These beautiful wordclouds were created by a member of our community, Nessa, who has kindly shared them with us for #LongCovidAwarenessMonth to help others understand a little more about what life with Long Covid can be like. 💙 1/

Today’s Covid-19 Inquiry Module 3 report laid bare serious failures in healthcare and in the response to Long Covid. #LongCovid #CovidInquiry 1/2

❤️‍🩹 If you are living with Long Covid, you may know how unsettling heart symptoms can be. Many people living with Long Covid experience palpitations, dizziness, breathlessness, or a racing heart. 1/2

Think Global Health has reported on the closure of Long Covid clinics across the country despite millions still living with Long Covid. 🔗 Read the full article here: www.thinkglobalhealth.org/article/engl... #LongCovidSupport #LongCovid #LongCovidClinics #LongCovid Awareness

1/2 ✨💛 Our Long Covid Stories series continues with Naomi's story. "Friends have been keen to underline that our relationship isn't one of dependence, but of interdependence."

Today, alongside Long Covid Kids, Long Covid SOS and Long Covid Physio, we release our demands ahead of the release of the UK Covid-19 Inquiry report on Module 3 (due on Thursday 19 March). Read the press release on our website: www.longcovid.org/impact/news/... #CovidInquiry #LongCovid

Jo Platt, MP for Leigh and Atherton and Chair of the All-Party Parliamentary Group (APPG) on Long Covid, shares her own experience of Long Covid. #LongCovid #LongCovidAwareness #LongCovidSupport

The theme for International Long Covid Awareness Month is Every Heartbeat Counts, highlighting how Covid can affect heart health. We're sharing some information from our friends at @PoTSUKCharity, who support people with Postural Tachycardia Syndrome. 1/3

❤️‍🩹 A THANK YOU TO OUR COMMUNITY ❤️‍🩹 Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact. 1/3

A huge thank you to everyone who came along to the recent Long Covid support group in Cheshire, baking, donating, contributing raffle prizes and helping make the event such a success. Those cakes looked absolutely incredible! The event raised an amazing £176 for Long Covid Support.

PART 5 - What should care look like for Long Covid patients? Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, shares his thoughts on what the standard of care should be for Long Covid patients. #LongCovid #LongCovidAwareness

The All-Party Parliamentary Group (APPG) on Long Covid AGM is taking place this month. 📅 Tuesday 24 March 2026 #LongCovid #APPG #APPGonLongCovid

We're thrilled to have raised £104 so far in our '£6 for 6 years' fundraising campaign - but it's not too late to donate! If you're able, please support our Long Covid Awareness Month fundraiser. You can donate quickly and securely here: www.justgiving.com/campaign/lon... #LongCovidAwarenessMonth

PART 3 - What do we need to find treatment for Long Covid patients? Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, shares his thoughts on what's needed to find treatment for Long Covid patients. #LongCovid #LongCovidAwareness

Today is the annual Covid-19 #DayOfReflection. 6 years have passed since the start of the pandemic. We reflect today, alongside our community, on the people who lost their lives to Covid-19; the people who still face day-to-day impacts; and on the road ahead. #Covid19 #DayOfReflection #LongCovid

PART 2 - Prevalence of Long Covid Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains why the number of Long Covid cases in the UK is increasing . #LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

This year's annual Covid-19 #DayOfReflection takes place on Sunday 8 March, remembering those who have lost their lives since the pandemic began 6 years ago. Head to dayofreflection.campaign.gov.uk to find out about local events you can attend in your area. #Covid19 #LongCovid #DayOfReflection

PART 1 - What is Long Covid? Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is. #LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

⭐ Long Covid Awareness Day - Sunday 15 March 2026 How can you help? Donate, Learn and Share so we can continue our work in research, advocacy and support to help those living with Long Covid. Donate using this link: www.justgiving.com/campaign/lon... #LongCovid #LongCovidAwarenessDay

March is International Long Covid Awareness Month - and the theme this year aims to highlight how Covid can affect heart health. Experiencing symptoms and don't know where to start? Join our Facebook Support group to connect with others 🩵 🖤 💚 #LongCovidHeartbeats #LongCovidAwarenessMonth

“We are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month. Read: www.bbc.co.uk/news/article... #LongCovid #LongCovidClinics

Join us for our monthly In-Person Long Covid Support Group in Birmingham. Free session for people with Long Covid to connect and support each other. 📅 Friday 20 March 2026 ⏰️ 11am to 12pm 📍 Sense TouchBase, B29 6NA Next session: Friday 24 April 2026

1/ Our Chair, Nigel Rothband (centre), recently met with partners in the Overlapping Illness Alliance to move our shared advocacy work forward. Together, we focused on how to improve recognition and strengthen support for people living with overlapping and under-recognised conditions.

Happening today at 6pm GMT youtube.com/live/V8VWgLC...

⭐ Episode 29: Vitamin B12 - Could it help me? ⭐ Long Covid Clinic: Fireside Chat Series 📍 YouTube live 📅 Wednesday 11 February ⏰ 18:00 GMT 🎥 This session will be recorded for those unable to attend live.

Great to see @laylamoran.bsky.social paying attention to the ongoing challenges faced by millions with #LongCovid. Let’s hope this leads to much needed action by the Health & Social Care Committee. Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!

