For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g

Back in May, we partnered with @emergeaustralia.bsky.social  🌍 Now we’re highlighting the powerful tools that came from it. These free education modules help you: ✔️ Understand PEM ✔️ Recognize orthostatic intolerance ✔️ Build a pacing plan Explore them now: https://emerge.org.au/lea-ea-bhc/

🌟 Final Peer Perspectives & Connections → Sept 18, 11:30am MDT Theme: Favorite Things—what helps, comforts, or uplifts you. 💙 Join us one last time in this shared space. 🔗 Register: https://buff.ly/WRhsRXQ

A major multi-site study shows 97% of people with ME/CFS have autonomic symptoms, from dizziness to GI issues. These are strongly linked to illness severity. Better recognition through tools like COMPASS-31 & NASA Lean Test can improve care. Read more: https://buff.ly/VldyR9X

Tues, Sept 16 • 1:00 pm MDT • Zoom The Chronic Illness Experience: Creating Purpose & Meaning Facilitated by Timothy Weymann, LCSW. ✨ Reflection Questions: values, meaning, growth, authenticity. 🔗 Register: https://buff.ly/uf0bWiz  #MECFS #LongCOVID

ME/CFS patients couldn’t wait for a government-funded Center of Excellence, so Dr. Bateman created one. Read how urgency met vision in this BHC blog post: https://buff.ly/1B0915b #MECFS #LongCOVID #CenterOfExcellence

A decade of growth. From Lunch & Learn ➡️ Peer Perspectives & Connections, we’ve built community & shared wisdom together. 💙 This month we say goodbye to PPC—next up: Coffee with a Clinician launches Oct 2025 ☕ #MECFS #LongCOVID #PeerSupport

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

Because of you, we raised nearly $434K through our #OneGuideOneGoal campaign! 💙 Your support equips providers worldwide with the tools to better recognize, diagnose & treat #MECFS, #LongCOVID & other IACCs. From all of us at BHC: thank you.

Why does exertion worsen #MECFS? This study finds the immune system overreacts & energy metabolism breaks down after activity—fueling post-exertional malaise. 📖 buff.ly/Nd1Bs7F #PEM #ChronicIllness #LongCOVID @nature.com

Continuing Aug’s convo: moving from humiliation & shame → humility & pride. Join our Sept 9 support group, 1 pm MDT on Zoom, facilitated by Timothy Weymann, LCSW. 🔗 buff.ly/JGxIAz6 #MECFS #LongCOVID

From Lunch & Learn → Peer Perspectives & Connections, our events have built community through shared experiences. 💙 This Sept marks the final PPC. Thank you to all who shared your wisdom + stories along the way. Stay tuned... #MECFS #LongCOVID #CommunitySupport

🌱This summer, BHC intern Ashley Johnson learned from people with ME/CFS and Long COVID—and from dedicated BHC clinicians. “This cemented that this is the field I want to pursue.” BHC trains future providers to care for people with #MECFS and #LongCOVID. #SeedsOfKnowledge

“We must make the correct diagnoses, & stop dismissing patients with IACCs as having ‘nothing’ or Functional Neurological Disorder. This dismissal can no longer be tolerated.” –Dr. Brayden Yellman, @medscape.com buff.ly/3DxvK9H #MECFS #LongCOVID

September at BHC 💙 Sept 9 – Moving from Humilitation and Shame to Humility and Pride Sept 16 – Creating Purpose and Meaning Sept 18 – Peer Perspectives: Share Your Favorite Things! Register: batemanhornecenter.org/events/ #MECFS #LongCOVID #ChronicIllness

Today is the final day of our campaign & your last chance to double your gift in John’s honor. His family matches up to $20k to get the Clinical Care Guide in more clinicians’ hands. We’re at 85%—help close the gap! 💙 givebutter.com/OneGuide_One...

Living with severe #MECFS often means being bedbound. One community member shares practical tips, like bedside setups & sensory relief, to make daily life more manageable. 💙 Read more: buff.ly/nkcCa5r

"We miss him every day.” In John’s memory, gifts are matched up to $20k thru Aug 31 to distribute the Clinical Care Guide so clinicians can recognize & support people with #MECFS & #LongCOVID sooner. Help us hit $500k: givebutter.com/OneGuide_One... The artwork shown is John’s own.

