🚀2 days to go to watch our powerful new short in “ Lives Interrupted “: The Voices of Young People with Long Covid. You will hear from amazing young people. Huge thanks to Clara, Lucinda, Daniel, Ines and Olivia. #LongCovid #LongCovidKids #YoungVoices #YouthAdvocacy #Dance #COVIDInquiry

#Research Impact of COVID-19 #infection on the sleep of #infants and #toddlers Conclusion: Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers pubmed.ncbi.nlm.nih.gov/40993557/ #LongCovidKids #LongCovid #Sleep

The Herald @longcovidscot.bsky.social LCK Scotland have lodged a formal complaint with Audit Scotland, accusing the Scottish Government of lacking transparency and failing to effectively implement services amid clinic closures. www.heraldscotland.com/news/2549858... #Scotland #LongCovid

Could you write a story in just 500 Words? What you need to know 📝 500 Words is a creative writing competition for 5-11 year olds 📘 Stories need to be 500 words or less Spelling, punctuation and grammar are not marked! 📊 Closing date: Friday 7th November 2025 at 9pm www.bbc.co.uk/cbbc/joinin/...

We are pleased to confirm that @sammiemc.bsky.social Founder & CEO, LCK, will give evidence to the UK COVID Inquiry on the morning of Wednesday 1st October. covid19.public-inquiry.uk/hearings/chi...

In her #Blog Katie explains more about the masterclass she gave on the three key elements of #storytelling. "In my workshop, I first asked the participants to think of one word that encapsulated their Long Covid experience" www.longcovidkids.org/post/self-ex... #LongCovidStars #CreativeWriting

“Immunity debt” doesn’t exist, but immune damage does. Children are sicker now than pre-pandemic – many with disabling chronic illnesses. This cycle of harm can only stop when we accept reality – there’s no off ramp without cleaning classroom air. www.independent.ie/opinion/comm...

#LivesInterrupted: The Voices of Young People with Long Covid” launching in just 5 days. Young people with Long Covid urgently need support, policy changes and better research. Join our movement for change with our new film collaboration. #CombinationDance & #LongCovidKids #LongCovid #CharityFilm

🗓️ 29th September The start of the UK COVID Inquiry module 8, on Children & Young People. It will examine the impact of the pandemic on children & young people in England, Wales, Scotland & Northern Ireland. We be there. Join us outside. #COVIDInquiry #LongCovid #LongCovidKids

🚀In 6 days we launch "Now I have Long Covid I can't climb the stairs. I've been sleeping in my kitchen for 5 yrs. I can't wash myself, I have to have assistance, I can't make my own food I haven't seen anyone my age in person for 5 yrs." Combination Dance Company & LCK #LongCovidKids #Dance

🧵🔔 New COVID Variant Update for Parents Many families are asking: Should children with COVID-19 stay off school? 📌 NHS advice currently states that children should remain at home only if they have a high temperature or feel too unwell to take part in normal activities...... #COVIDstrain

🙏 to LCK trustee, Sarah Craner for her article 'Every Day Hurts: Reframing School Absence For Families Living with Chronic Illness' Out now in the special #SEND edition of Attendance Magazine. heyzine.com/flip-book/1f... #AttendanceMagazine #Attendance #Education #Disability #LongCovidKids

"Where are the headlines? Where is the help?” I hear these words from a young person in our new film and I can’t let them go. @ukcovid-19inquiry.bsky.social #LongCovidKids #LongCovid

7 days to go- a new film, a project close to our hearts, in collaboration with #CombinationDance Together, we’re giving young people with #LongCovid the voices & visibility they deserve. Because no child should be left behind. 🙏 @bendybrain.bsky.social @sedsconnective.org #Dancers #LongCovidKids

We are proud to have collaborated with Combination Dance to create a powerful new film launching in 8 days — giving young people with Long Covid the voices + visibility they deserve. Together, we can build a world where no child is left behind. 💕 @ukcovid-19inquiry.bsky.social #LongCovidKids #Dance

📣 This is your reminder to #test. ‼️ Please keep sick & infectious children at home. As our supoort group posts start to see the reality of back to school without mitigations / air filtration young people are getting reinfected. #Infections #reinfections #education

In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day. Made in collaboration with young people with lived experience. #LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm m.youtube.com/watch?v=e0U7...

