Inspiring to see the next generation contributing thoughtful, patient-centered ideas to improve ME/CFS awareness and care 👏

April can be a full month, so we wanted to give a quick heads up 💙 Our first Support Group and “Coffee” with a Clinician are happening in the same week (Apr 7 & 8), which is a little different than usual. We hope you’ll join us for connection, learning, and support. batemanhornecenter.org/events

Navigating chronic illness is hard. Finding support shouldn’t be. Our State-by-State Resource Directory now includes Washington, DC & U.S. Territories, expanding access to trusted resources for ME/CFS, Long COVID, and related conditions. Explore: https://bit.ly/3ZBBIAC

Couldn’t join us in March? We’ve got you 💙 Our Support Group recaps are now available, covering: • Communicating needs with confidence • Life stages and aging with ME/CFS or Long COVID You can always look back and learn from shared experiences here: 🔗 https://bit.ly/4dja6si

A new NIH/NIAID research vision highlights post-infectious illness—including ME/CFS and Long COVID, and the role of the immune system in chronic disease. It’s an important signal of growing recognition. What might this mean moving forward? Read more: https://bit.ly/47kH4EN

Long COVID affects ~5.8M children, more than asthma, and is often missed or dismissed. It’s not just fatigue; it’s loss of function. This #LongCOVIDAwareness week, we’re sharing resources + education. Watch full session here: https://youtu.be/no1a1A4tMfw

Long COVID is complex, and reliable information matters. The U.S. Department of Health & Human Services offers resources on symptoms, care, and research: https://www.hhs.gov/longcovid/index.html We’ll be sharing trusted Long COVID resources all week for #LongCOVIDAwareness

How does chronic illness intersect with your current life stage? Join our March Support Group: Life Stages & Aging with ME/CFS or Long COVID Tues, March 17 1:00 pm MDT Let’s talk about aging, adapting, and growing with chronic illness. Register: https://batemanhornecenter.org/events/

In recognition of #LongCOVIDAwarenessDay, we joined forces with @meactnet.bsky.social  @solveme.bsky.social  & @openmedf.bsky.social to be #UnitedForME. We gathered resources from our organizations to inform & empower: https://bit.ly/3Na4mX4

Medical training often teaches a linear model of care: diagnose → treat → cure. ME/CFS & Long COVID don’t work that way. Jennifer Bell, FNP-C reflects on the humbling shift of resetting expectations and focusing on supportive care. Educational content by MERC + @openmedf.bsky.social

Join us tomorrow for “Coffee” with a Clinician Chapter 4: Post-Exertional Malaise (PEM), Part 1 Key characteristics & pathophysiology of PEM 10:00 am MDT Free | Optional $5 donation Zoom + YouTube live Register:

During a crash, people with ME/CFS may struggle to think, speak, or process information. Communication cards can help patients point to needs like food, medication, pain, light sensitivity, comfort items, or emergencies. Download them in our Crash Survival Guide: bit.ly/44MgSS9

A symptom list doesn’t always show severity. Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID. 🔗https://bit.ly/3n9foLx Educational material by #MERC in collaboration with @openmedf.bsky.social

Through our ongoing partnership with @emergeaustralia.bsky.social, self-paced modules on PEM, pacing, orthostatic intolerance & sleep remain available for those living with ME/CFS & Long COVID. Accessible. Practical. Built with lived experience + clinical insight. 🔗https://emerge.org.au/lea-ea-bhc/

Chronic illness can change how we communicate. Join our March Support Group: Tues, March 3 1:00 pm MST Topic: Communicating Needs with Confidence We'll talk about expressing needs, feeling heard, and navigating relationships. Register: https://batemanhornecenter.org/events/

Join us on March 2 at noon Eastern for one of our last events for the spring semester! Deborah Lefkowitz will give a talk on Long COVID and disability. Please email access needs to our admin assistant Gaby at [email protected]. Register today at tinyurl.com/r3v5erxr 1/2

