A reminder for anyone reading that exercise is usually contraindicated for anyone with PEM/PESE; and screening for exertional intolerance should be undertaken with expert advice. We recommend resources from @longcovidphysio.bsky.social for finding out more…

2 news releases "Major report tackles Covid’s cardiovascular crisis head-on" www.eurekalert.org/news-release... www.eurekalert.org/news-release... Paper academic.oup.com/eurjpc/advan... Very disappointing no mention of PEM or ME/CFS in paper. Rehab like this may harm some #LongCovid #PASC

Proud to contribute frontline testimony to tonight's enraging @itvx.com documentary "The Covid Contracts: Follow the Money". Boris Johnson's govt squandered £8.7 billion on unusable PPE, while grifters like Michelle Mone made millions. Tonight, 10.15pm, ITV1. www.theguardian.com/tv-and-radio...

Yes we'd love to translate Long COVID Essentials into more languages! In the meantime we're collecting links to resources in various languages for a new webpage @longcovidphysio.bsky.social has great videos in many languages - here is the Arabic page: longcovid.physio/arabic-long-covid-video-series

OMF's Melbourne ME/CFS Collaboration published a paper on the results of a systematic review looking at cerebral blood flow in #MECFS and #orthostaticintolerance (OI). 118 studies, including over 9000 participants, were incorporated in the systematic review. ow.ly/QZjw50WNfjt

🧡 Returning to the classroom & looking for information on how to manage with Long Covid or a realated condition? We’ve got you covered. Our website is full of resources - all created with lived experience and expert input at the heart. 💻 www.longcovidkids.org #BackToSchool #Support #University

More information can be obtained by viewing a 20 minute presentation given to the Safer Healthcare Biosafety Network on the Patient Safety Learning website. (The presentation can be downloaded as a pdf) www.pslhub.org/learn/invest...

The document has been prepared in consultation with the HSE, British Standards Institute and stakeholders. This gives it the credibility legal persuasiveness that an issue of this importance deserves. The guidance document itself can be downloaded here: www.bohs.org/app/uploads/....

This definitive document fills a massive void and casts aside all the ambiguity and misinformation perpetuated within current IPC manuals (and the former ‘4-nations IPC guidance’). See Press release here: www.bohs.org/media-resour...

This has been prepared by BOHS, acknowledged experts in all matters relating to PPE and health risks at work (including microbiological risks).

🚨😷🚨😷🚨😷🚨😷 BREAKING NEWS At last, in the UK, we now have official guidance on the use of respirators (FFP3) vs Fluid Resistant Surgical Masks (FRSM) which has been prepared SPECIFICALLY FOR THE HEALTHCARE SECTOR. 🚨😷🚨😷🚨😷🚨😷

今天有新视频 📣 运动锻炼 #长新冠 #longcovid @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

今天有新视频 📣 调整节奏 #长新冠 #longcovid #pacing @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

今天有新视频 📣 长新冠安全康复 #长新冠 #longcovid @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

今天有新视频 📣 长新冠对日常生活的影响 #长新冠 #longcovid @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

Powerful closing remarks from PLRC co-founder @ahandvanish.bsky.social at the Keystone Symposia on #LongCovid last week, reflecting on the state of research and the journey of the patient community: "In our immediate presence, time slows, while the world beyond speeds up, and moves without us”

New publication: Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study doi.org/10.1111/hex.... @longcovidsupport.bsky.social @lcaireland.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States doi.org/10.1186/s129... @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @longcovidphysio.bsky.social

Another new publication out today 📣 Experiences of #pacing to reduce symptoms among adults living with #LongCOVID in Canada, Ireland, the UK and the US @kellyobrien25.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social @longcovidsupport.bsky.social link.springer.com/article/10.1...

Published today 📣 Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...

(Repeat) Most Troubling Symptoms in ME/CFS & Long COVID Patients. Bar graph shows the frequency of symptoms reported by patients with #MECFS (blue) & #LongCOVID (red) From: "Patient-Reported Treatment Outcomes in ME/CFS & Long COVID" www.pnas.org/doi/10.1073/...

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. - Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

(2/2)

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results: shorturl.at/pgsjk

Finally, all my admiration for @jannamoen.bsky.social, the first author of this comprehensive review I wrote about. She is a #LongCovid patient herself and you can read her story here: css.washingtonpost.com/wellness/202... and fnih.org/patient-voic...

I commend the PCN Journal for highlighting and welcoming studies about #LongCovid; more journals should do the same. You can read the original review by Yale's team @jannamoen.bsky.social @bakermind.bsky.social and @virusesimmunity.bsky.social here onlinelibrary.wiley.com/doi/10.1111/... #NeuroCovid

Beyond brain fog: #COVID19 can leave lasting effects on the brain. Honored to be invited to write this editorial for the Journal of the Japanese Society of Psychiatry and Neurology. It relates to @virusesimmunity.bsky.social team's review.You can read it here: onlinelibrary.wiley.com/doi/10.1111/...

