Cleaning with hypermobile hands/arms/shoulders can be a bit of an event. Today I discovered that soaking stove-top iron ware in Persil Bio lifts grease with little scrubbing. This is possibly not great for my cooker or the environment but at least I won’t kill my family with grime.

I think many of my followers will have these flags raised. #ChronicIllness #Disabled #pwME #LongCovid #EDS #Pots #fibromyalgia

Things were attempted

In case you were wondering, and I know you all were, it IS possible to slip on a mat on wet vinyl flooring and do the splits in a 3x7 porch. My left hip & right hand are both very angry with me. 😳

Use this post as an excuse to post one of your favourite characters.

Every time I log into here and see that question at the top, my brain goes into pic 2 mode 🎶

Left an admin note with gp surgery to say none of my conditions are showing on the health app we use which would explain why whichever gp I see has no clue about me. They rang to say they had 2 on file, & that was it. But I can drop off my paperwork so they can update it. *preps lever arch file*

Twice in 4 days I've left my keys hanging out of the front door. The Amazon man found it very funny just now. I did the laugh out loud but secretly winced & shouted at myself inside. 😶‍🌫️ #brainfog #chronicillness #pwME

Recorded the results for the RSPB birdwatch. They really should include a box so participants can say "I regularly feed the birds" (to explain my high pigeon count) and "these are birds I usually see but didn't today" which would help them understand numbers better. bit.ly/3tgxjGS

Blimey, you've lost your pier @karenpearny.bsky.social How is it where you are? Everything still in one piece? I hope your fences stay in place this time 🤞🏻 #storm #StormIngrid www.bbc.co.uk/news/article...

Thanks to free veg vouchers & special offers for the ingredients in Lidl, tonight I will attempt to make this. Low calorie, filling, and freezable portions. Results later, if I remember! The expectation:

Seeing this isolated house for sale & my first 3 thoughts are; - Wow, my washing will dry quickly there! - The negative ions from the coastal breeze will do me a world of good. - I wonder if they have a Lidl nearby? 😁

Does anyone have links for disability financial advice or guidance? I am now in stuck as the company I "worked" for (aka brother's business) is folding. I am without a job, cannot get another with all my symptoms and in full on panic mode. #disability #disabled #finance #help

Good deed for the day ✅ Amazon banging on my door whilst I'm in bed, so opened my window & said to leave it by my door. PJs on, went down- it's for 4 doors down. It said "same day" on it so thought I'd best go round in my jamas & give to neighbour- who was outside in his PJs looking for it! 🤣

The clash of what I SHOULD be doing against what I'm actually able to do is deafening. No amount of being kind to myself makes it go away. I tried to do extra today. Stress made me talk to myself in the store. Had a big fatigue meltdown in the car & had to come home. 😵‍💫 #MECFS #LongCovid #pwME #EDS

Finally got to the memory clinic. Basically the nhs memory clinics are there to see if you have dementia or not. No other forms of brain issues will be entertained, investigated or suggested. 1/2

Share a Television that raised you:

Samuel will be using assisted suicide in 12 days due to severe ME/CFS. His last wish is for people to share his post, illustrating his frustration that where he lives 1 in 10 people have ME yet there are no medications for it. Sleep well, dear comrade 🕯️ www.reddit.com/r/cfs/commen...

"Research shows blood from people with ME/CFS and Long COVID directly harms healthy muscle, reducing force, stressing mitochondria, and causing structural breakdown." My takeaway is gratitude that more research is being done for #pwME & #LongCovid 👏🏻👏🏻 iopscience.iop.org/article/10.1...

Omg, this is the best news I've heard in a very long time. 🥳🥳🥳

STOP. We have a major news story in our house. It's been building up for a few days and this afternoon came the denouement. It's the story of a banana.

Next week's video will be looking through 'Girl' magazine (Feb 1988). I'm after memories to feature in the video, about this or any other girls' magazines from the past, whether you were a reader, or if you remember your sisters' mags lying around the house, eg. Jackie, Just Seventeen, Bunty, etc..

Reiterating the research cos it's something good: chocolate, wine, berries or tea for optimal brain function and painkilling effect (via endorphins). Go go go! 🍫🍷🍓☕️ #chronicpain #brainfog #longcovid #mecfs #pwme pmc.ncbi.nlm.nih.gov/articles/PMC...

New insights into ME/CFS research video. It was very interesting to learn new things, such as muscle tissue necrosis when attempting exercise for ME px, & micro vascular damage in veins contributing to brain fog. PLUS a medicine is being developed to help with ME itself! youtu.be/nMx38g1OguE?...

