1/ ✨ Happy New Year from the team at Long Covid Support ✨ The New Year can bring a wide range of emotions. For some, it may feel like an opportunity for a fresh start. For others, it can bring uncertainty or concern about what lies ahead.

“Physicians have an ethical responsibility to promote the well-being of their patients and do no harm. Wearing a mask on a disabled patient’s request to protect them from contracting COVID-19… squarely fits within physicians’ ethical obligation” Link⬇️ #LongCovid #WearAMask

Delighted we’re launching an in-person Long Covid Support Group in West Cheshire, creating a safe, supportive space for people to connect, share experiences & feel less alone. Free and open to anyone living with Long Covid. Please do retweet and help us reach those who may really need this support.

1/ On 3 December, the APPG on Long Covid met in Parliament. An APPG (All-Party Parliamentary Group) is a cross-party group of MPs and peers who come together regularly to focus on specific issues.

1/ Join us for our new In-Person Long Covid Support Group in West Cheshire Free monthly sessions for people with Long Covid to connect and support each other. 📅 Thursday 8 January 2026 ⏰ 10.30 - 12.30 📍 Blacon Enterprise Centre, CH1 5HN

I agree! It was a dynamic & determined meeting, with purposeful plans ahead. Thanks to @joplatt.bsky.social for your tenacity, and to other MPs pushing for vital improvements for constituents, including @jonathandaviesmp.bsky.social & @jimdickson.bsky.social 🙏 #LongCovid #APPG

Did you catch Mike Ormerod’s powerful testimony at the Covid Inquiry last week? Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”. Standout quotes (there are many!) Part 1 🧵👇

Have you emailed your MP to join the APPG on Long Covid meeting on 3 December? If not, please do send them a reminder email including your name, address/postcode of course. Your voice matters. #LongCovid

Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion. Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room! #patientinvolvement

Proud to have co-authored this paper on experiences of #LongCovid and work: “I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”

Thank you to our Chair @nigelrothband.bsky.social & Trustee @joda.bsky.social for attending @ukcovid-19inquiry.bsky.social on this important day. Even bigger thanks to our Member Mike Ormerod for all his work and all the effort it will take giving evidence this afternoon. 🙏 #LongCovid #CovidInquiry

📣 Shout out to Mike Ormerod from Long Covid Support who is giving evidence to the @ukcovid-19inquiry.bsky.social today. Thank you Mike for all your incredible hard work, despite your own battle with #LongCovid. Link for #CovidInquiry livestream below. ⬇️

1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support. We've drafted a press release in response: www.longcovid.org/impact/news/...

Proud to have co-authored this paper on #LongCovid and impact on work: “I don't think I'll probably return to be, maybe I will, I don't know, the person I was before” @margaretohara.bsky.social @longcovidsupport.bsky.social @joplatt.bsky.social

📣 1/4. Today we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Find out more below! ⬇️ #OIA #OverlappingIllnesses #JoinedUpAction

The Cardiff site for the PHOSP-I study is still open for recruitment! If you have #LongCovid and are interested in this trial for the drug Tocilizumab (targeting inflammation), then do contact: [email protected]

1/3. 🔥Next Fireside Chat from @binitakane.bsky.social and Long Covid Support’s @helenoakleigh.bsky.social🔥 ‘Updates from the Santa Fe #LongCovid Symposium’ with guest @daltmann.bsky.social. YouTube Live: Wednesday 8th October 2025, 6pm UK time. More details and link below ⬇️

Proud to have been involved in this work! Not surprised by this major under-recording of #LongCovid in healthcare records but it proves that using healthcare records/coding as evidence of the number of p/w Long Covid is substantially inaccurate…and downright dangerous.

1/4 This morning, the UK Covid-19 Inquiry opened Module 9: Economic Response, looking at how government decisions in the early years of the pandemic affected people’s lives. Dr Lucy Moore and Nigel Rothband, Chairs of @longcovidsos.bsky.social and Long Covid Support, were present. 🧵👇

“Researchers called for urgent expansion of #LongCovid care…and for integration of disability data into early-warning systems. They also urged global health agencies to prioritize vulnerable groups for rehabilitation services, research funding, and surveillance infrastructure.”

