Today, the @ukcovid-19inquiry.bsky.social announced plans for the future of the Every Story Matters archive, the largest public engagement exercise in UK inquiry history. These powerful testimonies are a vital record of how lives across the UK were changed, in many cases, forever. #ListenToChildren

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#Blog A parent shares what recovery would look like for them. "For Tracey to enjoy a meal or be able to join in on conversations - and without having to constantly ask people to repeat themselves,” she says. “ -just for her smile to come back.” www.longcovidkids.org/post/tracey-... #LongCovidKids

Whilst pleased that children and young people have been recognised in this latest report, our CEO @sammiemc.bsky.social hopes it leads 'to stronger, clearer recommendations' in Module 8, which focused on children and young people. #LongCovid #HealthPolicy #Dorset #LongCovidKids #ChildrensRights

We welcome the @ukcovid-19inquiry.bsky.social recognition of children & young people with Long Covid, for many families, this is deeply validating. We trust this is a step towards a future where CYP are recognised, supported, treated and able to thrive alongside their peers. #LongCovid #Children

NICE is clear that Bacterial Meningitis and meningococcal disease are transmitted by aerosol, droplets. The @ukcovid-19inquiry.bsky.social report published yesterday (1.58) says: "It is no longer appropriate to rely on this dichotomy. References to cut-off points based on particle size and the

We welcome the @ukcovid-19inquiry.bsky.social recognition of children & young people with Long Covid, for many families, this is deeply validating. We trust this is a step towards a future where CYP are recognised, supported, treated and able to thrive alongside their peers. #LongCovid #Children

The Long Covid group are now calling on the Government and devolved administrations to urgently address the ongoing failures in care. #LongCovid remains a significant public health challenge, affecting millions today with new cases emerging with each new wave. www.longcovidkids.org/post/long-co...

Today at 12pm, the UK Covid-19 Inquiry will publish its third report: ‘The impact of the Covid-19 pandemic on the healthcare systems of the United Kingdom’ (Module 3). Read our collective press release here: www.longcovidkids.org/post/long-co...

Today the @ukcovid-19inquiry.bsky.social will publish the report for Module 3. We will share updates as soon as possible. #LongCovidAwareness #UKCovidInquiry #Module3

Today, alongside Long Covid Kids, Long Covid SOS and Long Covid Physio, we release our demands ahead of the release of the UK Covid-19 Inquiry report on Module 3 (due on Thursday 19 March). Read the press release on our website: www.longcovid.org/impact/news/... #CovidInquiry #LongCovid

“Before I got ill I was active and independent" Molly, aged 17, describes things many people never have to think about, standing up, concentrating, eating, or leaving the house, can suddenly become incredibly difficult. www.dorsetecho.co.uk/news/2593333... #LongCovidKids #LongCovidAwareness

I’m marking International Long Covid Awareness Day by supporting children and young people living with Long Covid. @longcovidkids.bsky.social

“Before I got ill I was active and independent" Molly, aged 17, describes things many people never have to think about, standing up, concentrating, eating, or leaving the house, can suddenly become incredibly difficult. www.dorsetecho.co.uk/news/2593333... #LongCovidKids #LongCovidAwareness

Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

More than 1,000 people across the UK have written to MPs calling for greater recognition of the condition in children and young people, as part of a national campaign. www.dorsetecho.co.uk/news/2593333... #LongCovidAwareness #Dorset #LongCovidKids #LongCovid

On Friday, @longcovidkids.bsky.social Youth Advocate, Rosie (my daughter) met with @robbiebutlermla.bsky.social at Stormont to explain the challenges she faces with #LongCovid

🩵 Children with Long Covid are still waiting to be believed. Six years after the pandemic began, too many young people are still fighting for recognition, healthcare and support in education. Today we’re sharing messages created by young people themselves. bit.ly/4s9AV6t #LongCovid #LongCovidKids

🎥 “We’ve been really left on our own.” In new footage, journalist Lise McNally speaks to families about the reality of living with Long Covid and the urgent need for greater support. 🔗 Watch the full footage www.itv.com/news/granada... #LongCovid #LongCovidKids #LongCovidAwareness #ChildHealth

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

What about this combo! Music by @merelpianist.bsky.social, Frankie Morland and the Long Covid Kids choir. Graphic novel from our research collaboration - made by young people, for young people. www.longcovidkids.org/post/covid-m... #LongCovidAwareness #LongCovidKids #Choir

Join us on Wednesday, May 6, 2026 from 12:30pm to 2:30pm EDT for a free, online post-Forum Fireside Chat. Engage in discussion with our 2026 Forum speakers and panelists! Visit tinyurl.com/yc5ddrnt for more information and registration details.

Politicians claim to want to get kids back to school and adults back to work but fail to grasp the health impacts of the pandemic. Chronic illness is devastating families and costing the UK billions. Germany invests half a billion but the UK closes all the long covid services and ignores the crisis

Today we’re launching our new Policy & Parliamentary page. Visit our website to read the full policy briefing, citations and policy priorities. 🔗 linktr.ee/LongCovidKids 📣 Tag anyone who should read it, or let us know who you’ll be sharing it with. #LongCovidKids #LongCovidAwareness #Policy

Today we’re launching our new Policy & Parliamentary page. Visit our website to read the full policy briefing, citations and policy priorities. 🔗 linktr.ee/LongCovidKids 📣 Tag anyone who should read it, or let us know who you’ll be sharing it with. #LongCovidKids #LongCovidAwareness #Policy

Six years on, children living with #LongCovid are still fighting to be recognised. Today we stand with #children and #youngpeople around the world living with Long Covid. This movement began with #families. With children.

