Initial thoughts: Discussion far exceeded my expectations: there was no deviation/question of focus on trials, mechanistic studies & pharmaceutical intervention — & fact they are talking to some of best researchers in field feels like a huge win (something that took very long in last admin)

I spoke with @betsyladyzhets.bsky.social about respiratory disease surveillance, long covid, and how people can use disease data to make decisions thesicktimes.org/2025/09/18/e...

ICYMI: We recapped yesterday's HHS Long COVID roundtable event and related announcements. Will be adding more comments from patient advocates to the story today.

📣: Today the government committed to prioritizing #LongCOVID, but didn't announce any new funding - a major ask of advocates and researchers. @betsyladyzhets.bsky.social & I reported on today's Long COVID roundtable for @thesicktimes.org ⬇️ thesicktimes.org/2025/09/18/k...

NEW: RFK Jr.'s HHS has committed to prioritizing Long COVID, but it's unclear if the agency will dedicate new funding to research and supports. @mileswgriffis.bsky.social and I recap what we learned at today's roundtable event for @thesicktimes.org: thesicktimes.org/2025/09/18/k...

In the 2010s, this country's elites were thrown onto social platforms with everyone else and could finally read what we all think about them and it caused them so much psychic damage that they decided to destroy both the internet and democracy to make sure nothing like it ever happened again.

Literally, will this Long Covid roundtable be a Covid spreader event...

Basically making the claim that post-vaccination issues are more severe than post-infectious issues, for which there is no evidence Guys, if you had post-vaccination issues, there is NO data on this.

Getting ready to watch the livestream; it seems to be starting a few minutes late. I can't promise a full live blog but will do my best to share major updates here (while @mileswgriffis.bsky.social and I also work on our write-up).

Just announced: HHS Secretary RFK Jr. is hosting two "roundtable discussions" about Long COVID tomorrow at 2 p.m. ET. @thesicktimes.org will be covering the event and reactions from the Long COVID community. (Reach out if you'd like to send us comments during or after!)

RFK Jr is holding a panel on Long Covid the day before Covid vaccines are discussed at ACIP. I wonder if he's going to claim that Covid vaccines cause Long Covid.

Today @thesicktimes.org: In Germany, the pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports. Those clinics are harming people with Long COVID. By Sophie Dimitriou: thesicktimes.org/2025/09/16/g...

As I wrote about for @motherjones.com, people are already crossing state lines to get the Covid vaccine—which may become more common if the CDC vaccine advisory committee recommends limiting them this week. www.motherjones.com/politics/202...

This study came across my TL so I want to note its 36% prevalence finding “captures the prevalence of ‘ever’ experiencing long COVID”, not how many currently have it.

"I just want to say, go birds, fuck ICE and free Palestine," "Hacks" star Hannah Einbinder at the #Emmys

In New York this weekend? Join us tomorrow at the NYC Anarchist Book Fair! We'll be tabling at the event and will have zines, resources, masks, and swag - including The Sick Times stickers, pins, and patches 👀😷

Tabling on behalf of @thesicktimes.org today at the NYC Anarchist Book Fair! We have free masks as well as Sick Times merch and Long COVID info. Will be here at Ave C & 9th St in the LES all day.

getting at least mildly familiar with this info is smart. consider it part of home emergency preparedness

Today @thesicktimes.org, on the heels of this week's RECOVER-TLC workshop: @atranscendedman.bsky.social argues that we urgently need combination therapy trials for Long COVID. thesicktimes.org/2025/09/12/s...

Transgender people are owed a retraction and apology from @wsj.com. The lie has already become canon to millions and it seems the least they could do.

Many thanks to everyone who followed along on our live blog yesterday and today, and to the Sick Times team for putting it together (these articles are a huge collaborative effort)! We will continue to closely cover the RECOVER-TLC initiative -- please reach out with any tips or questions you have.

A note on access, from @thesicktimes.org's live blog of the RECOVER-TLC meeting: Despite attendance from many Long COVID community members — and despite taking place amid a COVID-19 surge — the workshop has not prioritized acute COVID-19 precautions. thesicktimes.org/2025/09/09/l...

With $300M, RECOVER-TLC reported being unsure whether they can fund more than the 4 trials announced today after a year of planning. This is shockingly inefficient. They should be able to run a platform with at least 10 trials. Patients & taxpayers deserve more urgent & effective action.

NEW @thesicktimes.org: RECOVER-TLC announces new clinical trials, responses from the Long COVID community are mixed. "Overall if [the first] round of trials was D grade, I’d put this in B- territory," said @loscharlos.bsky.social. thesicktimes.org/2025/09/09/r...

Good morning from Bethesda, MD! I am here for the RECOVER-TLC workshop, set to announce new Long COVID clinical trials. @thesicktimes.org is live blogging the meeting, and I will have a news feature about the trials later today. thesicktimes.org/2025/09/09/l...

