8/ Obviously it's easy to be wise after the event, but everything we said at the time is on our web site for others to judge independentsage.org

7/Data and Preparedness Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures. IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.

6/Governance Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt. IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.

5/Social & Economic Harms Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science. IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.

4/Scientific advice Inquiry: Broaden SAGE participation; maintain UK-wide expert register; include devolved reps from outset; provide feedback loops to advisory groups. IS: Criticised narrow networks and lack of diversity; called for multidisciplinary input and devolved engagement.

3/Early action Inquiry: Criticises “too little, too late”; recommends acting earlier and harder even with imperfect evidence; formal contingency plans for leadership continuity. IS: Urged early lockdowns, circuit breakers, and strong NPIs; warned against delays and optimism bias.

2/Transparency Inquiry: Calls for publication of scientific, economic, social advice; clear communication that science informs but does not dictate policy; accessible formats IS: Formed in response to lack of transparency; advocated publication of SAGE minutes, membership, & modelling assumptions.

1/ How does the COVID Inquiry's Module 2 report align with what we said in @independentsage.bsky.social at the time? A 🧵on Transparency, Early & Decisive Action, Scientific Advice, Integration of Social & Economic Harms, Communication and Behavioural Science, Governance, Data and Preparedness

UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support. @longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social

Our statement following the publication of the Covid Inquiry Module 2 report into Core UK decision-making and political governance:

BREAKING: UK’s response to Covid was “too little too late”. Acting faster could have saved 23,000 lives in England according to the public inquiry. Boris Johnson presided over a “toxic, sexist, chaotic culture” in No10, where rule-breaking seriously undermined public confidence.

My story from a day reading the very long and very damning report by the official Covid inquiry into the actions of government during the pandemic. www.theguardian.com/uk-news/2025...

Watch this short film 📺 which summarises the key findings and recommendations 👇 youtube.com/watch?v=1_cd...

The Chair of the UK Covid-19 Inquiry, Baroness Heather Hallett, has today published her second report. Baroness Hallett is calling for the prompt and thorough implementation of 19 key recommendations. Read about the report on the Inquiry's website 👇 covid19.public-inquiry.uk/reports/

TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious. www.theguardian.com/uk-news/2025...

Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME. Google form to apply is here 👇 docs.google.com/forms/u/3/d/...

👋We are looking for people with ME's experience of the medical system in the UK c.2012 - especially GET/CBT. Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative. 🖇️👇 forms.gle/2qxLgWouTNJQ...

Looking forward to presenting at the Chartered Society of Physiotherapy conference on Friday in Newport. If you're there come and say hi. Time for more advocacy and education about #ME/CFS and #LongCOVID @PhysiosForME @thecsp

Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you

“Blood flow to the head in a person with ME experiencing PEM: A case report” journals.lww.com/cptj/fulltex...

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

It’s unacceptable that five years on individual families have to fight for education support in the absence of clear guidance on the needs of - and more importantly how to meet the needs of children and young people with Long Covid #LongCovidKids #CovidInquiry

The education secretary needs to be a strong advocate for children, young people and their educators. Recognising their needs and pushing for these to be met. In respect of a number of areas including LC and clinically vulnerable families this was not achieved @cvcev.bsky.social #CovidInquiry

Gavin Williamson suggests the Department of Health and Social Care may have been who recommended they hold back on issuing guidance re #LongCovid to schools #LongCovidKids #CovidInquiry

Sarah Hannett KC: you could have told teachers in May 2021.. you could have helped children with Long COVID. #LongCovidKids #CovidInquiry

Guidance is still to materialise! Why we developed educational toolkit to provide some guidance to parents/caregivers and educators on l common challenges that children and young people with #LongCovid were facing and supports that may help longcovidkids.org/educational-to…#CovidInquiryry

Asked about providing guidance to schools re #LongCovid Gavin Williamson suggests providing no information was better than incorrect information. It appears this extended to not even confirming its existence leaving families we support subject to disbelief and fines #CovidInquiry

Many of us aren’t working anymore, or have had to step away from our AHP roles. Some are finding new ways to use their skills, often while managing their own health battles. That deserves to be recognised too! 🌿 #LongCovid #LongCovidAHPs

Happy AHPs Day to all my fellow Allied Health Professionals, especially those in the Long Covid community and those navigating life and work so differently now. @longcovidphysio.bsky.social #LongCovid #LongCovidAHPs

