I don’t want to show off or anything, but I have just had a bath.

I am in awe of the amazing @pillowwriters.bsky.social!!! Listening now!!! #pwME #MyalgicEncephalomyelitis #MECFS #LongCovid

Check out the newest anthology from @pillowwriters.bsky.social!!! We just heard some powerful samples from the anthology. A portion of your purchase goes to support #MEAction! US Amazon link: a.co/d/5zSkg8U UK Amazon link: amzn.eu/d/6fb8HeO Canada Amazon link: www.amazon.ca/Near-Life-Ex...

When you're chronically ill, you constantly have conspiracy theories about why your body is being a pile of shit on any specific day.

The second Pillow Writers Anthology is now available on Amazon. All profits to @meactnet.bsky.social Congratulations to all involved.

A helpful website run by one of our original Pillow writers. www.betsybarkermedia.com

Oh wow! www.decodeme.org.uk/initial-dna-...

A message from #MEAction’s Executive Director Laurie Jones after the passing of recent legislation: mailchi.mp/meaction/mea... #PwME #MyalgicEncephalomyelitis #MECFS #longCovid #Disability

Pillow Writers are seeking submissions. Personal essays <500 words on how exercise has affected your condition. More info here: pillowwriters.wordpress.com/2025/06/19/h...

Pillow Writers are seeking submissions. Personal essays <500 words on how exercise has affected your condition. More info here: pillowwriters.wordpress.com/2025/06/19/h...

@pillowwriters.bsky.social Exciting announcement! We invite essays for poss publication in our upcoming book. Theme: "What is ME like following exercise?" Contact [email protected] for more guidance. Thank you :-)

Our WIMEL ( What is ME Like) group is reducing to monthly. They now have enough written material and are looking for editorial and production help. Anyone able to help the group can contact Stoo here [email protected]

Oh lawks, another week has gone by when I’ve failed to promote Pillow Writer Meetings. Two tomorrow one at 2:00pm GMT The other at 11:00am PST Don’t dob me in, I’ve not been well!

The Pillow Writers Community has a virtual village called St Hibblethorpe with its own publication the Parish Bell. You can now email your questions, queries and problems to the Bell’s Agony Aunt Clary.

Whoops. Forgot to promote Soft Pillows. Monday 2nd June 11:00 am PST, 7:00pm London. At Soft Pillows we don’t discuss anything that might make the Vicar’s tea cup rattle in his saucer. pillowwriters.wordpress.com/2025/01/01/i...

This week’s Early Pillows was superb. We founded new religions, embraced our inner deities and worshipped at the alter of chocolate and oranges. Next week we’re writing Protest Songs. Everyone welcome. X

The next Pillow Writers Play: Death by Bunting has been written. The cast are now choosing a performance date.

Monday 26th May: Long form writers.11:00am PST Tuesday 27th Pillow Writers En Español 11:00 am PST. Thursday 29th May Early Pillows at 2:00pm GMT. Optional Writing Prompt:Invent a deity. Thursday 29th May Standard Pillows for all forms of writing 11:00am PST pillowwriters.wordpress.com

Our Sunday writing group is trying to find a way of explaining to the outside world what ME is like. It’s co-hosted by Stuart who I think does a really good job with this well-researched piece. pillowwriters.wordpress.com/2024/07/08/h...

new Substack post: The Self as Character — on writing from inside crisis, when the self is both subject and material. How do we shape a self who can’t yet reflect? meghanorourke.substack.com/p/the-self-a...

Early Pillow Writers every Thursday 2:00 GMT over Zoom. Free supportive writing group for #ME/CFS LC sufferers. Optional prompts: Thurs 22nd May: Go with the flow Thurs 29th May: Invent a deity Thurs 5th June: Write a Protest Song Thurs 12th June: Show Don’t Tell earlypillowwriters.wordpress.com

Our Next meetings: Sunday 18th May WIMEL Explaining to the world what having ME is like. Tuesday 20th May Pillow Writers En Español — facilitado por Manu e Iliana. Los encuentros son completamente en Español. 11:00 am PST.

Wednesday 14th May Pillow Crafters Formal monthly meeting Thursday 15th May Early Pillows at 2:00pm GMT Optional Writing Prompt: Go With The Flow Thursday 15th May Standard Pillows for all forms of writing 11:00am PST optional Writing Prompt: important things I forget. pillowwriters.wordpress.com

It’s #MEAwarenessDay and as always, I’m thinking about how much we have to limit ourselves with this condition. So I wrote a poem about the forced absence of joy: www.thisthingtheycallrecovery.com/post/the-ris... #MECFS #SpokenWord #ChronicIllness #ChronicPain #ChronicFatigue

There are several different Pillow Writer meetings, different time zones, different frequencies and different languages. All the necessary information on how to join us can be found here: pillowwriters.wordpress.com

It’s almost May 12, almost #millionsmissing What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives. Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves. They r hoping tomorrow’s better. Help us get there!

