The disability grants website helps you find a financial donation from UK charities or trusts, for things that cannot be paid for by Government or Local Authorities. There are grants for all ages & a range of purposes, like education, holidays, equipment, adaptations etc. tinyurl.com/4wmmemkz

Cort explores the possibilities of the Moreau team study which restored SMPDL3B membrane levels in the lab using two diabetes drugs called saxagliptin and vildagliptin. The authors proposed that these drugs may provide a “novel immunomodulatory strategy” for ME/CFS tinyurl.com/p6w46vkc

MERUK explores the importance and difficulty of knowing the prevalence of Long COVID and ME/CFS i.e. how many are affected by the conditions. tinyurl.com/yz8fuzfw

28/4 Gweminar hunan-reoli ME/CFS Lleisiau ME Cymru rhif 2: Dydd Mercher 6 Mai 12.30-1.30 Bydd Gwasanaeth Byw'n Dda BIPBC yn egluro pa gymorth y gallant ei roi i bobl â ME/CFS yng ngogledd Cymru. Rhannwch os gwelwch yn dda Cofrestrwch yma: tinyurl.com/36ku46jw

ME Voices Wales self-management webinar no. 2: Wed 6 May 12.30-1.30pm BCUHB's Living Well Service will explain what support they can give people with ME/CFS in north Wales. Please share. Register here: tinyurl.com/3s3n98ep

Haylie Pomroy & Dr Marc Kesselman examine autoimmunity through a clinical lens, discuss its higher prevalence in women, and review key laboratory tests that may be considered in the evaluation of autoimmune conditions. [46 mins] +Transcript +Chapters tinyurl.com/5hy3tj4f

Montell Douglas presents a BBC appeal on behalf of Action for ME, a charity that provides support and advocacy for people of all ages affected by ME. (9 mins) tinyurl.com/2p9v3keu

An overview of what little is known about the effect of ME, Long COVID and PoTS on women's reproductive health. tinyurl.com/yxpp73u2

Working on wellbeing is an employment training & support programme for disabled people aged 16+ in Wales, including people with ME & FM. Bilingual Scope project officers work with you to develop a path to your career goals. tinyurl.com/4kkfbpwf

The Medical Education Resource Center (MERC), a program designed by OMF and BHC, is dedicated to training healthcare professionals worldwide in diagnosing and treating ME/CFS and related conditions. Read what they had achieved and their goals for the future. www.omf.ngo/merc-me-cfs-...

Dutch/ Irish doll maker, artist and writer, Corina Duyn has had ME for 27 years and now lives in a long term care facility. She has had her creative work 'Little Wings' published on ISSUU: a leading digital publishing platform. tinyurl.com/3fu26etd

Meic: the bilingual confidential helpline service for young people age 0-25 in Wales. For information, advice and advocacy call 08088023456, WhatsApp, text 84001 or online chat through the website. 8am-midnight every day of the year. Professional resources also available online www.meiccymru.org

BBC's Lifeline Appeal will be made on behalf of Action for ME on Sun 26th April at 2:50pm on BBC 1 with a 9 minute video featuring the real-life stories of people with ME. tinyurl.com/4ppz5h5d

CfDJ suggests topics to include in the Timms Review of PIP. The more people who respond, the harder it is for the UK Gov to ignore Disabled people’s reality. Closing date 28 May. tinyurl.com/4wfzwa73

Dr Nancy Klimas talks about the mechanisms, risk factors & current treatment strategies for long COVID, and introduces an active clinical trial investigating spike protein persistence as a potential root cause of the condition. [51 mins] +Transcript +Chapters tinyurl.com/4z3pwnr6

An examination of 505 memorials to people with ME/CFS who had died, found 4 principal themes: systemic neglect and institutional failure; clinical neglect and failures; social disconnection and advocacy; and personal burden and quality of life. tinyurl.com/5n7m9nt6

The Disability Advice Project Wales helps people with issues around their long-term health conditions/disabilities and issues that affect their carers. They provide independent advice on welfare rights and care services. www.dapwales.org.uk/about-us/

OMF briefly explains what Network medicine is, and how OMF is using it to identify potential targets for ME/CFS treatment. www.omf.ngo/network-medi...