The full video of LCK's evidence shared in yesterdays hearing for Module 8 is now available here: Please share widely. youtu.be/DFykYkqr5Z4 #Children #ChildrensCharity #LongCovidKids #Module8 #COVIDInquiry

To read all our recommendations please head to the COVID Inquiry page of our website: www.longcovidkids.org/uk-covid-inq... Scroll down and select - Module 8, Witness statement, Sammie McFarland. Recommendations can be found at the end of the document. #LongCovidKids

In our recommendations to the UK COVID Inquiry we call for a nationwide public awareness campaign to explain clearly that Long Covid in children is a debilitating and potentially disabling long-term condition. From 2024 - Parents accused of making it up. inews.co.uk/news/parents...

This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

@sunsopeningband.bsky.social @uoftmedicine.bsky.social @longcovidphysio.bsky.social @apresj20.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social @breathewellphysio.bsky.social

We're inviting people who've engaged with the SLCC webtool (long-covid-care.org.uk) to take part in its evaluation to help us improve the tool &make it more relevant& helpful to pw #LongCovid. This involves a short survey(10-15m)& potentially interview(if interested) For more info: shorturl.at/ADoh0

A reminder for anyone reading that exercise is usually contraindicated for anyone with PEM/PESE; and screening for exertional intolerance should be undertaken with expert advice. We recommend resources from @longcovidphysio.bsky.social for finding out more…

2 news releases "Major report tackles Covid’s cardiovascular crisis head-on" www.eurekalert.org/news-release... www.eurekalert.org/news-release... Paper academic.oup.com/eurjpc/advan... Very disappointing no mention of PEM or ME/CFS in paper. Rehab like this may harm some #LongCovid #PASC

Proud to contribute frontline testimony to tonight's enraging @itvx.com documentary "The Covid Contracts: Follow the Money". Boris Johnson's govt squandered £8.7 billion on unusable PPE, while grifters like Michelle Mone made millions. Tonight, 10.15pm, ITV1. www.theguardian.com/tv-and-radio...

Yes we'd love to translate Long COVID Essentials into more languages! In the meantime we're collecting links to resources in various languages for a new webpage @longcovidphysio.bsky.social has great videos in many languages - here is the Arabic page: longcovid.physio/arabic-long-covid-video-series

OMF's Melbourne ME/CFS Collaboration published a paper on the results of a systematic review looking at cerebral blood flow in #MECFS and #orthostaticintolerance (OI). 118 studies, including over 9000 participants, were incorporated in the systematic review. ow.ly/QZjw50WNfjt

🧡 Returning to the classroom & looking for information on how to manage with Long Covid or a realated condition? We’ve got you covered. Our website is full of resources - all created with lived experience and expert input at the heart. 💻 www.longcovidkids.org #BackToSchool #Support #University

More information can be obtained by viewing a 20 minute presentation given to the Safer Healthcare Biosafety Network on the Patient Safety Learning website. (The presentation can be downloaded as a pdf) www.pslhub.org/learn/invest...

The document has been prepared in consultation with the HSE, British Standards Institute and stakeholders. This gives it the credibility legal persuasiveness that an issue of this importance deserves. The guidance document itself can be downloaded here: www.bohs.org/app/uploads/....

This definitive document fills a massive void and casts aside all the ambiguity and misinformation perpetuated within current IPC manuals (and the former ‘4-nations IPC guidance’). See Press release here: www.bohs.org/media-resour...

This has been prepared by BOHS, acknowledged experts in all matters relating to PPE and health risks at work (including microbiological risks).

🚨😷🚨😷🚨😷🚨😷 BREAKING NEWS At last, in the UK, we now have official guidance on the use of respirators (FFP3) vs Fluid Resistant Surgical Masks (FRSM) which has been prepared SPECIFICALLY FOR THE HEALTHCARE SECTOR. 🚨😷🚨😷🚨😷🚨😷

今天有新视频 📣 运动锻炼 #长新冠 #longcovid @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

今天有新视频 📣 调整节奏 #长新冠 #longcovid #pacing @fisiocamera.bsky.social longcovid.physio/mandarin-lon...

今天有新视频 📣 长新冠安全康复 #长新冠 #longcovid @fisiocamera.bsky.social longcovid.physio/mandarin-lon...