The Norwegian GoFundMe for the trial. Look at what our community can do together when we collectively fight for our rights. Every trial brings us closer to a fairer society for ME patients. 4 weeks ish until we know the verdict.

I haven't watched this myself so far but have been generally impressed with media interviews Dr. Binita Kane @binitakane.bsky.social has done www.youtube.com/watch?v=pk00... #LongCovid #MEcfs

Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation. The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?

Are we seeing a renewed attempt to erase #ME from the all NHS systems? Has a secret decree gone out? I’m seeing more and more reports from pwME about abuse in hospitals and from specialists. The feeble DHSC plan, the disregard of NICE guidelines, endless FND diagnoses from neuros. It’s all downhill.

The mass suffering created and amplified by psychosomatic ideology is absolutely criminal. None of this has to happen, it's all a choice. No one is responsible or accountable for any of this filth. And all for complete bullshit fantasies.

You can list Keir Starmer's modest achievements all you like. But as he has actively alienated his own voters - on Gaza, protest rights, benefits, green policies, cruelty to immigrants etc - it makes no difference. It's not a mystery. When you tell people you hate them, they will hate you back.

Please help me escape daily #abuse from dark triad #Narcissist (psychiatrist diagnosed). $6001/$10000 to start life again from scratch. Dr fears I will die here if I don’t escape now. #MutualAid #MutualAidAustralia #MutualAidMonday #UrgentNeed 💕💸 bsky.app/profile/halc...

Help me escape daily #abuse from dark triad #Narcissist (diagnosed). $6001/$10000 to start life again from scratch. #MutualAid #MutualAidAustralia #MutualAidMonday 💕💸 💸Fund: chuffed.org/project/1619... ☕️BMaC: buymeacoffee.com/Halcionandon 🎁Amazon: www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ

If you follow Labour politics, I promise it's worth clicking on the link to find out who Mark, Marc, Luke and John are. If you were part of the disability campaigning of the early 2010s, you will also find a few gasp-worthy moments.

Safe housing needed asap. Situation here is worse everyday. Someone must have a spare room & some kindness? Can pay $250wk board. Can provide meals. My Story: #SevereME patient Anna is still trapped in life-threatening #domesticabuse #UrgentNeed #MutualAid www.thecanary.co/global/world...

Please consider helping Anna, who is going through some pretty horrific stuff. She's provided details of how to help in her post, below. www.thecanary.co/global/world...

"Freedom is having the right to live as you choose, not the right to choose how everyone else lives." - James Van Der Beek, Rest In Peace #NOH8

Reform's Gorton and Denton hopeful Matt Goodwin thinks people who don't have children should pay extra tax. As an infertile woman, that shows me how much Reform really hates women Me for @thecanaryuk.bsky.social www.thecanary.co/uk/analysis/...

Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit: docs.google.com/document/d/1...

The transphobic barrister Sarah Phillimore is threatening to sue me for defamation - and we've published our response to her Letter Before Action.

Kansas just passed a monstrous bill enabling criminal penalties and vigilante lawsuits for trans people using the bathroom according to their gender identity and requires them to surrender their current drivers licenses and birth certificates if it does not match their sex assigned at birth.

Please spread this far and wide, as stories don't get much bigger than this. When the government blocks even the intelligence services from telling us we're heading for environmental catastrophe, you know we have a problem. A very big problem. Thank you. www.theguardian.com/commentisfre...

Latest update from the Gordon family about Karen Gordon - 15 October 2025 Karen has been in Conquest Hospital for nearly 2 years now. All because the NHS do not have a scooby about how to treat very severe ME. 😩 #Justice4ME #SevereME www.change.org/p/save-karen...

This is your reminder Savannah needs our help to stop the NHS starving her to death. Please email the hospital she is in. Details in post below www.thecanary.co/uk/analysis/... #mecfs #pwME #GreatestMEdicalScandal

TW: More deaths of #pwME 💙 @ashleydaltonmp.bsky.social @wesstreeting.bsky.social What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable? @tessamunt.bsky.social @davetuller1.bsky.social @georgemonbiot.bsky.social #JusticeForME #GreatestMEdicalScandal

Learned of another death of a friend with ME/CFS, this time someone I’d known for six years. Very grateful to all of you who support work to relieve this terrible suffering.

‼️Who has big following? Please tweet me to them! I need a safe place to live in #Melbourne 🚨Please help me escape #abuse/ #neglect / #CoerciveControl / #DV #MutualAidMonday #MutualAidAustralia #HelpFolksLive #HelpSky #FundSky #MutualAidVoid #PWD #MARequest 💕💸🏡🏠🥺 See below 👇

Please help me escape abuse. Anything helps. Info in Chuffed link. 💸Crowdfund: www.chuffed.org/project/1619... ☕️BMaC: buymeacoffee.com/Halcionandon 🎁Amazon: www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ ᯓ➤Beem: Halcionandon Please share. #MutualAidAustralia #MutualAid #HelpSky #MutualAidMonday

The DWP has a secret team planting benefit fraud propaganda in the mainstream media EXCELLENT investigation by my @thecanaryuk.bsky.social colleague Hannah Sharland www.thecanary.co/uk/analysis/...