📣 Are you conducting research into #Covid19 or #LongCovid? Our Research Involvement Consultancy is here to help! ✅ Recruitment ✅ Study design ✅ Patient & Public Involvement & Engagement Find more information on our website - link below ⬇️

1/3. APPG on #LongCovid - July meeting minutes available. ▶️ Guest speaker Prof. Chris Brightling joined discussions on accelerating Long Covid research on drug targets/therapeutics. ▶️ Actions identified re. Covid vaccine eligibility, public health messaging & safe air. Link below in comments ⬇️

“Respiratory illnesses such as Covid and the flu can awaken dormant #cancer cells in the body and cause them to spread, scientists have warned.” Read more - link below ⬇️ #LongCovid

Delighted to have attended my first meeting of the #APPG on Long Covid last week in my new role as Chair of Trustees at @longcovidsupport.bsky.social It was a pleasure to meet @joplatt.bsky.social and take part in a discussion on how we can accelerate research into Long Covid. #LongCovid #APPG

I’ve seen several research papers that purport to have identified different symptom clusters/groups that p/w #LongCovid fall into. But I never seem to fit into just one, I seem to be a multi-group kind of gal, which begs the question - how accurate are those groupings?!! Anyone else?

At the Cardiology Unit at Wexham Park Hospital this morning - I should be pleased that they have this sign up.⬇️ However, I’ve seen no one else in a mask. Wouldn’t it be lovely if the staff actually set an example @frimleyhealth.bsky.social? #LongCovid #WearAMask

BREAKING: Full details of those welfare bill concessions: 1) Only cut benefits for new claimants 2) Spend billions more on employment support 3) Consultation on PIP cuts, with changes to be made at committee stage Full story here: www.theguardian.com/politics/202...

“Ableism is so real within the government in totally misunderstanding what our troubles are.” - 8x Paralympian Gold Medalist @sophiechristiansen.bsky.social #TakingThePIP #WelfareReformBill

🚨#Labour MPs, please don't fall for fake "concessions" on the #WelfareBill. There is only *one* #PIP activity descriptor that scores 3 points: "Needs assistance to be able to get in or out of a bath or shower." All else scores 2, then 4, then up. This won't change eligibility cuts. #TakingThePIP

MP @samanthaniblett.bsky.social removed her name from Reasoned Amendment opposing Universal Credit & PIP Bill. “I don't know how I look people in the face” Especially when they’re plunged into poverty when vital support is removed eh Samantha? Letter ⬇️ #StopTheCuts #TakingThePIP #LongCovid

1/2. Thanks to all the MPs who have signed the Reasoned Amendment opposing the Universal Credit & PIP Bill, including Chair of the APPG on #LongCovid @joplatt.bsky.social & several Members of the APPG. #TakingThePIP

“Families describe the devastation of watching loved ones fade into near-total incapacity, with little medical support and no clear path to recovery. They are left to pick up the pieces” - @joplatt.bsky.social in @bigissue.com #LongCovid #TakingThePIP

Amazing fundraiser James talks about his partner’s #LongCovid experience: “She went from being an incredibly active runner, cyclist & highly competitive dinghy sailor (winner of 2022 RS Eurocup - RS200) to having to use a wheelchair to get around her home.” #CureLongCovid ⬇️

This #VolunteersWeek we say a huge ‘Thank you!’ to all our fantastic volunteers who have made our charity what it is. Nearly all have #LongCovid themselves or are care givers to someone with Long Covid. Thank you for giving your precious energy to helping so many others. 💖💖💖

1/2. We asked one of the new APPG on #LongCovid Members why they joined: “I have met constituents whose lives have been radically changed by long-term impacts of Covid-19. It is vitally important they are not forgotten…” - James Naish MP Is your MP a Member? Link below⬇️ #APPGLongCovid

