Help us pack Westminster Hall! Everything you need to write to your MP and ask them to attend is here 👇

It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar! ⏱️ Today is the last day before nominations close You can add your nomination here: docs.google.com/forms/d/e/1F...

📣 Help us spread the word! Yes I know it’s October - but at @thereforme.bsky.social HQ it’s already beginning to look like Christmas 🎄 📆 You have until Oct 26 to help us find our #ThereForME 2025 Advent Calendar stars! 🌟

Today’s @ThereForME_UK blog shares views from carers & clinicians with experience supporting people with very severe ME. ❓ Should the Health Sec commission an NHS service? ❓ What would a good service look like? ❓ How could it build trust among patients & carers? More👇

Our latest @thereforme.bsky.social blog includes our reflections on the Final Delivery Plan for ME and a rundown of some of the media coverage. We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!

A short 🧵 celebrating a year of #ThereForME! It’s been a whirlwind and the biggest thanks to all who have played a part. By no means the biggest achievement but it will never cease to delight me that our only photo of our HQ trio together features our Christmas jumpers 🎄🎅

“I honestly just did not realise that it was possible, in the UK in 2025, to be as sick as my husband is & for there to be basically no specialist NHS services to provide any kind of support” Our co-founder @karenlhargrave.bsky.social on Radio 4 WATO 👇 (Recording via @abrokenbattery.bsky.social)

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The Final Delivery Plan for ME/CFS has been released today. The full report was shared with some organisations and media outlets late yesterday. We’re (still) waiting for it to go online. A short 🧵with some thoughts… (1/)

A while ago we decided that our bi-weekly @thereforme.bsky.social campaign updates should each have unique theme. Which, I must say, is getting harder the more we do (though we are totally game for the challenge 😜) This week we did visibility - in honour of @oonaghcousins.bsky.social👇

Today’s #ThereForME campaign update focuses our our new joint briefing on the planned reforms to PIP. A big thank you to everyone who took part in our survey 🙏 Today’s update shares the findings and how you can help. Link in next post 👇

1/3 ❌ PIP cuts will be devastating for people with #ME & #LongCovid. Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health. We’re calling on MPs to oppose this - help us flood their inboxes. Briefing & how to act ⬇️

Our latest #ThereForME blog gives an update from a busy few weeks. Ft. the @libdems.org.uk and @tessamunt.bsky.social! Link in next post 👇

For #WorldMEDay, what really matters is not just words - but action on the issues that are important to people with ME. The @libdems.org.uk have been leading the way on that! Thank you @tessamunt.bsky.social for raising this important issue in DWP questions yesterday 🙏

Hard to describe how much this means to me - and to James - to see the entire @libdems.org.uk parliamentary party united in solidarity with #PwME The biggest thanks to @tessamunt.bsky.social & everyone who helped make this happen (not least, those 72 MPs!) 👏👏👏

We’ve been a little low on capacity lately between life and various bits we’ve got in the pipeline. For subscribers wondering where our weekly #ThereForME blog has got to - we’ll be back in your inboxes next week!

We’ve got a great blog out today from our very own @WeiszGuy1. Over the past 9 months Jonah has helped to build our @ThereForME_UK work in parliament. He writes for us today about his family’s experiences with ME and Long Covid. www.thereforme.uk/p/me-in-the-...

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The biggest well done to Rosie for being the best possible advocate for her sister Alice and our #FundThePlan campaign Great to see coverage today on @bbcspotlight.bsky.social - with big thanks as ever to @abrokenbattery.bsky.social for recording. www.youtube.com/watch?v=8DRj...

I loved this piece from Ella - she describes very aptly an experience I’ve had many times. Fascinating to read her piece, which explains why the difficulty finding the right words to describe ME is in itself an injustice.

SO proud of my wonderful co-founder @emmagl.bsky.social for this 💪 It’s a scary thing sharing your story and she’s done it so powerfully 💙

It’s been a busy few weeks! Our latest campaign update is out ft. media outings, podcasts and some highlights from our friends at @longcovidkids.bsky.social @longcovidsupport.bsky.social @lcmebillboards.bsky.social www.thereforme.uk/p/campaign-u...

Big thanks to @theleaduk.bsky.social for coverage of #FundThePlan! @karenlhargrave.bsky.social says “What people are doing is asking the government to invest in us and to choose to spend a relatively modest amount of money on helping us get back to our lives again.” Link in next post 👇

🎧 New episode out today of the Living with Long Covid podcast ft. @oonaghcousins.bsky.social, @emmagl.bsky.social & @karenlhargrave.bsky.social👇 www.buzzsprout.com/1939141/epis...

