Ezra S
@ezra.zone
š¤ 1997
š„ 577
š 1074
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
pinned post!
today is the three-year anniversary of the covid infection that turned into long covid. it has completely rewritten the course of my life. it has brought me untold levels of physical suffering. it has devastated my mental health.
4 months ago
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emily fraser šæšāØ
about 2 hours ago
Iām so tired of fighting for my life against this long list of lies š©
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there's a reason why collaborations are forming between longevity, regenerative medicine, and infection-associated chronic condition researchers.
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about 6 hours ago
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Eric Topol
about 13 hours ago
The CDC says it's fine to resume normal activities 24 hrs after Covid symptoms are improving. A new, large prospective study with digital tracking shows recovery takes much longer than that
www.thelancet.com/journals/lan...
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always a good sign when you jolt awake saturday morning with a headache and a pile of stress
about 11 hours ago
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Ginger Billie
about 13 hours ago
This weird world we live where people want to live in pretend times where a novel corona viruses isnāt still absolutely destroying people (just not in active hospitalizations in the same numbers as before), but then people have to unpretend when their health is part of their job.
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Rusty Foster
2 days ago
Generational political talent. Epochal even.
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nightmare scenario
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2 days ago
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There will never be fewer reasons to get off Substack.
3 days ago
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Roger Parloff
3 days ago
The transcript of the MN hearing where an AUSA said āThis job sucksā is remarkable for more reasons than that. Itās a searing portrait of a crisis perpetrated by depraved & oblivious high-level officials. Read it all. ... 1/7
www.documentcloud.org/documents/26...
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19-TS of 020326 hearing - Segundo APG v. Bondi, 26-CV-603
https://www.documentcloud.org/documents/26871634-19-ts-of-020326-hearing-segundo-apg-v-bondi-26-cv-603/
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Rusty Foster
3 days ago
WHAT'S up me hearties it be thy boy Ahab, with the biggest ounce of gold giveaway ever hath ye seen on the channel. Swerve not thy fixed purpose to attend this one, guys! But first I must tell ye the tale of SQUARESPACE, who be thy sponsor today
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Brandon Friedman
4 days ago
"We know enough." Watch this.
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CHOAM Nomsky
16 days ago
I just thought everyone should see this
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Seamless Bay Area
12 days ago
For people with tech background concerned about the Clipper 2 upgrade/migration, check out the Cubic slides being presented today at Clipper Executive Board. Many of the problems are failures of basic scaling and QA missing predictable corner cases.
mtc.legistar.com/LegislationD...
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Metropolitan Transportation Commission - File #: 26-0162
Title: Next Generation Clipper Implementation and Transition Update Update on Next Generation Clipper System implementation, transition of current Clipper cardholders to the Next Generation Account-b...
https://mtc.legistar.com/LegislationDetail.aspx?ID=7829282&GUID=0330320F-E40F-4AE9-B76F-F97655226EB3&Options=&Search=
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Eric Topol
6 days ago
I asked Kevin about VNS use in POTS, Long Covid, what may be considered an ideal use case This is part of his reponse. Then there's the ear access.....
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Stuart Neil
6 days ago
This is finally out. Very short take home. All the variation in spike that produced the immune escape characteristics of Omicron can occur in one single persistently infected individual over the period of a year. This is why persistent infections matter
www.cell.com/cell-reports...
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Antibody escape drives emergence of diverse spike haplotypes resembling variants of concern in persistent SARS-CoV-2 infections
Snell et al. develop sequencing methodology to identify full-length spike haplotypes and show that persistent SARS-CoV-2 infections drive divergent haplotype emergence, accelerating viral evolution an...
https://www.cell.com/cell-reports-medicine/fulltext/S2666-3791(26)00004-2
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Wrong Station
6 days ago
DOCTOR: I told him he needed to get out to a show, that was how he would cure his depression. CHOTINER: So you learned this technique in school? DR: No, notā listen it was good advice. Pagliacci was in town. C: Right. Is it standard to give advice before learning a patientās name? DR: Now look
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uh
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7 days ago
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onion person
7 days ago
we absolutely need to know who he sent this to. how is this something the public is being kept in the dark on???
