A snippet from our upcoming book. Sharing the stories of those living with myalgic encephalomyelitis.

Coming soon... Our book was written in community sharing our experiences of living with myalgic encephalomyelitis

Thursday 9th April Early Pillows Optional Prompt: Transcending Lifetimes 2:00 pm GMT Thursday 9th April Standard Pillows for all forms of writing 11:00am PST. Friday 10th. Pillows Write Now. Instant writing 11:00am PST Sunday 12th WIMEL Social Media Briefing.11:00am PST.

1/2: Southend Vox are a community choir based in Southend-on-Sea. Annually their members select a charity to support throughout the year with various fundraising events. This year they chose the ME Association! Thank you to Southend Vox for supporting us! #MECFS #pwME #SouthendOnSea

Members of the Pillow Writers are speaking at 8:00pm on Wednesday 8th Symposium for Disability and Accessibility at Yale. Tickets are free dandasymposium.yale.edu/events/2026-...

Sometimes, even after all these years, I misjudge the day and it becomes impossible to get ready for the night ahead. On the plus side, tomorrow is Thursday, Early Pillows followed by Standard Pillows . Hope to see you there. 🩵

Sunday 12th April 11:00am PST WIMEL Social Media Briefing. Half of writing a book is marketing it. Please join us on Zoom to discuss what you can do to help promote the WIMEL book What is Myalgic Encephalitis Like. #ME/CFS

𝙒𝙝𝙖𝙩 𝙞𝙨 𝙈𝙮𝙖𝙡𝙜𝙞𝙘 𝙀𝙣𝙘𝙚𝙥𝙝𝙖𝙡𝙤𝙢𝙮𝙚𝙡𝙞𝙩𝙞𝙨 𝙇𝙞𝙠𝙚? This book is a must-read for medical professionals, students, policy-makers, researchers, caregivers, and all affected by myalgic encephalomyelitis (ME). WIMEL — a Pillow Writers group

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Mar. 23-29: Topics: News, advocacy, articles Coming events Research news and commentary Published research www.s4me.info/threads/news... #MEcfs #LongCovid

This week: Monday 30th March The Annex for long form writers 11:00am PST. Thursday 2nd April . Early Pillows ‘Pyjama Party’2:00pm GMT. Thursday 2nd April Standard Pillows for all forms of writing 11:00am PST. Friday 3rd April Pillow Crafters for people who like to create arts and crafts 11:00am PST.

A chocolate shop in Southport Lancs has created a limited-edition red leaf chocolate to raise awareness of ME and money for Prof Ponting's research. The red leaf is a symbol of hope for Joe Greer, whose daughter has severe ME tinyurl.com/22u24zr2

The ME/CFS Advocacy Week Kickoff Call just ended. @solveme.bsky.social will be sharing the recording! The 2 main things to know: 1. Register to participate & everything you need will show up in your inbox. tinyurl.com/MEActionAdvo... 2. Save this quick start guide. www.canva.com/design/DAHEr...

This week’s meetings. Thursday 26 March Early Pillows Optional Prompt: The Coat Abandonment Hotline. 2:00pm GMT. Thursday 26 March Standard Pillows for all forms of writing 11:00am PST.

Our international writing community finds solace in helping others better understand what living with myalgic encephalomyelitis (ME) is like. A Pillow Writers group sponsored by ME Action strives to bring support and awareness for those living with ME.

Fantastic interview with Dr Rupert Higham from the Institute of Education at UCL and Prof David Putrino 'On Medical Education for Long Covid, ME and IACI' It is divided into short named chapters for accessibility and there is also a transcript. #LongCovidAwarenessDay youtu.be/S5amDZFaVeE?...

Calling all friends and family of the ME Association! Looking for a new challenge in 2026? Why not fundraise for The MEA! Find out more and sign up to your event today: https://meassociation.org.uk/get-involved/fundraise-for-us/ #MECFS #pwME #Fundraising #MEAssociation

Yay Thursday! Standard and Early Pillows day. Free writing Groups over Zoom for ME/CFS, Long Covid sufferers pillowwriters.wordpress.com

Want to learn more about the ME Association? Check out our LinkedIn page, where we share current news, information and charity updates to help keep you in the loop. Head on over: ME Association | LinkedIn #pwME #MyalgicE #MECFS #LongCovid #MEAssociation

When people tell me, "I've heard enough about your illness," I tell them a little more about my illness, in case they were just being polite.

