Thanks to @aldiukstores.bsky.social for a pre festive #GlutenFree #Christmas snacking experience. A rare treat. Soooo good. 😋 #snacks #popcorn #cinnamonbun

🎁 We hope to raise £17,500 in just 1 wk. These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project. Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website. www.longcovidkids.org #LongCovidKids #Christmas

our work with young people living with Long Covid and overlapping illnesses - like Eden. Want to have your LCK donations doubled this #Christmas? ⭐ 2 - 9 December, you can make double the difference with one donation. Save the date now! #YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate

21 year old Eden Bryrne shared her lived experience with IDEA-FAST Eden is a valued member of our Youth Advisory Panel and assists with communications, she says: I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and

Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases. I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid. #Flu #Facts #Childhealth www.rcpch.ac.uk/resources/fl... #LongCovidKids

'By comparing blood, immune-cell profiles, and gene activity in people with and without long COVID, researchers uncovered biological differences that map onto those harsher, longer lasting symptoms.' www.earth.com/news/why-lon... #WomensHealth #LongCovid

It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic. I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week. #Parenting #Information #Flu #Chidren #PostViralIllness

“Like many of us, she recovered from this bout of illness and wasn’t overly concerned when she experienced the illness for the second time a few months later.” @independent.ie Thank you for your advocacy Lydia. #LongCovid #Ireland m.independent.ie/life/health-...

The #BigGive is an incredible opportunity for @longcovidkids.bsky.social to secure funds needed to help continue the mission to provide support, drive action and improve outcomes for children living with the impact of a novel virus that we were told wouldn't impact them. #SaveTheDate #LongCovidKids

A collaboration for progress makes me so happy! One voice sharing overlapping challenges to improve lives - what's not to love! #OIA #OverlappingIllnesses #JoinedUpAction

Imagine if we had the funds to create an awareness campaign like this! Clara's poster looks fantastic sized up! We would love to hear from anyone out there who would like to help us? #Philanthropy #FundraisingSupport #Goals #PublicHealth #Awareness #Charity #Children #LongCovidKids #LongCovid

‘This large retrospective study shows moderate protective effect of severe acute respiratory coronavirus 2 vaccination against long COVID. The effect is stronger in adolescents, who have higher risk of long COVID, and wanes over time.’ publications.aap.org/pediatrics/a... #Longcovid

While raising vital funds Anita is shining a light on paediatric Long Covid - & the need for action. Her determination, despite living with the condition herself, is truly inspiring. Her words echo those we hear from CYP facing LC - they want to get on with their lives! #MondayGratitude

Sarah found her motivation for these swims while teaching a child with Long Covid, one of LCK's young members, and has just completed her personal challenge. If you can spare the price of a coffee (or more) she would be delighted to end on a high. 🙏 www.justgiving.com/page/sarah-s... #Swimming

Progress to see that early lived experience advice has now been adopted by the #NHS It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection. www.nhs.uk/conditions/l...

The Clinical Post Covid Society is now called The International Post Covid and Post Infection Conditions Society. More info here: www.ipicsociety.org.uk

1/2 📢 APPG on ME update Unfortunately, the APPG's severe ME inquiry evidence session, didn't go ahead due to a limited number of MPs being in Parliament that day. ⬇️ #pwME #MECFS

‘Unless we rethink what education is for – and how we support pupils to engage with it – thousands of young people will be denied their potential.’ theconversation.com/children-wit... #Education #Childhood

3rd - Why was there such total inaction? There could/should have been an approach to reopening schools that maximise their safety with effective use of NPI's - all 4 Govs knowingly left families uninformed/ unprotected from risk. "Long Covid remains a roulette" #CleanAir #LongCovidKids

Prof Turner - President #RCPCH He did not once refer to Long Covid in his evidence. "This collective failure to warn about the potential physical harm to children had real world consequences, it is simply wrong to say that a warning would have made no difference" #Children #LongCovidKids

Sarah Hannett KC - A number of the Mod 8 witnesses were asked why NO #PublicHealth advice has been given, all gave throughly unsatisfactory answers. "Former PM Boris Johnson failed to refer to paediatric Long Covid" #ChildrensRights #LongCovidKids #LongCovid #COVIDInquiry

#LongCovidKids Closing Subs to the UK #COVIDInquiry Sarah Hannett KC "failures constitute an ongoing breach of the government's duty to place the best interest of children at the heart of their decision making and to respect the human rights of those children & their families" #ChildrensRights

Prof Viner - Chief Scientific Advisor to DfE confirmed he agreed with the conclusions of the #LongCovid expert report that sets out prevalence and impact of Long Covid. He accepted he has not provided advice to DfE on Long Covid - acknowledgement was reluctantly given, unexplained & irrational.

