Very moving video from Long Covid Physio ❤️👇

Sending ❤️ on Mother’s Day to all the Mums who are advocating knee deep in exhaustion, making tough choices everyday - without the systems and resources required - often even without the basics from others - empathy and #kindness You ARE doing your best. #MothersDay #MotheringSunday #Mums

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts 2/

The theme for International Long Covid Awareness Month is Every Heartbeat Counts, highlighting how Covid can affect heart health. We're sharing some information from our friends at @PoTSUKCharity, who support people with Postural Tachycardia Syndrome. 1/3

Long Covid Families is proud to have successfully advocated for the inclusion of children in pediatric Long COVID clinical trials. Children cannot be left out of treatment research. Including them from the start leads to faster, more effective, and more equitable care.​​​​​​​​​​​​​​​​

I've been debating posting this all day, but here goes. It's ironic that #LongCovidAwarenessDay falls on Mother's Day this year. #LongCovid has likely taken away any chance of me having a child. Thinking of anyone grieving that today, I see you 🫶

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts 3/

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts /4

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

bsky.app/profile/long... A moving short film from Long COVID Physio. So grateful to all the people who give their time for free to help the millions of us living with Long Covid.

Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

www.physiosforme.com/hcpwithmesur... 150 responses in 2 weeks. Thank you all for completing. Just a reminder that it is open until 31st Dec and it allows for pacing (can save responses and cont at another time). Please share widely. Still some professions not reached @physiosforme.bsky.social

“Healthy people optimize their lives through addition: more experiences, more connections, more accomplishments. I’m optimizing through subtraction. And the clarity that comes from extreme constraint is something I never expected to value.” #LongCovid #MECFS substack.com/home/post/p-...

The U.K. government set aside funding for #LongCOVID clinics in 2020, but funding is now up to local health boards. Fewer than half of Long COVID clinics will remain open across the U.K. through this year. Read more from @han-written.bsky.social‬: bit.ly/4eR6f4a

We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch. Please share with your network! www.derby.ac.uk/jobs/current...

#LongCovid @profmarkfaghy.bsky.social @lindsayskipper.bsky.social @sarahbarleymc.bsky.social @longcovidadvoc.com @mikster-derby.bsky.social @michaeltikus.bsky.social

Suzanne O‘Sullivan describes POTS as ‚a condition where change of posture provokes a fall in blood pressure that causes fainting or dizziness‘. She is wrong. In POTS, change of posture causes tachycardia without a drop in BP. She has not even bothered to inform herself about that! #LongCovid #POTS

On #LongCovidAwarenessDay I want to draw attention to the fact that many people are still living with the effects of Covid, and they often struggle to get the support they need. Government must do much more on research, support, and prevention.

From Spain: Oxygen uptake kinetics during postexercise recovery are impaired in #longCOVID -19 patients: a cross-sectional study www.sciencedirect.com/science/arti... "After peak exercise, V̇O2 recovery rates were significantly impaired in long COVID-19 participants compared with controls" #PASC

‘Living with chronic illness is tough. But navigating a complex, novel illness is exceedingly arduous, more so for children. We had questions, doctors had no answers; we needed relief, medicine offered none’ thewire.in/health/press... #LongCovid #LongCovidKids

It’s been 1,233 days for me suffering from a bedridden to homebound existence. For many others it’s been 5 years. We need help. #LongCOVIDAwarenessDay #LongCOVIDAwarenessDay2025

Today our family supports Long Covid Awareness Day. Long Covid has changed family life beyond recognition. My wife and son have been living with Long Covid for almost 5 years since covid came into our home in April 2020. Since then we have been desperately searching for a cure. #longcovidawareness

4 yrs & 11 months ago my career as a clinical physiotherapist was ended by catching covid. 23 years of clinical experience & dedication lost- just like that. How many more people have to have their lives turned upside down like this? #LongCovidAwareness

Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid “It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social t.co/kfLzV0B0fy

On #LongCovidAwarenessDay we stand in solidarity with our clients calling for change, research and to #fundourfuture Sign petition you.38degrees.org.uk/petitions/in...

NEW Long Covid and Me: Understanding Long Covid in Children. In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day. #LCandME #LongCovidKids #LongCovidAwareness www.youtube.com/watch?v=e0U7...

