We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support. Free, practical, and built for real life. 🔗https://bit.ly/3ZBBIAC

We’re building a new way to expand access to care. Bateman Horne Center is developing the Access to Care Model, a scalable framework designed to extend informed care for ME/CFS & Long COVID beyond a single clinic. Pilot launch planned for late 2026. 🔗 batemanhornecenter.org/building-access-now/

February Online Support Group Chronic Illness: Facing Limits & Losses (Moving Through Grief) Tues, Feb 3 | 1pm MST 🔗 https://bit.ly/4npZ4Ud We’ll talk about depression in chronic illness, coping tools, and emotional support during dark moments. A space for honesty, care, and connection. 🩵

February online events are here 💙 Support groups - Tuesdays, Feb 3 & 17 Coffee with a Clinician - Wednesday, Feb 11 Register: https://bit.ly/4npZ4Ud

What happens inside the clinic doesn’t stay there. Care delivered at Bateman Horne Center helps shape education, clinical guidance, and access far beyond one location. That’s what we mean by local care, national impact. As we enter 2026, we’re sharing how this work continues to grow. 🔗

New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue. 🔗 news.griffith.edu.au/2026/01/28/a...

Long COVID affects children and young adults too, often with PEM, orthostatic symptoms, and major impacts on school and daily life. Learn more in these two pediatric ECHO sessions with Melanie Hoppers, MD: ▶️ https://youtu.be/no1a1A4tMfw ▶️ https://youtu.be/u6PkRNiCbRQ

Belief, support, knowledge, and encouragement made an unimaginable difference.” Amy, a former Bateman Horne Center patient diagnosed with ME/CFS & fibromyalgia as a teen, recently shared that she’s doing well, became a mom, and completed a marathon. 🩵

At BHC, everything starts in the clinic. As we enter 2026, we’re focused on a guiding question: How does what we learn here change care everywhere else? Because the goal has never been to serve only those who can come to us—but to make informed, compassionate care accessible everywhere.

Many physical therapy programs still don’t teach the realities of ME/CFS, including post-exertional malaise. It’s time physical therapy education catches up with the science. Read more in a new blog: https://bit.ly/49MEYh4

Loneliness is a common, and often unseen, part of chronic illness. Join our online support group on Tue, Jan 20 | 1:00 pm MST for a supportive conversation on Navigating Loneliness & Rebuilding Connection. You’re welcome to listen, reflect, or share if you choose. Register: https://bit.ly/4npZ4Ud

Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work. Progress isn’t always visible, but it is happening. And we’re doing it together. #UnitedForME

How were ME/CFS & Long COVID definitions developed, and why do they matter? With no single diagnostic test, definitions guide care, communication, and research. Join Lucinda Bateman, MD, and Lily Chu, MD, MSHS January 14 | 10:00 am MST Free & virtual 🔗 Register: https://bit.ly/3JCHAFq

This donor perspective captures why Bateman Horne Center exists. Our mission is built on three pillars - clinical care, research, and education - so people with ME/CFS receive care now while progress continues. Thank you to our donors who make all three pillars possible. 💙

☕ Coffee with a Clinician (Jan) How were the clinical definitions of ME/CFS and Long COVID developed, and why do they matter? With no single diagnostic test, diagnostic criteria are used to guide care, communication, and research. Wed, Jan 14 | 10 am MST Free & virtual: https://bit.ly/3JCHAFq

📘 The BHC Clinical Care Guide is now available on Amazon! More accessible, easy to order, and delivered right to you. Every purchase helps us get more guides to providers who care for people with ME/CFS, Long COVID, and other IACCs. 👉 Order your copy today: https://www.amazon.com/dp/B0G3CNDDSB

Interested in participating in research? Our team is conducting studies on chronic health conditions. 📋 Complete the survey to express interest: https://bit.ly/49y4bfs 📩 Questions? Contact [email protected] 📞 801-532-8311

Our first Support Group of 2026 💙 Join us for an honest conversation about hope while living with chronic illness, without pressure or toxic positivity. Tues, Jan 6 | 1pm MST | Online 🆕 Now the FIRST Tuesday monthly Register here: https://bit.ly/4npZ4Ud

This is your success. 💙 Because of our community, the pilot phase of the Access to Care Model launches in 2026. Your support made this possible, and we’re honored to steward these funds across all our programs in service of those we exist to support. Thank you for building access with us.

Connection matters, especially in the new year 💙 Our January virtual events are here, with an update to share: Support Group now meets on the FIRST Tuesday of the month (starting Jan 6). Free, virtual, and open to the all. 👉 batemanhornecenter.org/events

Happy New Year from Bateman Horne Center! We’re grateful for the patients, caregivers, clinicians, researchers, and supporters who continue to show up with resilience and compassion. Here’s to another year of improving care, expanding knowledge, and building access - together. 💙

We’re nearly there! Building Access Now has $19,360 left to raise (pledges included). Help us cross the finish line! Donate: https://bit.ly/3KfdDvj

You unlocked the $90K match, thank you. Now, $53K remains to reach our $500K Access to Care goal. These final funds determine what we can launch, restore, and sustain in 2026. Momentum matters. Help close the gap. 🔗 Donate: https://bit.ly/3KfdDvj

Impact happens when a community shows up, and in 2025, donations of all sizes helped advance research, education, and support at Bateman Horne Center. Our Impact Report shares what you made possible. 📖 Read the full report → https://bit.ly/4aTYV7X

This has been the most challenging financial year for BHC. Community support is why we’re still here. We’re in a critical window to unlock a $90K match, but support beyond it is essential to sustain programs and launch our Access to Care model. Donate before Jan 1: https://bit.ly/3KfdDvj

What sets us apart is integration. Care, research, education & patient support inform one another, so patient experience shapes everything we do. Now through Jan 1, all gifts are matched dollar for dollar, up to $90,000. 👉 Give now. Double your impact: https://bit.ly/3KfdDvj

Important year-end news Thanks to our community, we can unlock $90,000 in matching funds by Jan 1. Every gift before New Year’s Day is matched dollar for dollar, supporting the integrated work of the Bateman Horne Center. Give now to double your impact: https://bit.ly/3KfdDvj

This year was shaped by progress, partnership, and community. 💙 Thank you to everyone who supported, shared, and showed up. You make this work possible. Wishing you peace, rest, and hope this holiday season and into the new year.

