Getting answers for ME/CFS, Long COVID & other IACCs can take years. Our free Clinical Care Guide distills 10+ years of clinical expertise into one practical resource. Resources: https://t.mtrbio.com/BHCPatientResources Support: https://bit.ly/4oKuFkY

HELP THAT DOESN'T WAIT https://bit.ly/4oKuFkY  Living with a complex chronic illness often means becoming your own researcher, advocate, and educator. Throughout July, we'll be sharing free BHC resources designed to support people living with ME/CFS, Long COVID, fibromyalgia, & related conditions.

Looking for support or practical education this July? Join us for three free online events: • Tues, July 7 – Support Group: Work Loss & Financial Stress • Wed, July 8 – "Coffee" with a Clinician: Sleep Challenges • Tues, July 21 – Support Group: Boundaries & Needs Register: https://bit.ly/4npZ4Ud

Looking to stay informed about emerging ME/CFS research? We're sharing this free webinar from @solveme.bsky.social, where the Simmaron Research team will discuss their Catalyst Award-funded rapamycin study and future research plans. Join them on July 14.

Looking for a creative way to connect and express your experience during Disability Pride Month? @meactnet.bsky.social is hosting an accessible art workshop with artist Nyx Mir on July 16. Space is limited, and applications are due June 30.

Stay connected with Bateman Horne Center. Sign up for our email list to receive educational resources, event announcements, research updates, and more. 📧 https://bit.ly/3POhK4d

Sometimes the most meaningful reminders of why we do this work arrive in the mail. Recently, Dr. Bateman received this handwritten note from a person living with ME/CFS. Thank you to our community for your stories, encouragement, and trust. 💙

In Case You Missed It: New MERC training video on the 10-Minute NASA Lean Test (Passive Stand Test). Learn how clinicians can assess orthostatic intolerance in ME/CFS and Long COVID with this practical, clinic-friendly tool. Watch: https://youtu.be/96GCnYWX8D4 @openmedf.bsky.social

Living with chronic illness can come with misunderstanding, dismissal, and invalidation. 💙 Join us June 16 at 1 PM MDT for our virtual support group: My Illness is Real and So Am I: Successfully Facing Invalidation, Prejudice & Discrimination https://batemanhornecenter.org/events/

☕ Join us Wed, June 10 at 10:00 am MDT Section 4.7 Management of PEM This session will explore pacing, energy conservation, symptom tracking, supportive interventions, and individualized routines that may help support symptom stability and reduce PEM crashes. Register: https://bit.ly/3JCHAFq

After developing Long COVID in 2020, Christy was later diagnosed with ME/CFS and other complex chronic conditions. Her story is a reminder that adapting to illness doesn't mean losing who you are, it means discovering new ways to move forward. 💙 #LongCOVID #MECFS

Medical Terms, Explained Biomarkers are measurable signs in the body that can help diagnose, monitor, or understand disease. Researchers are actively studying potential biomarkers for ME/CFS and Long COVID, but no single biomarker is currently used to confirm ME/CFS. https://bit.ly/4jScKFu

Our most-viewed YouTube video last month is worth another look. "What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance. Watch now: bit.ly/4fNwHhG

Been told your orthostatic testing was "normal," but standing still makes you feel worse? Orthostatic intolerance is broader than POTS. Our latest blog explores emerging research, diagnostic gaps, and why "no POTS" doesn't always mean "no dysautonomia." Read blog: https://bit.ly/4egSlcU

Living with chronic illness can bring anxiety, uncertainty, and fear. 💙 Join us June 2 at 1 PM MDT for our virtual support group: Coping with Anxiety Amidst Chronic Disease Participants can engage however feels comfortable. Loved ones welcome. Register here: https://batemanhornecenter.org/events/

June Events 💙 Coffee with a Clinician June 10: Section 4.7 Management of PEM Support Groups June 2: Coping with Anxiety Amidst Chronic Disease June 16: My Illness is Real and So Am I-Successfully Facing Invalidation, Prejudice and Discrimination https://batemanhornecenter.org/events/

Education begins with listening. Created by @pillowwriters.bsky.social, “What Is Myalgic Encephalomyelitis Like?” shares firsthand patient and caregiver experiences living with ME/CFS. Bateman Horne Center was honored to write the book and chapter forewords. Available now on Amazon.