I was talking about it again on Thursday, reflecting "We have just had a very long debate focusing on those digital safety issues, but, somehow, even despite the Covid pandemic, we have rather less focus on biological virus risks" hansard.parliament.uk/lords/2025-0...

An article published in the Metro today - The long Covid legacy: ‘People don’t want to think about us’ includes Avalyn Godfrey, who dreams of being a primary school teacher and has written a book to help educate children on Long Covid . metro.co.uk/2025/09/20/l... #YoungWriter #LongCovidKids

Jasmine is 16. She first caught Covid in Aug 2020. She took a couple of wks off school but found she couldn’t manage going back. After 1yr, she went back to school on a reduced timetable - after 2wks caught Covid again -her symptoms got worse. bit.ly/4nF3vu5 #CovidInquiry #LongCovidKids #Pandemic

Thanks to the generosity of festival-goers, we’re thrilled to announce Silkstead Sunflowers raised an incredible £1451.68 for LCK! www.longcovidkids.org/post/silkste... #Fundraiser #Charity #Support

"My name is Rachel and it was early in the first lockdown when I got ill. I was 12 years old and the message at the time was that Covid didn’t affect children, so I believed it" www.longcovidkids.org/post/my-chil... #YoungVoices #PatientVoices #LongCovidKids #LongCovid #PaediatricLongCovid

/1 Today the Inquiry has published a groundbreaking report📄based upon its Children and Young People Voices research project. Find out more 👇 📰 covid19.public-inquiry.uk/news/life-ch...

Part 1, In this clip from BBC Breakfast today, Avalyn speaks about her experience of the early pandemic, and the lasting effects #CovidInquiry #LongCovidKids #LongCovid @longcovidsupport.bsky.social @longcovidsos.bsky.social @longcovidphysio.bsky.social @sammiemc.bsky.social @helen-goss.bsky.social

“I enjoyed being in school, I enjoyed being social and seeing people, and then suddenly that was taken away from me very quickly," Avalyn says. Before long Covid, Avalyn says she was sporty at primary school and enjoyed acrobatics. www.bbc.co.uk/news/article... #CovidInquiry #LongCovidKids

Stunning performance by NI Stars at the @longcovidkids.bsky.social exhibition #WeAreStillHere opening today.

#WeAreStillHere #LongCovidKids

Watch Rosies interview clip here from BBC news. #Translink #Glider #NorthernIreland #LongCovid #LongCovidKids #CovidInquiry @baldypidge.bsky.social

Great to meet with you all and looking forward to ensuring support for children and young people, suffering with long covid is a priority here in Westminster.

This morning we had a productive meeting with @joplatt.bsky.social MP, Chair of the APPG on Long Covid to discuss the specific concerns of #children and #youngpeople living with #LongCovid. We look forward to progressing ideas to ensure the voices of young people with LC are heard. #YoungVoices

Rosie wants to make sure that all wheelchair users can use the Glider (bus) with confidence. “I value my independence and just want to be able to travel to and from college without any worry or stress." www.bbc.co.uk/news/article...

