Our online community, ME Connected, has over 1,400 members supporting each other and discussing topics ranging from tips and tricks on managing ME/CFS, to our popular book club! Join today:  https://meassociation.org.uk/discord #pwME #MECFS #LongCovid #PostCovidSyndrome #Discord #OnlineCommunity

Please note that some international time zones have changed for Summertime this week and some haven’t. We run meetings in both PST and GMT, please doublecheck your local time for the next few weeks. 🩵

Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏

1/3 ME Medical - Spring 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link (see 2/3)

Whoops, I’ve got until two to write to the prompt. Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT. Thursday 5th March Standard Pillows for all forms of writing 11:00am PST. pillowwriters.wordpress.com

Free Zoom meetings for ME/CFS sufferers. Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT. Thursday 5th March Standard Pillows for all forms of writing 11:00am PST. Friday 6th March Pillow Crafters for people who like to create arts and crafts 11:00am PST.

Iconically Ill presents We Talk ME/CFS and Live Performing with Dan Fishback

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/DG4nc#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

Thursday, our favourite day. Free zoom writing groups for all ME/CFS, Long Covid sufferers. Two different time zones. Join us. Thursday 26 February Early Pillows Optional Prompt: Feeling/Meaning. 2:00pm GMT. Standard Pillows for all forms of writing. 11:00am PST. pillowwriters.wordpress.com

1/2: Along with some colleagues, Dr Charles Shepherd, MEA Hon Medical Adviser, will be at a meeting today with the DHSC and NHS England to discuss progress on the preparation of a clinical care pathway for people with mild and moderate ME/CFS. https://meassociation.org.uk/1w9z #MECFS #SevereME

1/3: Today is #HelplinesAwarenessDay2026, a national day dedicated to recognising and celebrating the incredible work of helplines across the UK.  We’re proud to to be members of the Helplines Partnership and stand with them in highlighting the vital support helplines provide every single day.

Free International Writing Groups over Zoom for ME/CFS sufferersz N.B. Tuesday 24 February Pillow Writers en Español has been cancelled. Thursday 26 February Early Pillows Optional Prompt: Feeling/Meaning. 2:00pm GMT. Thursday 26 February Standard Pillows for all forms of writing 11:00am PST.

If you’re looking for writing inspiration, Early Pillows keeps a record of all of its past prompts. earlypillowwriters.wordpress.com/2025/11/27/p...

Pillow Crafters. pillowwriters.wordpress.com/2024/11/24/p... Free Zoom meetings for those with ME/CFS. Bring an art or craft project you’d like to work on and join us as we get creative, chat and spend time together. No specific art/craft knowledge is needed, no level of proficiency required.

Thursday 19th February Early Pillows Optional Prompt: I wrote a note for you. 2:00pm GMT. Thursday 19th February Standard Pillows for all forms of writing 11:00am PST. Friday 20th February Pillow Crafters for people who like to create arts and crafts 11:00am PST.

Welcome to Pillow Writers! A virtual ME/CFS and Long Covid writing community. Check out the link pinned on our page for more information! #me/cfs#longcovid#writing#myalgicencephalomyelitis#chronicillness

Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...

CrunchME is a patient-led organisation using data-informed advocacy to help accelerate progress on ME/CFS, Long COVID, and other infection-associated chronic illnesses (IACIs). crunchme.org/visuals

Find on www.etsy.com/shop/Chronic... or www.redbubble.com/people/Chron... as shirts, etc

Free online meetings for the ME/CFS community. Sunday 8th February WIMEL Explaining to the world what having ME is like 11:00am PST. Tuesday 10th February Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.

Friday 6th February Pillow Crafters meeting has sadly been cancelled due to poor health. We wish our host a speedy recovery.

Words fail us and we’re known for words.

CANCELLED. Tonight’s Annex meeting has been cancelled. Apologies.

I thought this was a surprisingly good article about the realities of ME/CFS. www.bbc.co.uk/news/article...

Join us today at 12 pm PT/ 2 pm CT/ 3 pm ET 8 pm GMT for our virtual Keep The Light Community Event! Come as you are and we can all be encouraged by gentle time together! Register: https://www.meaction.net/event-details/keep-the-light-community-gathering #pwME #PwLC #MECFS #Spoonie

Monday 2nd February The Annex for long form writers 11:00am PST. Thursday 5th February Early Pillows Optional Prompt: Airport. 2:00pm GMT. Thursday 5th February Standard Pillows for all forms of writing 11:00am PST.