PRIME Research Project Second Workshop: The Similarities & Distinctions between Long Covid & ME/CFS. On Zoom tomorrow Friday 24 April 2-5pm. Register in advance. Speakers include Prof Danny Altmann, Andy Malinowski (PrecisionLife), Dr Amy Proal, Prof Manoj Sivan, Nisreen Alwan. tinyurl.com/52rrwh95

MERUK highlights a study from the USA, which reveals the underfunding of research into long COVID and ME/CFS, illnesses which often co-occur and “disproportionately impact females whose concerns are often marginalised”. tinyurl.com/mry42fmk

OMF briefly explains what Orthostatic intolerance (OI) and Postural orthostatic tachycardia syndrome (POTS) are, and their place in ME/CFS research. www.omf.ngo/oi-vs-pots/

OT Abby says the evidence strongly points to COVID being airborne. "Yet, five years into this pandemic, we are still not fully acting like it’s true." She discusses what this means for people with energy-limiting conditions. tinyurl.com/cuk98bwb

Register free of charge for online participation in the International ME/CFS Conference 2026 on 7–8 May. The two-day hybrid event speakers will include Chris Armstrong, Chris Ponting, Oystein Fluge, David Putrino, Carmen Scheibenbogen. tinyurl.com/mtfb7y93

Introduction of an ME/CFS care process algorithm (aka a pathway) by the Mayo Clinic, appears to have enabled general clinicians to diagnose their patients more quickly and accurately, before referring them to the Clinic. tinyurl.com/rkjey2fj

Dr Alain Moreau in Montreal says “ME is not a single disease but rather a spectrum comprising several subgroups.” He has found FM is often misdiagnosed as ME & it is possible to have both conditions. He has identified several markers of ME that could be used to improve diagnosis tinyurl.com/5ffzmj88

David Tuller posts 2 video interviews. one with Damon Jacobs and one with Julie Rehmeyer on her “Modern Love” piece for The New York Times, where she describes the death of her friend, ME advocate Beth Mazur, by suicide in her home. tinyurl.com/y82h633a

MERUK assesses a recent mini-review which explored whether hydrogen-rich water might have therapeutic potential in ME/CFS. The authors thought it had potential but MERUK believes more robust trials are needed. tinyurl.com/55jm3hnp

Disabled customers have called on Motability to pause a “discriminatory” scheme that monitors how they drive, until it is accurate and fit for purpose. tinyurl.com/y2usdfsm

Dr Carmen Scheibenbogen discusses her research into GLP-1 Drugs to reduce symptoms in people with ME/CFS and identify disease subgroups. [56 mins] +Transcript tinyurl.com/3zm2kt5u

There is still time to register for tomorrow’s ME Voices Wales self-management webinar: Wed 22 April 12.30-1.30pm ABUHB's Symptom Management service will explain what support they can give people with ME/CFS. Register here: tinyurl.com/mwkvbnp9

B&W questions the validity of the Timms Review collaboration. The resulting recommendation, which aimed to make disabled claimants feel safe trying work, appears to have been something that the department always intended to do. tinyurl.com/58z7f64s

MERUK discusses factors that affect studies, like Prof Jason's, that compared long COVID pts with ME ps from Epstein Barr virus. "ME/CFS is a sx-based clinical dx not a mechanistic one... some individuals with long COVID meet ME/CFS diagnostic criteria or have a dual diagnosis." tinyurl.com/2tc7xd2c

The Covid Inquiry Chair has identified the success of the vaccine & therapeutics programme as a “huge achievement”, She acknowledges the flaws in the programme affecting Disabled people & their carers and identifies improvements that are required before the next pandemic. tinyurl.com/2u9fmr2f

Post-Exertional Malaise - 3 expert physicians explore the key characteristics of delayed onset (12–72 hours), prolonged recovery, multi-system impact, disproportionate symptom severity, and wide range of triggers beyond physical exertion. [54 mins] +Transcript tinyurl.com/2tmzcvjn

