'Ireland (is) one of two EU countries that does not recognise COVID 19 as an occupational illness.' - TD Marie Sherlock How can this position POSSIBLY be justified? Please share #LongCovid #Covid #Ireland #Justice #LongTermPlan #DoWhatIsRight

Excellent presentation made by Dr @binitakane.bsky.social to the APPGs on ME and #LongCovid. We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well. Also some strong new thinking for #pwME. (1 of 4 short vids)

🆕Improving healthcare services for people with ME and Long Covid: Patients share their challenges, and the actions needed. pslhub.org/learn/improv... #patientsafety

"#LongCovid isn’t a problem until we can find no other explanation for why millions.. are unable to work, school performance & children’s health decline in unison, & no one can remember what it feels like not to be sick all of the time" #VioletAffleck yaleglobalhealthreview.com/2025/05/18/a...

🚨1/5. Cutting PIP will:   ⚠️ Push people further away from work   ⚠️ Increase poverty   ⚠️ Drive decline in health & independence   See what people said below ⬇️   📧 Contact your MP today & ask them to oppose the proposed welfare changes!!   #LongCovid #TakingThePIP

Join us this Sunday for our monthly support meeting online for spouses/partners and carers. #LongCovid

📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME! 🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns 🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain Link ⬇️

JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…” TY @blakemurdoch.bsky.social ! edmontonjournal.com/opinion/colu...

Long COVID is Now the Number One Chronic Illness in Children. "So many children are getting Long COVID because COVID causes Long COVID, and children are not “immune” to COVID, they are not becoming healthier with each infection, and the adults around them are doing nothing to mitigate the virus."

1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available! 🔗 appgme.co.uk/meetings/min...

How pandemics reshape our brain: Common links and targets between long-haul COVID-19, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), oxidative stress, and neurodegeneration Free: onlinelibrary.wiley.com/doi/10.1002/... #LongCovid #MEcfs

‘Results of this cohort study suggest that symptom patterns were distinguishable across infants/toddlers and preschool-aged children, and from previously studied older children and adults.’ jamanetwork.com/journals/jam... #PaediatricLongCovid #LongCovidKids #Childhood #RECOVER

This #VolunteersWeek we say a huge ‘Thank you!’ to all our fantastic volunteers who have made our charity what it is. Nearly all have #LongCovid themselves or are care givers to someone with Long Covid. Thank you for giving your precious energy to helping so many others. 💖💖💖

👀 We’re keeping track of the amazing George Brill, who is fundraising for our charity by walking Lands End to John o’Groats! Day 72: 108 km in 30 hours Two sunrises & the English 3000s Read more about George’s #LongCovid challenge on the link below! ⬇️ Go George!! 💖 #ForThoseWhoCant

Just an FYI, if someone tells you they're disabled and they don't look like they are... the chances of them lying about it are way smaller than the chances of you just not understanding how hidden disabilities work. Hope that helps.

Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social

1/ "In conclusion, this group of articles points to the global impact of long COVID as well as the varied complications from the condition": www.frontiersin.org/journals/med...

Registration is over half full, so register soon if you’re thinking about coming on Tuesday!

🔔REMINDER - TONIGHT🔔 Join us tonight at 7pm for our monthly online support meeting for spouses/partners & parents. Those on our mailing list will have received the link or you can email us to request it at [email protected] #LongCovid #pwLC #SpeirGorm #SpéirGorm #LongCovidSupport

It's National Clinical Trials Day! Click the link below to learn about some of the #MECFS and #LongCovid clinical trials we’re watching now, and consider joining those that are right for you. ow.ly/8jYa50VVSoB #MECFS #LongCovid #ClinicalTrialsDay

🔔REMINDER🔔 Online support meeting for spouses/partners & parents is this coming Sunday 25th May at 7pm. Those on our mailing list will receive the link or you can email us to request the link. #LongCovid #pwLC #SpeirGorm #SpéirGorm #LongCovidSupport

Great to see #maskblocéire included in this list ⤵️ #maskbloc #longcovid #pwLC #stillmasking #publichealth #cleanair #covid #speirgorm #spéirgorm @cleanairie.bsky.social

If you can’t afford a respirator, look for a local mask bloc. These are volunteer organizations committed to helping people access the best protection they can. If you CAN afford it, consider donating to them as well! maskbloc.org

People facing the fight of their life shouldn’t have to worry about fighting Covid, too. #HealthCareNotHealthCareless

"We have the tools to reduce the number of infections in schools, but we are simply not using them properly, or at all." We have issued this press release in response to the "highly alarming" school absence figures (from 2022-23) released yesterday by the Minister for Education.

Violet Affleck on COVID and climate change: this is excellent yaleglobalhealthreview.com/2025/05/18/a...

🎯 A powerful statement from @cleanairie.bsky.social - it’s time for the Dept. Of Education to implement the tools we have and promote clean air in #schools #SpeirGorm #SpéirGorm #cleanairireland #longcovid #publichealth

An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.