Early Pillows, prompts for next month: 5th February. Airport 12th February. A suggestion of everyday magic 19th February. I wrote a note for you 26 February. Feeling/Meaning. Prompts are always optional but priority is given to those who have written to that week’s prompt.

Tuesday 27th January Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST. Thursday 29th January Early Pillows Optional Prompt: The Fundamental Interconnectedness Of All Things. 2:00pm GMT. Thursday 29th January Standard Pillows for all forms of writing 11:00am PST.

“To hear your poetry is to hear the beauty in mine, to see you propped up on pillows like a reflection, a mirror of myself, to know that we do not have to sit to be heard nor always to read, to be writers” By September We thank September for this beautiful eulogy to Pillow Writers.🩵

Thursday 22nd January Early Pillows at. Optional Prompt: To Live at all is Miracle Enough. 2:00pm GMT Thursday 22nd January Standard Pillows for all forms of writing 11:00am PST.

All meeting are free. Thursday 22nd January Early Pillows. Optional Prompt: To Live at all is Miracle Enough. 2:00 pm GMT Thursday 22nd Standard Pillows all forms of writing 11:00am PST. Tuesday 27th January Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.

Tuesday 13th January ¡Bienvenidos de Regreso! Pillow Writers En Español los encuentros son completamente en Español. 11:00 am PST. Thursday 15th January Early Pillows. Optional Prompt: A Sentimental Journey. 2:00pm GMT. Thursday 15th January Standard Pillows for all forms of writing 11:00am PST

Thursday 8th January Early Pillows at 2:00pm GMT. Optional Prompt: A Curious Relationship With Time. Thursday 8th JanStandard Pillows for all forms of writing 11:00am PST Friday 9th January. Pillows Write Now. A place to write live. 60 minutes only. All forms of writing 11:00am PST

Laila Solaris shares the beginning of her essay "The Color Orange" with us. The full essay can be found in Near-Life Experiences The Pillow Writers Anthology Issue 2. Learn more about the truly amazing @pillowwriters.bsky.social & how to get your copy here: ow.ly/6Grc50XT8VK #pwME #spoonie

Come and join the Pillow Writers at the Pillowmas Christmas Special. 11:00 am PST 7:00 pm GMT Hosted by Una. Open to anyone with ME/CFS or Long Covid. More information info and Zoom Link here pillowwriters.wordpress.com

Martin Keogh of Pillow Writers shares "It's Like Amnesia" - a piece included in Near- Life Experiences: The Pillow Writers Anthology, Issue 2. Pillow Writers has two anthologies available! Proceeds benefit #MEAction! https://ow.ly/A4kL50XLBO5 #MEAction#pwME #book #Spoonie #MECFS

Two meetings are held every Thursday in different time zones. Early Pillows at 2:00pm GMT Standard Pillows at 11:00 am PST The Zoom link for both can be found on our website. pillowwriters.wordpress.com

I don’t want to show off or anything, but I have just had a bath.

I am in awe of the amazing @pillowwriters.bsky.social!!! Listening now!!! #pwME #MyalgicEncephalomyelitis #MECFS #LongCovid

Check out the newest anthology from @pillowwriters.bsky.social!!! We just heard some powerful samples from the anthology. A portion of your purchase goes to support #MEAction! US Amazon link: a.co/d/5zSkg8U UK Amazon link: amzn.eu/d/6fb8HeO Canada Amazon link: www.amazon.ca/Near-Life-Ex...

When you're chronically ill, you constantly have conspiracy theories about why your body is being a pile of shit on any specific day.

The second Pillow Writers Anthology is now available on Amazon. All profits to @meactnet.bsky.social Congratulations to all involved.

A helpful website run by one of our original Pillow writers. www.betsybarkermedia.com

Oh wow! www.decodeme.org.uk/initial-dna-...

A message from #MEAction’s Executive Director Laurie Jones after the passing of recent legislation: mailchi.mp/meaction/mea... #PwME #MyalgicEncephalomyelitis #MECFS #longCovid #Disability

Pillow Writers are seeking submissions. Personal essays <500 words on how exercise has affected your condition. More info here: pillowwriters.wordpress.com/2025/06/19/h...

Pillow Writers are seeking submissions. Personal essays <500 words on how exercise has affected your condition. More info here: pillowwriters.wordpress.com/2025/06/19/h...