“I fear being conscripted.” For Severe ME Awareness, Max in Ukraine shares his story of illness, resilience & fear during war. Read here: buff.ly/I5q60OW #SevereME #MECFS #UnitedForME

Hal Walker, Ohio musician & writer living with severe ME/CFS, shares how “welcoming it all” helps him face the storm of illness. From his bed, he weaves music, stories & community—including ours. 💙 Shared during Severe ME Awareness Month. 🎧 Ep. 103: buff.ly/DRRT1gF #MECFS #UnitedForME #SevereME

John dreamed of teaching art history. After 25 yrs with ME/CFS, he passed in 2023. His family’s $20k match (thru Aug 31) helps put our Clinical Care Guide in more clinicians’ hands now, and build accredited CME next. Help us reach $500k: givebutter.com/OneGuide_One... #OneGuideOneGoal

@solveme.bsky.social + BHC co-hosted a series for people with #SevereME & caregivers. Part 4: Removing Barriers to Research Solve ME hosts Sabrina Poirier & Dr. David Putrino to discuss how patients are reshaping research. Watch: bit.ly/4f4m4Vn #SevereMEAwareness #MECFS

John’s self-portrait reflects a life & dream cut short by ME/CFS. In his honor, John’s family is matching every gift, up to $20,000, through Aug 31 to fund critical provider education. 💙 Give: givebutter.com/OneGuide_One... #MECFS #MedicalEducation #OneGuideOneGoal

August is Severe ME Month. Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp 💙 We stand with them. #SevereME #MECFS #UnitedForME

One Guide. One Goal. Final push! Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide. Give now: givebutter.com/OneGuide_One... #OneGuideOneGoal

Fatigue & brain fog can be debilitating in Long COVID & ME/CFS. In trials, oxaloacetate improved both, while remaining safe & well tolerated. Read BHC’s Q&A: buff.ly/5bj1fY8 #LongCOVID #MECFS #Oxaloacetate

Aug 21, 11:30 am MDT: Peer Perspectives & Connections, The Restful Library 📚 Explore free, low-energy library tools for rest, learning, and connection. 90 min: talk, Q&A, breakouts. All welcome. Register: buff.ly/G36iV2Z Views are participants’, not BHC’s.

Your gift today = better care tomorrow. With $250K, we’ll turn the Clinical Care Guide into accredited CME courses, ensuring providers are trained to care for people with ME/CFS & Long COVID. 💙 Donate: givebutter.com/OneGuide_One... #OneGuideOneGoal

@solveme.bsky.social + Bateman Horne Center co-hosted the Severe ME/CFS Webinar Series to support patients & caregivers. Part 3: Medical Panel A candid discussion on provider challenges, systemic gaps & care strategies. Watch: bit.ly/46pjuaj #SevereMEAwareness #MECFS

Join BHC’s online support groups, every 2nd & 3rd Tue at 1:00pm MDT. Next one is tomorrow (Aug 19)! Learn, share, and connect. Register now: buff.ly/2dQJ0WK #MECFS #LongCOVID #SupportGroup

From humiliation & shame → humility & pride. Join our support group Aug 19, 1:00 PM MDT (Zoom) for an honest conversation on the emotional side of chronic illness. 🔗 Register: buff.ly/JGxIAz6 #MECFS #LongCOVID #SupportGroup

From classroom to clinic, help us train providers to care for people with ME/CFS & Long COVID. We set a $500K goal, only $250K remains to fund accredited CME courses that change care. 💙 Donate: givebutter.com/OneGuide_One... #OneGuideOneGoal

Final stretch! Only $250K left to fully fund our Clinical Care Guide campaign. Help turn it into accredited training so more providers can treat ME/CFS & Long COVID. 💙 Donate: givebutter.com/OneGuide_One...