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C.H. Romatowski
7 days ago
āA growing body of research continues to reveal information about the virus and its ability to cause harm long after initial infections resolve, even in some cases when symptoms were mild. āThe discoveries raise fresh concerns about the Trump administration's COVID policies.ā
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Trump policies at odds with emerging understanding of COVID's long-term harm
Studies offer insights into the health risks and burdens faced by people who have had COVID infections. Meanwhile, the Trump administration has narrowed COVID vaccine recommendations and cut research.
https://www.cbsnews.com/news/covid-long-term-harm-health-policies/
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G Elliott Morris
8 days ago
Good time to remember that Bernie Sanders is the most popular politician in America
www.gelliottmorris.com/p/who-is-the...
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Liz Highleyman
8 days ago
Damn. Tuberculosis cases are occasionally reported in the U.S., but an outbreak of 50 cases in San Francisco is extraordinary. There's no good TB vaccine -- BCG is used in some countries, but it's not very effective.
www.sfgate.com/bayarea/arti...
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Over 50 latent tuberculosis cases detected at SF high school amid outbreak
Health officials warned physicians to be aware of potential TB symptoms.
https://www.sfgate.com/bayarea/article/tuberculosis-san-francisco-school-21324492.php
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JonNYC
8 days ago
viewfromthewing.com/court-filing...
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Court Filings: ICE Uses āMobile Fortifyā To Identify Protesters ā Global Entry and PreCheck Get Revoked - View from the Wing
ICE is using a smartphone app called āMobile Fortifyā to scan faces and capture contactless fingerprints, instantly pulling back names and biographical data ā and court filings say the same encounters...
https://viewfromthewing.com/court-filings-ice-uses-mobile-fortify-to-identify-protesters-global-entry-and-precheck-get-revoked/
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Eric Topol
8 days ago
What drives immunosenescenceāthe degradation of function our immune system with aging that increases the risk of age-related diseases? Today's report: B cells are identified as the bad actors because they induce T cell (CD4) dysfunction and inflammaging
science.org/doi/10.1126/...
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B cells drive CD4 T cell immunosenescence and age-associated health decline
B cells promote CD4 T cell aging and decline in health-span parameters through intercellular communication and nutrient sensing.
https://science.org/doi/10.1126/sciimmunol.adv7615
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happy won-my-state-board-of-health-appeal-against-my-health-insurance-company day to me
8 days ago
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Washington State Department of Health
8 days ago
Our epidemiologists looking at measles trends across the US
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8 days ago
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Helen Branswell šØš¦
9 days ago
1. The spread of
#measles
in the US shows no sign of abating. As of 1/29 there have been 588 confirmed cases so far in 2026,
#CDC
reports. The tally for January is higher than the total year tallies for all but 4 years since 1992. The cases were reported from 17 jurisdictions. Only 3 were imports.
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C.H. Romatowski
9 days ago
Thereās a terrific documentary (premiered at Sundance, shortlisted for an Oscar) that vividly depicts what youāre in for from the medical establishment if you get a disease like Long Covid. MANY people imagine theyāll be able to find a Dr. House to sort them out. Realityā¦is very far from that.
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Katie Klocksin, by the wayside
9 days ago
I wish healthy people understood that if you develop a medical condition that doctors donāt understand, youāre gonna be TREATED BADLY BY DOCTORS. And thereās a widely circulating virus that leaves people with incurable medical conditions that doctors donāt understand.
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memo to all my friends who say that their allergists are baffled by new onset allergies
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10 days ago
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jam
10 days ago
Hey sincere post for a sec, I'm involved in union organizing around AI and my media employer is planning layoffs. If you know people especially in nonprofit newsrooms who have dealt with this kind of thing @ me or DM me
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Jen Bendery
10 days ago
NEW: Liam Conejo Ramos, the 5-year-old who ICE agents in Minneapolis nabbed last week and shipped off to a Texas detention facility with his dad, is now in poor health, his school superintendent told me today
www.huffpost.com/entry/liam-c...
