✨ Thank you for being part of our 2025 ✨ This year, thousands of people engaged with our content about the reality of ME - from lived experience stories to the DecodeME results and vital policy work. Thank you for supporting us and helping make ME visible 🧡

⭐ We’re excited to share the runners-up to our Medical Student Essay Competition! In fourth place is Mohammed, who is studying at the Uni of Leeds! Read Eesa’s brilliant essay here👇 www.actionforme.org.uk/supporting-y... Huge thank you to all the students who took part!

⭐ We’re excited to share the runners-up to our Medical Student Essay Competition! In third place is Eesa, who is studying at Queen Mary Uni of London! Read Eesa’s brilliant essay here👇 www.actionforme.org.uk/supporting-y... Huge thank you to all the students who took part!

⭐ We’re excited to share the runners-up to our Medical Student Essay Competition! In second place is Elinor, who is studying at the Uni of Leicester! Read Elinor’s brilliant essay here👇 www.actionforme.org.uk/supporting-y... Huge thank you to all the students who took part!

We will be closed from 4pm Fri 19 Dec – 9am Mon 5 Jan. Our Info & Support service reopens to new enquiries at midday Tues 6 Jan. We know the festive period can be challenging for many people with ME. There are helplines available over Christmas (pictured). We wish you a wonderful festive break 🧡

🫶 If you’re 11–18 and living with ME, you don’t have to face it alone. Our Young People’s Counselling service offers up to 12 online sessions for free, with trained counsellors who understand ME and the impact it can have. ⁠Get in touch through our website: www.actionforme.org.uk/18-and-under...

Our Information & Support team will be taking a break over Christmas.   They'll be closed from 3pm Tues 16 Dec to midday Tues 6 Jan.   If you require support over the festive period, you can visit our website or contact the other helplines detailed in the image.   We wish you a restful Christmas 🧡

We’re delighted to welcome @llinosmedi.bsky.social to our Parliamentary Champions network! 🤝 Llinos met with us recently to discuss how she can further support the ME community, having experienced the devastating impact of #MECFS through her constituency work and APPG on ME. ⬇️ #MyalgicE

This #FundraisingFriday we want to wish good luck to our fabulous fundraisers & all other participants taking part in the Victoria Park Half Marathon this Saturday! Want to help us change the lives of people with ME? Fundraise for us! 👇 www.actionforme.org.uk/support-us/f...

📢 Welsh Senedd passes Motion 8884!🧡 Pleased to see the Senedd vote in favour of Adam Price MS motion, bringing vital attention to severe & very severe ME and the urgent need for drastically better care, support & research. #pwME #Senedd

Recording from the LOCOME Project webinar now available! The webinar took place on Dec 5 & shared the projects final findings & discussed the next steps. Learn more about these findings, alongside discussions from the panel by watching the recording on our YouTube channel 👇 youtu.be/ITZ3LzZ0NAA

We are delighted to announce the first online workshop of the PRIME research project!   📆 Wed 21 Jan 2026 2pm-5pm.   PRIME is an initiative designed to strengthen & accelerate research into ME/CFS.   Read the full event programme & register for the event 👇 www.actionforme.org.uk/prime-resear... 

🥳 We are absolutely blown away by your support during our Big Give week. From all of us at Action for ME, thank you for helping us surpass our Christmas campaign target, and raise an online total of £185,877. ✨ The Big Give campaign is now finished, and we’ll be sharing our full total soon.

