Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏

As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund. Nevra is a polyglot, inquisitive, and creative young woman. Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️

I am a living example of this! Completely fine with my first infection, recovered and back to normal. Second infection led to long term illness and disability. The literature repeatedly backs this trend up: reinfections are a detriment to our health!

And I am one of them! 2019 fully healthy and working. 2025 chronically ill, disabled and not able to work. My last healthy year I was 29 years old. A second covid infection got me. The question is, how many more will continue to fall ill?

Interesting research outcomes - I wonder how this will impact treatment development?

Pop science articles like this do little to further the understanding of ME/CFS. The old adage that correlation is does not mean causation comes to mind. #me/cfs #longcovid #biopsychosocial #postviralfatigue

Great article in the @irishtimes.com about upcoming drug Mitodicure for ME/CFS, which aims to stop PEM! Investors needed! @meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org

It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that? @intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social

Clean Air protects both employees and their organisations! @hselive.bsky.social @intonews.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @cleanairie.bsky.social @independent.ie @newstalkfm.bsky.social @rte.ie @thejournal.ie

Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social

Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?

Excellent interview on the dire need for #cleanairstrategies at schools by @cleanairie.bsky.social - and how this can reduce absences! @hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social

Thank you @putrinolab.bsky.social for your work and continued advocacy 👏

Thank you to everyone at @bihatcharite.bsky.social who campaign for us, believe us and are researching to help us! @paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.

An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.

Excellent article on the realities of airborne pathogens - again highlighting Carl Zimmer's must-read "Airborne"! @cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social

As someone who fell with ME/CFS in an education setting, the need for #cleanairstrategies in schools is pressing! Please check out Anne McConway's article on this very issue! @educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social

Open windows, pathogen removing lights, and HEPA filters. An ME/CFSers dream ❤️

@cleanairie.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social @intonews.bsky.social @esai-irl.bsky.social @educatetogether.bsky.social @emernowlan.bsky.social @astiunion.bsky.social We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids

www.thejournal.ie/long-covid-c... We're here in our thousands, hidden behind closed doors @hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social

Great new article about Indoor Air Quality in schools. www.thegrindmag.ca/airborne-dan...

The moral of the story is this: do not experiment on yourself by snorting airborne viruses into your brain. Stay in the control group.

Great book on ME/CFS treatment and research by Patrick Ussher and Prof. Klaus Wirth 👏

Univ. of Toledo: 'COVID-19 Brought About a Large Rise in POTS Cases' The study also found the incidence rate of POTS was 1.42 per 1 million person-years before COVID and 20.3 cases per 1 million person-years after COVID. news.utoledo.edu/index.php/03...

An excerpt of my interview about the difficulties living with Long Covid on @news.rte.ie Instagram Link Here: www.instagram.com/reel/DHVXpDx... @virginmedianews.bsky.social @virginmediaireland.bsky.social @cleanairie.bsky.social @patientled.bsky.social @lcaireland.bsky.social

Short interview segment on @rteone.rte.ie about the impacts of Long Covid @longcovidadvoc.com @c19lap.bsky.social @longcovidsos.bsky.social @longcovidsupport.bsky.social @irishmecfsassoc.bsky.social @meassociation.bsky.social @meactnet.bsky.social @fndireland.bsky.social

Thank you to @lcaireland.bsky.social and @fergalbowers.bsky.social for letting me share my story! @irishmecfsassoc.bsky.social @meactnet.bsky.social @meassociation.bsky.social @fndireland.bsky.social @fndsociety.bsky.social @longcovidadvoc.com @c19lap.bsky.social @darraghobrientd.bsky.social

“Pediatricians and family doctors should learn about diseases relegated to history. They should ensure they know what measles, polio & different types of meningitis look like” When we stop vaccinating, diseases we eradicated come back. People die or become disabled and it’s completely preventable:

"Repeat Covid Infections are a Danger to our health - so where's the Public Health Messaging?" Regionally specific but globally relevant #me/cfs #LongCovid @longcovidadvoc.bsky.social @irishmecfsassoc.bsky.social @meactnet.bsky.social @remissionbiome.bsky.social @openmedf.bsky.social @mecfs.at