The third topic @binitakane.bsky.social and I discussed was episodes of low blood sugar patients often report, even though their home testing shows normal blood sugar, broken down more in this blog (as promised!): Blood sugar regulation: lc-sc.co.uk/bodily-syste...

The next pandemic is highly likely to be airborne. We need clarity on whether the government is prepared. Are medical supplies up to date? And what action is being taken on ventilation and air filtration to keep public spaces safe? #PublicHealth #PandemicPreparedness

Just to say how much I love and appreciate every one of the #ME brigade that post on here. Some can only watch and that’s ok, some have valuable information and that’s ok, some are scared and that’s ok, all of us understand and care and dare to hope for better days to come. 💙

I have a lifetime to think about what a world without Alice in embodied form looks like. To have loved and been loved by her was one of the greatest privileges of my life. I will carry her spirit with me always.

Never call cops on the mentally ill. They kill us. Even when they don't, it ruins lives. In A&E I saw a manic middle aged son followed by 3 armed men and his sobbing mother, screaming that he disowned her cos she'd called police on him. She'd called for an ambulance not knowing it gets you cops.

I want a phrase for choosing to live life fully, fiercely, and happily in the face of violence. "Toxic positivity" is incorrect. I mean how Black people don't always talk oppression - yes, we know it's there. But there are cookouts and music and getting your nails done and laughter. There is JOY.

Some people asked for a transcription of @geschom.bsky.social truly excellent contribution on the problem of Psychologisation. This was for the German Society for Neurologists (DGN) conference a few days ago. Happy to oblige of course! English follows German. #MECFS #LongCovid #PAIS

The fucking irony of someone with “fix your hearts or die” in their bio making fun of the loss of a disabled elder to an infection after years of pleading for people to help keep her safe. You know your hero David Lynch died alone because nobody cared to protect him from COVID, either?

"Claiming *without evidence* that the course of the disease can be influenced by thought patterns shifts responsibility onto the individual, which can be mentally stressful & lead to both feelings of guilt & a feeling of not being heard." It's #Ableist & gaslighting as fuck!

The philosopher invited me to attend her lecture on applied ethics and as I sat in the audience waiting for it to begin a man sat down nearby and asked me why I was wearing a mask, and before I could stop myself I told him: “I’m applying ethics.”

After some hardcore protesting in Germany!! Well done‼️‼️🇩🇪🇩🇪 "The coalition plans to invest 500 million euros by 2036 in the fight against #LongCovid and chronic fatigue syndrome (#MECFS)." www.spiegel.de/politik/karl...

This person was infected with COVID twice and recovered. A 3rd infection brought manageable long COVID symptoms, but they were still able to work. After a 4th infection a few months ago, they haven’t recovered at all — showing how repeated infections can cause severe, lasting damage.

In other words the same outcome ("no" to running a test) can leave a patient feeling: ❌ Ignored, dismissed, belittled, unsupported, alone, angry, & generally negative Or ✅ Like they're part of the team, listened to, validated, content, & generally positive

Had an appt with my best dr today. I asked about a random test i want: ❓ He asked what the rationale is 🚧 He talked through the barriers he has ordering it ⚖️ We discussed if/how it would change our approach 🤔 He said he'll have a think I dont even care if the answer is no 🧵

The obvious is proven over and over again. Stop messing with a virus that damages the immune system. www.cidrap.umn.edu/covid-19/stu...

Germany’s Schön Klinik surveyed 3,345 people with long COVID. Only 36% saw improvement after nearly 3 years of symptoms. Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor. www.thieme-connect.de/products/ejo...

more minimising from uk govt

At the expense of our wild salmon and ecosystems which are irreplaceable. What value do we put on that? A truly disgusting industry, I've watched our wild salmon decline for 2 decades, the pic should show a poor disease ridden, half finned farmed fish. 😡 www.thenational.scot/news/2561510...

Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases. I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid. #Flu #Facts #Childhealth www.rcpch.ac.uk/resources/fl... #LongCovidKids

Jupiter says “Trans Rights Are Human Rights”

💚 OPEN LETTER TO @zackpolanski.bsky.social 💚 Long Covid is a crisis being silenced. Government denial is harming lives & livelihoods. We call for bold system change: patient-led care, biomedical research, centres of excellence & hope for those left behind. Full open letter 👇

Every personal attack. Every attempt to distract or to divide. It energises, strengthens and empowers our movement. Lower bills. Tax billionaires. Join us. www.theguardian.com/commentisfre...

