People with #MECFS and #longcovid need hope, information, and support. People need help from people who understand these conditions, like Raelan Agle www.youtube.com/watch?v=zvGk...

NICE ME/CFS guidance BANS WALKING. Yes, @nicecomms.bsky.social let that sink in. So people NICE encourage bedrest in ME/CFS which makes people worse. "Graded Exercise Therapy", as evaluated in the excellent PACE trial, is described here: WALKING

The Oslo RCT in longcovid intervention of psychoeducation and increasing mental and physical activity led to large benefits. These were even BIGGER effects in those in the upper quartile of PEM. This is important. IE BIGGER BENEFITS IN PEOPLE WITH PEM jamanetwork.com/journals/jam...

#longcovid core to recovery is to understand that prediction effects are causing symptoms. Don't "ignore and push" but "understand, note and lean into.... activities you enjoy..." Rebecca Kennedy explains here www.youtube.com/watch?v=bCo8...

For @unherd.com, I plumb the depths of the tangled and tortured case of Gordon Guyatt, who threw his team’s research funder under the bus and contradicted his own research findings to appease an activist mob. t.co/ftZh0p9s0x

This will be a great lecture from a brilliant and impactful epidemiologist

"Chronicity rhetoric" underpins the UK NICE ME/CFS guidance. The word "recover" appears ONCE and then implies relapse. @NICEComms contributes to a discourse that creates barriers to recovery. Shame on you.

Recovered #LongCovid #MECFS patients state 11 June in BMJ that the message, "no hope without a biomedical cure", is HARMFUL. NICE-you need to wake up to the damage you have done www.bmj.com/content/389/...

NICE Guidance UK misleads. People with severe ME will not get better with this advice, and they are denied cognitive approaches that can help recovery

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects around 250 000 people in the UK. Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, @paulgarnerwoof.bsky.social and colleagues www.bmj.com/content/389/...

This is a terrific seminar, linking the science of the stress response to the post-COVID condition and ME/CFS. "We need to "We need to listen to communities of people who have recovered from illness"-and brain-body retraining programmes really help people recover.

Excellent journalist. I am not sure the ME/CFS association comment is correct-they have not kept up with the science. In my view, this means the association is impairing people’s access to approaches that will help them recover. www.manchestereveningnews.co.uk/news/uk-news...

so two independent, published critiques of Appelman point out this study is flawed and the patients were deconditioned. What is important is that Appelman inferences are also incorrect, as both these criticisms point out, from different disciplinary angles

study in Nature claimed exercise damaged people with post-exertional malaise from #LongCovid. A second critique, from specialists in muscle, say pain after exercise is not specific to covid-19, and exercise IS helpful in muscle recovery. rdcu.be/eaOtl

A study in Nature claimed exercise damaged people with post-exertional malaise from #LongCovid. We found their evidence does NOT support this: patients were deconditioned, the exercise was extreme, and there were no proper controls #MEcfs www.nature.com/articles/s41...

Great piece in the "I" about #LongCovid treatment by @ClareWilsonMed : sensible, basic rehabilitation with cognitive approaches and incremental activity, and steer away from quack medicine that are "high on promise and low on evidence". inews.co.uk/news/health/...

Improvement and recovery are possible for individuals living with chronic fatigue conditions. This comes from extensive research, clinical experience, and the perspectives of patients who have experienced positive changes and full recovery. www.sciencenorway.no/chronic-fati....

Excellent article on the theoretical underpinning of neuroplastic programmes to help people recover from #longcovid, and the structured active approach to reframe to make activity safe psykologtidsskriftet.no/fagessay/202...

"insisting that symptoms in these [post-viral fatigue] conditions are wholly biomedical - unrelated to evolved biological stress responses...and the promotion of unfounded theories, such as “microclots” causing chronic fatigue conditions, in itself could be harmful". tinyurl.com/yvyh9e24