I'm still thinking Greens are the only political way forward for us disabled folk in this country. "Fair, humane and accessible" are not key points made by any other party. What say you, @zackpolanski.bsky.social ? greenparty.org.uk/2025/07/01/g...

Painkillers really work better when you remember to take them. 🤦🏼‍♀️ Follow me for more life hacks!

I'm making an A&E bag, because you know, us folk often end up there. So far I've got: A5 Medical history file Earplugs Charger cable & plug Noise canx earbuds 1 day of regular meds Snacks / drink bottle will go in on the day. I already have audiobooks/entertainment in my phone. What else? 🤔

The Big ME Survey closes 27th January. I hope they factor in those of us who cannot remember if we've already done it. 😬 #MECFS #pwME Link: www.actionforme.org.uk/research-cam...

Bad times atm. I know I'm not alone with it. Just lurking & liking posts. Xxx

It only takes 3 minutes to make a chocolate protein shake for lunch, but takes an hour to clean up when you drop it all over the sofa, on the carpet, and IN the radiator. On the plus side I found my thermal beanie wedged behind the sofa. 🤷🏼‍♀️ #SpoonsGone #BigPain #Shattered

The fluffy duvet cover is on the bed. 🙌🏻 -4 degrees tonight, so just in time. I think I'm going to post more tiny achievements this year. They'll be pointless to many folk. But for a person with ME/CFS they are mountains climbed. 😊

Wordle 1,658 2/6 🟨🟩🟩⬛⬛ 🟩🟩🟩🟩🟩 Good grief, come onnnnn lotto numbers... 🤞🏻

RSPB Garden Birdwatch 🐦 23rd - 25th Jan Sign up here: www.rspb.org.uk/whats-happen...

Wordle 1,657 2/6 ⬛⬛⬛🟨🟩 🟩🟩🟩🟩🟩 Yet the lotto numbers escape me...

“The head of a leading disability rights charity turned down an MBE in the New Year Honours over what she described as the “simply intolerable" situation facing disabled people in the UK.“ 👏 👏 👏 #Disability #NewYearsHonours #TressaBurke #UKGov www.bbc.co.uk/news/article...

Wordle 1,655 2/6 ⬛🟨⬛🟨🟩 🟩🟩🟩🟩🟩 😲

Wordle 1,652 4/6 ⬛🟩⬛⬛🟩 ⬛🟩⬛🟩🟩 ⬛🟩🟩🟩🟩 🟩🟩🟩🟩🟩 @notsoskinnypete.bsky.social I figured you went from the top left of the keyboard to find the missing letters so I went backwards. 😁

@coldrfusion.bsky.social You'll be pleased to know that one of the geodes is shaped like a butt. Perfect for the 10 year old it's going to. 😂

Oh my, it was stupidly busy in Asda at 6.10am today, while they blasted everyone with overly loud xmas music. I managed to get almost everything on the list, including a couple of tasty treats for me. 🙌🏻

Aka the "have you tried...?" face.

Wishing everyone a blessed Yule and winter solstice. ✨

These 28 minute reports from genuine people are perfectly spooky! 👻 www.bbc.co.uk/sounds/play/...

7 to 8am shops on the last Saturday before xmas. 👌🏻 Just Asda left to go next week at 6am 🤞🏻 (fyi it's for a normal shop, so I don't meet the minimum £ for collection).

How cool is this?! Cubbie cubicles for when sensory overwhelm is too much, right where they're needed. And it's free. 🙌🏻 #autisim #chronicillness

The term "on going recovery" should not be used in an NHS ME/CFS discharge letter. I'd be happier with "We've got nothing. No clue what to do. We're sorry it's not better for all our Myalgic Encephalomyelitis patients. Good luck because it's tough. Byeeee!"

@rainbowsteph.bsky.social Sitting here with a heart rate of 132 from the stress of everything, I'm slightly comforted (but not happy, obvs) that I'm not alone in having this large weight around my neck. I hope the meds are doing *something* helpful for you? x

Oh my.... I've shut Reddit for the day having just read a thread about sustainability in the bathroom, and lots of people praising the joys of... *checks notes* ... replacing toilet paper with cotton rags and hand washing those after use. *shakes head and saunters away*

"You're mad going to the shops really early" some people say. It doesn't matter how many times I say it, they don't remember 👉🏻 The longer I'm standing, the higher my heart rate creeps, so queuing up is BAD 👈🏻 Until they get a heart rate of 163 from queuing they will never get it. #POTS #JustNow👇🏻

Excitement at Lidl as someone left the doors wide open at 7.45, so we all piled in only to chucked out again til 8. Sadly there's a customer who was missed by the sweep, and is stuck in the vestibule, trying to look inconspicuous while we all stare at her. 😂