March events are open for registration 3/3 Support Group: Communicating Needs with Confidence 3/11 “Coffee” with a Clinician: Key Characteristics & Pathophysiology of PEM 3/17 Support Group: Life Stages & Aging with ME/CFS or Long COVID Register now: http://batemanhornecenter.org/events

🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid. Read more here: https://ow.ly/rlfQ50Yl4yN

Complex illness requires depth and continuity. For each hour face-to-face, our small team spends several more coordinating care & reviewing complex results. We’ve structured care to protect that depth while expanding education and research beyond our clinic walls. Read more: https://bit.ly/3OuHMZu

What can you expect during a biobank research visit at Bateman Horne Center? ✔️ Provider screening ✔️ Consent review ✔️ Saliva, blood & urine samples ✔️ Supportive research staff Participant involvement makes this work possible. Learn more: https://batemanhornecenter.org/research/

Orthostatic intolerance in ME/CFS & Long COVID isn’t just a heart rate issue. Jennifer Bell, FNP-C, reviews vascular volume support, venous return, heart rate management & individualized medication selection. Watch the full presentation: https://youtu.be/NcStTltuDYE @openmedf.bsky.social #MERC

Join us tomorrow for our online support group: Coping with Depression & Emotional Overload Tuesday, February 17 1:00 pm MST Zoom: https://bit.ly/4npZ4Ud We’ll talk about managing depression, difficult symptoms, and what helps during dark emotional moments.

As Long COVID clinics close nationwide, patients are being left without care. Bateman Horne Center remains open, translating clinical care into education, resources, and pathways that help patients access informed care wherever they live. 💙 Visit https://batemanhornecenter.org/

In December, our community nominated providers to receive printed Clinical Care Guides. This week, those guides are landing in over 150 clinics across the country, each one packaged by hand, with a personalized note. This is what “access to care” looks like. youtube.com/shorts/Fo2Wq...

☕ Join our next "Coffee" with a Clinician on Assessing Impaired Function (Clinical Evaluation), with a focus on cognitive impairment in ME/CFS & Long COVID. Feb 11 | 10am MST Free | Zoom + YouTube livestream 🔗Register:

We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support. Free, practical, and built for real life. 🔗https://bit.ly/3ZBBIAC

We’re building a new way to expand access to care. Bateman Horne Center is developing the Access to Care Model, a scalable framework designed to extend informed care for ME/CFS & Long COVID beyond a single clinic. Pilot launch planned for late 2026. 🔗 batemanhornecenter.org/building-access-now/

February Online Support Group Chronic Illness: Facing Limits & Losses (Moving Through Grief) Tues, Feb 3 | 1pm MST 🔗 https://bit.ly/4npZ4Ud We’ll talk about depression in chronic illness, coping tools, and emotional support during dark moments. A space for honesty, care, and connection. 🩵

February online events are here 💙 Support groups - Tuesdays, Feb 3 & 17 Coffee with a Clinician - Wednesday, Feb 11 Register: https://bit.ly/4npZ4Ud

What happens inside the clinic doesn’t stay there. Care delivered at Bateman Horne Center helps shape education, clinical guidance, and access far beyond one location. That’s what we mean by local care, national impact. As we enter 2026, we’re sharing how this work continues to grow. 🔗

New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue. 🔗 news.griffith.edu.au/2026/01/28/a...

Long COVID affects children and young adults too, often with PEM, orthostatic symptoms, and major impacts on school and daily life. Learn more in these two pediatric ECHO sessions with Melanie Hoppers, MD: ▶️ https://youtu.be/no1a1A4tMfw ▶️ https://youtu.be/u6PkRNiCbRQ

Belief, support, knowledge, and encouragement made an unimaginable difference.” Amy, a former Bateman Horne Center patient diagnosed with ME/CFS & fibromyalgia as a teen, recently shared that she’s doing well, became a mom, and completed a marathon. 🩵

At BHC, everything starts in the clinic. As we enter 2026, we’re focused on a guiding question: How does what we learn here change care everywhere else? Because the goal has never been to serve only those who can come to us—but to make informed, compassionate care accessible everywhere.