Our online community, ME Connected, has over 1,400 members supporting each other and discussing topics ranging from tips and tricks on managing ME/CFS, to our popular book club! Join today:  https://meassociation.org.uk/discord #pwME #MECFS #LongCovid #PostCovidSyndrome #Discord #OnlineCommunity

Please note that some international time zones have changed for Summertime this week and some haven’t. We run meetings in both PST and GMT, please doublecheck your local time for the next few weeks. 🩵

Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏

1/3 ME Medical - Spring 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link (see 2/3)

Whoops, I’ve got until two to write to the prompt. Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT. Thursday 5th March Standard Pillows for all forms of writing 11:00am PST. pillowwriters.wordpress.com

Free Zoom meetings for ME/CFS sufferers. Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT. Thursday 5th March Standard Pillows for all forms of writing 11:00am PST. Friday 6th March Pillow Crafters for people who like to create arts and crafts 11:00am PST.

Iconically Ill presents We Talk ME/CFS and Live Performing with Dan Fishback

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/DG4nc#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

Thursday, our favourite day. Free zoom writing groups for all ME/CFS, Long Covid sufferers. Two different time zones. Join us. Thursday 26 February Early Pillows Optional Prompt: Feeling/Meaning. 2:00pm GMT. Standard Pillows for all forms of writing. 11:00am PST. pillowwriters.wordpress.com

1/2: Along with some colleagues, Dr Charles Shepherd, MEA Hon Medical Adviser, will be at a meeting today with the DHSC and NHS England to discuss progress on the preparation of a clinical care pathway for people with mild and moderate ME/CFS. https://meassociation.org.uk/1w9z #MECFS #SevereME

1/3: Today is #HelplinesAwarenessDay2026, a national day dedicated to recognising and celebrating the incredible work of helplines across the UK.  We’re proud to to be members of the Helplines Partnership and stand with them in highlighting the vital support helplines provide every single day.

Free International Writing Groups over Zoom for ME/CFS sufferersz N.B. Tuesday 24 February Pillow Writers en Español has been cancelled. Thursday 26 February Early Pillows Optional Prompt: Feeling/Meaning. 2:00pm GMT. Thursday 26 February Standard Pillows for all forms of writing 11:00am PST.

If you’re looking for writing inspiration, Early Pillows keeps a record of all of its past prompts. earlypillowwriters.wordpress.com/2025/11/27/p...

Pillow Crafters. pillowwriters.wordpress.com/2024/11/24/p... Free Zoom meetings for those with ME/CFS. Bring an art or craft project you’d like to work on and join us as we get creative, chat and spend time together. No specific art/craft knowledge is needed, no level of proficiency required.

Thursday 19th February Early Pillows Optional Prompt: I wrote a note for you. 2:00pm GMT. Thursday 19th February Standard Pillows for all forms of writing 11:00am PST. Friday 20th February Pillow Crafters for people who like to create arts and crafts 11:00am PST.

Welcome to Pillow Writers! A virtual ME/CFS and Long Covid writing community. Check out the link pinned on our page for more information! #me/cfs#longcovid#writing#myalgicencephalomyelitis#chronicillness

Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...

CrunchME is a patient-led organisation using data-informed advocacy to help accelerate progress on ME/CFS, Long COVID, and other infection-associated chronic illnesses (IACIs). crunchme.org/visuals

Find on www.etsy.com/shop/Chronic... or www.redbubble.com/people/Chron... as shirts, etc

Free online meetings for the ME/CFS community. Sunday 8th February WIMEL Explaining to the world what having ME is like 11:00am PST. Tuesday 10th February Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.

Friday 6th February Pillow Crafters meeting has sadly been cancelled due to poor health. We wish our host a speedy recovery.

Words fail us and we’re known for words.

CANCELLED. Tonight’s Annex meeting has been cancelled. Apologies.

I thought this was a surprisingly good article about the realities of ME/CFS. www.bbc.co.uk/news/article...

Join us today at 12 pm PT/ 2 pm CT/ 3 pm ET 8 pm GMT for our virtual Keep The Light Community Event! Come as you are and we can all be encouraged by gentle time together! Register: https://www.meaction.net/event-details/keep-the-light-community-gathering #pwME #PwLC #MECFS #Spoonie

Monday 2nd February The Annex for long form writers 11:00am PST. Thursday 5th February Early Pillows Optional Prompt: Airport. 2:00pm GMT. Thursday 5th February Standard Pillows for all forms of writing 11:00am PST.

Early Pillows, prompts for next month: 5th February. Airport 12th February. A suggestion of everyday magic 19th February. I wrote a note for you 26 February. Feeling/Meaning. Prompts are always optional but priority is given to those who have written to that week’s prompt.

Tuesday 27th January Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST. Thursday 29th January Early Pillows Optional Prompt: The Fundamental Interconnectedness Of All Things. 2:00pm GMT. Thursday 29th January Standard Pillows for all forms of writing 11:00am PST.