OMF launches CTN Lite, a streamlined research model that allows OMF to launch meaningful treatment trials faster, without compromising scientific rigor and excellence. Take the Survey. Takes 20 mins to complete. Closes 15 May. tinyurl.com/4hhpr2zz

The Campaign for Disability Justice explains why the Work Capability Assessment matters. “Humiliating and degrading”. One of many gut-wrenching human stories behind the work capability assessment. #OpportunitySecurityRespect tinyurl.com/2eb6epc5

The first ME Voices Wales self-management webinar: Wed 22 April 12.30-1.30pm ABUHB's Symptom Management service will explain what support they can give people with ME/CFS. Please share. Register here: tinyurl.com/mwkvbnp9

Gweminar hunan-reoli ME/CFS Lleisiau ME Cymru: Dydd Mercher 22 Ebrill 12.30-1.30 Bydd gwasanaeth Rheoli Symptomau ABUHB yn egluro pa gymorth y gallant ei roi i bobl gyda ME/CFS. Os gwelwch yn dda, rhannwch Cofrestrwch yma: tinyurl.com/mwkvbnp9

All but one of the largest parties fighting for seats in Senedd elections next month have pledged to incorporate the UN disability convention into Welsh law, with just Reform UK refusing to back the major step forward for disability rights in Wales. tinyurl.com/yzhvawc8

Discovery of target antigens for dysfunctional T cells in ME/CFS & LC. Dr Liisa Selin, Dr Ayano Kohlgruber & Dr Roshan Kumar will discuss their study & how this work cd also produce new dx biomarkers & suggest new tx for patient subgroups, Thurs 28 April 28, 23.00 UK time. tinyurl.com/552k5tpj

Astriid FLEXI’s Community Support Sessions are a supportive space for people managing a long-term health condition to talk about employment, without pressure or expectations. They take place once a month on Zoom beginning 22 April. Register in advance tinyurl.com/yp7f4kty

The consultation aimed at changing the law on the use of “Powered Mobility Aids” closes at 11:59pm on 22 April 2026. Wheels for Wellbeing have developed 10 key principles through 3 years of intensive consultation & invites you to use them when participating tinyurl.com/yzwk7nkr

OT Abby gives tips on what to look for when building yr 'care team', IF you have options! "nobody is looking at whole picture. Nobody is sitting in room where all of that information lives at once. Except you. This is both exhausting and can be a source of some real agency." tinyurl.com/rfzrwh2h

The Canary says they have spoken to ppl with ME who say DWP Access to Work scheme has been referring ppl living with ME to orgs classifying condition as a form of “acquired neurodivergence”. tinyurl.com/4ukm3zyf

MERUK report that German researchers have assessed reaction times to 3D virtual reality tasks & found they were significantly slower in ME/CFS. It was a small study. “A larger-scale study has recently begun with the aim to correlate biomarkers with performance." tinyurl.com/4dwjzjtu

Credu Carer's Organisation is running a training/awareness session covering Mast Cell Activation Syndrome MCAS, and PAND/PANDAS. 24 April at Medrus 1, Aberystwyth University. Tickets are free. Join in person, online or book for the recording to be sent once it is ready. tinyurl.com/yjsw8vfz

Following FOI requests B&W explains which healthcare professionals are used as assessors for PIP and WCA. This includes paramedics, pharmacists and speech therapists. tinyurl.com/4tf5m87m

The first ME Voices Wales self-management webinar: Wed 22 April 12.30-1.30pm ABUHB's Symptom Management service will explain what support they can give people with ME/CFS. Please share. Register here: tinyurl.com/mwkvbnp9

David Tuller is crowdfunding for his salary and expenses for the period up until the end of 2026, when he plans to retire. His work has played a major role in the ongoing shift in how ME/CFS is viewed, and Long COVID along with it. Contribute until 5 May tinyurl.com/3c8sh9j5

Blue Sunday tea parties on 17 May are a chance to connect with others online to raise awareness of ME and a little money for ME causes. This year WAMES will be joining in and hosting a fundraising page. Find out more in May and consider hosting a tea party of your own. tinyurl.com/546f2skw