For some children and young people, a COVID-19 infection can result in #PANS, that's why we are pleased to share this wonderful event from our colleagues at @panspandasuk.bsky.social panspandasuk.org/conference25/ #PansPandasAwareness #PansPandas #LongCovidKids #LongCovid #Community

Listen from 15.47 to better understand why #attendance figures are dropping. It's not choice or reluctance. Young people are doing their best to study - even when they aren't supported in school.... Well done Aveline. @bphillipsonmp.bsky.social #Education #LongCovidKids #LongCovid

Listen in to 16 year old Aveline talking about her experience of Long Covid on Jeremy Vine, Aveline stopped attending school in year 10 - she became so ill she couldn't attend and is now working towards a few GCSE's at home. www.youtube.com/watch?v=Qekn... 🙏 @abrokenbattery.bsky.social

#Research "The severity of #neuropsychiatric symptoms during the acute phase may predict the degree of chronic-phase brain volume alterations. Longitudinal follow-up studies are essential to validate and expand upon these findings" www.pedneur.com/article/S088... #LongCovidKids #Paediatric

🎶 Today’s the day! 🎶 The LCK Choir is back tonight at 5pm (UK time) 💛 Come join us to sing, connect, and lift each other up. ✨https://www.longcovidkids.org/book-online #Choir #LongCovidKids #MECFS #MyalgicEncephalomyelitis #PoTS #LongCovid #Sing

#WeAreStillHere, a new exhibition curated by Rosie and supported by @LongCovidKids . The work has all been hung. Opening next week!

“Dr. Stockwell says she and her fellow RECOVER researchers have a responsibility to share information widely to ensure that doctors understand what Long COVID looks like in children.” recovercovid.org/news/shared-... #Recover #LongCovidKids #LongCovid

🍂Brighten up your coat and help us raise awareness this Autumn with a colourful LCK awareness pin. 🔗Check out our shop www.longcovidkids.org/shop #CharityBadge #CharityPin #AutumnVibes

We are proud to have supported the @ukcovid-19inquiry.bsky.social since its launch. On 29th September, hearings for the Children and Young People Module will begin. This moment is the culmination of months of dedicated preparation with our legal team, led by Jane Ryan of Bhatt Murphy, and a vital

'Just listen to us. Listen to us, please.' Children and young people across Scotland have shared their experiences with #LetsBeHeard. From missing school transitions to gaining independence, their experiences will inform how we prepare for the future: www.covid19inquiry.scot/report/voice...

Our submission to the Education Committee's inquiry, Solving the SEND Crisis is now published on the committee’s website. 🔗https://committees.parliament.uk/writtenevidence/135905/pdf/ #Education #SEND #SENDcrisis #COVIDInquiry #LongCovidKids #LongCovid @joplatt.bsky.social

Just released! Issue 14 of WHN’s Kids’ Zone COVID-Conscious Magazine is out now — the Back to School Clean Air Edition. This month’s issue is packed with fun and important content for kids and families, including clean air in schools, short stories, tips for celebrating safely, and much more.

In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day. Made in collaboration with young people with lived experience. #LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm m.youtube.com/watch?v=e0U7...

In this BBC NEWS article @bphillipsonmp.bsky.social 'stressed that schools were asked to take a "support-first" approach and work with parents where there were wider issues affecting a pupil's attendance' 🙏How is this working for your family? Comment below. www.bbc.co.uk/news/article...

What is the UK COVID-19 Inquiry? Information aimed at helping children and young people under 12 years understand Module 8. longcovidkids.org/so/d6PZxN6fZ... #COVIDInquiry #LongCovidKids #LongCovid

#Newsletter Announcing Our Competition Winners & What Is The UK COVID-19 Inquiry? longcovidkids.org/so/d6PZxN6fZ... @longcovidsupport.bsky.social @longcovidsos.bsky.social @longcovidphysio.bsky.social

#Cleanair helps prevent airborne infections, and this helps prevent Long Covid. Artwork here from children with long Covid illustrates their experiences.

📢We are proud to announce the LCK Poster Design Competition winners 2025! 🏆 Overall Winner: Michael J, Age 17 “I’m Not Fine,” immediately caught the attention of our judges- a bold visual style and powerful message, showing that even when someone looks fine, they may not be.

Link to Rosie's forthcoming exhibition, supported by and in collaboration with @longcovidkids.bsky.social Really looking to this. Lots on fabulous new work, including a follow-up to her best known piece, the Rona Lisa. millenniumcourt.co.uk/long-covid-k...