Once every 20 years or so, the director-general of the BBC is forced to resign for being insufficiently rightwing. Alastair Milne in 1987. Greg Dyke in 2004. Tim Davie in 2025. The great irony is that the BBC was in all cases profoundly biased towards established power. But just not biased enough …

Catch me on BBC Newsnight at 10:30pm TONIGHT! 💚

Everything on our news agenda is being driven by a corrupted disinformation machine, run by a billionaire who sponsors Tommy Robinson and who keeps trying to foment civil war in the UK. And incredibly our MPs & news providers stay there. THAT is the problem. Not some bad editing choice on the BBC.

please sign and share widely! A "final" plan without funding is as useful as a chocolate teapot. #mecfs #me/cfs #myalgice #pwme

We are living in an unreal world. I stopped appearing on BBC television because of very obvious govt interference in the output. Was told before one broadcast that 'Downing Street' was unhappy with a particular story, so I shouldn't talk about it. BBC is fundamentally right-wing in its output /1

Thank you to the HCP who wrote to us about the real-world impact of our @decodemestudy.bsky.social study:

This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability Thank you @mecfsskeptic.bsky.social #MECFS #LongCovid @davetuller1.bsky.social

A long excerpt from this 1987 interview with Beth Bighley, a patient with chronic EBV, now known as #MECFS This could’ve been written by someone last year with #LongCovid and/or ME. “My parents' reaction was one of relief that I did have something physically. But also frustration, 1/

I remember when I became fully UBI pilled during the worst of covid and that position is a lock for life.

This is fucking brilliant, and you should read it: lithub.com/maybe-dont-t...

Both parties actively endorsed Andrew Cuomo and he STILL couldn't beat a vocally pro-Palestine, pro-trans, socialist, Muslim immigrant. The vindication I feel IS a part of that obvs coz I'm a petty little cunt. But I mostly feel intense joy and relief that another way has been shown to be possible.

When I found out that I'm intersex I knew, statistically, there were lots of other people like me out there, but only about a dozen were publicly visible. It has been a great joy to me to watch this movement grow over the decades and begin to exert real pressure for our human rights to be respected.

📈 The Green surge is real - and it’s shaking up politics. 💚 Join the movement that’s breaking the old parties: Join.greenparty.org.uk

Meine Expertise reicht für: – das bundesweite Psychotherapie-Netzwerk #MECFS – Forschungsbeiräte – die S2K-Leitlinie Long COVID – das BMG – die Charité Wo sie offenbar nicht reicht: Für Baden-Württemberg. Und schon gar nicht für Heidelberg. 😉 Also: Wieder Koffer packen für Berlin! 🧳

"Life changing policies" 1. You'll be poorer 2. Or destitute or dead, if you're disabled 3. If you're already poor, we're upping the likelihood that your kid will die 4. We're arresting your gran for terrorism, if she survived winter 5. Make Britain racist & queerphobic again! 6. Ban the trans

🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025): 👉 Long Covid with ME/CFS isn’t the same in women and men - biologically. 👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos. Let’s break it down layperson style 👇

Then limp away, rattling like half a tin of dried beans

Block on vibes. It'll make your life better. Someone follows and they vibe wrong? Block. Seriously. I don't give a shit about what I might miss out on. Life is better here mostly because of block culture. Echo chamber be damned. The world is saturated in neoliberal and hard right views. I see it.

How “pro-Britain” Facebook groups run from outside the UK are cashing in on anti-immigrant sentiment & sucking in Reform councillors. My latest for @theleaduk.bsky.social national.thelead.uk/p/reform-cou...

Hey everyone, I'm excited to share that AirFanta Wear is now live on air-fanta.com/products/air... You'll find a thorough product breakdown and a detailed video I made explaining a lot of things about it. (1/3)

Pretty decent article in the dutch magazine for psychiatrists about #POTS This is important considering POTS is a neurological syndrome that's often mistaken for a psychiatric illness. The article explains this very well. And it mentions ME + PEM! www.tijdschriftvoorpsychiatrie.nl/nl/tijdschri...

"The DWP Keep Britain Working review is an attack on disabled people" www.thecanary.co/uk/analysis/...

If you aren't yet thinking "AI must be destroyed" there is something wrong with you

This call is for everyone who cares about safe healthcare — not just professionals. Whether you’re a clinician, patient, caregiver, or simply someone who believes healthcare workers deserve real protection, your voice matters. Add your name here: docs.google.com/forms/d/e/1F...

The PCR positivity map is out, and you might notice something a bit different this week. From now onwards the map includes Scotland, using the same metric: PCR test positivity. jamestindall.info/skeuomorphol... 1/10