Check out this article on a London photo exhibition by Jeremy Jeff depicting life with #MECFS. The exhibition, presented by The ME Association, will be on display Sept. 24-28. www.londonworld.com/community/th... #MEAwarenessHour

Solve and partner organizations urge NIH leadership to include subgroup tracking and analysis for #MECFS (using IOM criteria), #POTS & other forms of #dysautonomia, and #MCAS in the RECOVER TLC trials. Read our letter here: ow.ly/CHME50WUcx1 #United4Me

Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), & will co-present a panel with our partners at Brain Inflammation Collaborative (BIC). Register for IACFSME: ow.ly/mxz950WRARt

Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved. Sign up: ow.ly/luTT50WGMXV

You are invited to join #MEAction for our latest Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK. Register: us06web.zoom.us/meeting/regi... More about Pillow Writers: pillowwriters.wordpress.com #pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE

Happening today at 3pm PT / 6 pm ET. You can still register at ow.ly/ReIW50WApvO

Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social‬ & @putrinolab.bsky.social discuss how patients are reshaping research. Watch: https://ow.ly/xcAE50WNhXP

Today, we join the #MECFS community in thanking Dr. Beth Unger for her years of dedication at the CDC. Her leadership helped protect the ME/CFS program, expand research, and elevate patient voices. 📄 Read our open letter of gratitude: ow.ly/Im0a50WGS3m

Pt. 2 of the Severe #MECFS Webinar Series co-hosted by @batemanhornecenter.bsky.social + Solve. The session covers legal planning for those with severe ME & their caregivers. Topics include SSDI, SSI, POA, guardianship & more. ow.ly/mGAP50WGMBf #SevereMEAwareness #DisabilityRights

The unhide® + Solve Together Unified Platform makes clinical research simple. Join from anywhere, pick the studies you want, track symptoms, and complete surveys—all on your phone or computer. Your voice. Your platform. Let’s unhide, together. www.unhidenow.org

On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. 1/3 www.aquietstorm.me/in-the-absen... #MECFS #SevereME #SevereMEday #pwME #Photography

by Bente Kubin "Time feels weird when your life stands still. When you can hardly create new memories. You’re in some kind of strange time capsule, trapped and hidden away under unbearable conditions, while the world outside carries on as usual." ow.ly/fIpL50WCg7y

In this video, Solve M.E. Lived Experience Taskforce (LET) member Hollis Mickey talks about why it’s important that the language of blame be avoided when discussing #SevereME. #UnitedForME #SevereMEDay

On Aug. 8, we mark #SevereMEDay & raise awareness by elevating the experiences of those impacted. We also share free educational resources to help people understand the impact of #SevereME. Learn more here: ow.ly/KBjQ50WCcMh #UnitedForME #LearnFromME

What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Severe ME, this isn’t a metaphor — it’s reality. 🧵

1/ Hey y’all— we’ve got some good news from the Senate for #MECFS They just passed FY26 appropriations language with some big wins for our community. But… they only stick if the House keeps them in. Here’s what’s at stake 👇

In honor of #SevereMEDay (Aug. 8), we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. #SevereME #LearnFromME @batemanhornecenter.bsky.social @openmedf.bsky.social @meactnet.bsky.social

Congrats to @decodemestudy.bsky.social on the publication of the preliminary results from their genetic study of #MECFS. They identify 8 genetic signals where people with ME/CFS differ from those without, linked to the immune and nervous systems. decodeme.org.uk

Register for our Thurs. September 4 webinar on the Solve ME/CFS Catalyst Award-winning study from the team at bsky.app/profile/simm..., "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs." Sign up here: ow.ly/ReIW50WApvO

Last week, we hosted @virusesimmunity.bsky.social to discuss her Catalyst Award-winning study, “Probing Functional Autoantibodies in Patients with #MECFS." She shared how her work lays the groundwork for targeted treatment & advancing diagnostic tools. Watch here: t.co/43CpYSc4ms

This #SevereME Awareness Month, we recognize those living with the most severe & isolating form of #MECFS. Solve & @batemanhornecenter.bsky.social co-hosted a 4-part series on caregiving, legal planning, treatment, and research. Watch Pt. 1 on Caregiving: ow.ly/6CUn50WAoW4 #UnitedForME

Solve M.E. Research Advisory Council Member Dr. Anthony L. Komaroff co-authored an article proposing an additional cause of symptoms in #MECFS & #LongCovid that can be triggered by underlying abnormalities & might be more easily targeted for therapy. Read the article here: ow.ly/VmN750Wyc2X

Solve M.E. is now hiring for the position of Vice President of Scientific Programs in Los Angeles. Apply today! ow.ly/hzc250WnQMJ

A new Journal of Immunology study co-authored by @virusesimmunity.bsky.social (@yaleschoolofmed.bsky.social) distinguishes groups of people with #MECFS based on blood-plasma & cerebrospinal fluid proteins and has implications for causes, symptoms, & treatments. Read our summary: ow.ly/rtO850Wwsyx

📢#MECFS research of potential treatment (Hydrogen Water): Volunteers needed. New study of OTC supplement for chronic fatigue symptoms. Home-based. Participants paid up to $100. For more information, study coordinator: [email protected] #MEAwarenessHour

Four Days Left to Submit Art for Severe ME Artists Project– deadline is July 24th! Details: www.meaction.net/2025/07/10/s... We have had a wonderful response so far! Email [email protected] if you need help! #SevereME #SevereMEDay #pwME #art

We are deeply saddened to learn of the passing of our friend Bridget O'Shea. A medical writer and advocate dedicated to educating people about #MECFS, she wrote at length about her struggle with the disease. Sending our condolences to her loved ones. legacy.suntimes.com/us/obituarie...

