Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen consumption to impairment status to treatment considerations M. Hanson et al. @cornellmecfs.bsky.social @workwellfoundation.bsky.social

HAPPY EASTER This Easter, Workwell celebrates hope, resilience, and community. Thank you for helping us empower patients and advance evidence‑based research. Your support makes a meaningful difference. #HappyEaster #MECFS #LongCOVID #HOPE #PT #PEM #POTS #StopRestPace #DoNoHarm #nonprofit #Science

HAPPY EASTER This Easter, Workwell celebrates hope, resilience, and community. Thank you for helping us empower patients and advance evidence‑based research. Your support makes a meaningful difference. #HappyEaster #MECFS #LongCOVID #HOPE #PT #PEM #POTS #StopRestPace #DoNoHarm #nonprofit #Science

LONG COVID PROJECT ECHO CPET and Metabolic Dysfunction Bateman Horne Center has partnered with the UofU to conduct a #LongCOVID and Post-Infectious Syndromes ECHO. Read more: conta.cc/4bmeDZA Tuesday, April 7th at 11am PT, 12pm MT, 2pm ET Invite your health care provider @sunsopeningband.bsky.social

Introducing a New #Disability Service: A #NASA 10‑Minute Lean Test An evidence‑based assessment used to identify orthostatic intolerance — a common but often overlooked contributor to symptoms. Read More: conta.cc/4bnFjcN #MECFS #LongCOVID #Fibromyalgia #OI #POTS #PT @sunsopeningband.bsky.social

WORKWELL JOINS "COFFEE WITH A CLINICIAN" The sessions are dedicated to sharing key principles and practical tips from the BHC Clinical Care Guide. Wed, March 11th 10 am MDT (9 am PT / 11 am CT / 12 pm ET) Register for Free conta.cc/3NeLfuQ #MECFS #LongCOVID #PEM @batemanhornecenter.bsky.social

Our latest work now posted as a pre-print on Research Square: "ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing" Read more: www.researchsquare.com/article/rs-8... #MECFS #LongCOVID #PEM @sunsopeningband.bsky.social

2025 YEARLY WRAP-UP Together, we’ve made 2025 a year of impact and purpose. With your support, Workwell has advanced research, strengthened advocacy, fostered education and brought hope to countless lives. Thank you for being part of this mission! Read more: conta.cc/4pak2ap #MECFS #LongCOVID

HAPPY NEW YEAR With your support, Workwell steps into the New Year with hope and purpose. Thank you for standing with us. conta.cc/3KnKw9s #HappyNewYear #MECFS #LongCOVID #HOPE #PEM #PT #OT #StopRestPace #DoNoHarm #nonprofit #Science Please consider us in your end of year giving plan.

HAPPY HOLIDAYS The Workwell Team wishes everyone a Happy Holiday Season filled with many blessings of hope and happiness. conta.cc/3JmgvGy Please consider us in your end of year giving plan. #HappyHolidays #MerryChristmas #MECFS #LongCOVID #HOPE #PEM #nonprofit #Science

Recommended Long COVID Outcome Measures and their Implications for Clinical Trial Design, with a Focus on Post-Exertional Malaise. Read more: conta.cc/48NAk3p #LongCOVID #MECFS #HOPE #PEM #PT #OT #DoNoHarm #nonprofit #Science @sciencedirect.bsky.social @sunsopeningband.bsky.social

HOLIDAY HOPE This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs #HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social

Workwell Advocates for You in Rapid Response to Long Covid Exercise Trial. In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research. Read more: conta.cc/3KA1Vf6 #LongCOVID #Advocacy #Exercise #PEM #DoNoHarm #nonprofit #Science @sunsopeningband.bsky.social @bmj.com

As I say, I think Workwell is doing crucial work on a topic that’s both central and badly underexamined. And they do it on a shoestring. If you’re in a position to give, I hope you will!

On this #GivingTuesday, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID & other fatigue-related illnesses. Your support fuels groundbreaking #research, innovative testing & #education. Read more conta.cc/4oBUYsP @sunsopeningband.bsky.social

On this #GivingTuesday, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID & other fatigue-related illnesses. Your support fuels groundbreaking #research, innovative testing & #education. Read more conta.cc/4oBUYsP @sunsopeningband.bsky.social

BLACK FRIDAY SALE Online Accredited Courses. Premium plans marked down to the price of a Standard #Education subscription + 1 extra month added to all plans. Read more: conta.cc/4p0iuzn #Medbridge #BlackFriday #MECFS #LongCOVID #PEM #PT #healthcare #nonprofit #science @sunsopeningband.bsky.social

Thanksgiving reminds us how fortunate we are to work with people like you. Your support inspires us to keep growing, improving, and delivering our best. From all of us at Workwell, thank you for being part of our journey. We wish you a wonderful holiday and a season full of possibility.

