oh hey, it's me

One Way out

Horney's (on Main) Clinton, IN

It’s the freakin weekend

Man, what a loss. glass.photo/daniel/bhGvi...

We have a new paper out! We asked a simple question about Long COVID “phenotypes": if you take the same patients and the same symptoms but run different clustering algorithms, do you get the same patient subgroups? Short answer: no. 🧵 #LongCovid 1/

Priya's there for all my friends who use wheelchairs, who over the last couple of decades have opened up to me about their own experiences in air travel. Short version: Priya's journey, like everyone's in the book, goes smoothly. That's not the case for most of the folks I know who use wheelchairs.

I can now officially recommend EParamount Auto Glass in Berkeley, California www.yelp.com/biz/eparamou...

why yes, i do plan to get my car's windshield replaced by a company with 4.8 stars on yelp and no website

“As the pandemic wore on and official guidelines changed, fellow organizers seemed to forget or ignore the positive environment and social adaptations they’d witnessed, and refused to maintain protections like masking, meeting outdoors, and COVID-19 testing to keep one another safe.”

Media loves running piece that psychologizing chronic illnesses that disproprionately impact women. It's rooted in misogyny.

i haven't been able to read it but why do i have a feeling i will not like the WIRED front page LC piece

Breaking: The FDA appears to have approved the antiviral ensitrelvir (Xocova), which can be used as PEP after being exposed to someone with COVID-19 💊🦠 www.fda.gov/drugs/novel-...

remember the smartphone based contact tracing part of the pandemic? weird that pretty soon after everyone just gave up

vaccination is not preventing new cases of Long Covid. the peer-reviewed medical evidence keeps showing this over and over

this study was just published today (may 27, 2026). "Our finding of persistently increasing cumulative prevalence through mid-2024 (4 years into the pandemic and well after widespread vaccination) contradicts assumptions that PASC [Long Covid] represents a legacy of early, severe infection waves."

Delighted that our first finalist nomination for the annual Aerospace Media Awards is for one of our accessibility features — in our first anniversary week! This, and all our #a11y work, is free for everyone to read. We think that's important. If you do too, we'd love your support as a subscriber.

My next door neighbor has nerve damage in her hands and isn’t able to cook. She gets meals delivered via Meals on Wheels, which is a blessing, because if she didn’t she’d be relying on premade foods or delivery and would have to go straight to hell from what I understand from online.

www.youtube.com/watch?v=iWkL... @airplaneian.com i'm sure you are all over this

The contrast between the number of media requests I got when rich people on a cruise were facing a deadly, but contained outbreak versus now that some of the poorest people in the world are facing a deadly and devastating epidemic is just so so stark and it just really annoys the hell out of me.

Marcin Wichary on how to get more fun and utility from your keyboard experience. “Break all the rules. You’re designing for the audience of one.” [aresluna.org]

long covid sucks so much y'all

Then there’s long COVID, which the administration effectively ignored in its push to get Americans back to work. A few years ago, HHS released a report finding that tens of millions of Americans were suffering with long COVID to one degree or another. That didn’t change the admin approach tho.

NEW: "We deserved much better, much earlier." RECOVER's first clinical trials are failing. And people with #LongCOVID say the federal research program ignored their concerns. One behavioral trial even tested...computer games. @betsyladyzhets.bsky.social's latest 👀 thesicktimes.org/2026/05/12/r...

It's ME/CFS Awareness Day. A great day to watch Unrest, get mad, and realize that this is a common medical condition with virtually no support www.youtube.com/watch?v=XOpy...

Marcin inspired me to build some Keyboard Maestro macros and re-install Karabiner Elements and I'm very happy about it. Really amazing resource!

I wasn’t planning to write anything for #MEAwarenessDay this year but I’m at my Mom’s & she pulled out a bunch of old photos for me & I’m just so angry for this little one. She deserved better than to have her fate sealed by misogyny & ableism before she reached 8 years old. #GreatestMEdicalScandal

I won't be able to make Friday's Bay FC game... if anyone is looking for a single, I have a pitch-side field club seat and parking pass that I'd be happy to part with for less than what I'm allowed to list for resale via Tixr hmu!

i'd probably be involved in having more babies if you cured my long covid already

As a kid I went to nature camp in the high desert of eastern Oregon a few times. Beautiful, desolate scenery with lots of fossils and rock formations. Sagebrush abounds. Anyway, one night my cabin counselor decided to tell us all a scary story. But because it was nature camp it was about hantavirus.

Here’s how it’s going with the Stanford Long Covid clinic: I got an email in November canceling my made-a-year-in-advance appointment because the NP was leaving. Without asking, they rescheduled it for May. Last week they canceled it with no reschedule at all, because the replacement NP left.

Acorn is a fascinating product from the team at @blackskyweb.xyz for anyone who wants to set up their own ATproto-powered community...

Three have died and one is in ICU from hantavirus

Nebraska's Medicaid work requirements start today. As I wrote for @motherjones.com, work requirements are just cruel and also, Long Covid is not on the list of conditions that could qualify you for an exemption. www.motherjones.com/politics/202...

noooo

During therapy today my therapist asked me for my advice for other patients with LC, and I gotta say I was 100% here for it.

“These patients are working and sometimes the only working member in the family, so they feel like they have to keep on working." www.spokesman.com/stories/2026...

it sucks to still have to do this because I have long covid and socializing (and going to an office, or doing an errand, or...) triggers my symptoms. and it's even harder now because i risk reinfection every time

[spoiler for The Pitt S2 in thread]

Hey folks! I'm selling my tiny house, it's all prepped and ready for someone new to love it as much as I did. If you're interested, please reach out, I'll leave DMs open for a while! Happy to answer any questions, and I've got a more detailed sales flyer I can share upon request.

meanwhile enterprise security companies have told me that they won't support passkeys because they are a consumer tool not an enterprise one. so i guess they're for nobody (I like them)

Spoke today at the AAP/ASCI/APSA Joint Meeting in Chicago about Long COVID, the impacts of patient collaboration, and the progress our field is making. Very grateful for the opportunity to spread the word and for the organizers to include a patient on the panel!

Just called my senators to ask for them to sign on to a "Dear Colleague" letter supporting LC research funding in the next US federal budget – deadline is today! Please join me: win.newmode.net/longcovidcam... (And thank you to @lccampaign.bsky.social for organizing!)

A friend of mine caught COVID from a high profile mini-celebrity on Twitter when he stayed with her and her husband on an organizing trip. For her, it turned into long COVID and ruined her health.

Heading out on the road today, to keep spreading the word about Long COVID and the lives it destroys

You may not know @taskmaster.tv. It's hilarious & joyful. I begged to do it, worked out my schedule a year ahead of time to make it happen & got to do the best show on TV w/ the loveliest ppl. Ep 1 is out &, trust me, you need this joy. All seasons free on youtube. www.youtube.com/watch?v=oRfH...

I'm moonscrolling

I feel like an astronaut in the ocean