Many physical therapy programs still don’t teach the realities of ME/CFS, including post-exertional malaise. It’s time physical therapy education catches up with the science. Read more in a new blog: https://bit.ly/49MEYh4

Loneliness is a common, and often unseen, part of chronic illness. Join our online support group on Tue, Jan 20 | 1:00 pm MST for a supportive conversation on Navigating Loneliness & Rebuilding Connection. You’re welcome to listen, reflect, or share if you choose. Register: https://bit.ly/4npZ4Ud

Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work. Progress isn’t always visible, but it is happening. And we’re doing it together. #UnitedForME

How were ME/CFS & Long COVID definitions developed, and why do they matter? With no single diagnostic test, definitions guide care, communication, and research. Join Lucinda Bateman, MD, and Lily Chu, MD, MSHS January 14 | 10:00 am MST Free & virtual 🔗 Register: https://bit.ly/3JCHAFq

This donor perspective captures why Bateman Horne Center exists. Our mission is built on three pillars - clinical care, research, and education - so people with ME/CFS receive care now while progress continues. Thank you to our donors who make all three pillars possible. 💙

☕ Coffee with a Clinician (Jan) How were the clinical definitions of ME/CFS and Long COVID developed, and why do they matter? With no single diagnostic test, diagnostic criteria are used to guide care, communication, and research. Wed, Jan 14 | 10 am MST Free & virtual: https://bit.ly/3JCHAFq

📘 The BHC Clinical Care Guide is now available on Amazon! More accessible, easy to order, and delivered right to you. Every purchase helps us get more guides to providers who care for people with ME/CFS, Long COVID, and other IACCs. 👉 Order your copy today: https://www.amazon.com/dp/B0G3CNDDSB

Interested in participating in research? Our team is conducting studies on chronic health conditions. 📋 Complete the survey to express interest: https://bit.ly/49y4bfs 📩 Questions? Contact [email protected] 📞 801-532-8311

Our first Support Group of 2026 💙 Join us for an honest conversation about hope while living with chronic illness, without pressure or toxic positivity. Tues, Jan 6 | 1pm MST | Online 🆕 Now the FIRST Tuesday monthly Register here: https://bit.ly/4npZ4Ud

This is your success. 💙 Because of our community, the pilot phase of the Access to Care Model launches in 2026. Your support made this possible, and we’re honored to steward these funds across all our programs in service of those we exist to support. Thank you for building access with us.

Connection matters, especially in the new year 💙 Our January virtual events are here, with an update to share: Support Group now meets on the FIRST Tuesday of the month (starting Jan 6). Free, virtual, and open to the all. 👉 batemanhornecenter.org/events

Happy New Year from Bateman Horne Center! We’re grateful for the patients, caregivers, clinicians, researchers, and supporters who continue to show up with resilience and compassion. Here’s to another year of improving care, expanding knowledge, and building access - together. 💙

We’re nearly there! Building Access Now has $19,360 left to raise (pledges included). Help us cross the finish line! Donate: https://bit.ly/3KfdDvj

You unlocked the $90K match, thank you. Now, $53K remains to reach our $500K Access to Care goal. These final funds determine what we can launch, restore, and sustain in 2026. Momentum matters. Help close the gap. 🔗 Donate: https://bit.ly/3KfdDvj

Impact happens when a community shows up, and in 2025, donations of all sizes helped advance research, education, and support at Bateman Horne Center. Our Impact Report shares what you made possible. 📖 Read the full report → https://bit.ly/4aTYV7X

This has been the most challenging financial year for BHC. Community support is why we’re still here. We’re in a critical window to unlock a $90K match, but support beyond it is essential to sustain programs and launch our Access to Care model. Donate before Jan 1: https://bit.ly/3KfdDvj