Stories like this are why we’re building BHC’s Access to Care Model, expanding informed, compassionate care beyond a single clinic. 💙 https://bit.ly/3Xf1SIf

In case you missed it: Every donation to BHC is being matched dollar-for-dollar through Dec 31! Help launch the Access to Care Model and bring informed care to patients nationwide. 💙 Double your impact → https://bit.ly/3Xf1SIf

Big news! 🎉 Dr. Brayden Yellman and Jennifer Bell, FNP-C, are two of five co-authors of Chapter 45: Managing ME/CFS: A New Narrative in The Scientific Basis of Fatigue. Their contribution helps advance modern, evidence-informed understanding of ME/CFS. 💙 https://bit.ly/44Wfqwp

After decades with fibromyalgia, care made possible by BHC and its donors helped improve her quality of life enough to reach a deeply personal goal she once feared was impossible: hiking the Delicate Arch.  Help us build more moments like this: https://bit.ly/3Xf1SIf  #BuildingAccessNow

Your impact doubles through Dec 31 💙 Every dollar is matched up to $50K to help launch BHC’s Access to Care Model—reimagining how people with ME/CFS & Long COVID access informed, coordinated care. https://bit.ly/3Xf1SIf

Board Member Jessica Turner shares why BHC’s mission matters: “BHC is that close friend who believes you, understands your pain & has your back. My family has forever been changed for good.” Grateful for leaders who support compassionate, informed care. 💙

💙 We’re almost there. Thanks to an incredible community response, only a few nomination spots remain to send Clinical Care Guides to U.S. providers. No donation required to nominate. Optional donations help support BHC’s mission. Nominate: https://bit.ly/4qfTjJV Donate: https://bit.ly/3KfdDvj

Living with chronic illness can shape our thoughts and coping patterns. Join our Support Group Tues, Dec 16 at 1pm MST as we explore where we get mentally stuck, what thinking feels unhelpful, and what mental shifts support us. 💙 🔗 https://bit.ly/4npZ4Ud

💙 A meaningful gift for our community. A generous supporter is making it possible to send 250 Clinical Care Guides to medical providers. Nominate a U.S. provider: https://bit.ly/4qfTjJV Optional donation to support BHC’s mission: https://bit.ly/3KfdDvj #BuildingAccessNow

The holidays can be challenging when energy is limited. Join us Dec 10 at 10:00 am MST for “Coffee” with a Clinician as we explore practical pacing strategies for holidays and special events 💙 🔗 Register: https://bit.ly/4npZ4Ud #MECFS #LongCOVID #IACCs #Pacing

The holidays can be tough when you’re living with a chronic illness. 💙 Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease. 🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup

Science matters most when it becomes care. See BHC's top ME/CFS & Long COVID research blogs of 2025 → https://bit.ly/4pTVse6 #BuildAccessNow

Donate $175+ to Bateman Horne Center and we'll send a Clinical Care Guide directly to a provider of your choice (U.S. only). bit.ly/3KfdDvj

It’s Giving Tuesday! We’re raising $500k to launch BHC’s Access to Care framework, bringing informed, compassionate care to patients everywhere. Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj #BuildAccessNow

The holidays can be overwhelming, you don’t have to navigate them alone. BHC’s December online events offer a supportive space to talk through challenges, learn pacing strategies, and connect with others who truly understand. 💙 Register at https://bit.ly/4npZ4Ud

Giving Tuesday is coming up soon. 💙 This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID. More details coming soon, stay tuned.

A new chapter is beginning at BHC: https://bit.ly/3KfdDvj  We’re moving from creating resources to expanding access through the Access to Care Model, helping patients with ME/CFS, Long COVID & other IACCs receive informed, coordinated care, no matter where they live.

Being a caregiver often means putting another person’s needs first. @emergeaustralia.bsky.social's Self-Care for Carers guide offers strategies to help protect and balance their own wellbeing. 🩵 Read it here 👉 https://bit.ly/47xsysl #mecfs #caregiverawarenessmonth #unitedforme

On this Thanksgiving, BHC is mindful of those living with ME/CFS, Long COVID, and related chronic conditions. You’re seen, and you’re held in our thoughts.

When a loved one with #MECFS or #LongCOVID experiences a crash, knowing how to respond matters. 💙 Our Caregiver Guidance resource offers practical steps for safe, compassionate support during post-exertional malaise (PEM). Read it now: https://bit.ly/44ZtO4R #UnitedForME

Too many have waited years for informed care. BHC’s Access to Care Model brings multidisciplinary evaluation, personalized plans, collaboration, and real support closer to home. Learn more: https://bit.ly/3Xf1SIf #BuildingAccessNow

1 in 4 people with #MECFS are housebound or bedbound. 💙 @emergeaustralia.bsky.social’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing. Read more: https://bit.ly/4nD2Add #UnitedForME