ME Connect (helpline & email service) is available via our freephone number to offer support and information. ** Freephone number - 0808 801 0484 ** You can also email us at meconnect @meassociation.org.uk #pwME #MECFS #MyalgicE #Helpline #MEConnect

New years greetings! (in advance of this evening) Wishing our members, followers and supporters all the best for 2026, from everyone here at the ME Association. #pwME #MyalgicEncephalomyelitis #LongCovid #MEAssociation

Wishing you a restful Christmas from the ME Association!   For those who may not celebrate, we hope you have a comfortable festive season.   #MECFS #pwME #LongCovid #Christmas2026

Follow us on all our social media channels to keep up-to-date with the latest ME/CFS and Long Covid news, research, and support. Links to all our social media accounts can be found here: https://linktr.ee/measocials  #MECFS #pwME #LongCovid #MEAssociation #FollowUs

1/3: Please be aware that our main office will be closed for Christmas from 3pm on Tuesday 23rd December, and will reopen on 9:30am Monday 5th of January. Any enquiries received during this time will be replied to once the office reopens in the New Year. #MECFS #MyalgicE #MyalgicEncephalomyelitis

MEA announces its largest-ever £1.1m investment in biomedical research: a landmark study exploring shared pathways between ME/CFS and Long Covid—the biggest project of its kind. Watch the video or read the blog: https://meassociation.org.uk/5n3l  #MECFS #LongCovid #pwME #MEAssociation

BBC News: 'I want my album to help people understand my ME' '[Harry Boulton] has released an album of classic Christmas tunes, called White Christmas, to raise money for people living with ME/CFS.' Read more: https://www.bbc.co.uk/news/articles/cp891k8w51ko #MECFS #pwME #MyalgicE

1/2: MEMBERS ONLY – Notice of Annual General Meeting of The ME Association The ME Associations AGM will be held on the 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm. #MEAssociation #MEA #pwME #MECFS #LongCovid

Wishing all our members and supporters a restful, safe, and comfortable festive season, from everyone here at the ME Association. Christmas Card: https://www.flipsnack.com/meassociation/seasons-greetings-from-the-mea #pwME #MECFS #MyalgicE #SevereME #Christmas

New booklet: Vision and ME/CFS This booklet aims to provide an overview of how ME/CFS can impact vision, offers information on potential ME/CFS-related and unrelated visual problems, and explores management strategies for specific visual symptoms. https://meassociation.org.uk/yyod #MECFS #Vision

If you're looking for support, friendship, and community this time of year, then why not join ME Connected on Discord, an online community especially for those affected by ME/CFS and Long Covid? Join here: https://meassociation.org.uk/discord  #MECFS #pwME #LongCovid

1/3: This is a reminder to ME Association members that the AGM will be held on 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm. Read more about the AGM and how to attend: https://meassociation.org.uk/k6ff #MEAssociation #MEA #AGM #MECFS #LongCovid

Just Giving Page: If you’re able to support Harry’s fundraising further, please do so via the link below: www.justgiving.com/page/harrybo... Every purchase, share and donation makes a difference. Thank you for your support! #MECFS #MyalgicEncephalomyelitis #Fundraising #MEAssociation

Harry Boulton: White Christmas - a Fundraising Album with proceeds to the ME Association Available now on Spotify and Amazon Music/Music Unlimited open.spotify.com/album/5BDkA2... music.amazon.com/artists/B001...

It's not too late to send a card via Make a Difference, & raise money for the ME Association! You can choose from a selection of beautiful designs, including some specific to the charity created by talented MEA supporter Yvonne from Perks of Art https://meassociation.org.uk/MADC #MECFS #LongCovid

1/2 We're are so pleased to share that Ruby Evans-Gray has raised an amazing £696 through a pub quiz and raffle to support The ME Association! Thank you Ruby for your support which will help us continue our vital work funding biomedical research and helping to support our community.