Register for our July 31 @ 12 pm PT / 3 pm ET webinar with #MECFS Catalyst Award winner @virusesimmunity.bsky.social (@yaleschoolofmed.bsky.social). Dr. Iwasaki will discuss her study, “Probing Functional Autoantibodies in Patients with ME/CFS.” Sign up here: ow.ly/oPsF50Wrv74

In a new Health Rising post, Cort Johnson spoke to Michael Peluso, MD (UCSF) about working with the #LongCovid community & why researchers are "all thinking about how we can apply what we’ve learned to #MECFS” and other associated conditions. t.co/m7XxYYv1CC

📢Chronic Fatigue (#MECFS) research of potential treatment (Hydrogen Water): Volunteers needed. New study of OTC supplement for chronic fatigue symptoms. Home-based. Participants paid up to $100. For more information, study coordinator: [email protected]

The Summer 2025 edition of The Chronicle is now available! It includes summaries of significant research studies from this quarter--with topics like a genetic risk score for #MECFS, identifying biomarkers for #LongCovid, and more. Read it here: ow.ly/gZcW50WqfIr

Thanks to the efforts of a dedicated group of advocates in Alaska, the state will officially recognize #MECFS Awareness Day on May 12. Congratulations on your success, and thank you to Senator Loki Tobin and Rep. Zack Fields for your support!

Solve M.E. is now hiring for the position of Vice President of Scientific Programs in Los Angeles. Apply today! ow.ly/hzc250WnQMJ

Check out our overview of Advocacy Week 2025! This year was a study in power, progress, and patient-led change, with 187 meetings with congressional offices and 226 attendees from across 36 states and D.C. -- and we did it together! ow.ly/Ilm750WpA78 #MEForward #MECFS

Big congrats to Ramsay Research Grant winner Dr. Rob Wüst and team for the publication of their Solve-funded study in "Trends in Endocrinology & Metabolism" re: how diseases like #LongCovid & #MECFS affect muscle physiology. Read our summary of the study here solvecfs.org?p=42318. #PEM

Check out this webinar from our friends at @solveme.bsky.social. The implications of this trial for people with ME/CFS and other IACCIs will be discussed, and attendees with Long Covid will learn more about how to participate. Tuesday, July 22 @ 3 pm PT / 6 pm ET Sign up here: ow.ly/lhSa50WiKu0

ICYMI: Check out the recording of "Pacing: Power in Slowing Down," featuring Todd Davenport, PT DPT PhD, Dr. Lisa Hamilton, OTD, OTR/L, Hollis Mickey, MA, MFA, Clayton Powers, DPT, Monique Wike, and Solve CEO Emily Taylor. Watch here: www.youtube.com/watch?v=to9x... #PEM #MECFS

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. 🗓️ Register: us02web.zoom.us/webinar/regi... #LongCOVID

⏰ Our $50,000 matching gift challenge ends at midnight!⏰ Your support makes Advocacy Week possible & sustains the fight for people with ME/CFS. Please give now & double your impact: ow.ly/7is350WhKFs

Solve awards more funding to Ramsay Grant winners Drs. Geraldine "Jo" Cambridge & Dana Yelin—two world-class scientists advancing treatments for #MECFS & #LongCovid. Their research includes immune dysfunction & novel non-invasive therapies. Learn more: ow.ly/iUwx50WiA5B

Since 1987, Solve has stood by the ME/CFS community—breaking ground and pushing for change. Donate by midnight on Monday, June 30 and your gift will be matched up to $50K! Help us keep moving #MEForward. 💙 ow.ly/OiZG50WhIQU

My ME Action GA friends, working hard during @solveme.bsky.social’s Advocacy Week to brings critical issues concerning ME/CFS to members of Congress. Love and respect! #MEForward

Thank you @repaprildelaney.bsky.social for signing on to cosponsor H.R. 3906! #CDMRP #MEforward @solveme.bsky.social

#MEAction #Maryland advocates were proud to be part of @solveme.bsky.social Advocacy Week Together with passionate #pwME, pw #LongCovid & caregivers, we met today with MD Reps to promote HR3906 Medical Research for Our Troops Act which restores CDMRP funding for unique, non-duplicative research

@kaine.senate.gov I read that you have struggled with #longcovid. Please watch & share with your collegues and please champion our cause @solveme.bsky.social #advocacyweek youtu.be/JzKfi8LOMQU?...

Today while I was in "talk to people' mode, I made a quick call to both of my senators about Medicaid. #MEAction has a document with ME friendly actions you can take- including one for Medicaid listed by exertion level. Find those here: docs.google.com/document/d/1... #ProtectMedicaid #pwME

A note from Holly- our Community Engagement and Social Media Manager - Gentle reminder to #StopRestPace as you take action! Sending good luck to all who are meeting with representative offices for our friend's at @solveme.bsky.social's Advocacy week. I took this pic after a meeting this morning.

I made it to the couch for this one. The senate day on Tuesday had to be done from bed and I did not manage a picture. I was barely managing the meeting! Wanting to take action? @solveme.bsky.social has an easy to follow action that you can take today. solvecfs.quorum.us/campaign/128... #MECFS

Register today for our webinar “The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain Fog and Fatigue in People with #LongCovid.” Sign up here: us02web.zoom.us/webinar/regi...

📢 Help raise awareness of #MECFS! Share this FREE CME/CNE virtual session with your doctors, local clinics & medical groups. Learn from Johns Hopkins, Stanford & a patient about symptoms & research. 🗓️ July 9, 12 PM ET | RSVP: events.jhu.edu/form/me-cfs