Live Pacing Pop-Up Series (March –Jun 2026) Join us for interactive monthly sessions on pacing, heart rate, upright hours & reducing post-exertional flare-ups. Attend the sessions that suit you. Limited spots available. Learn more: zurl.co/Y6Zut

We need your feedback 💬 Help us understand how you perceive our work by answering one quick question. Your input helps us improve. Share your feedback by 30/06: zurl.co/yjUG2

🌿 Learn at your own pace, for FREE 🌿 New module: Pacing for PEM – practical tools to balance activity and rest, adapt tasks and build a personalised pacing plan for #MECFS, #LongCOVID and other energy-limiting conditions. Start here: zurl.co/Jw6hH

“Thank you for all the incredible work you do... Your compassion and dedication make a true difference.” A $200 donation funds two health support calls with a specialist nurse, delivered safely from home for people living with ME/CFS. zurl.co/W2oi2 #PedalForPower

Deakin University is recruiting participants for the TRI-ME clinical trial testing a new medication for #MECFS. 👉 8-week study (Geelong, VIC) 💊 Active drug or placebo 🩸 Blood tests + $20/session Interested? 📧 [email protected] 📞 0482 869 599 #Research #ME/CFS

This ME/CFS Awareness Day, wear Betty the Battery and help raise awareness of ME/CFS and post-exertional malaise (PEM). On 12 May - wear your socks. Share a photo & tag us. Use the hashtags #PEM #BettyTheBattery Shop today - zurl.co/KYuYN

If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research! Sign up today and make a difference! zurl.co/OZVrV

For people living with ME/CFS, understanding pacing can make a real difference. A $150 donation funds one online pop-up education session, helping people learn about PEM, pacing, heart rate monitoring, and managing energy with more confidence. zurl.co/QNvcj

Share your Pedal for Power fundraising link in 3 low-energy ways: post it to your story, share it to your feed, or email it to friends, family or colleagues. You do not need a big following or perfect words, just share why you chose your pedal. #PedalForPower #MECFS #LongCOVID

The NAA is running Australia’s 1st national survey on gaps in neurological care, support, research & innovation. Have your voice heard. Take the survey by 8 May zurl.co/Sl8KT #mecfs #longcovid #nerologicalallianceaustralia #emergeaustralia #HealthPolicy

Thank you to everyone who shared feedback on our CALD community survey 💙 Because of your input, we’ve created Easy English resources, secured funding for translations, added more video and audio, and improved website accessibility. zurl.co/Kobh2 #EmergeAustralia

🩺 Clinical guidelines update: the NHMRC ME/CFS Clinical Guideline Development Committee has held its fourth meeting. Members heard from the Diagnosis Working Group and agreed on methods for developing and organising the new guideline. Read more: zurl.co/qi7Fw

Plant the seed for lasting impact 🌱 A bequest to Emerge Australia helps grow vital support, education and research for people with #MECFS and #LongCOVID. It’s a simple, meaningful way to make a difference. Learn more: zurl.co/di330#MECFS#LongCOVID#Legacy

Today we’re highlighting Pedal for Power participant Saffron ✨ Living with ME/CFS for over four years, she’s set a goal within her energy envelope: walking 5km at Parkrun. Thank you Saffron for taking part. Join here: zurl.co/ovK4z #PedalForPower #MECFS #LongCOVID

Edith Cowan University (WA) is recruiting participants aged 18-60, healthy or with #longCOVID, for a study. Exclusions: neurological disorders, pregnancy. Must be able to perform hand contractions & attend the Joondalup campus. Info here: zurl.co/ieRvy

✨ Live Pacing Pop-Up Series (March –Jun 2026) ✨ Join us for interactive monthly sessions on pacing, heart rate, upright hours & reducing post-exertional flare-ups. Attend the sessions that suit you. No prereqs required. Limited spots available. zurl.co/XhsYE

🌍 World Health Day Join us in research! 💙 Join the AusME Registry to support research into #MECFS, #LongCOVID and other energy-limiting conditions. Your voice helps drive progress and better care. Join the #AusME here: zurl.co/1mGO7#MECFS#LongCOVID#AusME#WorldHealthDay #emergeaustralia

Are you a friend or ally of someone living with ME/CFS or long COVID? Join Pedal for Power today. Choose your pedal, share it, and help fund advocacy, education, health calls and GP training. zurl.co/qTJZb #PedalForPower #MECFS

For our #mecfs and #longCOVID community, holidays can feel different, and that’s okay. This Easter, honour your energy. 💙 Pacing is participation 🌸 Redefine celebration 🕊️ Listen to your body ✨ Further info zurl.co/dtaxR#mecfs#longCOVIDToday is about what feels right for you.