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5-Year-Old in ICE Detention Is Sick, Says Top School Official
The 5-year-old who was taken by federal agents in Minneapolis is being held behind bars with his father in Texas.
https://www.huffpost.com/entry/liam-conejo-ramos-sick-ice-detention_n_696fd209e4b0559a85915488?a68
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Marisa Kabas
10 days ago
āare you scared of a fucking whistle dawgā has been knocking around my head all day
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Marisa Kabas
11 days ago
English translation of statement from Ecuadorian Consulate regarding ICEās attempt to enter their building in Minneapolis today:
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really glad to see this piece by
@brittashoot.com
in
@thesicktimes.org
about the abrupt closing of Metrodora Institute. I'm still left with more questions than answers but I'm glad that the stakes for patients were so clearly described.
thesicktimes.org/2026/01/27/m...
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Metrodora promised comprehensive treatment. But within two years, it abruptly closed. - The Sick Times
The clinic sought to cure āneuroimmune disordersā like Long COVID and myalgic encephalomyelitis. Former patients feel betrayed.
https://thesicktimes.org/2026/01/27/metrodora-promised-comprehensive-treatment-but-within-two-years-it-abruptly-closed/
11 days ago
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people are in disbelief when i explain to them that as a 90s kid in portland i swished fluoride pills every morning in my elementary school classrooms
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11 days ago
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jfc
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11 days ago
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Gregory Crosby
12 days ago
Well now.
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Technology Connections
12 days ago
This is the coolest fucking form of solidarity I have ever seen. Bravo.
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Rusty Foster
12 days ago
Demand the prosecution of Greg Bovino, Kristi Noem, and everyone in ICE and CBP who committed crimes on their orders.
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jamelle
12 days ago
if bovino is out and conservatives are turning on noem then there is a real opportunity to demand that miller resign too.
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Joel S.
12 days ago
Normal thing for a major urban American newspaper to have to post.
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Matt
12 days ago
Totally normal for the local newspaper of record to publish information on the types of chemical munitions the government is deploying against the people.
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Philip Gourevitch
13 days ago
terrific new Ben Taub piece ā it cracks a long-cold case of infanticide; it's a bombshell for maternal health, child protection & opiate toxicology protocols; it exposes the Lancetās scandalous indifference to validity of what it publishes ā it should make noise
www.newyorker.com/magazine/202...
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Did a Celebrated Researcher Obscure a Babyās Poisoning?
After a newborn died of opioid poisoning, a new branch of pediatrics came into being. But the evidence doesnāt add up.
https://www.newyorker.com/magazine/2026/02/02/did-a-celebrated-researcher-obscure-a-fatal-poisoning
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Lucy Bellwood
13 days ago
Hey it's me, your favorite Social Media Cryptid! I'm running a flash fundraiser for our local anti-ICE community network in Ventura County. These postcards are going out for $5 a pop. I'm @Lucy-Bellwood on Venmo. DM me with how many you'd like and a good mailing address and we'll make it happen š
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Ash Ponders is desperate for work
13 days ago
Being a journalist is sick: I just contacted a pre-eminent jaguar conservationist in Argentine with a question that has been weighing on me for ages and he wrote back right away with an informed answer.
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Billy Hanlon
13 days ago
I donāt know if Iām mentally prepared for the coming days/weeks/months. Not just in MN, but to wherever blue/red areas are targeted next How many inhumane acts can one bare, in the digital era, where we see it all so closely? ICE is taking no mercy & everywhere in the country needs to be prepared
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airplane ian - abolish ICE
14 days ago
seeing live shots of local police defend and collaborate with ICE while citizens plead with them to help them defend themselves against a murderous gang of federal agents killing their neighbors in the streets is enraging
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Billy Hanlon
15 days ago
Foundation for the National Institutes of Health: "RECOVER TLC Webinar - January 2026"
www.youtube.com/watch?v=XHBo...
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RECOVER TLC Webinar - January 2026
YouTube video by Foundation for the National Institutes of Health
https://www.youtube.com/watch?v=XHBov861Vsk
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