People with ME so want to be better and contribute to society. An ambitious and well-resourced Delivery Plan could make such a difference at relatively small cost. Thank you for asking me to join you in the call to #FundThePlan!

So excited to be launching this video today! A big thanks to everyone starring in it - including @binitakane.bsky.social @oonaghcousins.bsky.social @tessamunt.bsky.social 👏👏👏

It was such a pleasure to work with @nickbenton.bsky.social on this piece for our @thereforme.bsky.social blog - out today. Nick writes so eloquently about what it was like to live with very severe ME, the lack of appropriate NHS care and his recent improvement. www.thereforme.uk/p/stuck-at-t...

Today's #ThereForME blog post is from @nickbenton.bsky.social, who has experienced some improvement from Very Severe ME. He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves. www.thereforme.uk/p/stuck-at-t...

🌟Super article out from #ThereForME covering the momentum for #FundThePlan & the community campaigning together for Long Covid Awareness including: 💙 Our #Postcards4LC 💙 The @lcmebillboards.bsky.social Light Up Challenge 💙 @longcovidsupport.bsky.social banner & launch event

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

I couldn't sketch today, I couldn't stay downstairs, I could only take medication, rest & nap in bed. I hate my health problems, I feel useless. I need treatments but there are none, I need support but there is none. People with M.E need treatment. #FundThePlan #ThereForME #Pwme

Not that it’s a competition - BUT we’ve had some very moving videos popping up on the other place and insta. Who’s going to be our first here? 🦋

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

📢 #ME community, we need your help! Details here for how you can join our #FundThePlan campaign (in whatever version is possible within your energy limits) 👇

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So grateful to @libdems.org.uk and @helenmorganlibdem.bsky.social for standing up for people with ME! 💛 Great piece in @thetimes.com today calling for an ambitious delivery plan 👇

Coverage on the ME delivery plan in @thetimes.com today 💪 Quotes in the piece from myself, my husband James (🥰), @actionforme.bsky.social @joplatt.bsky.social @helenmorganlibdem.bsky.social 🧵

Great read on our Substack today! 👇

🔍 Some questions asked by @joplatt.bsky.social in Parliament today received a response from the new minister. “There are currently no plans to allocate additional funding to the ME/CFS final delivery plan.” Not good enough.

Great to see this update from the APPG on ME! 📆 Details below on how you can invite your MP to join the next meeting on 5 March ✍️ New online form to contact the APPG with your concerns and priorities appgme.co.uk/contact-us/

We made a #valentines card for @ashleydaltonmp.bsky.social 💙 #ThereForME #forgetMEnot

Today we’ve written to @ashleydaltonmp.bsky.social - sharing congratulations on the new role and asking for commitment that the new delivery plan for ME/CFS will remain a ministerial priority. Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.

Our latest #ThereForME campaign update is out today! Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇 www.thereforme.uk/p/campaign-u...

Really well done piece out today from Rebecca Logan, telling her story and how it led to campaigning for better care👇

🔍 Spotted in parliament - Q from @alisonebennett.bsky.social on Prevention of Future Deaths report and steps that has been taken to make sure #ME care and training is adequate.

If you’ve been thinking about writing to your MP - there’s no time like the present! (energy permitting) We’ve updated our #ThereForME guide - so you can let your MP knows that the new delivery plan for ME matters to you. Everything you need here 👇

Very grateful to everyone who has used valuable energy to share their experiences 🙏 I shouldn’t be surprised by now but it’s so desperately sad to see some of the responses. Thank you for helping to make what we’re living through visible 💙

#ThereForME has collaborated with @patientsafetylearning.org on this blog looking at accessibility of NHS care for people with ME and Long Covid. We’re collecting community experiences and would love to hear from you. Details below 👇

Really great to collaborate with @patientsafetylearning.org on this blog looking accessibility of NHS care for #PwME #PwLC! We’re collecting community experiences and would love to hear from you 👇

🆕For healthcare to be safe it needs to be accessible. But what does this look like for people with ME and Long Covid? This blog from @thereforme.bsky.social explores the barriers that impact access to NHS care for people with ME and Long Covid www.pslhub.org/learn/improv... #ThereForME