Caring for someone with ME/CFS or Long COVID takes compassion & strength. 💙 This #CaregiverAwarenessMonth, we honor caregivers everywhere, and highlight @emergeaustralia.bsky.social#CaregiverAwarenessMonth,s  Carer Resource Hub, a valuable guide to those who give so much: https://bit.ly/4nzChVk #MECFS #LongCOVID

This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support. Together, we’re stronger, and united in care. 💙 Follow and share using #UnitedForME

It’s National Family Caregiver Appreciation Month 💙 We’re sharing resources from @meactnet.bsky.social , @openmedf.bsky.social & @solveme.bsky.social — all supporting families caring for those with ME/CFS, Long COVID & other IACCs. #UnitedForME

Join BHC’s November events on gaslighting, grief & uncertainty: 💙 Nov 11 | Denial & Resistance ☕ Nov 12 | Navigating Uncertainty: Part 2 💙 Nov 18 | Acquainted with Grief 🔗 https://batemanhornecenter.org/events #MECFS #LongCOVID

October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS. Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)

Pelvic pain & dysfunction can be part of post-infectious conditions like #LongCOVID & #MECFS. In our latest ECHO session, Katie Woolf, DPT, PRPC, shares how gentle pelvic floor therapy can help improve comfort, stability, & daily function. Watch: https://youtu.be/sA-ue_B1uZk @uofuhealth.bsky.social

It’s POTS Awareness Month! #OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources. 🔗 https://bit.ly/4pCeOoA #POTSAwarenessMonth #Dysautonomia #MERC

Exciting News! Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social  A major step toward innovation in #LongCOVID, #MECFS & #POTS care. Learn more: https://bit.ly/3KXI3T7 #IACC2025

Today is POTS Awareness Day. We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID. Look back at this month’s posts & next week for more. #POTSAwarenessDay #POTS #MECFS #LongCOVID #OI

Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS. Learn how targeting cellular energy may support both fatigue and cognition. 🔗 Read the full blog: https://bit.ly/4opeqbw #MECFS #Oxaloacetate #Research #BatemanHorneCenter

Dr. Lucinda Bateman presented “Orthostatic Intolerance: Clinic Assessment and Treatment” for the INIM Clinicians’ Meeting Research Series, part of the Dr. Kiran C. Patel College of Osteopathic Medicine at Nova Southeastern University. Watch here ➡️

Orthostatic intolerance is an umbrella term for conditions where being upright can trigger disabling symptoms. One of the most common forms is Postural Orthostatic Tachycardia Syndrome (POTS). Clayton Powers, DPT explains in this video: https://bit.ly/3J5Bcq3 #POTSAwarenessMonth

The Fall 2025 BHC Newsletter is out! Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal. 📖 Read now: https://bit.ly/4onikSe #MECFS #LongCOVID #BatemanHorneCenter

Oct 21 | 1:00 pm MDT Support Group: Parenting w/ Chronic Illness 💙 We’ll share challenges, strengths, & what we hope our kids learn as they watch us face disease. Free & open to all → https://bit.ly/4nJnk3o #MECFS #LongCOVID #Parenting #SupportGroups

New guest blog! Writer & advocate Kim Moy reflects on our first Coffee with a Clinician, how patients & providers can navigate uncertainty together. Read ➡️ https://bit.ly/3KNC0QW Watch: https://youtu.be/3D8EUOVmTjE Join us Nov 12 @ 10 AM MDT #MEcfs #LongCOVID

Want a deep dive into the science + management of POTS & orthostatic intolerance?  Dr. Brayden Yellman covers triggers, treatment strategies, PEM, and more in this Project ECHO session. 🔗 Watch: https://bit.ly/4oe3xcr #POTSAwarenessMonth 💙 #POTS #OI #Dysautonomia

Milestone moment for ME/CFS awareness! The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators. Read more: https://bit.ly/46P31vP #MECFS #ACSM @acsm1954.bsky.social

Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack! massmecfs.org/events/annua... #massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness

Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved. Sign up: ow.ly/luTT50WGMXV

Oct 14 | 1:00 pm MDT Support Group: Navigating Healthcare w/ Self-Advocacy We’ll discuss: lessons learned, recognizing patterns, & stories of advocating for care. Free & open to all: https://bit.ly/46BdTMo #MECFS #LongCOVID #SupportGroups

A new study sheds light on why people with ME/CFS feel worse after activity. Findings reveal an immune system on edge, energy production that falters, and gut barrier leaks fueling inflammation. Read more: https://bit.ly/4q3i8sV #MECFS #PEM #Research

Free, virtual ME conference (Nov 4–6, 1–5 pm ET). BHC's Dr. Brayden Yellman speaks on dysautonomia & connective tissue disorders and joins the comorbidities Q&A panel. Register: https://forms.gle/R8tJgR2x3WBNr9pF8 #ICanCME2025 #MECFS #LongCOVID #MedEdMatters #MedicalEducation

“If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.” — Melanie Hoppers, MD OI & #POTS is common in #MECFS & #LongCOVID. Learn signs + management tips: https://bit.ly/4eLc3eY #POTSAwarenessMonth #UnitedForME

A new way to connect is here: Coffee with a Clinician ☕ Monthly live webinars start tomorrow, Oct 8, free & open to all. 💙 An optional $5 donation supports education and outreach programs. ➡️ Register: https://bit.ly/3IxgCP6 #CoffeeWithAClinician #MECFS #LongCOVID

Big news in fibromyalgia care: The FDA just approved Tonmya, the first new treatment for fibromyalgia in 15+ years. What it is, what trials showed, and what it means for patients: https://bit.ly/3WiAo3R #Fibromyalgia #ChronicIllness #NewTreatment

Upcoming in Oct! 💙 ☕ Oct 8 – Coffee with a Clinician: Navigating Clinical Uncertainty 💬 Oct 14 – Support Group: Healthcare & Self-Advocacy 💬 Oct 21 – Support Group: Parenting w/ Chronic Illness Free & open to all. Register: https://bit.ly/48DiM7Q

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

October is #POTS Awareness Month! POTS is a serious condition where simply standing can cause rapid heart rate, dizziness, fainting, and crushing fatigue. It often strikes those with #MECFS & #LongCOVID. All month we’re sharing resources & raising visibility. Stay tuned!

September at BHC: Support Groups: humility & purpose Final Peer Perspectives: Favorite Things PPC has closed, but connection continues with new events ahead. 💙 📬 Subscribe: https://bit.ly/3rnvhjq 📖 Access past recaps: https://bit.ly/4pKFYth #MECFS #LongCOVID

#Rheumatology once expanded from joints to systemic autoimmune disease. Now, it must prepare for infection-associated chronic conditions like ME/CFS, #POTS & dysautonomia, or risk leaving millions in limbo. Read more on today's blog → https://bit.ly/4mByFl3 #MECFS #LongCOVID

A soft space to land. 💙 BHC holds 2 support groups each month, 2nd & 3rd Tuesdays, 1:00 pm MDT. Join us: http://batemanhornecenter.org/events/ #MECFS #LongCOVID #PeerSupport

PEM is a debilitating & hallmark feature of ME/CFS. New free module covers: • What PEM is • Triggers & warning signs • Pacing & management tips 📘 Learn at your own pace: emerge.org.au/lea-ea-bhc/ Create your account today! #PEM #MECFS #LongCOVID @emergeaustralia.bsky.social

ME/CFS scored lower in quality of life than cancer, stroke & MS in one study. Millions, many post-COVID, are now disabled. This illness is real and requires greater recognition, research, and education. 💙Support these efforts today: https://batemanhornecenter.org/donate/  #MECFS #LongCOVID

☕ Introducing Coffee with a Clinician, launching Oct 2025! Free monthly Zoom (30–45 mins) led by expert knowledge. Learn from the Clinical Care Guide or join Q&A. An optional $5 “coffee” donation helps us connect with more clinicians worldwide: https://bit.ly/4grlbXr #MECFS #LongCOVID #Fibro

