Closed for the holidays ✨ The charity will reopen on Monday, 5th January. Signposting to support during the winter break can be found here: on our 'Support During The Holidays' page of our website. www.longcovidkids.org/holiday-supp... #Christmas #Volunteer #Charity #Children #LongCovidKids

You can help @longcovidkids.bsky.social and Friends WIN a £1,000 donation prize in @easyfundraising.bsky.social 's giveaway this week! Sign up before the 21st December to give us an entry! Please get involved if you haven't already: www.easyfundraising.org.uk/promote-my-c... #Children #Christmas

Eden Byrne and Rosie Pidgeon, LCK youth ambassadors added their signatures to an open letter to NI Education Minister Paul Given. The letter from Clean Air campaigners highlighted the current disruption of schooling due to the spread of flu and called for a sustained effort to improve classroom

Our winter break newsletter will drop on Sunday. Learn more & book a space on the #EHCP session with @drsuepeters.bsky.social Sign up to our newsletter by clicking 'Join Our Newsletter' in the footer of our website: www.longcovidkids.org #Community #Christmas #Winter #LongCovidKids

You can help increase Long Covid Kids and Friends’s entries into @easyfundraising.bsky.social giveaway to win a £1,000 donation – every new supporter who joins is an entry! Sign up before midnight 21st December, it’ll only take two minutes: join.easyfundraising.org.uk/long-covid-k... #Christmas

Should the Northern Ireland government invest in rolling out air cleaners across schools to improve air quality? Please take a moment to take part in this poll. m.belfasttelegraph.co.uk/news/educati... #CleanAir #Education

#MeetTheYouthAdvisoryPanel 👋 Eli is a Youth Advisor, Youth Peer Facilitator & Communications Support ✏️🎮 “Hi, I’m Eli, I’m 19 and have had Long Covid for 5 years. I moderate and host the games for the Wednesday LCK Teen Connected sessions. #LongCovidKids #YouthAdvocacy #LongCovid #LivedExperience

We are building a resource hub that will support educators of children and young people with Long Covid and overlapping illness. Thanks to all our #volunteers who make this possible. www.longcovidkids.org/education-pr... #Education #Inclusion #EquitableEducation #SEND #Disability

Where and when do you wear a mask? Daniel Elkeles, chief executive of NHS Providers which represents NHS trusts, said the country was facing a “nasty” strain of flu. What have you noticed? Are more people wearing masks?

NEW @bmj.com "In our ongoing pursuit of effective treatments to restore quality of life in people with long COVID, honesty must remain a guiding principle." Congratulations to the authors. bmjopen.bmj.com/content/15/1... #Research #LongCovid

Over the last 12 mths our volunteers have helped us build a new website. The content for the CYP pages has been developed with children and young people living with Long Covid and overlapping illnesses. www.longcovidkids.org/what-is-long... We plan to develop this further in 2026. #LongCovidKids

We did it - thanks to you! 🧡 Reaching our @biggive.bsky.social target is a lifeline. Every pound (and every match!) goes directly to supporting families facing paediatric Long Covid, no services, no treatments, huge gaps in care. Your support means we can keep showing up, keep raising children’s

We have less than 24hrs of our BigGive #ChristmasChallenge, and our volunteer team along with many of our children and young people have been watching our total rise with so much excitement. We are so close. “The choir has given me new friends and a safe space to chat and sing” #Christmas2025

We have less than 24hrs of our BigGive #ChristmasChallenge, and our volunteer team along with many of our children and young people have been watching our total rise with so much excitement. We are so close. “The choir has given me new friends and a safe space to chat and sing” #Christmas2025

Dr Duncan, Consultant Cardiologist & Long Covid Research Clinician explains why Long Covid Kids need your help this Christmas. youtu.be/w1t5T-0ogQk 🔗Donate::https://donate.biggive.org/campaign/a05WS000006CNjmYAG Thank you @sunny-rae1.bsky.social 🙏 @biggive.bsky.social #ChristmasChallenge #LongCovid

🌟WOW 🙏 so much for all the kindness, encouragement, and generosity you’ve shown during our @biggive.bsky.social #ChristmasChallenge so far. Thanks to supporters like you, we’ve already reached 60% of our target, an incredible milestone for our small charity donate.biggive.org/campaign/a05...

It's like "being back in Covid times" after 170 pupils were off sick on 1 day alone. Numbers are expected to rise. Dr Joanne McClean, described the current situation as an "epidemic". www.bbc.co.uk/news/article... #CleanAir

"We hope this growing recognition will translate into meaningful support, not just for the families already affected, but for those who may need help in the months or years ahead" @sammiemc.bsky.social Founder & CEO, #LongCovidKids www.dorsetecho.co.uk/news/2567209... #Dorset #Christmas

🧵Lilo the #cat might look peaceful… but her stillness tells a story. Many children with Long Covid spend their days just like this ,watching life from the sofa, too exhausted to join in. LCK continues to advocate for better health and education support, but children need help today. #CatsOfTwitter

We woke up to this beautiful message today. 🧡 Help us keep supporting families: donate.biggive.org/campaign/a05... Thanks to Clara for the cheerful festive artwork, we love the #penguin. @biggive.bsky.social #ChristmasChallenge #LongCovid #LongCovidKids

On 28 November 2025, @bhattmurphy.bsky.social wrote to the Cabinet Office and the DHSC on behalf of the Long Covid Groups. Find out what asked of @10dowingstreet.bsky.social here: www.longcovidkids.org/post/letter-... #LongCovid #CovidInquiry #LongCovidKids #Christmas

"Both Aneurin Bevan and Cwm Taf Morgannwg University Health Boards have announced the return of mandatory mask-wearing on their sites, echoing practices widely used during the COVID-19 pandemic" www.walesonline.co.uk/news/wales-n... #PublicHealth #LongCovid #Wales @longcovidsupport.bsky.social

🫣EEEK! Our @biggive.bsky.social #ChristmasChallenge starts tomorrow, 2nd - 9th December. With your support we hope to reach more children and young people living with Long Covid in 2026 - `can you help us hit our campaign target of £17,500? Learn more: www.longcovidkids.org/christmas-ch...