“One of the things I had to accept was, after a whole lifetime of problem solving, I couldn’t solve this.” Galen Warden shares what it’s like to care for a loved one with severe ME/CFS. ➡️ bit.ly/3WE48YJ #MECFS #Caregivers #ChronicIllness

#LongCOVID & #MECFS often coexist with #Hypermobility disorders. This Project ECHO session breaks down the comorbidities + the role of PTs in navigating care. Watch: 🔗 bit.ly/4l119DO Clinical Care Guide: bit.ly/432YdzF #ProjectECHO

In this video, Hollis Mickey, who lives with severe ME, shares how the energy management needed for survival can also feel like a profound loss. #UnitedForME #MECFS #SevereME @solve_cfs

Early DecodeME results suggest genetic factors may contribute to ME/CFS, adding to proof it’s a complex biological illness. Read the findings: bit.ly/47c95PJ Join the DecodeME webinar – Thurs, Aug 14, 10:30 a.m. EST: buff.ly/4e9IzNf Image from @decodemestudy.bsky.social

Solve M.E. & Bateman Horne Center present Part 2 of the Severe ME/CFS Webinar Series: Legal Planning. 📑 Learn about: – Guardianship & POA – SSDI & SSI – Practical legal strategies for caregivers & patients Watch now: bit.ly/4m23jop #SevereMEAwareness #DisabilitySupport @solveme.bsky.social

Join our support group: Managing Physical Symptoms 🧠 Brain fog | 😴 Sleep | 💥 Pain | 🪫 Fatigue | ♿ Disability Tuesday, Aug 12, 1:00 PM, MDT Zoom - Register: buff.ly/t6fpe1O #MECFS #LongCOVID #SupportGroup

On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. 1/3 www.aquietstorm.me/in-the-absen... #MECFS #SevereME #SevereMEday #pwME #Photography

In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. 💙 #SevereME @openmedf.bsky.social @solveme.bsky.social @meactnet.bsky.social

We’ve reached 50% of our goal! 🎉 Let’s keep the momentum going—every $5 helps get the Clinical Care Guide into more clinicians’ hands. 💙 Donate today: bit.ly/4lxEvDU #OneGuideOneGoal #MECFS #LongCOVID

This #SevereME Awareness Month, we’re recognizing those living with the most severe and isolating form of #MECFS. BHC + Solve M.E. co-hosted a 4-part series: ▶️ Caregiving ▶️ Legal Planning ▶️ Medical Panel ▶️ Removing Barriers Watch Part 1: bit.ly/4o1gdUK #UnitedForME @solveme.bsky.social

ME/CFS is more than fatigue, it's a systems-level disorder. BioMapAI, an AI model trained on 4 years of data, maps how gut microbes, immune cells, and metabolism break down in ME/CFS. Co-authored by BHC’s Dr. Bateman & Dr. Vernon. 🔗 bit.ly/4mgLcdK #MECFS #BioMapAI

Reminder: Submissions for In Their Words are due Monday, August 4! Video, audio, or written, help raise awareness for Severe ME/CFS by sharing your experience 💙 📩 [email protected] #SevereMEAwareness #MECFS #InTheirWord

August Events 8/12: Managing physical symptoms 8/19: From shame to pride 8/21: Peer support: resources when energy is limited Join us: bit.ly/48DiM7Q #MECFS #LongCOVID #SupportGroups

Share your words. In honor of #SevereMEAwareness Day (Aug 8), we're gathering short reflections for a special storytelling series. Deadline: Aug 4 Email: [email protected] Help others understand life with Severe ME/CFS. Video w/o music: bit.ly/4lVrS6l

Register for our July 31 @ 12 pm PT / 3 pm ET webinar with #MECFS Catalyst Award winner @virusesimmunity.bsky.social (@yaleschoolofmed.bsky.social). Dr. Iwasaki will discuss her study, “Probing Functional Autoantibodies in Patients with ME/CFS.” Sign up here: ow.ly/oPsF50Wrv74

“It’s been hard accepting I’m not who I used to be… but that doesn’t mean I can’t live fully.” From our April 8 support group: a powerful reminder that life fulfillment can happen in slower motion. 💙 Join us every 2nd & 3rd Tuesday at 1pm MDT #MECFS #LongCOVID #SupportGroup

What does IACC mean? Infection-associated chronic conditions like ME/CFS & Long COVID often follow infections, but remain poorly understood. Dr. Bateman shares how the IACC framework can help science move forward in our latest blog. 🔗 bit.ly/4kXhQQz #IACC #MECFS #LongCOVID @openmedf.bsky.social