New research estimates nearly 4 million U.S. adults are living with Long COVID that significantly limits daily activity. The study found Long COVID’s disability burden is comparable to Alzheimer’s disease and asthma. Read study: https://www.nature.com/articles/s43856-026-01516-7

New provider education video   Learn how to perform the 10-Minute NASA Lean Test, an accessible office-based tool used to help identify orthostatic intolerance in ME/CFS, Long COVID & related conditions. (aka Passive Stand Test) Watch video: https://youtu.be/96GCnYWX8D4 @openmedf.bsky.social

Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years. Our latest blog explains: • Tilt Table Tests • Active Stand Tests • NASA Lean Tests …and why accessible testing matters. Read more: https://bit.ly/49ZOOgw

Today, on #ClinicalTrialsDay, we’re grateful for our incredible research team. Every patient supported, protocol completed, and data point collected helps move research forward for illnesses that have long been overlooked. Thank you for all you do. 💙

Support Group | May 19, 1 PM MDT (12 PT, 2 CT, 3 PT)  Topic: Inappropriate Guilt & Shame • How does guilt show up? • How does shame show up? • What helps you move through it? A space for reflection + connection. Join us: https://batemanhornecenter.org/events/

A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count. - @openmedf.bsky.social www.omf.ngo/introducing-...

"Coffee" with a Clinician is LIVE www.youtube.com/watch?v=kEKd...

"Coffee" with a Clinician ☕️ PEM Series (Part 4): CPET In this session: • What a 2-day CPET shows • Risks + benefits • How to prepare & recover Wednesday, May 13 10am MDT (9 PT / 11 CT / 12 ET) Featuring Todd E. Davenport + Staci Stevens 🔗 https://givebutter.com/Coffeewithclinician

“What Is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives” shares 80 firsthand accounts from people living with and caring for those with ME worldwide. BHC was honored to write the book foreword and chapter forewords for this important project by WIMEL writers. Available on Amazon.

Join Tahlia Ruschioni of @batemanhornecenter.bsky.social and Anne Wilson of @emergeaustralia.bsky.social as they discuss ME/CFS, Long COVID, post-exertional malaise, and the global work being done to improve clinician education and patient care.

Help doesn’t have to wait. People living with ME/CFS, Long COVID, and related conditions need support now—not someday. We create free, clinically grounded tools to help patients, caregivers, and providers today. 💙 Support this work: https://bit.ly/4tQ2W3X

May is #MECFSAwarenessMonth Together with @openmedf.bsky.social, @meactnet.bsky.social, and @solveme.bsky.social#MECFSAwarenessMonth we’re working to raise awareness and expand understanding of ME/CFS. Add #UnitedForME to your posts and be part of the collective effort this month. #MECFSAwareness #MECFSAwarenessDay

Top resources patients are using right now: • Clinical Care Guide • Communication Cards • ME/CFS Crash Survival Guide • Good Day / Bad Day Questionnaire • State-by-State Resource Directory Built to help understand these illnesses, communicate needs, and navigate care. https://bit.ly/4dJIQ6t

Lucinda Bateman, MD, shares an important update about the evolving work at Bateman Horne Center, what’s changing, what’s staying the same, and how this next phase supports patients now and into the future. Read our full Spring Newsletter: bit.ly/3OYMHlS

💙 Support Group this Tuesday 🗓 May 5 | 1:00 PM MDT Exploring meaning, values, and identity while living with chronic illness. Free to attend (optional $5 donation) 🔗 batemanhornecenter.org/events

"I have this visual of a huge canyon we're all standing around. We're talking, and our words are echoing to each other with support." — from our last support group  Free support groups every 1st and 3rd Tuesday of the month. You don't have to stand at the edge alone. https://bit.ly/4npZ4Ud

