🎄🎁 If you’re shopping online, why not raise funds for our charity & help us continue vital work - it costs you nothing!! Easy Fundraising partners with 8,000+ brands who donate part of what you spend to a cause of your choice. ➡️ Take a look: www.easyfundraising.org.uk/causes/longc... #LongCovid

📣 We are proud to be selected as the Secretariat for the APPG on #LongCovid. We take with us the voices from the Long Covid community, ensuring focus remains on Long Covid & what is needed to progress Prevention, Awareness, Support & Treatment of this life altering illness.

Looking forward to this one! Dr Dempsey is a leading authority on MCAS. Join us 7pm GMT on Wednesday evening ⬇️

“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment” Let’s compare with recent global figures from the WHO: 🟠 Dementia: 55m+ 🟠 Rheumatoid arthritis: 18m 🟠 Parkinson’s disease: 8.5m+ 🟠 MS: 1.8m+ #CureLongCovid

We continue to raise #LongCovidAwareness across various social media platforms - Take a look! ⬇️ #LongCovid linktr.ee/longcovidsup...

New from Danny Altmann & me in BMJ on Long Covid: where we are, where we should be (loads more trials for treatments!) and where we should have been (factoring in Long Covid from the very start of the pandemic). www.bmj.com/content/383/...

🚨From the World Health Organization: “For health workers and health facilities, WHO advises: -Universal masking in health facilities” #LongCovid #LongCovidRuinsLives #ItCouldHappenToYou worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...

📣Join the movement! Write to your MP to urge them to support our campaign calling for a 5-step road map for #LongCovid. Let them know why their support matters!! ➡️ Letter template: www.longcovidgroups.org/it-could-hap... #LongCovidAwareness

Just goes to show that anyone can get #LongCovid, even the most fit out of all of us. Thank you @oonaghcousins.bsky.social for being a fantastic advocate!

Long Covid Support Advisor Dr Ziyad Al-Aly talked last week in Melbourne about #LongCovid: “It affects nearly every organ system, the kidneys, and the heart, and the brain, and can lead to diabetes, and blood clotting disorders… they deserve treatment yesterday” www1.racgp.org.au/newsgp/clini...

🚨At #covidinquiryuk PM Rishi Sunak apologises: “I wanted to start by saying how deeply sorry I am to all those who lost loved ones and also all those who suffered in the various ways as a result of the actions were taken” We’re still suffering lad, it’s not over!! #LongCovid #ItCouldHappenToYou

🚨More from the UK Covid Inquiry - Sunak is asked about #LongCovid: Q. Do you recall at what time Long Covid presented itself on the Exchequer’s horizon? A. I don’t specifically. I recall in the May plan having a conversation with the CMO about consideration of other health impacts. May! May!!

📣 We’re back at the #CovidInquiryUK today! 🔴 Fund 🟠 Research 🔵 Treat #LongCovid! There is currently NO CURE!! 1.9m of us in the UK are experiencing vastly debilitating effects, including our future workforce of 62,000 children! @RishiSunak #ItCouldHappenToYou

💚 At #CovidInquiryUK the #LongCovidGroups push for answers, along with our fantastic legal team! Thank you to all attending in person & working away behind the scenes (including on social media! 😉) ❤️ Exhausted we may be but we will not stop! #LongCovid #ItCouldHappenToYou

1/2 ♥️ Another busy day at the #CovidInquiry, we are all shattered! Closing statement for the #LongCovidGroups due later this week. We will come together again & will continue to push for: 🔴 Dedicated research funding 🔵 Treatment trials 🟢 #LongCovid awareness campaigns

📣Our amazing Ambassador Oonagh Cousins on BBC5Live: “I was a professional athlete selected for the Olympics. Caught Covid, developed into serious #LongCovid. For months life revolved around trying to get through basic daily tasks. After 3yrs I decided to retire” ➡️Link: www.bbc.co.uk/sounds/play/...

🚨📩Today’s the day we hand-deliver our letter to No.10! We need: ♦️Dedicated research funding ♦️Treatment trials ♦️Public #LongCovid awareness campaigns Help us reach 3000 signatures! ➡️ ✍️Sign here: bit.ly/46Hjjn1 #LongCovidGroups #ItCouldHappenToYou

📣As Former PM Boris Johnson gives evidence at the UK Covid Inquiry: Our Founding Trustee Natalie Rogers gives a statement on behalf of the #LongCovidGroups: “Evidence heard confirmed #LongCovid has been Sidelined, Disbelieved and Ignored” @longcovidkids.bsky.social @longcovidsos.bsky.social

📣 At UK Covid Inquiry our Ambassador Oonagh Cousins is interviewed with @sammiemc.bsky.social (@longcovidkids.bsky.social) by BBC News on Boris Johnson: “Looking after the health of the Nation is the primary responsibility of our Leaders & he continuously put his ego & self-interest ahead of that”

📣🚨 Let us know if you #SpotTheVan!! Our #LongCovidGroups’ digi-van is in central London raising public awareness on #LongCovid. 🤳Take a photo if you see it and tag us! #ItCouldHappenToYou #covidinquiryUK @longcovidkids.bsky.social @longcovidsos.bsky.social

📣🚨***DELIVERED!!!***🚨 The #LongCovidGroups’s letter has been delivered to No. 10 Downing Street!!! We will keep pushing for: ♦️ Dedicated research funding ♦️ Treatment trials ♦️ Public #LongCovid awareness campaigns ➡️ Read more: you.38degrees.org.uk/petitions/ur...

💚 Wow, what a day!💙 We are shattered but Boris Johnson is back at #covidinquiryUK tomorrow and we will not stop until there is appropriate care, research and support for #LongCovid! Here are a few photos of today, with fantastic charities/organisations working together.

💚 At #covidinquiryUK today - this photo says it all. #LongCovid #ItCouldHappenToYou #ResearchLongCovid

💚Another exhausting day with the #covidinquiryUK but again the #LongCovidGroups and other organisations make a stand! A few photos from today… #LongCovid #ItCouldHappenToYou #BorisTheLiar @longcovidkids.bsky.social @longcovidsos.bsky.social

We've arrived on Bluesky! Please bear with us while we get up and running on here. If you have suggestions on who to follow on here from the Long Covid and wider chronic illness communities please let us know!

People think of the pandemic as having been going on for nearly 4 years. Yes, it has. But the mass repeat infection experiment has only really been going for 1¾ years. And its effects are only just starting to truly show.

We are bringing our call for Covid Action (Now!) to Bluesky!

Clinically Vulnerable Families has just made it to BlueSky. Please follow and share if you are interested in staying safe from Covid.