Today, we honour Ondine. Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

Today Saturday 15 March 2025 is #LongCovidAwarenessDay. Today, people living with Long Covid and allies come together to raise awareness about Long Covid For some of us, the Day has already started, depending on the time zone. Seeing already the first advocacy initiatives ongoing, like in Australia!

Today we will also post some powerful poems written by Long Covid patients, carers and advocates. #LongCovid #LongCovidAwarenessDay2025 #LongCovidAwareness #LongCovidAwarenessMonth #LongCovidAwarenessDay #Ireland #Irish #poetry #Covid #IrishPoetry

#LongCovidAwarenessDay2025 #LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth

#Newsletter #LongCovidAwarenessDay Today is Long Covid Awareness Day, a day for us to stand together as a community, raise our voices, and push for the change we desperately need. longcovidkids.org/so/5fPMKw8Uv... #LongCovid #LongCovidKids #LCandME #FundOurFuture #FundThePlan

#LongCovidAwarenessDay2025 #LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth

'UK doctor says Britain is failing children with #LongCovid' @emmabatha.bsky.social Pulmonologist @binitakane.bsky.social helped set up a Long Covid clinic after struggling to get treatment for her daughter. www.context.news/socioeconomi... #LongCovidAwareness #LongCovidKids #PaediatricLongCovid

Reflecting on 5yrs of Long Covid: Those who have lost their lives to Long Covid, the suffering of those still sick, & all loss in this pandemic We mourn, we remember, we continue to fight for our lives & for people's health around the world #LongCovidMakesUsOne #CureLongCovidNow

Huge thank you to all at @longcovidphysio.bsky.social For all you have done and continue to do #Solidarity #LongCovidAwarenessDay2025

A heartbreaking insight into our reality. So grateful to everyone involved with this project and in International Long Covid Awareness day #LongCovidAwareness bsky.app/profile/long...

5 years have passed and millions are affected globally All are still waiting for a cure #LongCovidAwarenessDay

CVF are deeply saddened by the heartbreaking news of the loss of Ondine Sherwood, co-founder of Long Covid SOS, a fierce advocate and a true force for good. Her dedication to protecting health will not be forgotten.

The world has lost a wonderful human being. There are not adequate words to describe the loss & pain so many of us feel today. She did so much for the long covid community & was such an important friend & ally to so many of us. We send love to her family & all who will miss her.

Heart felt condolences from the Bhatt Murphy team to Ondine’s family and @longcovidsos.bsky.social. Ondine was our wonderful inspiring client who fought tirelessly for Long Covid to be part of the Covid Inquiry. She is huge loss to us all.

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood

1 March starts the beginning of #LongCovidAwarenessMonth. A thought for all patients, sufferers, advocates, patient-researchers, and allies coming together to raise awareness about #LongCovid 💙 Thanks

Anyone want to see our latest paper on #masks? #healthpolicy 🧪 www.bmj.com/content/388/...

Wow!! Such an incredibly impactful contribution from Sarah to our Long Covid Support Banner that will be the centrepiece of our #LongCovidAwareness Day event on 15th March. Amazing work! Thank you so much. 🙏 #LongCovid

Recommended read for all HCPs who prescribe exercise and may be seeing people who have #LongCovid, whether in a speciality LC clinic or MSK setting Wonder how common it is to routinely ask for history of Covid-19 infections, screen for #PEM and ask about response to exercise

@RobWust appreciation post: tldr: post-exertional malaise (PEM) is NOT a choice. In 2024, an amazing paper was published showing us some key features unlocking the physiology PEM in #LongCOVID. Curious minds would read a paper like this and view 1/

How are you? I’m fine…. Why do we do this? 🤐 Because explaining all of it is exhausting - physically, mentally, and emotionally. #LongCovid is complex, and most people don’t truly understand it. And many would rather not know.

There's less than a week to go to meet this fundraising target #cv-cev

Skeletal muscle adaptations and post-exertional malaise #PEM #PESE in #LongCOVID www.cell.com/trends/endoc...

More than “Brain Fog”: Cognitive Dysfunction and the Role of Occupational Therapy in Long COVID Recommended read. Lived experience and Professional expertise from two of our Committee members @otskiff.bsky.social and Ciara Breen journals.lww.com/cptj/fulltex...