#LongCOVID, #MECFS, chronic #lyme scientists and clinicians: This energy! Bring it each day someone tries to force you to follow the status quo, bring it each time someone tries to slow you down just because their insecure ass can't keep up. People are depending on us. Move faster! Show urgency!

Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/

Delighted to receive this in the mail yesterday and congrats to Giorgia Lupi on getting this out. THANK YOU for taking time to discuss #LongCOVID and the need for accurate, inclusive and honest representation of the people we collect our data from. Amazing work. 🙏🏻

This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude. t.co/Mqf822zWJV 1/

Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like Visible, designed FOR patients, BY patients. www.frontiersin.org/journals/dig... 1/

1/ #Reinfections are not harmless. As #LongCOVID researcher, David Putrino, said "There is no such thing as a #COVID infection without consequence" - @putrinolab.bsky.social

Understanding Micro Clots | The Sticky Protein Behind Long COVID Symptoms. Prof David Putrino explains why you're testing normal #longcovid #longhauler #longcovidtheanswers @putrinolab.bsky.social

Two new #BCI preprints hot off the press as we wrap up our first-in-human trial testing safety and feasibility of @synchron’s Stentrode implant. The first paper, led by the incredible @chettaaay and @dougweberlab shows us the stability of the recordings www.medrxiv.org/content/10.1...

10 yrs ago l got to meet Daryl Davis after hearing him speak. In times like these I find myself reflecting on whether his style of advocacy can still work in 2025? I happen to believe that it still can. “When two enemies are talking they aren’t fighting” www.npr.org/2017/08/20/5...

Timely @TheLancet paper about #Longcovidkids, showing that risk of developing #LongCOVID effectively doubles in kids after their second infection. Now do third, fourth, nth infections… “We knew how to protect you, and we didn’t” 🤔 sound familiar? www.thelancet.com/journals/lan...

A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who 1/

This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder... thesicktimes.org/2025/09/26/l...

Incredible talk here at the #UNGA80 #indoorair call to action from our very own Violet Affleck! Reminding us that #longcovid affects all of us, the #covid19 pandemic is ongoing and we have failed to protect our children. Thank you, Violet, for speaking the truth to this room 🙏🏻

I know a lot of folks were asking, so here is last week's RECOVER-TLC programming freely available on youtube: youtube.com/playlist?lis... I sincerely hope that the NIH will be taking action on some of the ideas I expressed here for use of monoclonals in #LongCOVID research.

Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is www.researchsquare.com/article/rs-7... 1/

Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social‬ & @putrinolab.bsky.social discuss how patients are reshaping research. Watch: https://ow.ly/xcAE50WNhXP

Mount Sinai’s new manual for the treatment of infection-associated chronic diseases is an important step: not a cure-all, sure, but an important instance of a medical institution taking IACD seriously—including Lyme & TBDs—and introducing frameworks for care. Thx @putrinolab.bsky.social & CORE!

I’ve said it before and I’ll say it again. I love this podcast from @BayAreaLyme. Every time I listen I learn so much about chronic tick- and vector-borne illnesses like chronic #lyme as well as other IACIs, and @danaparish asks such great questions! 🙏🏻 podcasts.apple.com/us/podcast/t...

Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS, www.beckershospitalreview.com/quality/pati... 1/

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

I watched Quad Gods on my flight yesterday and happy to see it was starring @putrinolab.bsky.social 🤩 What can’t this guy do? From international researcher extraordinaire to actor to helping persons with quadriplegia get their groove back!

We are so excited to get to work with the Nancy Lieberman Back to Life Center at Mount Sinai and to welcome @stevenspohn.bsky.social as our Director. Although we're starting with spinal cord injury, we are hoping that this is an idea that will rapidly 1/ reports.mountsinai.org/article/reha...

Ten years in the making: I'm so damn proud of my team and grateful to the Lazarus family for making this a reality. The work we will complete over the next 5 years will bring transformative technologies to the forefront of pediatric rehab. Cannot wait.👏🦾 www.mountsinai.org/about/newsro...

I'm glad to see @BuzzFeed running educational content about tick- and vector-borne illness like #lyme, but I must disagree with Dr Shapiro, who is quoted in this article, that an infected tick *has* to be on for 24-36 hrs to transmit Lyme Disease. The apple.news/A2smoGgDsQfO... 1/

Excited to join the SPEAR study group, working with @Invivyd as well as exceptional scientists like @MichaelPelusoMD and @microbeminded2 to bring mAB clinical trials to people with #LongCOVID and post-vaccination syndrome. These trials are LONG overdue. LFG! 💪🏼 investors.adagiotx.com/news-release...