💙 May events at Bateman Horne Center: May 5 – Support Group May 13 – Coffee with a Clinician (PEM + 2-Day CPET) May 19 – Support Group Free to attend + optional $5 donation 👉 Register: http://batemanhornecenter.org/events

Improving care starts with education. The Medical Education Resource Center (MERC) at BHC, developed with the @openmedf.bsky.social, supports clinical learning across specialties. In 4 years: 20,000+ practitioners engaged 30+ specialties represented Learn more about MERC: https://bit.ly/3PPS5D9

Just a few days left to be part of our ME/CFS Awareness Month storytelling campaign. “This is ME.” Share a short video or written reflection by April 30. Anonymous submissions welcome. Caregivers too. Submit → https://bit.ly/3Q4Vy5T #MECFSAwareness #ThisIsME

Nearly 350 educational videos. Designed to help patients, caregivers and providers better understand complex chronic illness. Explore our channel: https://bit.ly/4ciCQyU

You Shouldn’t Have to Search Alone Accessing support can feel like a full-time job. Our State-by-State Resource Directory helps connect patients with: • Help Lines • Support services • Community resources All in one place. Find resources near you: https://bit.ly/468Rqqw

Urgent care settings move fast, but ME/CFS doesn’t follow typical patterns. This guide helps providers understand: • Why exertion can worsen symptoms (PEM) • How orthostatic intolerance shows up • Why sensory + medication sensitivities matter Better awareness = better care. https://bit.ly/4dGGwwU

This is ME: I am a gardener. I keep seeds on my windowsill. I still know exactly what I would plant.” Your “This is ME” doesn’t need to look like anyone else’s. It only needs to feel like you. Submit by April 30 → https://bit.ly/3Q4Vy5T

Symptoms change. Capacity changes. These tools help communicate what that actually looks like: • Good Day / Bad Day Questionnaire • Communication Cards • Crash Survival Guide Built to support understanding. Find these resources freely available at https://bit.ly/4dJIQ6t

When illness changes your life, it can also change how you see yourself. This Support Group is a space to gently explore identity, meaning, and who you are becoming, alongside others who understand. Join us Tues, April 21 💙 🔗 https://batemanhornecenter.org/events/

Over a decade of clinical expertise, distilled into one guide. BHC’s Clinical Care Guide is a practical roadmap for navigating ME/CFS, Long COVID, fibromyalgia & related conditions. Free to download, free to share. 💙  Download: https://bit.ly/4jScKFu #MERC @openmedf.bsky.social#MERC

May is ME/CFS Awareness Month. We’re inviting people living with ME/CFS, and those who love them, to share who they are in their own words. The prompt: This is ME Submit a short video, audio clip or written reflection by April 30. 🔗 https://bit.ly/3Q4Vy5T #MECFSAwareness #ThisIsME

You shouldn't have to figure this out alone. 💙 We're spotlighting free resources for pw ME/CFS, Long COVID & complex chronic illness - clinically grounded tools to help you navigate, communicate, and advocate. Stay tuned. We're just getting started. Browse resources: https://bit.ly/4dJIQ6t

"Coffee" with a Clinician is happening now! www.youtube.com/watch?v=MANg...

What questions help identify post-exertional malaise (PEM)? Join Coffee with a Clinician: Chapter 4, Part 2 — Screening Questions & Tools. Learn how PEM is identified and what tools help measure function. Wednesday, April 8 | 10 am MDT 🔗 https://bit.ly/3JCHAFq

Managing symptoms day to day can feel overwhelming, but you don’t have to do it alone. This month’s Support Group is a space to share what’s helped, ask questions, and connect with others who understand. Join us Tuesday, April 7 💙 🔗 https://batemanhornecenter.org/events/

Inspiring to see the next generation contributing thoughtful, patient-centered ideas to improve ME/CFS awareness and care 👏

April can be a full month, so we wanted to give a quick heads up 💙 Our first Support Group and “Coffee” with a Clinician are happening in the same week (Apr 7 & 8), which is a little different than usual. We hope you’ll join us for connection, learning, and support. batemanhornecenter.org/events