Really welcome seeing Long Covid Kids, @longcovidsupport.bsky.social & @longcovidsos.bsky.social all signposted to in this new community pharmacy resource on #LongCovid from the @cppeengland.bsky.social (CPPE). www.cppe.ac.uk/programmes/l... #LongCovidKids #CPPE #PatientAdvocacy #Resources

Long Covid Lives has been produced from research undertaken by the Covid Made Long Project at the London School of Hygiene and Tropical Medicine in partnership with @imperialcollegeldn.bsky.social , @longcovidkids.bsky.social and @longcovidsupport.bsky.social @posnegorg.bsky.social

As we begin 2026, we wanted to pause and look back on 2025 and the work we’ve done alongside the Long Covid community. Our work spans Research, Influence and Support. Thank you so much to everyone who supported us in 2025. We’re heading into 2026 with the same determination to drive change.

So encouraging to see in-person Long Covid support growing. If you’re nearby, the next group is on 5 February. Huge thanks to Fleur for leading.

We had such a lovely first in-person Long Covid support group in West Cheshire 💛 Thank you so much to everyone who came along. Next group will be on 5th February (details via link below. The sessions are led by Fleur Roberts, a former NHS Wellbeing Coordinator - we are so grateful for Fleur!

Reminder! Happening today at 8pm GMT. It will be recorded if you cannot join the live session. @binitakane.bsky.social

1/ Episode 28: Long COVID Clinic Fireside Chat Series ⭐ Navigating the health-info minefield 📅 Wed 21 Jan ⏰ 20:00 UK time 🎥 YouTube Live 🔗 youtube.com/live/W3fKUyl... #LongCOVID #MECFS

Today we’re launching #ForThoseWhoCant, a new community fundraising campaign from Long Covid Support. Many people living with Long Covid can’t fundraise themselves. This campaign is about making it easier for friends, families and allies to step in and show solidarity. #ForThoseWhoCant #LongCovid

Today we’re launching #ForThoseWhoCant, our new fundraising campaign. It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work. Email [email protected] or click here for more: www.longcovid.org/get-involved...

"The short answer is that the Treasury took no action at all." At the UK Covid Inquiry (Module 9), the Long Covid Groups were clear: the economic impact of Long Covid was foreseeable and ignored, leaving many people without support. Watch our closing statement: www.youtube.com/watch?si=ikR... 🧵 👇

1/ ✍️💫 Introducing: Long Covid Stories We’re really pleased to launch a new series, Long Covid Stories, sharing experiences from people living with Long Covid. We’re kicking things off with a powerful piece by Matt Alton, now live here: www.longcovid.org/impact/news/...

Reminder that our new in-person support group (in West Cheshire) is holding it's first session tomorrow! 🩵 All the details here 👇🏼

Reminder that we’re opening a new in-person support group in West Cheshire Then first session is ✨ 8th of January ✨ All the information in the thread below 👇🏼

1/ ✨ Happy New Year from the team at Long Covid Support ✨ The New Year can bring a wide range of emotions. For some, it may feel like an opportunity for a fresh start. For others, it can bring uncertainty or concern about what lies ahead.

Delighted we’re launching an in-person Long Covid Support Group in West Cheshire, creating a safe, supportive space for people to connect, share experiences & feel less alone. Free and open to anyone living with Long Covid. Please do retweet and help us reach those who may really need this support.

1/ Season’s greetings from the team at Long Covid Support 🎄 Thank you for being part of our community in 2025. We know it’s been another challenging year for many, and we’re truly grateful for your continued support.

1/ On 3 December, the APPG on Long Covid met in Parliament. An APPG (All-Party Parliamentary Group) is a cross-party group of MPs and peers who come together regularly to focus on specific issues.

1/ Join us for our new In-Person Long Covid Support Group in West Cheshire Free monthly sessions for people with Long Covid to connect and support each other. 📅 Thursday 8 January 2026 ⏰ 10.30 - 12.30 📍 Blacon Enterprise Centre, CH1 5HN

1/ Episode 27: Long Covid Clinic Fireside Chat ⭐ Underlying causes of ME: a unifying hypothesis? 📆 Wed 17 Dec 🎥 YouTube Live ⏰ 18:00 GMT #LongCovid #MECFS

Part 2: More quotes from Mike Ormerod’s powerful testimony to UK Covid-19 Inquiry. Mike lives with Long Covid and volunteers with Long Covid Support. He gave evidence for Long Covid groups at the Module 9 public hearing (Economic Response) and honoured those we’ve lost. 🧵👇

Great energy at this week’s Long Covid APPG meeting, in Parliament, for @longcovidsupport.bsky.social constructive discussion, powerful lived experience, and real commitment to driving change. Grateful to everyone pushing for better care, research, and recognition. #LongCovid #APPG

Yesterday the APPG on Long Covid met to continue work on improving recognition, strengthening care pathways and accelerating research. Thank you to everyone involved, especially Jo Platt MP for your leadership and commitment. Minutes to follow. 📝 #LongCovid #APPG

Did you catch Mike Ormerod’s powerful testimony at the Covid Inquiry last week? Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”. Standout quotes (there are many!) Part 1 🧵👇

1/ We were thrilled to see 50+ MPs and Peers at the Overlapping Illness Alliance drop-in last week. Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.