Last year, our free Information & Support service received over 1,700 enquiries from people with ME. This vital service exists because of the generosity of our community. Donate today & help us continue to provide tailored advice & practical resources to people like Nic 👇 bit.ly/2025-big-give  

⏰ 24 hours left! Together, you’ve helped raise over £135,000 to improve the lives of people with ME and accelerate vital research. Although our match funds have now run out, every single donation still counts. ✨ Donate here: bit.ly/2025-big-give  Thank you so much 🧡

Jo’s poem is a reminder of the hope that research brings - and why we need to keep pushing forward.   There's still two days left of our Big Give campaign. Your donations will help us build on DecodeME's findings and bring hope for the future.   🧡 Donate here: bit.ly/2025-big-give   

Donations made during our last Big Give campaign enabled us to provide over 120 bursaries to people like Nic, who has accessed our Chaplaincy support service. ✨ Donate today and help us continue to support the spiritual, emotional and physical needs to people with ME. bit.ly/2025-big-give

“The advice and support I was given once again lifted me out of a state of desperation and I don’t say that lightly.”  Donate to our Big Give campaign today, and help us continue to help people like Beena access the support they need: bit.ly/2025-big-give 

Thank you for all the support to our Big Give #ChristmasChallenge – so far we have raised over £118,000!⭐ We are so grateful for your support and incredible generosity – every donation means a lot to us and will enable us to continue to support people affected by ME of all ages.

Stanley* is a Patient & Public Involvement(PPI) contributor to Action for ME research projects, including LOCOME and our Big Survey. By donating to our Big Give, you can help us drive groundbreaking research forward: bit.ly/2025-big-give  *Name has been changed.  

🔎 From #DecodeME to LOCOME, it's been a landmark year for ME research. Hear why this is a pivotal moment for #MECFS research - and how Action for ME is accelerating understanding for everyone affected. 🧬 Donate today and your gift will be DOUBLED: bit.ly/2025-big-give #ChristmasChallenge

WEBINAR TODAY: Our researchers are unpacking the new ME genetics study today - join the live webinar to hear the findings first-hand and get your questions answered. 📅 Today 🕑 2PM GMT 🔗 Register: us02web.zoom.us/webinar/regi... #pwME #MECFS #longCOVID #MissingMillions

Congratulations to Kieran Gharti, winner of the @actionforme.bsky.social 2025 Medical Student Essay Competition! Kieran, a third-year MBChB Medicine student at @UoMMedicine, highlighted the urgent need for more research into ME/CFS in his winning essay.

Money raised during last year’s Big Give helped us provide 121 bursaries for healthcare to people like Lulu, enabling them to access ME-informed health and wellbeing support.    ✨You can donate to our Big Give campaign today, and have your donation doubled! bit.ly/2025-big-give 

Delighted how @precisionlife.bsky.social and @actionforme.bsky.social et al used consented @decodemestudy.bsky.social data to -replicate #MEcfs genetic signal & -show its shared/distinct genetics with Long Covid. Next: replicate ME/CFS subtypes w/ targeted therapies www.medrxiv.org/content/10.6...

We’re excited to announce the winner of our Medical Student Essay competition is Kieran Gharti, who is in his third year of MBChB Medicine degree at the University of Manchester.

(1/4) 🧬 @precisionlife.bsky.social has released exciting results from the LOCOME project Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.

(1/3) This week, your support can go twice as far for #pwME. During our Big Give Christmas Challenge (2–9 December) every £1 donated to us is doubled, helping us provide vital services and drive change for the 404,000 people living with #MECFS in the UK. ⬇️

Nikki is 47 years old and has had ME for over 30 years. She has accessed our Information and Support services, and also took part in DecodeME. 👉 Donate today and see your donation doubled, and help us continue to provide services to people like Nikki: bit.ly/2025-big-give 

✨ This week only, during the Big Give Christmas Challenge, your donation will be doubled, helping us support even more people like Lyndon, through our specialist healthcare services. 🧡 Donate today and double your impact: bit.ly/2025-big-give 

For our @biggive.bsky.social Christmas Challenge, we want to accelerate understanding of ME. ME can affect anyone of any age, and the lack of understanding about the condition means that many people living with ME face serious stigma and isolation.