In honor of #PrideMonth2025, I just wanted to take a moment to discuss the crucial role of intersectionality, gender and inclusion in research, specifically as it relates to our research involving #LongCOVID, #MECFS, chronic #lyme and other complex chronic illnesses. As we 1/

In this video, Dr. David Putrino discusses the nuanced relationship between movement, heart rate variability ( #HRV), and post-exertional malaise ( #PEM) in people living with complex chronic illnesses like #ME/CFS, Long Covid, Fibromyalgia, and Chronic Lyme Disease. youtube.com/watch?v=pfox...

"#LongCovid isn’t a problem until we can find no other explanation for why millions.. are unable to work, school performance & children’s health decline in unison, & no one can remember what it feels like not to be sick all of the time" #VioletAffleck yaleglobalhealthreview.com/2025/05/18/a...

Inspiring talk from @putrinolab.bsky.social from last month's #ME/CFS and #LongCovid conference in Stavanger, Norway! youtu.be/HfODHSlS-7s?...

Emily in Paris has nothing on Monica & David in Paris! 🇫🇷✨ Had to cross the Atlantic to find my brilliant friend @putrinolab.bsky.social but I’d travel even farther to say thank you. Your tireless work for those with #LongCOVID is changing lives. The world is lucky to have you in it.

@resiapretorius.bsky.social @dbkell.bsky.social @ruhoy.bsky.social @kaufmanmd.bsky.social @putrinolab.bsky.social @virusesimmunity.bsky.social Documentary "Chronically Ignored", 92 min, now via online stream, just 14 days. Unfortunately with payment, but I'd be grateful for watching & sharing ♥️

Grateful to @putrinolab.bsky.social and the clinicians, researchers, & PLRC members who authored this response piece in the BMJ yesterday. There are countless biological findings in severe ME, and people with severe ME need to be treated with effective therapies! #pwME www.bmj.com/content/389/...

Efforts are urgently needed to intentionally address inequity in long COVID research to include children early in clinical trial design. bit.ly/3RMGmYz #LongCovid @buonsenso.bsky.social @resiapretorius.bsky.social @longcovidkids.bsky.social @petterbrodin.bsky.social @putrinolab.bsky.social

The BMJ's recent propaganda piece about severe ME/CFS hijacked Maeve Boothby O'Neill's death to bolster its arguments. The lead author of the piece did that last summer as well: virology.ws/2025/05/21/t...

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has www.bmj.com/content/389/... 1/

Viele Grüße von der #MECFS Konferenz in Berlin! #MEAwarenessDay

Eine internationale Gemeinschaft, vereint durch Wissenschaft, Mitgefühl & Entschlossenheit - diese #MECFS -Konferenz hat mir Hoffnung gegeben. Dass geteiltes Wissen zu gemeinsamem Fortschritt wird. Und dass niemand mit ME/CFS mehr alleine ist. #MillionsMissing #MEAwareness #PEMistnichtverhandelbar

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Do you have Post-Treatment Lyme Disease Syndrome and chronic pain? Are you in the United States seeking a virtual clinical trial participation opportunity? See our clinical trial exploring a therapy through a novel device.

Fascinating insights from @putrinolab.bsky.social on the range of chronic and persistent infection-associated illnesses that help us understand #LongCovid @meforeningen.bsky.social #mecfs #pwME #stavanger

David Putrino @putrinolab.bsky.social on the likely underlying causes of #LongCovid pathology At the @meforeningen.bsky.social #mecfs conference in Stavanger 🇳🇴

“Skeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest” Objective science debunking deconditioning theories! 💥 🎤 @patientled.bsky.social www.medrxiv.org/content/10.1...

Again for those in the back: 👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential” Thanks to @RobWust for this incredible work. www.medrxiv.org/content/10.1...

Post-treatment Lyme Disease patients with chronic pain in the US—consider participating in this decentralized study (completely virtual). It’s run via the CoRE clinic under the direction of Drs. David Putrino and Amy Proal @putrinolab.bsky.social @coresinai.bsky.social

Great to see this paper out, showing persistent heart and lung inflammation in people with #LongCOVID, but also highlighting once again that SARS-CoV-2 is a virus that profoundly affects vascular health and that every new infection can do damage. www.mountsinai.org/about/newsro...

We’re truly excited that the PolyBio supported Low-dose Rapamycin trial is now recruiting in the NYC area. Interested in learning more? Here’s the full study summary: polybio.org/projects/lon...

🧪Some did continue to work on endothelial damage & microclots @sunny-rae1.bsky.social @resiapretorius.bsky.social @putrinolab.bsky.social 20/05/25 in ACM&A Long COVID clinical evaluation, research & impact on society: a global expert consensus ann-clinmicrob.biomedcentral.com/articles/10....

New AAPMR Long COVID compendium is out in the PMR Journal! 🧠🫀🫁 Built by 40+ centers, it offers practical, holistic guidance for frontline clinicians. Covers #LongCOVID symptoms, equity, disability, and care frameworks. 1/ Read here: onlinelibrary.wiley.com/doi/10.1002/...