"An NHS hospital is starving a severe #ME patient and has now stopped giving her fluids" @georgemonbiot.bsky.social @tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social @wesstreeting-mp.bsky.social #ME #pwME #MedSky #MEAwareness www.thecanary.co/uk/analysis/...

Governments, public health and medical authorities know much of this is caused by COVID & other infections, that a lot of this is Long Covid, which they choose to do nothing about and cover up. They know it. They're lying about not knowing why. They're doing what the tobacco industry did.

Two years today since my friend @dutchlauren.bsky.social passed away 🕯💙 Going to eat some nuggets (which she loved) and will try to watch one of her favorite movies. #severeME #reMEmberLauren

Savannah is asking for anyone who can to email the chief medical director at the hospital. The Canary has drafted a template email, which can be sent as is, or adapted. Send an email to stop this abuse & improve care for Savannah before it's too late! #severeME www.thecanary.co/uk/analysis/...

🚨'Can You Keep a Secret?'. The BBC response is below in full. In short, it essentially says: “It’s farcical, sorry we offended you, we’ve noted your complaint.” BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵 1/

Today's Post "Tell Your Story" open.substack.com/pub/undercla... Uncovered scandals, injustices, unlikely breakthroughs. I want to hear about them all. Pls read RT and subscribe

Also, I fucking hate the way Starmer only values 'working people', and everyone else is disposable. Quite the choice when he's fence-sitting in the face of US fascist aggression, never mind the homegrown variety.

@georgemonbiot.bsky.social @davetuller1.bsky.social An academic has been intimidated into downplaying her views on CBT and GET by Wessely threatening to sue. The book is out in the world and will influence readers. We need this story to be more widely known. Can you help? #LongCovid #ME

Apparently Wessely threatening to sue people writing on ME/CFS. I imagine this is the tip of the iceberg. I hope people who this happens to come out. Because this is exactly the kind of behind the scenes stuff we know happens but are difficult to gather evidence on.

Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work. Progress isn’t always visible, but it is happening. And we’re doing it together. #UnitedForME

In 2023 it would have cost £901 per day for the NHS inpatient care Maeve had & they starved her to death. Karen has a lawyer to keep her alive, almost certainly paid for by Legal Aid. @wesstreeting.bsky.social @laylamoran.bsky.social @jeremyhuntmp.bsky.social So much could be saved #pwME

Today's Post : Fatigue (And it isn't just "feeling. bit tired") Millions of us rank fatigue as our most disabling symptom Rachel Reeves and @lizkendallmp.bsky.social open.substack.com/pub/undercla... #Crohns #ME #Fatigue #MS Please read, share and subscribe.

I was diagnosed with POTS years before COVID When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more. I assumed the problem was too big to ignore. Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.

It has indeed. In my case to 38years of chronic disabling illness; my academic career, my psychotherapy career, my very young daughter and my marriage were all irredeemably damaged by medics who were either ignorant or just plain cruel. And I’m one of the lucky ones who didn’t end up dying.

Sickness, Disability, and Death in NHS England Staff The three graphs that *every person* needs to see. The question that every single person needs to ask their government: What are you doing to protect me from Covid infection?

The world's richest 0.1% took just three days to exhaust their annual carbon budget The UK’s richest 1% produced more carbon pollution in eight days than the poorest 50% used in a year. We can't afford the rich - they produce corruption, poverty, environmental degradation; destroy democracy.

Today's Post : "The Addenbrookes Infection" How does a Trust become so toxic, it ends with a Letby or an AlderHey? Like this..... open.substack.com/pub/undercla... Please read, subscribe and share. We have to start hearing uncomfortable truths about the NHS, or we can't fix it.

[email protected] Thanks for your support on the Other Place. "Sue is a tireless & effective campaigner for people with disabilities, knows many people with ME & sadly, has Crohns disease & knows plenty about IV feeding from personal experience."

My first post of 2026! "I'm all out of Spoons" If you're a seasoned #spoonie please RT for others. If you don't know the term, but have a long term condition, then this is for you! open.substack.com/pub/undercla...

it’s all i’ve got

German public radio station Deutschlandfunk has published a 3700-word article & radio piece on how #MECFS & #LongCovid impact life & autonomy. Article is titled: "Die Grenzen der Autonomie Wie Post-Covid & ME/CFS das Leben verändern” Translation www-deutschlandfunk-de.translate.goog/wie-postcovi...

Next time you see an article quoting a transphobe from one of the fauxminist ‘gender critical’ transphobic hate groups - email/ tag the journalist and ask them why they’ve not asked @nionwomen.bsky.social for a quote - as they’re MUCH more representative of UK women! notinourname.org.uk

Peter Thiel’s Christmas party had an odd theme this year: “all things Britain.” (per NYT) As Trump sunsets and backlash builds, expect a focus shift to the UK—where some see brighter possibilities for fascism,network states, and monarchies.

GOOD NEWS! Researchers have shown Alzheimer’s disease can be REVERSED- not just prevented. Using a potent neuroprotective compound called P7C3-A20, they found RESTORING balance to a central cellular energy molecule (NAD+) not only PREVENTED disease features but REVERSED them, EVEN at late stages.

Day #395 Non-stop pro-Euro #protests in #Tbilisi #Georgia #Regime continues to silence us, but... here we are! #GeorgiaProtests #terrorinGeorgia