Stamp Collection - Please don't forget to keep collecting stamps for the ME Association this Christmas! Simply cut or gently rip used stamps from their envelopes, taking care not to damage the stamp. #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid

The Sick Times: Research updates, December 16 A summary of the MEA's recent funding announcement has been included in The Sick Times recent research roundup. Read the full summary here: https://thesicktimes.org/2025/12/16/research-updates-december-16/ #MECFS

News Medical: Multiple biological systems show abnormalities in ME/CFS patients "New Australian research has identified simultaneous abnormalities across multiple biological systems in people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).” shorturl.at/gXiCn #MECFS #Research

The office is currently experiencing a period where they are short staffed, and so they will endeavour to answer your call when they can. If you cannot get through, please can we ask you to call back another time. Thank you for your understanding. #MEAssociation #MEA #pwME #MECFS

📚 Make reading easier with Listening Books   A UK charity offering 10,000+ audiobooks, newspapers, magazines & more for anyone facing barriers to reading. - Membership: £25/year (free if cost is a barrier). - Find out more: https://www.listening-books.org.uk/join #ListeningBooks #MEAssociation

ME Connect (helpline & email service) is available via our freephone number to offer support and information. ** Freephone number - 0808 801 0484 ** You can also email us at meconnect@meassociation.org.uk #pwME #MECFS #MyalgicE #Helpline #MEConnect

Welsh Senedd debate on ME Last Wednesday, Adam Price, Senedd Member (MS) for Carmarthen East and Dinefwr, led a members’ debate on ME, emphasising the severely and very severely affected. Read more: https://meassociation.org.uk/adcm #pwME #MECFS #SevereME #Senedd #Debate

MP Tessa Munt chairs APPG on ME and shares an uplifting message for 2026! "I was honoured to be asked to step into chair the APPG... on behalf of Jo Platt today. It was really encouraging to see a number of MPs and MPs researchers present..." Read more: https://meassociation.org.uk/gva2 #pwME

1/2: MEMBERS ONLY – Notice of Annual General Meeting of The ME Association The ME Associations AGM will be held on the 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm. #MEAssociation #MEA #pwME #MECFS #LongCovid

ME Association: Chairman’s Statement for 2025 David Allen, Trustee and Chairman of The ME Association, has shared his Chairman's statement for 2025. Read it in full on the blog: https://meassociation.org.uk/dthd #pwME #MECFS #MEAssociation #LongCovid

East Anglian covers Suffolk teen with ME chosen as DofE Award ambassador www.eadt.co.uk/news/2569149... N.B. ME/CFS has a range of severities, therefore what one person can achieve can be markedly different from another person with ME/CFS.

A big 'thank you' from Dave, one of our supporters, for all the money you helped us raise during the BigGive Christmas Challenge! Thanks to your generosity, over £47,000 will be going towards a new research study into Post-Exertional Malaise (PEM).  #pwME #MECFS #LongCovid #ThankYou #BigGive2025

Physical & E-cards available to buy via Make a Difference, with all money going towards the MEA's vital work. You can choose from a selection of beautiful designs, including some created by MEA supporter Yvonne from Perks of Art. https://meassociation.org.uk/MADC #CharityChristmasCards #ECards

NHS Networks: Investigating links between ME/CFS and long Covid "The ME Association, a charity which supports people living with ME/CFS & Long Covid, has awarded £1.1 million to researchers at Imperial College London to lead the new Rosetta Stone study." networks.nhs.uk/blog/investi...

A new review of current published research into the use of Ivabradine in PoTS (Postural Orthostatic Tachycardia Syndrome) has been published in the Journal of Cardiovascular Pharmacology. Read more:  https://meassociation.org.uk/3g00  #POTS #MECFS #pwME #LongCovid

Parliamentary Question: To ask the Secretary of State for Health and Social Care, what assessment he has made of patient safety risks, including those relating to malnutrition, among people with severe and very severe ME/CFS in England. questions-statements.parliament.uk/written-ques...

Medical Xpress: Could hidden infections be fueling long COVID? "The most compelling evidence involves Epstein-Barr virus (EBV), the pathogen that causes mononucleosis." medicalxpress.com/news/2025-12...

Nation Cymru: ‘Living in darkness’: Senedd shines light on Wales’ ‘invisible’ ME crisis "Thousands of people in Wales are “invisible” to society and living behind blackout blinds – unable to bear light, sound or touch – the Welsh Parliament has heard." nation.cymru/news/living-...