Please note Emerge Australia will be closed over the Easter long weekend 🐣 Closed from Fri 3 April, 9am (AEDT) – reopening Tue 7 April, 9am (AEST). For emergencies call 000. Crisis support: zurl.co/MURNo Wishing you a safe long weekend 💙

#PedalforPower has 2 gears: 1 for people living with #MECFS & #longCOVID, and 1 for allies 💙 Set your goal by the total minutes you’ll “pedal” until 12 May. Eg: meditate 60 mins a day × 50 days = 3,000 mins. Use our calculator: zurl.co/gQUgN#PedalforPower#MECFS#longCOVID#P4P #emergeaustralia

Team Broulee Return & Earn have a personal connection to #MECFS through a family member. They and their community on the Sth Coast are collecting containers as part of #P4P. Thank you for participating ✨ Create your own team - zurl.co/ED6vY#MECFS#P4P#PedalforPower #longcovid

We’re running our website feedback survey again 💬 Your input helped shape improvements last round - now we want to hear how we’re going and what to improve next. Take the survey: zurl.co/Oxm4s

Happy Trans Day of Visibility 💙🏳️‍⚧️ We celebrate & support our transgender, gender diverse & non-binary community. Visibility builds understanding, inclusion & a safer future. At Emerge Australia, everyone deserves to feel seen, valued & supported. #TransDayOfVisibility

Pedal For Power: Paced Actions 💙 How to take part: 1️⃣ Create/join a team (or go solo) 2️⃣ Choose your “pedal” (rest, movement or creative) 3️⃣ Set a gentle goal 4️⃣ Share your page 5️⃣ Log minutes Join now: zurl.co/rTPuT #PedalForPower #MECFS #LongCOVID

Pedal for Power: Paced Actions Rest is participation. For people with #MECFS & #LongCOVID, even small exertion can cause PEM. This fundraiser is built around pacing & energy limits, choose rest or any gentle activity as your pedal. Join: zurl.co/AEa8H#MECFS#LongCOVID#PedalForPower

PWLE shared how rigid systems across health, education, employment and gov services are causing preventable harm to people with #MECFS & #longCOVID. People with ME/CFS shouldn't have to keep proving their illness to systems that don't understand it. Share or tag your MP

Introducing Emerge Australia’s latest Research Digest – easy-to-read summaries of new ME/CFS and Long COVID research, delivered monthly to your inbox. 🧠✨ Subscribe or browse past editions (incl. audio): zurl.co/CMIWU

Monash Uni is recruiting adults 18+ with long COVID for a dietary fibre study. Includes study foods, 2 Alfred Hospital visits, samples + short check-ins. Info: zurl.co/X8ecA Survey: zurl.co/NAl46 💙

Pedal for Power is NOT a cycling event 💙 It’s an inclusive fundraiser designed for people with #MECFS & #LongCOVID where rest can be your “pedal.” Choose your own activity and rally support. Join: zurl.co/wXzrG#MECFS#LongCOVID#PedalForPower

Make a difference for your patients – from invisible to visible. 90% with ME/CFS remain undiagnosed; 50% of long COVID patients meet ME/CFS criteria. Free self-paced RACGP-approved CPD case-based diagnosis & management (HCPs only): zurl.co/WH2qE

To better support #MECFS & #longcovid GPs need training, tools & systems to respond to these conditions. W/out this, people will continue to face delayed diagnosis, fragmented care, inappropriate advice & avoidable harm. Share/tag your MP #mecfsallianceaustralia #emergeaustralia

Join the AusME Biobank in advancing #MECFS and #longCOVID research. If you're in QLD, NSW or VIC with these conditions, or a healthy volunteer, donate blood today. 👉 Find out more at zurl.co/WGNV4

📢 Participants needed! The GLOW Trial is studying gut-based therapy for Long COVID at Uni Hospital Geelong. If you’re 18–65 with moderate–severe symptoms, you may be eligible. Learn more 👉 [email protected] | 📞 (03) 4215 3078