🩵 This is what collective action looks like. Over 1,000 messages sent to elected representatives across the UK. This is the power of coming together. 🔗 www.longcovidkids.org/post/invisib... #LongCovidKids #LongCovidAwareness #InvisibleToPolicy #ChildHealth #Advocacy

Help heat up this map! Thanks to your support, nearly 1200 emails sent so far. Stand with children with Long Covid? 📍https://www.longcovidkids.org/post/invisible-to-policy-visible-in-children-s-lives-long-covid-kids-march-2026 #LongCovidAwareness #LongCovid #ChildrensRights #LightUpForLongcovid

#Blog Add your voice to our call for action; support children with Long Covid and overlapping illnesses. www.longcovidkids.org/post/invisib... #LongCovidKids #LongCovidAwareness #LongCovid #ChildrensRights

We haven’t seen many narratives about — or for — kids whose family members have #LongCOVID. Author and educator Sara Robitaille seeks to change that with her two new children’s books, Long COVID Transformed My Mommy and Long COVID Transformed My Sister into a Turtle. bit.ly/4csWXfE

Three brand-new resources, created by #YoungPeople and for young people, have just been launched, and we believe they have the power to make a real difference to the lives of #children and #families living with #LongCovid. www.longcovidkids.org/post/covid-m... #LongCovidAwareness #Resources

Less visible than a racing heart. Less visible than inflamed vessels. Children are living with it. Long Covid. #EveryHeartbeatCounts #LongCovidAwareness #LongCovidKids

If you believe children cannot afford another year of inaction, please consider making a donation today, or becoming a regular supporter to help sustain this work for the long term. Supporters like you make this possible. bit.ly/405gICH #LongCovidAwareness #LongCovidKids #LongCovid #Donate

🩵 Invisible to policy, visible in children’s lives. We welcome and thank @anneliesedoddsmp.bsky.social MP for raising the question in Parliament about the impact of #LongCovid on young people who are not in education, employment or training #NEET. This conversation matters. #LongCovidAwareness

Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe #LongCOVID and Myalgic Encephalomyelitis (#ME). 🧵 youtu.be/pk00btt7CVs?...

Use the template to let your MP/MSP/MLS/MS know children need their support. Westminster: longcovidkids.eaction.org.uk/awarenessday Holyrood: longcovidkids.eaction.org.uk/awarenessday... Senedd: longcovidkids.eaction.org.uk/awarenessday... Stormont: longcovidkids.eaction.org.uk/awarenessdayni

Tens of thousands of children across the UK, & millions globally, are living with persistent, life-altering symptoms following COVID infection. This means disrupted education, reduced attendance, falling attainment & a loss of everyday childhood. #MakeItVisible #LongCovid #LongCovidKids

🩵 March marks International Long Covid Awareness Month. We’re turning our feed blue to shine a light on #LongCovidAwareness. We’ll be driving action, spotlighting resources and information to raise awareness of Long Covid and overlapping illnesses in children and young people. #LongCovidKids

Children need our advocacy! Please take this simple step to raise awareness , drive action and start the conversation with your MP. #LongCovidKids #LongCovidAwareness #LongCovid #LongCovidAwarenessMonth longcovidkids.eaction.org.uk/awarenessday

You can sign up to our #Newsletter at anytime to find out what's going on. Find the link in the footer of our website. The next one drops tomorrow and includes all the sessions hosted by Chloe and Christina from @uninorthampton.bsky.social Limited spaces #LongCovidAwareness #OccupationalTherapy

Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

The new @departmentforedu.bsky.social guidance on ventilation and air quality is a step in the right direction. We welcome the recognition that clean air matters in school, something LCK has been campaigning on since the start of the pandemic, when we saw first-hand the direct and #CleanAir

We’re excited to have launched a co-produced graphic novel developed by young people & researchers in collaboration with illustrators. Highlighting the lived experience of young people with Long Covid & the power of creative research. Here’s a sneak peek of Chapter 1 www.lshtm.ac.uk/covid-made-l...

Researchers found that, on average, the risk of Long Covid was higher after a 2nd infection compared to a 1st infection. Why this matters: • It strengthens the evidence that #LongCovid in young people can affect more than one system in the body. #LongCovidKids #ChildrensRights

#EPIVINF Webinar Epigenetic Changes in Children and Adults Following SARS-CoV-2 Infection 📅 Date: March 26 🕒 Time: 2:30 PM (online) @buonsenso.bsky.social www.epivinf.eu/event/epigen... #LongCovid #LongCovidKids #Epigenetics #children #SARSCoV2

"I would feel really bad, then I would do something as I was feeling better, but it would never really get better in a way. Then that started to persist and then impact my performance" Kyle Cooper shares his health experience, he was a nationally ranked triathlete. www.youtube.com/watch?v=j-od...

New review identifies 41 measurable biomarkers in children & young people with #LongCovid #Biomarkers = physical signs in the body (like immune or inflammation changes) that show a condition is biologically real. link.springer.com/article/10.1... 🙏 to @buonsenso.bsky.social & Bettina Camara. 💙

"Don't EVER Stop" "Don't keep this hidden" "There are people who care about you" This #podcast is really worth a listen. #LongCovidKids #LongCovid #PatientAdvocacy #Family #ChildrensRights #Parenting #LivedExperience @longcovidkids.bsky.social @longcovidfam.bsky.social

#Podcast Thank you to Darya, and her Mum Elham Safani Raker, for sharing their experience. Together, they speak openly about school, friendships, identity, and the toll that this type of chronic illness takes during adolescence podcasts.apple.com/gb/podcast/e... #longcovid #childhood #GrowingUp

Thank you to everyone raising donations for Long Covid Kids and Friends with #easyfundraising! Not joined yet? Sign up to easyfundraising and when you shop online with your favourite brands, they’ll donate to us. Sign up today: join.easyfundraising.org.uk/long-covid-k...