11am on the 11th of the 11th month. “When you go home, tell them of us and say, For your tomorrow, we have our today.” #wewillrememberthem #remembranceday🌹 #longcovidkids #lestweforget

🔔#SaveTheDate Soon, your generosity can go twice as far. From 2nd–9th December, every donation to LCK will be doubled through @biggiveorg #ChristmasChallenge! We are delighted to be taking part again this year - thanks to our match funders. If you’re ...

#WorldVentil8Day What’s the one thing you do everyday to improve your indoor air quality? Share your top tips! #CleanAir

“If we don’t invest in the health of children… we’re going to be seeing a carrying on of adults who are economically inactive.” Prof Steve Turner @rcpch.bsky.social www.thetimes.com/article/ed1d...

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children

A collaboration for progress makes me so happy! One voice sharing overlapping challenges to improve lives - what's not to love! #OIA #OverlappingIllnesses #JoinedUpAction

🌟Today we are proud to launch the Overlapping Illness Alliance. A coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Check out: www.overlappingillnessalliance.org.uk #OIA #OverlappingIllnesses #JoinedUpAction

🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries 🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10 🎨 Poster Title: “Understand We Need Your Support”

‘This large retrospective study shows moderate protective effect of severe acute respiratory coronavirus 2 vaccination against long COVID. The effect is stronger in adolescents, who have higher risk of long COVID, and wanes over time.’ publications.aap.org/pediatrics/a... #Longcovid

While raising vital funds Anita is shining a light on paediatric Long Covid - & the need for action. Her determination, despite living with the condition herself, is truly inspiring. Her words echo those we hear from CYP facing LC - they want to get on with their lives! #MondayGratitude

"I want to get busy," she says. "I want to get out there. "I want to be working, I want to be doing something." "Some days I can walk and walk, and then other days I get out of the house, take a few steps and say 'that's enough for today'." Anita www.bbc.co.uk/news/article... #LongCovidKids

🌊 60 Swims for 60 Years! 🌊 Incredible swimming teacher Sarah Sainsbury has completed over 60 outdoor swims this year to mark her 60th birthday — all to raise funds for Long Covid Kids Come rain, shine (and chilly water!) she’s kept going and www.justgiving.com/page/sarah-s...

‘Guidance from the NHS emphasises that your symptoms could worsen if you've been under stress or if you're more physically active. It adds that people battling long-Covid should "not start exercising again before talking to a GP or specialist"’ www.dailyrecord.co.uk/lifestyle/he...

The Clinical Post Covid Society is now called The International Post Covid and Post Infection Conditions Society. More info here: www.ipicsociety.org.uk

#LongCovidStars 💫From the artist: ‘My piece, Shattered, is a combination of both my love for sci-fi & my experience of having to navigate the fragments of my life Long Covid has broken me into. My experience has taken quite a lot of my life, between my love for theatre, to my ability

“I contracted a post-viral condition in 2019," she said. "I'm okay now, but I saw first-hand that medicine does not always have answers to the consequences of even minor viruses. The 🦠 pandemic has thrown that into sharper relief."  www.hellomagazine.com/healthandbea... #Parenting #LongCovidKids

The NHS has updated its advice on when to seek medical help if you, or someone you know, has Covid symptoms. If you’re feeling unwell, it’s a good idea to take a COVID test. If the result is positive, let your healthcare provider know — keeping a record may be useful for your future care.

‘Unless we rethink what education is for – and how we support pupils to engage with it – thousands of young people will be denied their potential.’ theconversation.com/children-wit... #Education #Childhood

💫5 years on, the LCK #Support Group continues to connect, inform & empower families caring for children with long-term effects of 🦠. Built on truth, compassion & lived experience, and still going strong - committed to our mission for CYP. 👉 www.longcovidkids.org/parents-care... #LongCovidKids

Children with Long Covid Heard At The UK COVID Inquiry | Long Covid Kids | 23rd October 2025 Available on #YouTube & #TicTock www.youtube.com/watch?v=3wT4... #LongCovidKids #LongCovid @longcovidsupport.bsky.social

Find us on #TikTok #LongCovidKids vm.tiktok.com/ZNdv7YFaA/

#LongCovidKids Closing Subs to the UK #COVIDInquiry Sarah Hannett KC "failures constitute an ongoing breach of the government's duty to place the best interest of children at the heart of their decision making and to respect the human rights of those children & their families" #ChildrensRights

Harbinder said: “The whole focus has been on a few months of lost learning. My children haven’t been well enough to go back to school for the last three years. We are not even on the radar. It’s almost as if we don’t exist.” www.mirror.co.uk/news/uk-news... #LongCovidKids #LongCovid #COVIDinquiry

Our barrister Sangeetha Iengar questions Mark Drakeford - Former 1st Minister of Wales Q - Would you agree, and I think it follows that from the end of 2020 onwards - the impact of Long COVID on children should have been factored into the Welsh Governments pandemic response? #Wales #COVIDInquiry

Prof Catherine Noakes On the route of transmission "So we know it is a respiratory transmission at the early days of the pandemic the specific mechanisms were unclear, but it was still early days" " respiratory transmission means the virus is emitted from people's exhalation" #CleanAir

Prof Viner on the Schools Infection Survey June 2020. "which found almost no infection at all in those open schools" "which you can either take as being incredibly successful, closures/lockdown or as evidence of very little transmission happening in schools at that time" #Education #CovidInquiry

