Today is the autumn equilux, when day and night are of nearly equal length. From this point on, the nights will become longer than the days. I reckon we need to prep our bedrooms with extra snuggly blankets, SAD lamps, boxsets and just hunker down til Spring.

Fantastic news, especially for my sis-in-law as Huntington's runs rampant in her family. We're all a bit teary now. 🥹❤️‍🩹 www.bbc.co.uk/news/article...

This short video about the future of recycling in England is really interesting and positive. You'll see why some packaging is changing in supermarkets, why wheelie bins contents conflict between areas but won't be soon, AND "return your bottles & cans for cash" returns! youtu.be/fuwaOiTHl7U?...

This is Annie. She freaking loves fall. 13/10 (FB: James Osborne)

Thank you to Jess' family for getting this implemented. 3 GP visits without improvement should be referred on for investigations. Poor Jess contacted her surgery 20 times in 2020 but was told she was "too young for cancer" at 27. Jess died in December that year from stage 4 cancer. Link👇🏻

The emissions of 100,000 extra flights a year can't be magicked away by so-called 'sustainable' aviation fuel. Yet somehow our politicians think we can still hit our climate targets at the same time as expanding airports. Our petition to stop airport expansion is still live 👇

Millions of us are still struggling to access affordable NHS dental care. I’ve signed 38 Degrees’ petition demanding Keir Starmer properly funds NHS dentistry now, will you join me? you.38degrees.org.uk/petitions/fu...

Ah, the ol' "lordy my knee is really hurting" then realising I've been jiggling it for who knows how long through stress. That's why things hurt. We don't realise how tense we are!

What IS the cause of our noise sensitivity? Is it because our adrenaline is permanently switched on, so it's a subconscious "attack warning"? I'm sitting here musing why, as captain lumphammer + his empty container goes at it again (since 9.30).

This REALLY irritates me. We've all been made to go paperless. I have NO paper utility bills dated in the last 3 months. 😡

So none of us have won the lottery yet? Who do we write to? This really isn't good enough!

Because it's 28 degrees here I'm taking a chance and have shoved my dry clean only curtains in the washing machine (using "cool delicates"- I'm not a monster!). Fingers crossed! 🤞🏻

I just signed the petition to to demand the Government tax the super rich to rebuild our NHS, schools, and other public services. Will you sign too? you.38degrees.org.uk/petitions/ta...

It begins... this was just now in my bedroom. The photo makes it look smaller than it was. The one I caught at the office factory yesterday was so big I felt physically sick. It didn't fit under a pint glass, I had to use a measuring bowl. It must have been there for years. 🤢 #Autumn #Spiders

Not saying it's bizarrely warm here, but I just glanced out of the window to see an elderly man dressed only in small shorts, trainers and a cycle helmet bike past. I was not ready for this sight. 😳

There’s an Elon Musk shaped hole in the Government’s new plans to improve elections: shady billionaires can still donate massive amounts of money with no cap - effectively buying our democracy. Add your name to the petition for a cap on donations today: 38d.gs/hy28

Wordle 1,552 5/6 ⬛⬛🟩⬛🟩 ⬛⬛🟩⬛🟩 ⬛⬛🟩⬛🟩 ⬛⬛🟩⬛🟩 🟩🟩🟩🟩🟩 It's one of *those* words today 🙄

"Infrared therapy triggers metabolic actions & stimulates ATP, which makes up the cell’s energy storehouse & is often depleted in the parts of the body most affected by neuropathy. It also promotes fibroblast growth & repair, which are the main cell components of connective tissues" #RandomQuotes

Remember the days when you could fall asleep hugging your own foot? 🤣

Fasting blood test done. I chugged a litre of water beforehand so they couldn't blame dehydration on not finding a vein, and it worked. 👍🏻

Definitely a low battery day today! You can get your pin here doodlebethshop.etsy.com/listing/6290...

Requested a gp app with the only dr with chronic illness experience. Nope. Got a random locum appointment later. Place your bets on how knowledgable this one will be about ME/CFS. *braces for impact*

The neighbour one house down has been banging what sounds like an empty bucket with a lump hammer all.... f.........g...... day. I may end up on crimewatch.

Many of us have until this evening to literally batten down the hatches. Are you ready for the strong gusts due at 8pm? The weather man said 70mph for coastal areas earlier. *grabs twine and scissors* *recharges everything*

Research survey which asks if you think the various scales / assessments currently utilised are of any use to ME/CFS patients. I only okayed 2 of them, the rest are infuriatingly basic. Click on "view" to see them in the survey. I skipped the 1st question btw. redcap.is.depaul.edu/surveys/?s=P...