🚨 UPDATE on the current COVID vaccine access situation in the US. Please note that this is based on state laws but different things may be happening on the ground, and some pharmacies are defaulting to federal guidelines instead of state laws.

Last call for this! I'm collecting comments through Monday.

Still thinking about this mind-boggling exchange regarding the former CDC director today RFK JR: I told her that she had to resign because I asked her, “are you a trustworthy person?” and she said “no.” WARREN: What?

to the people who caught this in the discover tab: yes, I agree, the rest of Trump's appointees are also bad. the threat posed by RFK to the public health is unique among them. that is why the post specifies RFK. In addition, this is becoming so clear that there might be a window for progress

RFK Jr. about to testify at Senate Finance Committee... www.finance.senate.gov/hearings/the...

Next week I’ll be presenting at the RECOVER TLC workshop during “patient experiences”. I’ve uploaded my slides & transcript to my site. You can also download a pdf if you click on “products” on my website, you won’t have to enter billing info. I will upload a vid soon, waiting for interpretation.

COVID-19 spread remains high across the U.S. as our summer surge continues into early fall. As a new school year gets underway, young children remain vulnerable: emergency department visits for COVID-19 were higher for children under 12 than any other age group in late August. bit.ly/41y1HdG

Who are the Americans flooding the streets to protest the Trump administration's assault on environmental health research, evidence-based policy, and democracy? The Xylom's @alexip718.com breaks down our latest reporting in a live virtual discussion on Wednesday, Sept. 3rd, at 11 am EDT.

Today @thesicktimes.org: Community health worker Zaina Fairey shares advice on getting others to care about COVID-19. "It would be easy to turn my back on those people and give up on community organizations that minimize COVID-19. But that’s not me, and that’s not what being in community means."

It’s good to see there is some movement in the NY State legislature re: prescription requirements for the Covid vaccine.

Reminder that I'm working on a story about the upcoming RECOVER-TLC trials for @thesicktimes.org and would love to hear from more Long COVID community members about what they think of the apparent agent selections. Also interested in talking to people with experience on the working groups. (1/2)

Guys, I'm relieved we're getting updated Covid vaccines at all. I was starting to wonder if we would have to leave the country. I'll think more about how the limitations suck tomorrow.

SCOOP: A Powerful A Dark Money Group Is Secretly Funding High-Profile Democratic Influencers. Big liberal content creators are being paid up to $8,000 per month to push party messaging. www.wired.com/story/dark-m...

BREAKING: Eric Adams Advisor Winnie Greco Handed a CITY Reporter Cash Stuffed in a Bag of Potato Chips www.thecity.nyc/2025/08/20/w...

“Long COVID researchers have proven, to an irrefutable degree, the scale and urgency of this global public health crisis...we are beginning a new era of incredible advancement in the field." @betsyladyzhets.bsky.social and I reported on the Keystone Symposia. thesicktimes.org/2025/08/19/t...

The U.S.’s summer COVID-19 surge continues, with cases increasing across all regions through early August, driven by travel and gatherings as well as the variant XFG. This week's full COVID-19 trends by @betsyladyzhets.bsky.social: bit.ly/4mWEUk9

Today @thesicktimes.org: Takeaways from last week's @keystonesymposia.bsky.social Long COVID & IACC meeting. Danny Altmann said in his closing remarks that the Long COVID field is “coming of age,” and this conference represents an important milestone. By me and @mileswgriffis.bsky.social:

In this episode of Still Here: A conversation between @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social comparing and contrasting #LongCOVID and ME clinical trial designs for drugs targeting immune dysregulation and viral persistence. 🎧 Listen now! bit.ly/3JgQFmZ

me and Miles: let's keep this story short, concise... also us: [write nearly 3000 words]

NEW: A week after a deadly shooting at the CDC rattled the nation, Atlanta residents flooded the streets again Saturday morning to protest against the Trump administration's research cuts and HHS Secretary RFK Jr.'s promotion of public health misinformation. More by @alexip718.com:

👀🧵shared by @solidevidence.bsky.social on Twitter earlier today, about Covid variants leading up to & since BA.2.86. A good refresher for the ever-evolving-virus. Full thread: threadreaderapp.com/thread/19572...

The FDA is expected to license the new Covid-19 booster on Friday -- reportedly only for adults 65+ and people at high risk.

People who know me IRL, or know my career, know the degree to which I know the CDC (first/only reporter to embed with their disease detectives, wrote a book about it, etc.). That's a bias if you want to interpret it as so. Still it's just astonishing to me that this attack hasn't been bigger news.

In this episode of Still Here: A two-way between @frogsandstars.bsky.social and @betsyladyzhets.bsky.social comparing and contrasting the BC 007 and rapamycin #LongCOVID and ME clinical trial designs. bit.ly/4oBE7GG