We are pleased to announce appointment of Nigel Rothband as Chair of Trustees of Long Covid Support. Nigel brings with him a wealth of expertise along with personal experience of the devastating impact of #LongCovid. Welcome @nigelrothband.bsky.social! Read more on our website - link below ⬇️

💖 This September, Lisa is running the #WindsorHalfMarathon to raise awareness and funds for our charity. Her partner lives with #LongCovid and Lisa is running to bring hope and support to others affected. Cheering you on, Lisa!!👏 See the link below for Lisa’s fundraiser! ⬇️

Long Covid Support’s #LongCovid peer support group was a definite life-saver for me. Getting Covid in Feb 2020 & then getting much more ill over the following months, with little medical help, finding the group in June 2020 was a Godsend. Thanks to Claire & all who continue to oversee it today. 🙏

📢 Webinar today at 4pm UK time!! “A national crisis of this scale demands a response of equal magnitude.” - From the report, ‘Disabled, discharged and disappearing from view. A snapshot review of #LongCovid services across the UK’ by @longcovidsupport.bsky.social & @longcovidkids.bsky.social

💖 1/2. Our fantastic fundraiser George Brill is walking Lands End to John O’Groats & was recently spotted in Wales! George had #LongCovid himself but is now able to take on this phenomenal challenge to help others. ⬇️Link below to donate⬇️ www.cwmbranlife.co.uk/lands-end-to...

📣 1/5. The UK Government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with #LongCovid and #MECFS. We've launched a survey to gather your insight. ⬇️

📣 1/2. We welcome 3 new members to the APPG on #LongCovid! Is your MP a member of this vital cross-party parliamentary group? If not (& they are not a Government Minister), ask them to join today! For further details, see link below⬇️ #LongCovidAwareness

📣1/2 As we hear news from the U.S. that The Office of #LongCovid Research and Practice is apparently being shut, we thought we’d bring you another video for #LongCovidAwareness month. Big thank you to Dr Maria Van Kerkhove of @who.int for making a recording for us🙏 (Video in 2 parts for Bluesky)

📣📍George’s Journey update!! Our fantastic fundraiser George Brill has made it to St. Ives today on his #EndToEnd walk, and has grabbed himself a very well deserved Cornish pasty!! Well done George! 👏 🤩 Link below to donate to George’s #LongCovid Support fundraiser. ⬇️

💖 A huge thank you to George Brill who is raising money for our charity! “5 years to the day I caught Covid & slid into a hell I didn’t know existed, I start walking Land’s End to John O’Groats…for those who cannot. Because I was given a second chance.” ❤️ To donate - link ⬇️ #LongCovid #EndToEnd

Thought I’d put up a new banner photo. Despite this & other debilitating symptoms, I was discharged last year from my #LongCovid clinic because: 1) I had been through all they offered, and; 2) They were cutting back the limited things they did offer and getting rid of staff. #ClosingClinics

From @longcovidsupport.bsky.social on Liz Kendall’s benefit changes: “It is a mistake for any government to ignore the profound, mass disabling impact of #LongCovid on the population” #DisabilityBenefits Link to the full initial response ⬇️

Brilliant report on UK #LongCovid healthcare. It’s horrific so many are not getting appropriate care for such a life-altering illness. I’ve had LC since 2020. Discharged from LC clinic last year - never had appt with their Doctor & still have disabling symptoms. #ClosingClinics

📣 🎬 1/2. Here’s our third video message on #LongCovidAwarenessDay! Prof. Rachael Evans has so very kindly sent the #LongCovid community this message. Thank you @revansbreathe.bsky.social for all your hard work in continuing to push to find answers!🙏 Video in 2 parts for Bluesky - part 2 below ⬇️

1/2. Our Trustee Aimie Cole makes an emotional speech on her own #LongCovid experience & outlines Long Covid Support’s strategy. The impact of her talk is felt not only in the room, but by the many watching online. Link to our strategy below ⬇️ #LongCovidAwarenessDay