#ActionForME #ThereForME @WesStreeting @theguardian.com @davetuller1.bsky.social @lcaireland.bsky.social #MEActionUK #25%MEgroup

Thanks to my mum for getting everything ready for our family #TeaPartyForME2025 on #BlueSunday (tomorrow) 👍 We’re doing it in aid of @irishmecfsassoc.bsky.social www.idonate.ie/event/BlueSu... but other worthy charities are available (see: the-slow-lane.com/donation-pag... ) #MEcfs #CFS #PwME

Show us what you've been doing for Blue Sunday! Share with us your Blue Sunday par-teas; whether you're planning to wear blue pyjamas, make a blue cake, or simply have a cup of tea in your fanciest mug!  #BlueSunday2025 #MeAssociation #MEAwareness #pwME #MECFS #Fundraising #TeaPartyForME

Today is Blue Sunday for #MECFS Support #MECFS Biomarker projects directly. Please donate to the largest ME/CFS Biomarker study Help make a ME/CFS diagnostic test a reality tinyurl.com/BlueOMFBioQu... #pwME #MillionsMissing #BlueSunday

💙 Blue Sunday - 2025 💙 https://the-slow-lane.com/blue-sunday-2025/ On Sunday, May 18, join this fundraiser for ME/CFS charities. Suggestions: * Wear something blue and have a virtual tea party. * Post photos on social media. * Donate the price you'd pay […] [Original post on disabled.social]

“Long Covid and ME/CFS cost the German society more than all natural disasters in Germany of the past years combined - every year!” Joerg Heydecke from the ME/CFS Research Foundation @mecfsresearch.bsky.social at the #MECFSSymposium2025

“It can be predicted that 30,000 people will be newly diagnosed with #MECFS in Germany this year.” Joerg Heydecke from the ME/CFS Research Foundation @mecfsresearch.bsky.social at the #MECFSSymposium2025

💙 Blue Sunday, Sunday May 18. Help this fundraiser for Irish ME/CFS Association if you can - for Information, Support & Research. #pwME #pwLC #SpeirGorm #SpéirGorm #MEAwarenessDay #MEAction #Ireland #longCovid #PEM #MEFundraiser @irishmecfsassoc.bsky.social #MedSky #LCSky

I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis. Improving or even stabilising is not the only possible outcome following an infection. Plenty of research shows a significant % of those with #LongCovid satisfy ME/CFS criteria 1/

This #MEAwarenessDay, I'm sharing an artwork inspired by my beautiful partner and a hero @me-cfs.bsky.social ! REST IS RESISTANCE. Cure ME/CFS, Cure Long Covid. I dare to care and I ask you to care. I am with #MillionsMissing who are #StillSickStillFighting for an another #WorldMEDay

Powerful moment at Sir Bob Geldof's event: Belinda & Brooke Nickeas (ME/CFS community) shared a letter outlining the history of ME/CFS. Touched by their courage, he shared these words 💙 On #MECFS Awareness Day, their act is a gift. You are seen. You matter.

This is my SOS 🆘 I’ve had ME/CFS since I was 15 and since 2022 I have been Severe, in the 25% who are house or bedbound. It’s frightening and awful and we have no help or dedicated medical care. We need help, this is my SOS 🆘 #DisabilitySOS #MillionsMissing @meactnet.bsky.social

Q: How can #ME be diagnosed? A: The ME International Consensus Criteria, see the #MEICC poster below for more details 👇 #MEAwarenessDay #MECFS #pwME #pwLC #SpeirGorm #SpéirGorm #MEAction #LongCovid #PEM #MEawareness

Our lovely team has created some gorgeous posters for #MEawarenessday today. Let’s spread the word! #ME/CFS #PEM #SpeirGorm #SpéirGorm #pwME #pwLC #PublicHealth #LongCovid

Such an informative #LongCOVID ‘Questions and Answers’ presentation by Prof. Akiko Iwasaki, @virusesimmunity.bsky.social It’s so important to recognise the airborne nature of this dreadful disease and its implications, for us all, particularly those most vulnerable. www.youtube.com/watch?v=ilIO...

Today is #MEAwarenessDay 🐋 Let's take a deep dive into what ME is and 😇 Why allyship is so important 1/15

🔔 Reminder Tonight 7pm 🔔 Very aptly on this #MEAwarenessDay 💙 we’re hosting our online support meeting for patients (& parents), 7pm via zoom. If you're not on our mailing list, pls contact us at [email protected] to receive link. #LongCovid #pwLC #Ireland #SpeirGorm #SpéirGorm

This World ME day, things need to change.

It’s #ME/CFS awareness day 💙 Please show your support to the ME/CFS community by learning more about this illness and its similarities with #LongCovid Some of our members have found Anj’s videos very helpful. ⤵️ #PEM #MEawarenessday #SpeirGorm #SpéirGorm #pwME #pwLC #PublicHealth

Today and tomorrow, the #InternationalMECFSConference2025 is taking place. Last minute registration for the livestream is still possible at events.mecfs-research.org/en/events/co... Speakers include @scheibenbogen.bsky.social @putrinolab.bsky.social and many more

10/ May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper] cctv.org/watch-tv/pro... Day 10 #MEcfs #PwME

petition.parliament.uk/petitions/70... Please can you sign and RT this petition. We urgently need improved indoor air quality to protect vulnerable & all patients and staff in healthcare & care home settings. Remember many aren’t able to be vaccinated due to health conditions & many unable to 🧵