¿Cuál es el impacto del #covidpersistente en la vida cotidiana? @longcovidphysio.bsky.social @longcovidkids.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social

¿Qué significa una rehabilitación segura para el #covidpersistente ? @longcovidphysio.bsky.social @longcovidkids.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social

¿Cómo se realiza el control del ritmo en el #covidpersistente ? @longcovidphysio.bsky.social @longcovidkids.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social

Ejercicio y #covidpersistente Gracias a todos! @longcovidphysio.bsky.social @longcovidkids.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social

Nuevo hoy 📣 Ejercicio 🚨 #covidpersistente 🔔 @fisiocamera.bsky.social Traducidos al español 🇪🇸 @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social longcovid.physio/spanish-long...

Nuevo hoy 📣 Control del ritmo #covidpersistente 🔔 @fisiocamera.bsky.social Traducidos al español 🇪🇸 @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social longcovid.physio/spanish-long...

Nuevo hoy 📣 Rehabilitación segura contra el #covidpersistente 🔔 @fisiocamera.bsky.social Traducidos al español 🇪🇸 @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social longcovid.physio/spanish-long...

Nuevo hoy 📣 Impacto del #covidpersistente en la vida cotidiana 🔔 @fisiocamera.bsky.social Traducidos al español 🇪🇸 @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @patientled.bsky.social @sunsopeningband.bsky.social longcovid.physio/spanish-long...

Viene mañana 🚨📣 La Serie de Video COVID Persistente completa… los 8 episodios traducidos al español 🎉🎉🎉🎉 17 de julio 2025 10:00 (CEST) #COVIDPersistente #LongCOVID

Congratulations to our Chair Todd Davenport who has been awarded as a Catherine Worthingham Fellow of the American Physical Therapy Association We are delighted that Todd’s outstanding work for ME/CFS and LC has been recognised Thankyou for all that you are & do @sunsopeningband.bsky.social 🙏

“#Publichealth researchers say strong evidence suggests preventing infection is key to preventing Long Covid, after they found more than a fifth of #children and young people were suffering ongoing symptoms following Covid-19.” www.rnz.co.nz/news/nationa...

Skeletal muscle properties in #LongCOVID and #ME #MECFS differ from those induced by bed rest www.medrxiv.org/content/10.1...

Thank you to @thesicktimes.bsky.social & @spichaksimon.bsky.social for including: 👉 our concerns about the Canadian Long Covid guidelines 👉 uncovering the interference of Paul Garner 🌟Quality article 👇 thesicktimes.org/2025/07/08/e...

Improving healthcare services for people with ME and Long Covid: Patients share their challenges, and the actions needed - a new blog featured on the hub today. www.pslhub.org/learn/improv... #patientsafety

We're hosting a webinar on the results of our Patient-Led Research Fund - 10 biomedical studies all selected by patients! Please join! us02web.zoom.us/webinar/regi...

🆕Improving healthcare services for people with ME and Long Covid: Patients share their challenges, and the actions needed. pslhub.org/learn/improv... #patientsafety

New PLRC-funded work out from Rob Wust & team! Skeletal muscles in #LongCovid and ME *differ* from skeletal muscles induced by bedrest. LC and ME is not deconditioning! 1/ www.medrxiv.org/content/10.1...

A new #LongCovid clinical trial is enrolling for bezisterim, an investigational anti-inflammatory drug that crosses the blood-brain barrier. It has been studied in neurological & neurodegenerative disorders, including Alzheimer’s & Parkinson’s. 1/

I'm excited about this #LongCovid trial! If you meet the eligibility criteria, please consider enrolling - more sites nationwide to be added:

Ten outstanding questions in Neuroinflammation and #LongCovid. Read the preprint here: www.preprints.org/manuscript/2... and check #UnitedtoFight videos from last year here www.youtube.com/@UniteToFigh...

My interpretation of the potential mechanisms involved in post-COVID-19 neuroinflammation #LongCovid #NeuroCovid (2/3)

Our preprint about Neuroinflammation in #LongCovid is online! This group met during the community-driven event #UnitedtoFight last year. This publication in #NeuroCovid is just another example of how science works better when we listen to the community and work together with them! (1/3)

UK research: Submaximal 2-day cardiopulmonary exercise testing to assess exercise capacity and post-exertional symptom exacerbation in people with long COVID physoc.onlinelibrary.wiley.com/doi/10.1113/... Image is from the latest Science for ME weekly update #LongCovid #PASC