#RandomFunny #LowPoint

"I have come to understand that I am no less human than the next person beside me. We return to dust just the same." This article from @achronicvoice.com is like a reassuring friend soothing that negative "you are useless" self talk we spoonies have. ❤️‍🩹 www.achronicvoice.com/2022/06/13/l...

He has smug face now. I'm fuming, as the impending upset stomach will make us both miserable.

"what doesn’t kill you, doesn’t always leave you stronger, sometimes it leaves you weak, and shocked, and sad." Truth. Sending big love to Lizzy 💞

Ok, I know I'll pay dearly for this but I'm going for a strong, fully caffeinated coffee. I just NEED an hour of being able to think without all this treacle stuck in my brain. 😶‍🌫️😶‍🌫️😶‍🌫️

Me in bed "hmm.... I think I heard someone's doorbell" No. It was mine. Amazon doing a delivery so late I'd forgotten it was due. Better than yesterday's "forget" incident. Both front windows open on car all night. Full of webs & damp this morning. 😶‍🌫️🤬 I think I'm ready for a robot home helper.

"Reform UK only have 4 of the 250 opposition MPs, but Nigel Farage accounts for 60% of the BBC website's mentions of opposition leaders." I agree they need to stop giving NF airtime over other parties. Sign to petition the BBC!

@rolypeck.bsky.social still thinking of you for your missing furbabies xxx

Please SIGN: 500 million birds lost since 1980. EU habitats collapsing. And the Commission’s response? Roll back protections. Say NO! ✍️ rainforest-rescue.org/petitions/13...

I highly recommend the kitchen mini chopper in Lidl for £12.99. In under 3 minutes it chopped up onions, carrots & celery which would have taken me ages & caused a lot of hand pain. It comes apart easily for rinsing, has a glass bowl & is more powerful than those on Amazon at twice the price. 🌟

A man on the streets of the UK is asked about the “problem of immigration” and dismantles talking points with ease.

Cognitive stuff getting worse. ME clinic said to "just go back to GP". GP who is the head honcho for chronic illness is off for 2 weeks. Just burst into tears at the receptionist trying to find this out and scared her. It's so cruel how we're just left to self manage debilitating brain stuff.

As I drove through the Asda car park earlier I was amazed at how many people (zombies) were waiting to cross the road but looking down on their phones. It was disturbing.

Just made myself laugh. Watching The Walking Dead where 2 characters have to spend all night hiding in the trunk of a car then in the morning they simply climb out! There's no way I could get out of that. They'd have to crowbar my stiff body out while I yelped in pain. I'd be dead in 1 episode! 🤣

Wordle 1,535 2/6 🟨⬛⬛🟨🟨 🟩🟩🟩🟩🟩 Hotdamn!

#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled

@channel4tv.bsky.social Disabled people are not here to be inspirational. They are human beings living their lives. Please remove "inspiring" from the blurb.

Meanwhile over on X... follow back? 🤣😂🤣😂🤣❌

As usual, it's all go go go here on a #Caturday

Wordle 1,533 X/6 ⬛⬛⬛🟨🟩 ⬛🟩🟩⬛🟩 ⬛🟩🟩⬛🟩 ⬛🟩🟩⬛🟩 ⬛🟩🟩⬛🟩 ⬛🟩🟩⬛🟩 Bum!

Dog sitting again, but boy oh boy are they... um.. relaxed? 💨 Have the fan on & pointed at me, lest I sit in the stink cloud.

How many fellow #Pwme and/ or fibromyalgia are taking mirtazapine? If so how long have you been on and what pros and cons did you have ? I have been on around 7 years as struggled to tolerate many others. Trialing a lower dose and looking to see how it affects 4 different things.

🤨 bbc just said winter fuel payments go to pensioners whose income is less than £30k. What about disabled people on half that income, or less, who claim PIP??? I don't begrudge the OAPs their WFA but I do begrudge the evil government cutting out another vulnerable sector who cannot earn more. 😡

Do non-POTS folk not get the sensation of veins filled with electric poison when adrenaline spikes for the smallest of things? I am currently in a "discussion" over on X and putting my point across without accusation or judgement still physically feels like I'm doing something wrong. #POTS

Bear with me here... if the next general election is on 15th August 2029, why are the media so focussed on previous and potential prime ministers? Why do they give them air time? Why do none of them focus on the current fartknockers in power and the changes they're making or failing to make? 🤔