After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab. youtube.com/@brokenbattery

This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended. His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work

‘If you’re disabled, you’re not ill.’ Sir Charlie Mayfield (author of the Keep Britain Working review) This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics. I’m disabled because I’m chronically ill with #MECFS.

Clip from @davetuller1.bsky.social’s interview with Professor @bmhughes.bsky.social about his new book, Psychology’s Quiet Conservatism. He explains how the psychogenic framing of illnesses like #MECFS and #LongCovid has shaped care and policy, often as a way to cut costs.

Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a baroness — I’ve put together a short thread about her involvement in #MECFS. twitter-thread.com/t/1981309222...

This post has had quite a bit of attention on other platforms, so I just want to highlight and thank @investinmeresearch.bsky.social They’ve been running the #IIMEC conference every year since 2006, entirely organised by volunteers. A huge effort supporting #MECFS research and pushing for change.

“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.” Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference. Thanks to @mecfsskeptic.bsky.social for finding the clip.

Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP @tessamunt.bsky.social raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.

Clip: BBC Radio Nottingham, Nyrobi Beckett-Messam from ALT BLK ERA says she hid her #MECFS diagnosis for the first few years, fearing stigma and discrimination.

BBC Radio Nottingham (17 mins) Summaya Mughal talks with ALT BLK ERA’s Nyrobi Beckett-Messam and Dr Charles Shepherd (MEA Hon. Medical Adviser) about #MECFS and new University of East Anglia research claiming a blood test can detect the condition youtu.be/Tq6C0Q1wyFg?...

1) 🇬🇧 For ME/CFS patients in the UK only: Action for ME has opened its 2025 Big Survey! Last time, it had more than 4000 respondents, but hopefully this one will be even bigger. The deadline for submitting your response is 27 January 2026.

New article from the disability news service mentions Wessely’s appointment

It’s @davetuller1.bsky.social‘s birthday today, so I’ve donated to his fundraising campaign so that he can carry on his important work calling out bad research. Happy Birthday David! crowdfund.berkeley.edu/project/47768

Thanks, George 🙏 For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic. He also used harassment as a distraction from criticism during a talk on GWI. threadreaderapp.com/thread/15273...

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Simon Wessely — the controversial psychiatrist once dubbed “Britain’s most hated doctor” has been appointed vice chair of Labour’s review into overdiagnosis of mental health and neurodivergence. www.benefitsandwork.co.uk/news/controv...

On LBC, callers Ann and Annie told Natasha Devon that the rise in long-term sickness is linked to long Covid — and compared the lack of support to what people with #MECFS have faced for decades (10 mins) youtu.be/BoVpKmsTNFY?...

1) 🇳🇴 Ola Didrik Saugstad and his colleagues report about the first specialised care unit for severely and very severely affected ME/CFS patients. It opened in 2021 in Norway. The authors report the results from the first 3 years.

BBC Radio Suffolk segment (13 mins) on #MECFS - @tinarodwell1.bsky.social speaks about caring for her son Angus, the daily challenges of the illness, and @jeremy-jeffs.bsky.social powerful exhibition Lives We Cannot Live which Angus took part in. youtu.be/bNw30eqfhvw?...

Thank you to Prof. Vivienne Matthies-Boon for including my very severe ME/CFS video in your lecture on the psychologisation of post-viral illness. Good to see philosophy and ethics engaging with this topic.

Highlights - ITV News reports on POTS, which affects the autonomic nervous system and can leave people disabled. Cases have increased by a quarter since COVID, yet there are only a handful of specialists and the average wait for diagnosis is 7 years.

Trial By Error: Cochrane CFS/ME Exercise Review “May Not Apply” to Patients Diagnosed with Newer ME/CFS Definitions, Per Lead Author virology.ws/2025/09/25/t...

Clip - ITV News reports on the lack of POTS specialists and an average 7-year wait for diagnosis. Lottie Ryder Wern from Plymouth describes how symptoms affect everyday activities.

ITV News reports on the rise in POTS since COVID. A consultant admitted that before the pandemic he “had no idea” about the condition, highlighting how little autonomic dysfunction is taught in medical school.

BBC Radio Cumbria (8 mins): Fiona Sadler speaks with farmer Andrew Jackson and his wife about featuring in Lives We Cannot Live, a photo exhibition about #MECFS by Jeremy Jeffs (@jeremy-jeffs.bsky.social) - London Oxo Tower Gallery, 24–28 Sept youtu.be/ylcuLlvfubk?...

