who cares about public health to get involved. That is until you read the experience they require for the post 🧵

"Those Who Were Already Here" centerleftstack.substack.com/p/those-who-... Someone with long Covid eloquently thanks those with ME/CFS who have supported with advice, etc. the Long Covid new arrivals with similar symptoms & impairments #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis

Zoe Campbell has suffered with severe ME for 25 years, in this essay hosted by David Tuller’s Virology Blog, she explains what it MEans to be shackled to your bed by #ME/CFS: “I would just like to explain the mechanics of the disease that can wreck a person’s life in this way. First of all, the

A powerful introduction to a parliamentary debate in the Netherlands on post-acute infection syndromes (PAIS), including #LongCOVID, #MECFS, chronic Lyme & post-sepsis conditions. Dutch MP Kostić describes it as one of the biggest medical scandals of recent decades. (29/1/26)

As someone with autoimmune disease I can say with 💯 certainty conventional medicine has HUGE role in growth of alt-med. From downplaying symptoms b/c "you're healthy" or blaming symptoms on stress/diet/lack of exercise, medicine has a lot to answer for. Oncologist gave my friend Attia's book, FFS.

Please use this template to advocate for Savannah, a #SevereME patient in grave danger, being mistreated in Queen Elizabeth hospital Lewisham! #SevereMErgency #pwME #MECFS scroll to bottom for short email for low energy www.reddit.com/r/cfs/s/sVmw... pls share #saveME #CanYouSeeMEnow

The biggest lie ever sold to us was that 'you do you' is an acceptable substitute for public health. Here's the cold, hard truth - white supremacy was a key force driving the abandonment of public health. I urge you to read this and self-reflect upon the message. pmc.ncbi.nlm.nih.gov/articles/PMC...

We all gaslight ourselves

2/Hier der Link: bsky.app/profile/murt...

Während die einen keinen anderen Ausweg sehen, als sich zu suizidieren, laufen andere Gefahr im Krankenhaus zu Tode gebracht zu werden. Unfassbar alles! Es wäre nicht der 1. Fall, in dem #Psychologisierung tötet. Unten findet ihr ein GoFundMe. Mails haben bisher nichts gebracht. #MEcfs #MEkills

MCAS people. I exercised my legs for the first time in three years. I took half a benzo on top of my mcas meds & havent had full blown anaphylaxis. Usually I get anaphylaxis from even talking too much. Is there anything mechanistically similar to benzos that I can take??? I don’t want to rely

Fundraiser: www.gofundme.com/f/severemerg... How to contact the hospital and the care quality commisson + email templates: www.reddit.com/r/cfs/s/2XVw...

Then we need @actionforme.bsky.social to use the APPG to immediately establish a mechanism that people with ME/LC and/or ther family/carers can call upon for intervention where harm's being done. cc @tessamunt.bsky.social

Someone has put templates and addresses together to - Email the hospital leadership. - Email the CQC (regulator). - Email local MPs (and your own MP). Please do so if you can! #mecfs #greatestMEdicalScandal

I have our answer! We should club together and stump up £30K to pay for a 3 minute chat with a government minister, where we can explain in brief why the UK needs air filters in classrooms, masks in healthcare and research to find treatment for #LongCovid. www.opendemocracy.net/en/dark-mone...

Kjöller is butthurt because she was undercover in a long covid group trying to gaslight people there and they threw her out and, like the textbook narcissist that she is, she is on a revenge spree now, pretty much like Trump is revenging on people who didn’t adore him. Sad SvD allows her to abuse.

Clean the air FFS. youtu.be/iZxnbxgG5zI?...

Please donate to Savannah's gofundme if you can! #mecfs #greatestMEdicalScandal

I've been researching the idea of Unconditional Universal Basic Income since 2013. Here's a collection of findings I've compiled from various UBI experiments and studies of cash transfer programs around the world. This will be a VERY LONG and ongoing thread focused entirely on empirical evidence. 🧵

If someone is listing anti- all the isms apart from ableism, I'm unlikely to follow back. I'm disabled and fed up of the left eliding this. Intersectional everything here. #Disability #Ableism

The UK government has agreed a deal with Donald Trump to hike NHS drugs prices. The government is refusing to say how much this will cost or how it will be paid for. Tell Wes Streeting to come clean: act.globaljustice.org.uk/tell-wes-str...