#LongCovidStars 🌟✨ From the artist: Jay Jaitly Mcdonald ‘I have had Long Covid for 3 years. Every time I feel better I get worse again. I wanted to do a roller coaster to show how Long Covid symptoms go up and down all the time and keep changing. I used balloons to show #LongCovid #LongCovidKids

Scarlet says she has seen the impact on young people her age - sick or not. She wants #BorisJohnson to apologise and take responsibility - but says she didn’t see it from his evidence today. #YouthAdvocacy #Children #Inquiry #LongCovidKids

Our KC, Sarah Hannett asks CMO Sir Chris Whitty Q - Why wasn’t there a further public statement issued on the risks of paediatric Long Covid, particularly that it hadn't been identified in Aug 2020? #LongCovid #LongCovidKids #COVIDinquiry #ChildHood #Parenting @netmums.bsky.social @mumsnet.com

This is what leadership looks like. Thank you @london.gov.uk @sadiqkhanlondon.bsky.social Who is next? #CleanAir #Education #Leadership

"It makes me feel like my school cares about me and how my breathing is. Funmi, age 11 London schools get @smartairuk.bsky.social filters. Infection risks will reduce. Learning environments will be healthier. #Education supports #Health Thank you @sadiqkhanlondon.bsky.social 👌 #Leadership

🌟✨ From the artist: Elizabeth Jelley ‘This #artwork is a representation of what my life has become and what I no longer can do because of Long Covid. The news articles in the background showcase how I must constantly be aware of any news on my condition. The shadow figures #LongCovidKids #Artwork

@cathnoakes.bsky.social how much longer do we have to wait for Bradford to be published? At C19 inquiry today @DfE says that’s what they’re waiting for. Please tell us it’s soon @unisoninschools.bsky.social @longcovidkids.bsky.social

‘Long Covid Is Real - And It’s Changing An Entire Generation’ www.rollingstone.com/culture/cult... #LongCovidKids #LongCovid #RollingStone

Clara, age 11 says "I feel exhausted, sometimes I can't get out my bed, I have to use a wheelchair, I have to be on a part time timetable at school but sometimes I don't get in for that, I don't see a lot of my friends" UK #COVIDInquiry 🙏 @channel5bluesky.bsky.social

Asked about providing guidance to schools re #LongCovid Gavin Williamson suggests providing no information was better than incorrect information. It appears this extended to not even confirming its existence leaving families we support subject to disbelief and fines #CovidInquiry

Gavin Williamson assessment on “obstacles” to kids returning to schools in January 2021 - I didn’t think it was justified - Covid wasn’t going to have an impact on children’s health - we had good understanding on which were vulnerable to covid. #LongCovidKids #CovidInquiry

Currently almost three weeks in to Covid in our house. The results of these inactions are still playing out 5.5 years later in our damaged immune systems.

Module 8, UK COVID Inquiry, Sir Gavin Williamson. "there were failures" Talking about the pandemic "the government not really grasping the enormity of that" #Education #CovidInquiry #

Today, the former Secretary of State for Education will give evidence to the U.K. COVID Inquiry. Our legal team will have an opportunity to ask questions on behalf of #Children with Long Covid. 5 years on CYP are still suffering with symptoms that impact their lives. #Education #LongCovidKids

Indra Morris DfE Module 8 UK COVID Inquiry Indra's question in a cabinet office meeting. Her Q - "What about children?" She states: "The response was basically that we are focusing on a health pandemic children are not at risk in the same way"

Congratulations from all of us at LCK to @sammiemc.bsky.social for this recognition, and her invitation to #WomenOfYear2025 #WOY2025 #WomenInspiringWomen #LongCovidKids #LivedExperience #Charity #Children

Vicky Ford, Parliamentary under Secretary of State for DfE. "If the question is there have been more planning pre-pandemic ? then the answer is obviously Yes" #Education #Childhood #Children #Planning #LongCovidKids

New preprint Authors conclude: “The increased microclot burden in pediatric LC supports the role of microvascular dysfunction and persistent viral antigens in pathogenesis.” www.researchsquare.com/article/rs-7...

This #FundraisingFriday we’re asking for your help - set yourself a challenge so we can reach more young people like Simon, who hasn’t been able to attend school since September 2021. Read Simon’s full story here: www.longcovidkids.org/post/simon-s... #LongCovidKids #LongCovid #Charity #Children

The Expert Paediatric Long Covid Report requested by the UK COVID Inquiry is now available on our website. Submitted by Dr Terry Segal and Professor Elizabeth Whittaker www.longcovidkids.org/uk-covid-inq... #PaediatricLongCovid #LongCovidKids #LongCovid #ExpertReport #COVIDInquiry

New research shows children and adolescents face a significantly higher risk of Long Covid after COVID-19 reinfection, while the @ukhsa.bsky.social reports 🦠 activity is rising and circulating at medium levels. The risks are ongoing we cannot look away. #LongCovidKids #LongCovid

The amazing Ruth, Poppy's mum, is running the #ManchesterMarathon for LCK Poppy says: 'Please sponsor my mum because she’s the only one who understands me and always looks after me even though she’s got lots of other jobs to do.' www.justgiving.com/page/ruth-ro... #Running #Runner #Charity

#UKHSAVirusWatch is back, a summary of our weekly winter surveillance report .🦠🧵 This week's data shows an increase in COVID-19 activity, which is circulating at medium levels. Flu activity has also increased, particularly in those aged 15 to 24, but remains at baseline levels.

🧵Understanding How the UK COVID Inquiry Handles Questions We know that many of you are feeling frustrated that some of the key questions we hoped would be asked in the Covid Inquiry haven’t yet been put to witnesses. We completely understand and we share that frustration. We