Clip from ITV Border News (19 Sept) about the powerful upcoming exhibition Lives We Cannot Live by Jeremy Jeffs (@jeremy-jeffs.bsky.social), shining a light on life with #MECFS. Highly recommended if you’re in London - Oxo Tower Gallery, 24–28 Sept

A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦 Via @davetuller1.bsky.social

Not sure there is a scientist that is as reliably wrong about speculating & assuming mass hysteria as Wessely The psychiatrist on the media hysteria hotline doesn't seem to mind being repeatedly wrong 2hrs later hysteria proved to be a tear gas cannister www.theguardian.com/uk-news/2025...

The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group The process so far has been extremely progressive I am hugely optimistic that a world-leading guideline will be produced #pwME #MECFS

🧵 Savannah update - please share widely. Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME. All her energy is being spent on calling for help. There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join 1/2

Highlights Dr. Sarah Jarvis on BBC Radio 2 - Jeremy Vine - she outlines the various syndromes seen in #LongCOVID and the most common symptom - profound tiredness—is “exactly the same” as that in #MECFS. They are learning from ME and hopefully won’t make the same mistakes.

Highlights from ABC Primetime Live segment on #MECFS Hillary Johnson describes how CDC employees joked about #MECFS as a fake bogus disease. The segment marked the release of Hillary‘s book Osler’s Web, which exposed the government’s inaction investigating #MECFS.

I’ve just donated to this worthy cause

Clip: Chris Ponting tells the BBC Access All podcast the idea for Decode ME came from the #MECFS community. He also had a friend whose life was destroyed by ME, and saw a research vacuum, funding has been lost due to stigma and misogyny against this female-biased disease.

Powerful and important work by Jeremy Jeffs, capturing life with severe ME. Upcoming exhibition — ‘Lives We Cannot Live,’ Oxo Tower Gallery, London, 24–28 Sept. Give him a follow or subscribe for updates on his upcoming book. mailchi.mp/16f8611232cc...

Clip from The Guardian’s Science Weekly podcast: MIT researcher Beth Pollack explains #MECFS — severe fatigue not relieved by rest, with post-exertional malaise as the hallmark. She says up to 61% are bedbound some days and severe #MECFS has been compared to late-stage AIDS.

Clip from The Guardian’s Science Weekly podcast: @nickyproctor.bsky.social describes how doctors dismissed her #MECFS as psychological, before she crashed completely and became mostly bedbound, unable even to hold a conversation.

A nurse who worked with #MECFS patients commented on my Facebook post calling it a mental health issue. She dismissed the CDC, NICE & the IOM report because it didn’t match her and her colleagues’ views. Outdated beliefs override evidence.

CW: Following on from the last Panorama (1999) clip — the boy with ME/CFS was wrongfully kept for 7 months on a psychiatric ward under Dr Prendergast’s rehabilitation programme and got worse. Nigel Speight later said it left him with PTSD.

BBC Radio Nottingham interview with Kara Jane Spencer’s sister, Emily Louise, about Kara’s new posthumous album in LIMBO. Kara, who had severe ME, died in January 2023 aged just 32. Emily Louise speaks about Kara and her wish to raise money for research. youtu.be/29hkLK97XPg?...

CW: Panorama (1999) Highlights - Dr Prendergast went to court with social services to enforce treatment of a 16 yr old boy with ME. Parental rights were removed and the boy was taken to a psychiatric ward by police.

CW: Highlights of the 1999 BBC Panorama episode about ME/CFS Dr Michael Prendergast talks about his approach of distracting children from their illness. In a talk at a Scottish Hospital he talked about taking legal action if parents resisted psychiatric treatment.

1) There's a new document with care advice for patients with (very) severe ME/CFS. It was published by the Austrian Society for ME/CFS and the Center for Public Health at the Medical University of Vienna.

🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)

Clip: Sarah Boothby tells Natasha Devon about her daughter, Maeve Boothby O’Neill, who died of malnutrition caused by severe ME. She says doctors decided the risk of fitting a feeding tube was greater than the risk of allowing her to starve to death.

Channel 4 News - DecodeME Results - Video Summary - ME is linked to your genetics. They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease.

Thanks to Emily Dugan and the Sunday Times for exposing this aspect of how Maeve died from ME. A Devon County Council cover up. Maeve was taking them to judical review, dying in the attempt. Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them. 1/4

Full Article - The Times As my daughter died of ME, the state met in secret to blame me Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27 archive.ph/2025.08.09-2...

Natasha Devon’s LBC phone-in on #MECFS (38 mins). Callers discuss their experience, including stigma and medical gaslighting, as well as their thoughts on the largest genetic study to date. @natashadevon.bsky.social youtu.be/-2XxcsUXRJs?...

In advance of your segment. Please watch. Doctors have been taught to gaslight patients with #ME for decades. This video from the 90s teaches GPs that patients are frustrating because they are mistaken about the cause of their illness and can often engage in arguments. @natashadevon.bsky.social