Millions around the world live with Myalgic Encephalomyelitis — unseen, unheard, and misunderstood. The Pillow Writers community exists so that our voices can still be heard. Supported by MEAction it’s free to join so we can celebrate your voice too. 💙 #MEAwarenessDay #MissingMillions #MECFS

Sorry, I’ve missed a few. This illness is an absolute swine isn’t it? Thursday 17th April Early Pillows at 2:00pm GMT. Writing prompt: from two different viewpoints or two different voices. Thursday 17th April Standard Pillows for all forms of writing pillowwriters.wordpress.com/2025/02/18/e...

MEAction invites ppl to join their Save Our Science campaign. “Send your SOS to the UK gov, MRC, DHSC and National Institute for Health and Care Research (NIHR). Tell them your story and why properly funded research into ME is vitally important to you. tinyurl.com/yc4fyy8c

You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss... #MEAction will be sounding a Disability SOS at the nation’s capitol and across social media. #PwME

We have a small window to get ME research funded in the ME/CFS Delivery Plan. Raise your voice and join us in our S.O.S. campaign by writing to politicians and funding bodies 👇📩 ow.ly/8vxF50VFjTm #MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness

Sunday 27th April Pillow Scripters for play writers and players. Monday 28th April The Annex for long form writers. Tuesday 29th April Pillow Writers En Español. Los encuentros son completamente en Español. All 11:00 am PST via Zoom. More info and Zoom link here: pillowwriters.wordpress.com

Thursday 24th April Early Pillows at 2:00pm GMT. Writing prompt: why I write what I write. Followed by Standard Pillows At 11:00am PST for all forms of writing Sunday 27th April Pillow Scripters for play- writes and players. Hosted by Chris 11:00 PST pillowwriters.wordpress.com

If you would like to be officially reminded by email about one or more of our regular meetings you can sign up here: preview.mailerlite.io/preview/8873...

Sunday 20th April WIMEL Finding a way of explaining what having ME is like. Tuesday 22nd April Pillow Writers En Español — facilitado por Manu 11:00 am PST. Thursday 24th April Early Pillows 2:00pm GMT. Thursday 24th April Standard Pillows 11:00am PST pillowwriters.wordpress.com

Early Pillows this afternoon 2:00pm GMT. This week’s writing prompt is “the same story: two voices”. But we celebrate every sentence written. Bring any written work. Open to anyone with ME/CFS or LC. More information and Zoom link here pillowwriters.wordpress.com

There are two Weekly Pillow Meetings every Thursday 2:00 GMT 11:00 PST Choose the Time Zone most convenient for you. All ME/CFS LC sufferers welcome. More info and Zoom link here: pillowwriters.wordpress.com

Next meetings are on Thursday 27th March 2025 Early Pillows at 2:00 pm GMT. Writing Prompt: “Through the cracks.” Followed by Standard Pillows at 11:00am PST. Then Sunday 30th is the Play-write and Players meeting. 11:00am PST

The writing prompt from last week’s Early Pillows prompted this incredible work of fiction. pillowwriters.wordpress.com/2025/03/19/e...

Dawn McReynolds shares this excerpt from "Beehives," which is part of the amazing anthology from the @pillowwriters.bsky.social. The Pillow Writers Anthology, Issue 1: Near- Life Experiences is available now in print, ebook, and audiobook: a.co/d/5qrnE6f #MEAction will be receiving all proceeds.

Weekly Early Pillows. Thursday 20th March at 2:00pm GMT Writing Prompt: Permanent Impermanence. The writing prompt for next week is “Through the cracks”.

Both Early Pillows and Standard Pillows every Thursday. pillowwriters.wordpress.com/2025/02/18/e...

Next meetings are on Thursday 13th March 2025 Early Pillows at 2:00 pm GMT. Writing Prompt: “To see a world in a grain of sand And a heaven in a wild flower”. We’re focusing on details. Standard Pillows at 11:00 PST. Writing Prompt : “Nature’s magic has become ever more visible”

Pillow Writers is a free online writing community open to everyone with ME/CFS or Long Covid. The original weekly Standard Pillows proved so popular that we now offer several more specialised writing groups throughout the month. Here is a roundup. pillowwriters.wordpress.com/2025/03/06/n...