But I will never stop trying

Way to go, Philadelphia! The city has introduced new legislation putting real limits on ICE activity. Federal agents will no longer be allowed to operate anonymously no masks, visible identification required, and arrests must be backed by warrants signed by a federal judge.

The word armadillo is borrowed from Spanish and simply means “little armored one.” But an even better word for an armadillo, in my opinion, is the Nahuatl ayotochtli. It means “turtle rabbit.”

Labour blocking Andy Burnham running for MP is one of the biggest mistakes they’ll make in terms of improvement in the country, and the chance at winning a future election. Holding onto power while preventing change for good is not where it’s at.

The UK has lost its measles elimination status, the World Health Organization has announced. Vaccine disinformation is a worldwide pandemic that is killing us.

'Reframing Women Printmakers' a book with beautiful images, 20 artist interviews & a text that shares the neglected story of women's print art - pioneers, nature, city & protest! At any online or local bookshop e.g. www.awesomebooks.com/book/9781913... ❣️ Waterstones, Amazon, Bookshop.Org 🧡💛🧡💛❤️

When staff come in and ask how I am, they’re always surprised when I say wiped out, or exhausted… “oh no, why though?”😶🙄 Good job patient passports are read isn’t it? And my M.E diagnosis isn’t included in any handover sheets🙃 ignored. It’s so disappointing and dangerous. Healthcare has to change

I cried watching this shit and I'm not even in the UK but it's the same EVERYWHERE

The post year has shown that shifting the government to provide a response proportionate to the needs of the 1.35m #pwME is a tough call, but I’m looking forward to working strategically with the group to bring the meaningful change that has been denied us all for too long.

@tessamunt.bsky.social is there a way I can message you on here?

Honoured to be elected as Chair of the APPG ME today. I’m grateful to have @JoPlatt.bsky.social continue to serve as an officer, facilitating continued coordination with the APPG Long COVID, and the support of @actionforme.bsky.social and @meassociation.org.uk through providing the Secretariat.

I saw the moon this morning. Have been in hospital 7weeks now almost. It’s tough. I am forever amazed by my courage, my bravery, but it takes a lot. 47days since I breathed outside air from a window or door. 7weeks since I felt the cold on my face. Thinking of you all. Keep going.

So thankful for my lovely cards and post🌟🎄💛 3weeks now I’ve been here, feeling a little low. Exhausted.

While this is to be lauded, it always frustrates me that masking is *initiated* when levels are high. The best time to mask in hospitals is always; the second best time is when it is patently obvious that prevalence of flu / RSV / Covid is low but *increasing*. www.derryjournal.com/health/face-...

How is everyone doing? X

The Drs are all enjoying my festive set up :,) 🎄✨

Next Wednesday’s APPG ME meeting will focus on what members could do to promote two key issues: 1. Provision of specialist services for v severe ME 2. Better research funding. Hoping that MPs will respond to constituents’ concerns and turn out as they did for the debate on ME. Nudges welcome 😉.

The propaganda is so strong, it turns adults into fearful toddlers. "You can't make me!!!! 😭" They're brainwashed. Look, if the parent is wrong, you had to tolerate wearing a medical mask for a little while. If you're wrong, their baby could suffer or even die. And you want to gamble that??

Be kind to yourself, you’re doing your best and that’s enough Image: www.instagram.com/dearbeautifu...

A friend with a new baby asked guests to mask in order to hold her baby. A relative refused to mask & broke down in tears about her "restrictions" As a reminder, babies <6 months have the 2nd highest hospitalization rate from Covid after adults 75+ & are too young to be vaxxed

50 seats... we can make it more! Lets grow the @greenparty.org.uk. #HopeIsHere Join.greenparty.org.uk

Thank you @thereforme.bsky.social and @hopefullizzy.bsky.social for recognising the wonderful Mel! 🧡 🙌

Fuck you if you support him.

Back in hospital just over a week now, thankfully in the one with my team from the summer. The consultant on rounds is throwing everything at this to try & work out what’s going on in multiple places which I’m very thankful for. It’s tough, but kindness is getting me through (& all the treatment!!)

December 2nd. Thank you for being #ThereForME, Melanie Di Luca @actionforme.bsky.social! Nominated by @hopefullizzy.bsky.social#ThereForME✨

Behind door 2 is Melanie De Luca, a physio for @actionforme.bsky.social - nominated by @hopefullizzy.bsky.social! ⭐️

Yesterday, MPs gathered in Westminster Hall to debate government support for people with ME and what needs to change. We’ve pulled together a summary of the key points, actions, and commitments discussed, using AI to assist in summarising the Westminster Hall debate transcript.

#MEAction has been working hard this year to be a lantern in the darkness. We have had some wins, moments that stood out, and times where this community made a difference. See our list: www.meaction.net/post/meactio... We need your support. Your gift will be matched up to $50k! #pwME #pwLC #MECFS

The UK Covid-19 Inquiry confirms what our communities have lived for years: the government’s pandemic response wasn’t just a failure - it was a historic abandonment. “Too little, too late” doesn’t capture the scale of the harm. /1

Here is the transcript for yesterday’s APPG for ME debate in parliament hansard.parliament.uk/Commons/2025... With a big thank you to @tessamunt.bsky.social for organising, @kerrymp.bsky.social @joplatt.bsky.social and all the MPs who attended and/or spoke during. We so desperately need you.

2wks after being admitted, I’ve been discharged. Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help. Glad to be home❤️

UK photographer Shirley Baker documented the city of Manchester's streets in the 1960s #WomensArt

Update: a week after my 31st birthday I was taken back into hospital. Still here a week later. Fed up, but still here and still persevering. On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.

#myalgicencephalomyelitis #MECFS

Also, here's mine. Cobwebs are models own. 😆

So the currently level of hospital admissions from #COVID in the UK is 50x higher than hospital admissions from flu. A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults… It will get worse. It won’t save money.

1) The Physios for ME team published a randomized trial on pacing with a heart rate monitor. It included 32 patients with ME/CFS and 15 with Long Covid. A brief breakdown of the main results 🧵

Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!

First day back in Parliament, so time to get this Bluesky thing up and running. Thanks for follows so far. Also working on new website. If constituent, please do email. Going to be a busy week, with statements likely this afternoon. Congrats to @darrenpjones.bsky.social on his new job!

In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.

I detest the fact that people will retort with [insert moany voice] "£15m isn't enough to run the nhs for a day". My argument for that is the nhs is being mismanaged then, and £15m could go a hell of a way to fill food banks for millions of people, not just an elite few at a banquet. #solidarity

The Terminally Ill Adults (End of Life) Bill has passed its Second Reading in the House of Lords, the house did not divide on the issue. #YesToDignity

For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g

The UK government's climate change advisory panel has said it has not yet been asked to formally assess how plans to expand Heathrow airport would impact on carbon emissions targets www.bbc.co.uk/news/article...

"My door is always open for conversations with Jeremy and Zarah, two people committed to making our country fairer who I really respect. All my energy is focused on what I can do towards that end, and that’s to keep growing @greenparty.org.uk" www.theguardian.com/politics/202...

Someone asked if I was ready for the fall, and it actually took me a moment to realize that they meant autumn, not the complete collapse of democracy.

Trump looks like he's trying figure out how to steal some of their gold decor

Still can’t get over the fact that Trumps visit has cost the UK taxpayer £15million (again) Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter. #ukpolitics