On International Day of Persons with Disabilities, we’re highlighting the exclusion people with ME still face in healthcare, research and policy. ME is a profoundly disabling condition, leaving many housebound or bedbound. Greater recognition and inclusion are urgently needed 🧡

✨ This week only, during the Big Give Christmas Challenge, your donation will be doubled, helping us support even more people like Helen, through services like Advocacy. 🧡 Donate today and double your impact: bit.ly/2025-big-give    #BigGive #ChristmasChallenge #MECFS 

The @biggive.bsky.social Christmas Challenge is now officially underway! 🎅   For one week only, your donation will be doubled, helping us have double the impact for people with ME.   We work to improve the lives of all people affected by ME – including adults, children, carers and their loved ones. 

Thank you @thereforme.bsky.social and @hopefullizzy.bsky.social for recognising the wonderful Mel! 🧡 🙌

✨ This week only, during the @biggive.bsky.social Christmas Challenge, your donation will be doubled, helping us support more families like Hattie & Mia*, through services like our Information & Support service. *Names have been changed.   🧡 Donate today and double your impact: bit.ly/2025-big-give 

🎄 The @biggive.bsky.social Christmas Challenge starts today! From midday 2-9 December, every donation you make to Action for ME will be doubled whilst match-pot lasts, helping us bring life-changing support and vital research to the 404,000 people in the UK living with ME.

Only a few hours left until our Big Give Christmas Challenge begins! ✨

1/4 🚨 APPG 10th December meeting – agenda update As Secretariat for the APPG on ME, we have been asked to communicate a change to the agenda for the upcoming meeting. #APPG #pwME ⬇️

🎄Less than 24 hours to go! Our @biggive.bsky.social  Christmas Challenge starts at midday tomorrow! From 2 – 9 December, your donation will be DOUBLED, at no cost to you, when you donate to Action for ME via the Big Give Christmas Challenge website!

Only 2 days to go until our @biggive.bsky.social Christmas Challenge! Here’s a reminder of how it works! From 2-9 December, donations to Action for ME made via the Big Give Christmas Challenge website will be doubled whilst the match-pot lasts, at no extra cost to the giver! 

🎄 There are only 3 days until the start of our @biggive.bsky.social Christmas Challenge!   There is no diagnostic test, no effective treatment and no cure for ME.   From 2 - 9 December, by donating to our Big Give Christmas Challenge, you can help us continue to drive breakthrough research into ME.

🎄 There’s just 4 days to go until the start of our @biggive.bsky.social Christmas Challenge!   From 2 – 9 December, you can make one donation and have TWICE the impact.   Read more about the Big Give Christmas Challenge on our website 👇 www.actionforme.org.uk/big-give-2025/    #ChristmasChallenge

1/3 📢 OIA parliamentary drop-in update 50+ MPs, Peers & colleagues attended the OIA's drop-in! It raised vital awareness of the impact of the illnesses represented by founding members, highlighting the challenges faced across health & social care, education, employment & stigma #OIA ⬇️

🎄 5 days and counting until the start of our @biggive.bsky.social Christmas Challenge!   Last year, our Big Give Christmas Challenge raised an amazing £211,772!   With your incredible support and generosity, this has enabled us to:  

🎄 6 days to go until the start of our @biggive.bsky.social Christmas Challenge!   We are the only UK charity providing direct services, including healthcare, to people with ME of all ages – our services have been described as a ‘lifeline’.  

1/2 It was great to speak with MPs yesterday as part of the Overlapping Illness Alliance 🤝 @ehlersdanlos.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social Mast Cell Action PoTS UK #OIA #pwME ⬇️

One week to go until our Big Give Christmas Challenge is back!

📢 There are only 7 days to go until our @biggive.bsky.social Christmas Challenge!   From midday on 2 December to midday on 9 December 2025, donations to Action for ME will be doubled whilst the match-pot lasts, at no extra cost to the giver!

1/3 📢 Rescheduled: APPG on ME severe ME enquiry evidence session 📆 Wednesday, 10 December ⏰ 3.30pm – 5.30pm Invite your local MP to attend 👇 actionforme.eaction.org.uk/appg-severem... #pwME #SevereME #APPG ⬇️