4th- Where are we now? The current & shameful position is that measures in place are non existent/inadequate. No #PublicHealth messaging No specific #Guidance to schools Failure to prioritise #CeanAir in #schools No ongoing CYP #DataCollection Inadequate #Healthcare #Burden remains on families

At the same time as deciding not to issue guidance to schools the DfE was referring to materials from LCK as misinformation. This allegation is unexplained, unfair and untrue. "The misinformation was hiding the facts from families" @sammiemc.bsky.social #PatientAdvocacy #LongCovidKids

" for children this is such a formative point in their lives providing the best environment for those children should be really important" @cathnoakes.bsky.social #Leadership #CleanAir #LongCovidKids #COVIDInquiry

Q - Do you support investment in ventilation / air cleaning now? A - "Better ventilating environments provide a healthier environment for children and adults, they help you mitigate against disease" Prof @cathnoakes.bsky.social #CleanAir #Standards #Education

Q - What is your view on whether the government did enough to protect against airborne transmission in schools? A -If we were to go back .....we could have perhaps put money into ventilation instead. #CleanAir #Education #School #LongCovidKids

Transmission via the air was not taken seriously. Q - Is it your view in the context of airborne transmission in schools that this hampered mitigations being applied in a timely manor? A - It is my view that it hampered mitigations being applied everywhere. Prof @cathnoakes.bsky.social

Longer term we need better ventilation in many schools. A retrofit program needs to be designed well and funded. "there are much wider benefits to creating better quality environments in schools" Prof @cathnoakes.bsky.social #Education #CleanAir #LongCovidKids #LongCovid #ChidlrensRights

Prof @cathnoakes.bsky.social on COVID and school environments. “We know that some children may be much more vulnerable to it’s effects and we know a lot more about Long Covid and the importance of that" Schools bring people together day after day - densely occupied buildings.... #CleanAir

Q- Would I be right is saying that good ventilation is the gold standard but if that can't be achieved - air cleaning would be a good mitigation tool but doesn't replace good ventilation? A - "Yes I would agree - it can supplement ventilation" @cathnoakes.bsky.social #CleanAir

What did early data from CLASS ACT show? A - Confidence that there is reduction in illness absence in schools with HEPA filters. Still working to publish data...delays in peer review process ... @cathnoakes.bsky.social is confident in the results #CLASSACT #CleanAir #COVIDInquiry

Prof Viner "firstly there were a small number of deaths of children in this country from COVID-19" "of deaths with a positive test - only 40% of them we felt - were from COVID rather than children who die with COVID" #COVIDInquiry

Prof Viner "there was a general feeling that children were agents of the disease" "most of the thinking was around control" "there was less thinking about harms to children and the rights of children" #COVIDInquiry #Viner

Prof Viner on the Schools Infection Survey June 2020. "which found almost no infection at all in those open schools" "which you can either take as being incredibly successful, closures/lockdown or as evidence of very little transmission happening in schools at that time" #Education #CovidInquiry

An absolute pleasure to meet Scarlet today, sitting beside her in the hearing room both crying tears as we listened to in disbelief. #ChildrensRights #LongCovidKids #Childhood #Parenting #YouthAdvocacy

"I don't want anyone to think that I thought Long Covid wasn't a serious problem," says Boris Johnson, who scribbled "Bollocks" and "this is Gulf War Syndrome stuff" over a note referring to its existence.

It is hard to know what to say about today's evidence - accept that it feels grossly out of touch with the reality families faced then - and continue to face now. @ukhsa.bsky.social run a poll - you will see families do not know about the risks of harm from infection. (hence low vax uptake)

To the rude man on the train today who accused me of taking up too much room with my folded #wheelchair ♿️ … I am not the problem. I did not design the #train. Educating service providers and the general public on accessibility and inclusion has a long way to go. #Disability

Great to visit St Mary’s Primary School in Battersea today - one of the first schools to receive indoor air quality filters as part of my initiative to improve children’s health. More than 200 schools will be getting indoor air quality filters soon.

“The truth laid bare by these papers is that policies to address global health challenges do not accurately reflect the reality of the global burden of disease and disability today” www.thelancet.com/journals/lan... #LongCovid #Disability #ChildrensRights

If you feel ready to invest in healthier indoor air and reduce risk of infections and reinfections - get an air filter for work, school or home. Please support Long Covid Kids by using our @smartairuk.bsky.social affiliate code. Every little helps smartairfilters.com/uk/en?affili... #CleanAir

"It makes me feel like my school cares about me and how my breathing is. Funmi, age 11 London schools get @smartairuk.bsky.social filters. Infection risks will reduce. Learning environments will be healthier. #Education supports #Health Thank you @sadiqkhanlondon.bsky.social 👌 #Leadership

So very well deserved

I want every child in London to breathe clean air in their school. St Mary’s Primary in Battersea is one of more than 200 schools receiving an air quality filter as part of my new initiative. Brilliant to see first-hand how they’re helping to protect young Londoners' health.

Truly such an honour to have been invited, thank you to #Womenofyear2025 I’m so honoured to have been recognised alongside such incredible women, true trailblazers and changemakers whose impact is inspiring. Thanks to Dorset Echo for this 😊 www.dorsetecho.co.uk/news/2554481... #WOY2025 #Dorset

This is what leadership looks like. Thank you @london.gov.uk @sadiqkhanlondon.bsky.social Who is next? #CleanAir #Education #Leadership

Powerful work by Eli. Youth Advisor, Communications Support, Youth Peer Facilitator www.longcovidkids.org/advisory-pan... #YouthAdvocacy #PeerSupport #Charity #Volunteer

Clara, age 11 says "I feel exhausted, sometimes I can't get out my bed, I have to use a wheelchair, I have to be on a part time timetable at school but sometimes I don't get in for that, I don't see a lot of my friends" UK #COVIDInquiry 🙏 @channel5bluesky.bsky.social