For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g

Back in May, we partnered with @emergeaustralia.bsky.social  🌍 Now we’re highlighting the powerful tools that came from it. These free education modules help you: ✔️ Understand PEM ✔️ Recognize orthostatic intolerance ✔️ Build a pacing plan Explore them now: https://emerge.org.au/lea-ea-bhc/

🌟 Final Peer Perspectives & Connections → Sept 18, 11:30am MDT Theme: Favorite Things—what helps, comforts, or uplifts you. 💙 Join us one last time in this shared space. 🔗 Register: https://buff.ly/WRhsRXQ

A major multi-site study shows 97% of people with ME/CFS have autonomic symptoms, from dizziness to GI issues. These are strongly linked to illness severity. Better recognition through tools like COMPASS-31 & NASA Lean Test can improve care. Read more: https://buff.ly/VldyR9X

Tues, Sept 16 • 1:00 pm MDT • Zoom The Chronic Illness Experience: Creating Purpose & Meaning Facilitated by Timothy Weymann, LCSW. ✨ Reflection Questions: values, meaning, growth, authenticity. 🔗 Register: https://buff.ly/uf0bWiz  #MECFS #LongCOVID

ME/CFS patients couldn’t wait for a government-funded Center of Excellence, so Dr. Bateman created one. Read how urgency met vision in this BHC blog post: https://buff.ly/1B0915b #MECFS #LongCOVID #CenterOfExcellence

A decade of growth. From Lunch & Learn ➡️ Peer Perspectives & Connections, we’ve built community & shared wisdom together. 💙 This month we say goodbye to PPC—next up: Coffee with a Clinician launches Oct 2025 ☕ #MECFS #LongCOVID #PeerSupport

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

Because of you, we raised nearly $434K through our #OneGuideOneGoal campaign! 💙 Your support equips providers worldwide with the tools to better recognize, diagnose & treat #MECFS, #LongCOVID & other IACCs. From all of us at BHC: thank you.

Why does exertion worsen #MECFS? This study finds the immune system overreacts & energy metabolism breaks down after activity—fueling post-exertional malaise. 📖 buff.ly/Nd1Bs7F #PEM #ChronicIllness #LongCOVID @nature.com

Continuing Aug’s convo: moving from humiliation & shame → humility & pride. Join our Sept 9 support group, 1 pm MDT on Zoom, facilitated by Timothy Weymann, LCSW. 🔗 buff.ly/JGxIAz6 #MECFS #LongCOVID

From Lunch & Learn → Peer Perspectives & Connections, our events have built community through shared experiences. 💙 This Sept marks the final PPC. Thank you to all who shared your wisdom + stories along the way. Stay tuned... #MECFS #LongCOVID #CommunitySupport

🌱This summer, BHC intern Ashley Johnson learned from people with ME/CFS and Long COVID—and from dedicated BHC clinicians. “This cemented that this is the field I want to pursue.” BHC trains future providers to care for people with #MECFS and #LongCOVID. #SeedsOfKnowledge

“We must make the correct diagnoses, & stop dismissing patients with IACCs as having ‘nothing’ or Functional Neurological Disorder. This dismissal can no longer be tolerated.” –Dr. Brayden Yellman, @medscape.com buff.ly/3DxvK9H #MECFS #LongCOVID

September at BHC 💙 Sept 9 – Moving from Humilitation and Shame to Humility and Pride Sept 16 – Creating Purpose and Meaning Sept 18 – Peer Perspectives: Share Your Favorite Things! Register: batemanhornecenter.org/events/ #MECFS #LongCOVID #ChronicIllness

Today is the final day of our campaign & your last chance to double your gift in John’s honor. His family matches up to $20k to get the Clinical Care Guide in more clinicians’ hands. We’re at 85%—help close the gap! 💙 givebutter.com/OneGuide_One...