BLACK FRIDAY SALE Online Accredited Courses. Premium plans marked down to the price of a Standard #Education subscription + 1 extra month added to all plans. Read more: conta.cc/4p0iuzn #Medbridge #BlackFriday #MECFS #LongCOVID #PEM #PT #healthcare #nonprofit #science @sunsopeningband.bsky.social

Blood Flow to the Head in a #pwME Experiencing #PEM: A Case Report. This work lays the foundation for a larger study into the role of cerebral hypoperfusion. conta.cc/4oSvO8V #MECFS #POTS #CPET #PT #nonprofit #science @carolinechristian.bsky.social @sunsopeningband.bsky.social @wearlumia.bsky.social

Why Effort Preference Misses the Mark. It is not about motivation- it’s about biology. @nature.com Even minor exertion can lead to #PEM. conta.cc/4mM0B5C #MECFS #C_Scheibenbogen #Huisarts_Vink @sunsopeningband.bsky.social @marydimmock.bsky.social @davetuller1.bsky.social @openmedf.bsky.social

Milestone moment for ME/CFS awareness! The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators. Read more: https://bit.ly/46P31vP #MECFS #ACSM @acsm1954.bsky.social

As we approach the end of 2024, @workwellfoundation.bsky.social invites you to consider making a tax-deductible gift to support our #science. Our work has never been more critical as we better understand the similarities between #LongCOVID & #MECFS. #PEM #PESE Read more: www.givesignup.org/g/bam466

Happy Holidays from all of us @workwellfoundation.bsky.social #HappyHolidays #MECFS #LongCOVID #MillionsMissing #HOPE #pwME #pwLC #PEM #PESE #POTS #Lyme #Fibro #CPET #HRM #StopRestPace #StopGET #Education #Disabilty #DoNoHarm #nonprofit #science @lasnow.bsky.social @sunsopeningband.bsky.social

@workwellfoundation.bsky.social Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3ZdaYac #MECFS #LongCOVID #PESE @sunsopeningband.bsky.social

Workwell Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3ZdaYac #MECFS #LongCOVID #PEM #PESE @workwellfoundation.bsky.social @sunsopeningband.bsky.social

No fancy fundraising, but this #GivingTuesday, please consider my friends at the Workwell Foundation. We’re trying pull back the veil on mysterious conditions to uncover helpful and accessible strategies that works for people with ME/CFS, Long Covid, and related conditions. Thanks for considering.

In honor of International Day of Person with Disability. Workwell continues to provide resources and #hope to people with #MECFS and #LongCOVID and other #fatigue related illnesses. Read More: www.givesignup.org/g/bam466 #GivingTuesday #IDPwD24 #Disability #nonprofit @workwellfoundation.bsky.social

Hey, cool! The predictive basis for the model for biometric pacing we’ve been working on for almost the past 20 years at @workwellfoundation.bsky.social and that we shared early on with the kind folks at Visible seems to hold up well within a large dataset. Replication needed but good to see.

@sunsopeningband.bsky.social and @workwellfoundation.bsky.social are amazing! I can’t speak to visible but it seems they are too

#WorkwellFoundation appreciates you. It is our patients, physicians, attorneys and colleagues, who enable us to provide #disability services which drives #research and continued #education. We are blessed to have your support. #MECFS #LongCOVID #HOPE #LASnow #nonprofit #Science #HappyThanksgiving

Quoting to amplify. Thanks for your work on this and for taking the time to speak with me about it, @spichaksimon.bsky.social. Needless to say, these evidence-based guidelines…are neither evidence based nor soundly worded guidance. @longcovidphysio.bsky.social @workwellfoundation.bsky.social

🌟 Exciting News! 🌟 We have some exciting updates to share! We've launched a brand-new Facebook page to bring you even more amazing content and updates! 👉Click this link to visit our new and improved Facebook page! www.facebook.com/workwellfoundationorg We'd love for you to follow us. Thank you!

#WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3TP6enm #MECFS #LongCOVID #DoNoHarm #WorkwellFoundation

Tagging orgs here 🦋. Add any I've missed! And others you'd like @hankgreen.bsky.social @johngreensbluesky.bsky.social to know! @meactnet.bsky.social @openmedf.bsky.social @polybiorf.bsky.social @patientled.bsky.social @renegaderesearch.bsky.social @rthm.bsky.social @workwellfoundation.bsky.social

This weekend in these cruel waves my spirit is holding on to the lifebuoy studies & genuinely caring work of @workwellfoundation.bsky.social @sunsopeningband.bsky.social @physiosforme.bsky.social @longcovidphysio.bsky.social , actual experts on exercise/exertion & #ME #PEM #PENE

"Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and #longCOVID" by @workwellfoundation.bsky.social From the AMMES November 2024 Newsletter workwellfoundation.org/pacing-with-... #MyalgicEncephalomyelitis #MEcfs #CFS #PwME @sunsopeningband.bsky.social

Workwell teams up with STAT Health Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM.  Check out our new blog on this exciting collaboration!