What could possibly explain the trend line in this chart? #LongCOVID #COVID #medsky digital.nhs.uk/data-and-inf... NHS Sickness Absence Rates, October 2025

Manufacturing consent to let a deadly, disabling virus devastate our country and every person in it for the sake of the wealthy was a big step towards fascism. It's called social murder for a reason. Let people behave in a way that invalidates the rights and lives of others.

Exercise is important for recovery after a broken leg. But we rest & protect the leg first Exercise is important to support the heart after a heart attack. But we treat & address the cause first Exercise is important for cancer outcomes. But we treat the cancer first

🖤🕯️ #MECFS #SevereME

Please donate to Savannah's Fundraiser if you can gofund.me/8f467decc #MECFS #SevereME

London hospital STILL starving severe ME patient, Savannah — bias medical approach to blame www.thecanary.co/uk/analysis/... #MECFS #pwME #LongCovid #SevereME

Any physician who wrongfully claims #MyalgicEncephalomuelitis is psychosomatic is unfit to go near patients. All love to Savannah and those standing by her💙 #pwME

Dear gods, this is not okay. ME is not psychological. Even if someone had a psychological illness (WHICH SHE DOESN’T) at this point it must be obvious they’re killing her and this isn’t the best medical care! Just because they want to “prove” they’re right. How will her death do that?!

New article on Savannah’s case. Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate. Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk. www.thecanary.co/uk/analysis/...

A new fundraiser for Savannah, please donate if you can!

I just read “Chronic fatigue syndrome from vagus nerve infection: A psychoneuroimmunological hypothesis” by Michael B. VanElzakker. It’s very well written and explains various things well, like what are Glial cells & what substances they can pump out to cause sickness behaviour & neuropathic pain>

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk @longcovidsupport.bsky.social #Justice4ME @ashleydaltonmp.bsky.social @decodemestudy.bsky.social @thelancet.com @nhsengland.bsky.social

Presentation to SHBN (Safer Healthcare Biosafety Network) on behalf of CATA (Covid Airborne Transmission Alliance) with comment on the UK Covid-19 Public Inquiry Module 2 report published in November. tinyurl.com/DO-SHBN-21-1... (Apologies: Tech issues prevented earlier posting)

Describing deskilling via AI-assisted taskification of work as *upskilling* is some chutzpah People will buy into it, too - like they did the last time

I think I might take one of these "under 20 minutes" AI skills courses the UK Govt. seems very keen on everyone doing and live-post it here... Maybe we can all learn something together! The press release sends me to aiskillshub.org.uk/aiskillsboost/ - let's go and see!

Heartfelt email to GP practice manager No.46383 sent, in the hope of a genuine and caring response re #pwME, GP training and accessible healthcare. Not holding my breath, obviously.

Last autumn, #MEAction Scotland went to the Scottish Liberal Democrat Party Conference & spoke to journalist, Justin Bowie of @thecourieruk. We then put Justin in touch with our supporters. www.thecourier.co.uk/fp/politics/...#MEAction #MyalgicEncephalomyelitis

Perfect 🧵

I get one event a week. On a good week. By "event" I mean "leaving the house or interacting with people". It takes several days to recover. If life events (usually gp appts or emergency plumbers etc) mean I have to do 2 things in one week, you can write AT LEAST the whole next week off. #mecfs

As I lie here in a post-exertional malaise (PEM) crash, I keep reminding myself to read my own post from a few months ago, Why I Can’t Just Meet You for Dinner. #PEM #LongCOVID #MECFS open.substack.com/pub/centerle...

This is how many people with #LongCovid and #ME live. The daily calculations and struggles. There is not much scope for actively changing your ‚lifestyle‘, when you are constantly in reactive mode to what your body needs you and allows you to do. Thank you for such a clear description 🙏

£1 per classroom per day. That's what it costs to protect children from 5 health conditions: asthma, infections, heart disease, learning loss & long-term brain health. The Corsi-Rosenthal Foundation UK donates air cleaners to schools & clinically vulnerable people. #CleanAir

One of my dear friends is raising money to buy a wheelchair accessible vehicle. I can't even begin to tell you the amount of crap she's had to go through to get this far in her journey. If you attended my ME/CFS election debrief she was the one who did a grief session <3 please share.

Two years today since my friend @dutchlauren.bsky.social passed away 🕯💙 Going to eat some nuggets (which she loved) and will try to watch one of her favorite movies. #severeME #reMEmberLauren