💤 World Sleep Day If you live with #MECFS or #LongCOVID, sleep can be confusing and unrefreshing. Our Sleep Module shares practical info on sleep patterns, disruptors and how to build a gentle sleep plan. 👉: zurl.co/h4QHi

Stepwise symptom management Doctors and healthcare practitioners can play a vital role in supporting people with #MECFS & #LongCOVID. This approach focuses on improving quality of life - though it doesn’t treat the underlying cause of the illness. 👉 zurl.co/ycSvP

Here’s how Pedal For Power works Register * Create profile * Choose your pedal and set a gentle goal * Share with potential sponsors * Log effort to see impact Small actions. Clear impact. Fundraising for Emerge Australia: zurl.co/WTW9j #PedalForPower #mecfs #longcovid

This week is #advancecareplanningweek (16–22 March). An Advance Care Plan can help people with #MECFS record care preferences, including what helps, what worsens symptoms, and how they wish to be supported during severe illness. Learn more: zurl.co/P8zFA

Thank you to everyone who joined us at Parliament House and online for Fluctuating Energy, Fixed Systems. Speakers shared powerful experiences and insights on how rigid systems fail people with #mecfs & #longcovid. Watch the recording: zurl.co/qThaI#mecfs#longcovid#mecfsadvocacy

Today #emergeaustralia launches our new fundraiser Pedal For Power - inclusive fundraising built around safety & pacing, supporting care for our community. Choose a pedal that fits your energy. Participate solo or as a team. Every effort counts. 👉 zurl.co/PzCVh

🎧 Now Available: #ImaginePodcast Season 8, Ep 7 Henry Barker along with his mother Jen🎧 🔗 Available wherever you listen to podcasts - zurl.co/lzt2g#ImaginePodcast #emergeaustralia

For many living with #longCOVID & #mecfs, life is measured in energy, not time. Awareness is not only knowing long COVID & ME/CFS exist, it’s understanding the energy calculations people make every day. Support research. Clinical education. Equitable access to care. Importantly - believe them.

🎧 Now Available: #ImaginePodcast Season 8, Ep 6 Dr Emma Tippett 🎧 🔗 Available wherever you listen to podcasts - zurl.co/BGNVf#ImaginePodcast 🙌 Don't miss the other enlightening episodes in Season 8, as we release 1 daily during #LongCOVID Awareness week. #emergeaustralia

New online module for GPs 🩺 ME/CFS in General Practice: From invisible to visible – a case-based module covering identification, diagnosis, stigma-aware communication and safe care. RACGP CPD points available. #GPeducation #GPtraining #MECFS

🎧 Now Available: #ImaginePodcast Season 8, Ep 5 Dr Michelle Tavoletti 🎧 🔗 Available wherever you listen to podcasts - zurl.co/DopbN#ImaginePodcast 🙌 Don't miss the other enlightening episodes in Season 8, as we release 1 daily during #LongCOVID Awareness week. #emergeaustralia

Thank you to those who helped invite MPs to the Parliamentary Friends of ME/CFS meeting. 34 parliamentarians/staff from their office attended the meeting. 14 sent apologies. We’re now following up with every office to keep ME/CFS firmly on the agenda. 🔗 zurl.co/qEaTP

🎧 Now Available: #ImaginePodcast Season 8, Ep 4 Kit McMahon 🎧 🔗 Available wherever you listen to podcasts - zurl.co/kp3O9#ImaginePodcast 🙌 Don't miss the other enlightening episodes in Season 8, as we release 1 daily during #LongCOVID Awareness week. #emergeaustralia

🎧 Now Available: #ImaginePodcast Season 8, Ep 3 Assoc. Prof Bernard Shiu 🎧 🔗 Available wherever you listen to podcasts - zurl.co/7Rpbc#ImaginePodcast 🙌 Don't miss the other enlightening episodes in Season 8, as we release 1 daily during #LongCOVID Awareness week. #emergeaus

Today we recognise the incredible strength and resilience of young carers who provide invaluable support to their families living with #mecfs and #longcovid. If you're a young carer, we want you to know that we’re here to help! 💙 Find Carer resources 🌐 zurl.co/VwDEb

Today, we brought ME/CFS to APH. With the theme Fluctuating Energy, Fixed Systems, the PFG of ME/CFS meeting highlighted a stark truth: people with #MECFS & #longCOVID must use systems built for stability, consistency & recovery, while living with fluctuating and unpredictable capacity.