🎁Just 3 days to go until the start of our @biggive.bsky.social #ChristmasChallenge! From 2 – 9 December, you can make one donation and have TWICE the impact via our campaign page. Learn more: www.longcovidkids.org/christmas-ch... #Christmas #BlackFriday

Over the last 12 mths we have seen an increase in requests from #caregivers & #education professionals. We have a small team working hard to add content each week, keep checking in to see what's new. www.longcovidkids.org/educational-... #CharityWebsite #Volunteers #WebsiteDesign #LongCovidKids

📢 #OverlappingIllness Alliance parliamentary drop-in update Over 50 MPs, Peers, and their colleagues attended the Overlapping Illness Alliance's drop-in event in Parliament yesterday! The event raised much need awareness and understanding of the impact of

"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021" www.youtube.com/watch?v=9817... #ChildHealth #LongCovidKids #LongCovid

🔸NEW #CLoCK paper 📍https://bit.ly/47W7tJI Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid. #PEM #PESE #PENE Coproducing research with enough patients, with relevant lived experience is vital in study.

👉 Please watch Lives Interrupted to hear directly from young people living with Long Covid. Their voices, with their message, deserve to be heard. (also on our YouTube) vm.tiktok.com/ZNdnq5UmG/ #TikTok #CharityFilm #LivesInterrupted

“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.

👉 #SaveTheDate We’re delighted to be taking part in Big Give’s #ChristmasChallenge! From 2–9 December, every donation you make to LCK will be doubled. That means twice the impact for children and young people living with Long Covid and overlapping conditions. 💚 #LongCovid #LongCovidKids

21 year old Eden Bryrne shared her lived experience with IDEA-FAST Eden is a valued member of our Youth Advisory Panel and assists with communications, she says: I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and

Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases. I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid. #Flu #Facts #Childhealth www.rcpch.ac.uk/resources/fl... #LongCovidKids

'Headteachers will be given the targets this month in an effort to boost attendance rates, which remain stubbornly below pre-pandemic levels.' We urge @bphillipsonmp.bsky.social to understand the additional pressure with will cause for CYP with health conditions. www.theguardian.com/education/20...

It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic. I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week. #Parenting #Information #Flu #Chidren #PostViralIllness

Even previously healthy children can become seriously ill with flu, the Royal College of #Paediatrics and Child Health (RCPCH) said. A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual. This is because

11am on the 11th of the 11th month. “When you go home, tell them of us and say, For your tomorrow, we have our today.” #wewillrememberthem #remembranceday🌹 #longcovidkids #lestweforget

🔔#SaveTheDate Soon, your generosity can go twice as far. From 2nd–9th December, every donation to LCK will be doubled through @biggiveorg #ChristmasChallenge! We are delighted to be taking part again this year - thanks to our match funders. If you’re ...

#WorldVentil8Day What’s the one thing you do everyday to improve your indoor air quality? Share your top tips! #CleanAir

“If we don’t invest in the health of children… we’re going to be seeing a carrying on of adults who are economically inactive.” Prof Steve Turner @rcpch.bsky.social www.thetimes.com/article/ed1d...

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children

A collaboration for progress makes me so happy! One voice sharing overlapping challenges to improve lives - what's not to love! #OIA #OverlappingIllnesses #JoinedUpAction

🌟Today we are proud to launch the Overlapping Illness Alliance. A coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Check out: www.overlappingillnessalliance.org.uk #OIA #OverlappingIllnesses #JoinedUpAction

🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries 🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10 🎨 Poster Title: “Understand We Need Your Support”

‘This large retrospective study shows moderate protective effect of severe acute respiratory coronavirus 2 vaccination against long COVID. The effect is stronger in adolescents, who have higher risk of long COVID, and wanes over time.’ publications.aap.org/pediatrics/a... #Longcovid

While raising vital funds Anita is shining a light on paediatric Long Covid - & the need for action. Her determination, despite living with the condition herself, is truly inspiring. Her words echo those we hear from CYP facing LC - they want to get on with their lives! #MondayGratitude

"I want to get busy," she says. "I want to get out there. "I want to be working, I want to be doing something." "Some days I can walk and walk, and then other days I get out of the house, take a few steps and say 'that's enough for today'." Anita www.bbc.co.uk/news/article... #LongCovidKids

🌊 60 Swims for 60 Years! 🌊 Incredible swimming teacher Sarah Sainsbury has completed over 60 outdoor swims this year to mark her 60th birthday — all to raise funds for Long Covid Kids Come rain, shine (and chilly water!) she’s kept going and www.justgiving.com/page/sarah-s...

‘Guidance from the NHS emphasises that your symptoms could worsen if you've been under stress or if you're more physically active. It adds that people battling long-Covid should "not start exercising again before talking to a GP or specialist"’ www.dailyrecord.co.uk/lifestyle/he...

The Clinical Post Covid Society is now called The International Post Covid and Post Infection Conditions Society. More info here: www.ipicsociety.org.uk