#StarTrek needs more #disabled #Vulcans. Infinite Diversity in Infinite Combinations. 🖖

#MyalgicEncephalomyelitis punishes me for being #human. I was curious and stubborn and intelligent and caring, but I'm not allowed to be that person anymore. I have to choose not to think too hard, or this #illness will choose that for me. #severeME #millionsmissing #spoonie

#MyalgicEncephalomyelitis might not kill you (in most cases), but it doesn't make you stronger. It just takes everything away from you, little by little, until there is nothing left but you and the void. It's scary in here. 🕳️ #severeME #MECFS #chronicillness #spoonie

My circadian rhythm is a party animal #circadianrhythm #N24 #severeME

Life is too exhausting to have regrets. #severeME

I'm bored, but I can't do anything. #severeME

I like not having to worry about if I'm going to trip over my own feet anymore #wheelchairuser

It never went away. I just got some coping strategies and learned to hide it better. #mentalhealth #mentalillness

An extra #cost of being #disabled that no one talks about is the cost of #replacing things that #carers lose or misplace. I'm replacing my butter today. I have no idea where it is.

I have a brain, but it really doesn't work very well.

I love not being sleep deprived

Having a #powerchair makes it much easier to avoid overdoing it by doing bADLs, but also much easier to do other, non-essential, activities of daily living that I really shouldn't be doing. #severeME #spoonie #nospoons

Don't run before you can walk... and don't walk before you can stand, don't stand before you can sit, and don't sit before you can be propped up in bed with your legs up without crashing from it. #babysteps #severeME #POTS #orthostaticintolerance #chronicillness #spoonie #wheelchairuser #disabled

I'm not #stupid, I'm #disabled. I need #help to figure things out, not to be redirected to information I already have #access to and expected to figure it out myself. #brainfog #cognitivedysfunction #cognitivedisability #severeME

The thing about doing something perfectly every time is you never learn to correct your mistakes and try new approaches. #perfectionism

Testing what happens if I add posts and Post All 1/3

I don't want to forget myself

Unpopular opinion: games don't need bosses. I'm perfectly content playing the same type of level over and over again.

The great thing about having #POTS is that I never have to bother with putting my fan away in winter. I use it all year round. #heatintolerance #potsie #spoonie #chronicillness

#ME is not #FND. I have both conditions, and my #health deteriorated because it was assumed that my severely disabling #chronicfatigue was just another FND #symptom. #spoonie #chronicillness #severeME #disabled #disability #medicalgaslighting #medicalneglect

It is both horrible to be unable to do anything and freeing to just do nothing. #severeME

SOS doesn't stand for anything. It's just a recognisable pattern in Morse code. . . . / _ _ _ / . . . That being said... Save Our Spoons please! #chronicillness #spoonie #disabled #chronicfatigue #fatigue

The more I learn about ME, the more I realise just how poorly I was managing my illness in the two years before my diagnosis. I wish I had a time machine, but I don't, so I'm embodying Sisko from In The Pale Moonlight instead. #MyalgicEncephalomyelitis #StarTrek #DS9 #chronicillness #spoonie

Having very severe ME is like having insomnia, but experiencing those hours you spend trying and failing to fall asleep all day every day. No stimulation, no getting out of bed, until you get so frustrated that you have to take a break. And then you try again. Over and over. #severeME

Standing up with very severe ME is like going rock climbing without a rope. Sure, maybe some people can do it, but it's incredibly dangerous and risky, no matter how much you plan, and really not worth it except in exceptional circumstances. #severeME #chronicillness #spoonie

So apparently it's a bad idea to push the speed to max on your powerchair and zoom across your rather small bedroom... but I did it anyway because I was bored. I crashed into my shoe cabinet. It looks like it didn't take any additional damage...

Society is always trying to get people to be better and do more. Why aren't we just enough as we are?

Hello! If you're seeing this, you're probably a friend. I'm sorry I've had to send you this. I have very severe ME. Please look it up; I don't have the energy to explain. I'm sorry I haven't replied to your messages. I probably won't be able to get back to 1:1 texting for a while. I miss you. 🥲🫂

Some days I'm okay with having very severe ME, and then some days I'm just trying not to breathe too hard or chew too hard and it's not very fun.

I'm annoyed that my #powerchair assumes I'm more #ambulatory than I am. What do you mean I'm supposed to charge it for a full 6 hours but avoid charging it overnight? It's my legs! #disabled

I wish every #spoonie got to try a #powerchair. It would have been so good for me to know that getting one really is worth it. I didn't expect to get as much benefit from it as I have, and I didn't realise how much i was struggling before. #wheelchairuser

I want to give my #chronicillness to the next person who makes an insensitive comment about it. #spoonie #ableism

I finally became a wheelchair user and it wasn't even a big adjustment. The only difference now is I go to the bathroom on wheels instead of on legs I can't trust to keep me up long enough to get back to bed. I like feeling safe. #powerchair #severeME

I want to run away, but I can't run away from my own body. I don't get to start again. #spoonie #chronicillness #grief #disabled

Freebies are a genius marketing strategy. Of course I'll pay for the item if it turns out I like it enough to want to buy it again! 💸

I am okay, really. (and by 'okay', I mean 'not dying') #spoonie #autistic

I really want a day off from pacing. Just one. Please. #spoonie #chronicillness #chronicfatigue #pacing #energymanagement #disabled #disability

A life lesson I am learning is that if a deal looks too good to be true, it probably is! I should've got the deal while it was still there! It's gone now!

No one talks about how #hard it is to #acquire a #disability. I don't understand why. Everyone who lives long enough becomes #disabled eventually. #DisabledGrief

I keep being surprised by how many things it's possible for me to be unable to manage and still survive anyway. #disabled

Making Visible happy is one of my main life goals 😂 #spoonie #chronicillness

Why is almost all of the good delivery food spicy?

I'm so #grateful that #people with different #disabilities exist, because #innovations and #adaptations that #help them can help me too, even though I don't have the #disability the #aids were originally designed for. #UniversalDesign #CurbCutEffect #disabled #accessibility

True #Vulcan logic involves ignoring #emotions. We can't live like that. However I do like to apply #principles of Vulcan #logic to #internalisedableism. It's not true, no matter how much I wish it was, and it would do me no good to listen to it. 🖖 #StarTrek #disabled #disability #ableism #healing

My #goal isn't #recovery anymore. There's no #treatment, no #cure, and only a ~5% recovery rate. If I do have #ME, 'recovery' is simply out of my control. #MECFS #myalgicencephalomyelitis #symptommanagement #NHS #UK #MEawareness

#YouTube knows I'm #disabled. I keep getting #adverts for #accessible bathtubs and orthopaedic shoes.

The NHS's goal for me is #recovery, but I've done enough #research into #disability theory and #cripplepunk to know that's not what I want for my life anymore. I want the #NHS to #support me to #choose instead. I am #physicallydisabled and no amount of fighting it will #change that. #disabled

Visible keeps telling me to stop laughing too hard. 😒 #spoonie

It shouldn't be, but, as a #disabled person, it is a #privilege to be able to #afford essential #medical and #mobility #equipment while on #UniversalCredit and #unable to #work. #benefits #disability #UK #DWP #benefitsUK #disabilitypoverty #costofliving

If #disability was more #normalised and we had more #representation of #disabled people, fewer people would rather die than be disabled, and fewer #newly disabled people would lose their lives.