Thank you to everyone who supported the ME Association during this year’s Big Give Christmas Challenge! Because of your generosity, we didn’t just meet our target – we smashed it, raising an incredible £47,051.50! Thank you! #ThankYou #pwME #MECFS #LongCovid #BigGive2025 #ChristmasChallenge

Bury Times: Christmas album by Bury teen raises funds for charity  "Seventeen-year-old Harry Boulton, who was diagnosed with ME/CFS a year ago after a viral infection, has created the eight-track album White Christmas to raise money for The ME Association." #MECFS

A paper published in the Cell Press journal Trends in Immunology on December 4, highlights the importance of studying Long Covid in relation to other post-acute infection syndromes or chronic illnesses. https://meassociation.org.uk/8q82 #LongCovid #PostCovid #Research

Brand new information booklet: Vision and ME/CFS Read the blog for more information plus find a link to the free download: meassociation.org.uk/yyod #MECFS #VisualDisturbances

Adam Price, Carmarthen East and Dinefwr, has tabled this debate at Senedd Cymru | Welsh Parliament for today.  Details of points raised here: https://record.assembly.wales/OrderPaper/Motions/10-12-2025?type=NDM #pwME #MECFS #MyalgicEncephalomyelitis #Wales #WelshParliament

Imperial College London: £1.1m awarded to investigate links between ME/CFS and Long Covid "A new landmark study funded by The ME Association will help scientists to uncover shared pathways between ME/CFS and Long Covid." https://tinyurl.com/mr3ybhwv #MECFSResearch #MECFS #pwME #LongCovid

1/2: Driving discovery: The ME Association invests £1.1m into pioneering research programme! We are incredibly proud to unveil news of our latest investment into ground-breaking research to help world-leading scientists uncover shared pathways between ME/CFS and Long Covid. #pwME

Germany: Nature: Long-COVID research just got a big funding boost: will it find new treatments? "The German government has committed half a billion euros for research on long COVID and other post-infection syndromes."  Read more: https://www.nature.com/articles/d41586-025-03904-w  #LongCovid

There’s only 1 hour left to give money to fund a new research project into Post Exertional Malaise – The BigGive Christmas Challenge closes at 12 midday today. Please consider giving whatever you can, & help us crack PEM. https://meassociation.org.uk/BigGive2025 #LastChance #Donate #MECFS #PEM

ME Research UK: Planned NHS Specialist ME/CFS Services in Scotland Rhoda Grant MSP (with assistance from MERUK) has asked for more details via FOI requests from the Boards in her constituency. MERUK have made requests to the remaining 11 NHS Boards. www.meresearch.org.uk/planned-nhs-...

ME Connect (helpline & email service) is available via our freephone number to offer support and information. ** Freephone number - 0808 801 0484 ** You can also email us at meconnect@meassociation.org.uk #pwME #MECFS #MyalgicE  #Helpline #MEConnect

ATTENTION: There’s only 1 DAY LEFT to donate to our BigGive Christmas Challenge! Donate before 12 midday tomorrow, and your contribution will help to further understanding of this debilitating yet under-researched disease.  https://meassociation.org.uk/BigGive2025  #MECFS #1DayLeft #pwME

1/2: In 2025, the MEA Board commissioned an independent governance review to assess how effectively the charity’s structures, leadership arrangements, and working practices support its mission—and to identify changes required to ensure sustainability, accountability, and organisational clarity.

Medical Matters – Dorsal Root Ganglionitis Q: What is Dorsal Root Ganglionitis? And what, if anything, do post-mortem studies say about its relevance to ME/CFS? A: https://tinyurl.com/3sr4ju6h #MECFS #MyalgicEncephalomyelitis #DorsalRootGanglionitis

This December, give a gift with a ‘fa-la-la-la-lasting’ impact! Please give generously so we can fund research into understanding ME/CFS – helping the 400,000+ people living with it in the UK today.  https://meassociation.org.uk/BigGive2025 #MyalgicEncephalomyelitis #PEM #BigGive2025 #MECFS

ME affects around 400,000 people in the UK; stealing their energy, independence and derailing their future. Your donation could help unlock answers that lead to better treatments & understanding. https://meassociation.org.uk/BigGive2025 #MECFS #LongCovid #BigGive2025 #Research #Donate