Heute veröffentlicht 🔔 Die vollständige Long-COVID-Videoserie auf #Deutsch @longcovidde.bsky.social @fisiocamera.bsky.social Zu den neuen Episoden gehören: ⚓️ Auswirkungen von #LongCOVID auf den Alltag 👷‍♀️ Sichere Long-COVID-Rehabilitation ⚖️ #Pacing 🏃‍♂️ Bewegung longcovid.physio/german-long-...

Children should not have to choose between being well and receiving a good education. When students are sick — whether from acute illness, Long COVID, or other chronic conditions — rigid attendance policies can undermine both their health and their ability to learn. (...)

A major new review on #LongCovid brings together current evidence on what may be driving the condition - and what still needs to change. Proud to see contributions from the LCK community, including trustee @profmarkfaghy.bsky.social Clear message: more work is needed www.nature.com/articles/s43...

Very comprehensive breakdown of a really complex condition. Nice work by some of the heavyweights in the field.

The pathophysiology of that disease they are trying to treat with positive vibes. www.nature.com/articles/s43...

An Opus from my Long C-19 Colleagues from across the world. Lead author, @profmarkfaghy.bsky.social ... Total CHAMPION‼️ My contribution... Sleep Medicine🙏🏻 www.nature.com/articles/s43...

Our new paper out today in Nature Comms, led by the amazing @profmarkfaghy.bsky.social Current status and future perspectives on the mechanistic And pathophysiological understanding of Long Covid www.nature.com/articles/s43...

Excellent 🧵 Long Covid is not psychologically informed! It's: 🦠 Viral persistence 🧬 Immune dysregulation 🧠 Neurological 🫀 Cardiovascular ⚡ Mitochondrial 🧪 Autoimmunity Thanks to all the team involved.

Essential reading for anyone living with LC or working with patients in any specialty. LC is so widespread. All healthcare workers need to understand it and we urgently need greater research and treatment for this condition.

8️⃣ To reinforce our patient focused approach - a number of the articles co-authors are patients. They always make sure we ask the right questions..

7️⃣ Take‑home message Long COVID is not a single disease but a complex, multisystem condition. Advancing care will depend on mechanism‑driven research, collaboration across disciplines, and sustained long‑term investment.

6️⃣ Future recommendations We call for: 🔹 Better patient phenotyping and stratification 🔹 Longitudinal, mechanistic cohort studies 🔹 Integration of multi‑omics and imaging approaches 🔹 Standardised definitions and outcome measures 🔹 Closer alignment between basic science and clinical research

5️⃣ This matters because.. Without a clear mechanistic understanding, progress on diagnostics, targeted treatments, and clinical trials remains slow and fragmented.

4️⃣ Cross‑cutting issues The authors emphasise: • Biological heterogeneity between patients • Overlapping mechanisms across organ systems • The lack of definitive biomarkers • Challenges in case definitions and stratification

3️⃣ Key mechanistic areas covered 🦠 Viral persistence and reservoirs 🧬 Immune dysregulation & chronic inflammation 🧠 Neurological and neurocognitive mechanisms 🫀 Cardiovascular and endothelial dysfunction ⚡ Mitochondrial and metabolic impairment 🧪 Autoimmunity and microclot hypotheses

2️⃣ Scope of the review The paper brings together evidence across multiple systems and disciplines, reflecting the heterogeneous and multisystem nature of long COVID.

1️⃣ Aim This review aims to synthesise current evidence on the mechanisms and pathophysiology underlying long COVID, highlighting what is known, what remains uncertain, and why progress has been challenging.

Our new paper is here: Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID www.nature.com/articles/s43...

Very moving video from Long Covid Physio ❤️👇

Sending ❤️ on Mother’s Day to all the Mums who are advocating knee deep in exhaustion, making tough choices everyday - without the systems and resources required - often even without the basics from others - empathy and #kindness You ARE doing your best. #MothersDay #MotheringSunday #Mums

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts 2/

The theme for International Long Covid Awareness Month is Every Heartbeat Counts, highlighting how Covid can affect heart health. We're sharing some information from our friends at @PoTSUKCharity, who support people with Postural Tachycardia Syndrome. 1/3

Long Covid Families is proud to have successfully advocated for the inclusion of children in pediatric Long COVID clinical trials. Children cannot be left out of treatment research. Including them from the start leads to faster, more effective, and more equitable care.​​​​​​​​​​​​​​​​

I've been debating posting this all day, but here goes. It's ironic that #LongCovidAwarenessDay falls on Mother's Day this year. #LongCovid has likely taken away any chance of me having a child. Thinking of anyone grieving that today, I see you 🫶

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts 3/

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts /4

Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

bsky.app/profile/long... A moving short film from Long COVID Physio. So grateful to all the people who give their time for free to help the millions of us living with Long Covid.

Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

www.physiosforme.com/hcpwithmesur... 150 responses in 2 weeks. Thank you all for completing. Just a reminder that it is open until 31st Dec and it allows for pacing (can save responses and cont at another time). Please share widely. Still some professions not reached @physiosforme.bsky.social

“Healthy people optimize their lives through addition: more experiences, more connections, more accomplishments. I’m optimizing through subtraction. And the clarity that comes from extreme constraint is something I never expected to value.” #LongCovid #MECFS substack.com/home/post/p-...

The U.K. government set aside funding for #LongCOVID clinics in 2020, but funding is now up to local health boards. Fewer than half of Long COVID clinics will remain open across the U.K. through this year. Read more from @han-written.bsky.social‬: bit.ly/4eR6f4a

We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch. Please share with your network! www.derby.ac.uk/jobs/current...

#LongCovid @profmarkfaghy.bsky.social @lindsayskipper.bsky.social @sarahbarleymc.bsky.social @longcovidadvoc.com @mikster-derby.bsky.social @michaeltikus.bsky.social

Suzanne O‘Sullivan describes POTS as ‚a condition where change of posture provokes a fall in blood pressure that causes fainting or dizziness‘. She is wrong. In POTS, change of posture causes tachycardia without a drop in BP. She has not even bothered to inform herself about that! #LongCovid #POTS

On #LongCovidAwarenessDay I want to draw attention to the fact that many people are still living with the effects of Covid, and they often struggle to get the support they need. Government must do much more on research, support, and prevention.

From Spain: Oxygen uptake kinetics during postexercise recovery are impaired in #longCOVID -19 patients: a cross-sectional study www.sciencedirect.com/science/arti... "After peak exercise, V̇O2 recovery rates were significantly impaired in long COVID-19 participants compared with controls" #PASC

‘Living with chronic illness is tough. But navigating a complex, novel illness is exceedingly arduous, more so for children. We had questions, doctors had no answers; we needed relief, medicine offered none’ thewire.in/health/press... #LongCovid #LongCovidKids

It’s been 1,233 days for me suffering from a bedridden to homebound existence. For many others it’s been 5 years. We need help. #LongCOVIDAwarenessDay #LongCOVIDAwarenessDay2025

Today our family supports Long Covid Awareness Day. Long Covid has changed family life beyond recognition. My wife and son have been living with Long Covid for almost 5 years since covid came into our home in April 2020. Since then we have been desperately searching for a cure. #longcovidawareness

4 yrs & 11 months ago my career as a clinical physiotherapist was ended by catching covid. 23 years of clinical experience & dedication lost- just like that. How many more people have to have their lives turned upside down like this? #LongCovidAwareness

Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid “It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social t.co/kfLzV0B0fy

On #LongCovidAwarenessDay we stand in solidarity with our clients calling for change, research and to #fundourfuture Sign petition you.38degrees.org.uk/petitions/in...

NEW Long Covid and Me: Understanding Long Covid in Children. In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day. #LCandME #LongCovidKids #LongCovidAwareness www.youtube.com/watch?v=e0U7...

Today, we honour Ondine. Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

Today Saturday 15 March 2025 is #LongCovidAwarenessDay. Today, people living with Long Covid and allies come together to raise awareness about Long Covid For some of us, the Day has already started, depending on the time zone. Seeing already the first advocacy initiatives ongoing, like in Australia!

Today we will also post some powerful poems written by Long Covid patients, carers and advocates. #LongCovid #LongCovidAwarenessDay2025 #LongCovidAwareness #LongCovidAwarenessMonth #LongCovidAwarenessDay #Ireland #Irish #poetry #Covid #IrishPoetry

#LongCovidAwarenessDay2025 #LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth

#Newsletter #LongCovidAwarenessDay Today is Long Covid Awareness Day, a day for us to stand together as a community, raise our voices, and push for the change we desperately need. longcovidkids.org/so/5fPMKw8Uv... #LongCovid #LongCovidKids #LCandME #FundOurFuture #FundThePlan

#LongCovidAwarenessDay2025 #LongCovidAwarenessDay #LongCovid #Ireland #LongCovidAwarenessMonth