Ezra S
@ezra.zone
š¤ 1961
š„ 569
š 1000
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
pinned post!
today is the three-year anniversary of the covid infection that turned into long covid. it has completely rewritten the course of my life. it has brought me untold levels of physical suffering. it has devastated my mental health.
3 months ago
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i cut my face while shaving in the most unbelievable way just now
about 1 hour ago
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Ezra S
Krutika Kuppalli, MD FIDSA
about 1 hour ago
šØ The U.S. is about to lose measles elimination status. South Carolina: 156 cases Utah: +6 cases Highest measles activity in 30 years This isnāt bad luck. Itās what happens when vaccination rates drop and misinformation spreads. Measles was eliminated once. Now itās backāand itās preventable.
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this is why well-run clinical trials are so important. in LC, things that work for one person often don't work for another
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about 4 hours ago
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Heather Hogan
2 days ago
Seems like a pretty cool time to donate to
@thesicktimes.org
, a newsroom where two of the best humans I have ever met call the shots!
the-sick-times.fundjournalism.org/donate/
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Ezra S
Mara Wilson
1 day ago
This is why I keep harping on about her. There are lots of shitty, unethical journalists. Plenty of people have had affairs with politicians. But this affair knocked over a set of dominoes that set public health back 50 years. Children will die of preventable diseases because of her.
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hi let's also please support
@thesicktimes.org
in this push to support independent media
1 day ago
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Tawni Marshall
1 day ago
Weird how The Free Press was able to publish all of these without comment from the Washigton University Transgender Center at St. Louis Children's Hospital.
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Anna Bower
2 days ago
Per NY Timesās Michael Grynbaum on X, this is Sharyn Alfonsiās email to her ā60 Minutesā colleagues in full:
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Elana Levin
3 days ago
Hereās one people have been convinced is normal: repeat exposure to a neurodegenerative & cardiovascular disease that regularly disables people. It doesnāt have to be this way.
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Melissa Gira Grant
3 days ago
Hereās the thing: weāre all out here getting exposed needlessly and getting sick, over and over, whether we recognize that or not. We donāt have to live like this.
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Melissa Gira Grant
3 days ago
āI am so, so, so enraged right now, at all the ways my life has been put on hold, not by the pandemic, but by nearly complete abandonment *to* the pandemic on the part of the govt, public health systems, and most regular people.
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Melissa Gira Grant
3 days ago
Being sick, Iāve probably posted more than I really ought to, being on whatever era of internet we are currently on, more than 30 years after I first built a website. I know from experience I canāt be a real person on the internet anymore. And yetā
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deeply destructive
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4 days ago
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deeply destructive
www.washingtonpost.com/health/2025/...
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U.S. plans to stop recommending most childhood vaccines, defer to doctors
The plan, which is not finalized, suggests children get fewer shots and shifts to a model telling parents to consult doctors to make their own vaccine choices.
https://www.washingtonpost.com/health/2025/12/19/childhood-vaccine-schedule-denmark-revisions/
4 days ago
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Ezra S
Julia MV
4 days ago
2) collection of longitudinal data 3) design of a placebo arm to enable comparison of treatment effect relative to disease natural history 4) accounting for, & when feasible, measuring PEM 5) balancing severity, duration, & relevant phenotypes across trial arms & within subgroups to be analysed 2/3
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Julia MV
4 days ago
Out today - our recommendations for Long COVID clinical trial design, focusing on currently available outcome measures:
www.sciencedirect.com/science/arti...
We make 5 overarching recommendations for Long COVID clinical trials: 1) thorough characterisation of baseline disease 1/3
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Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise
Long COVID has created a worldwide public health crisis and has no approved treatments or validated biomarkers. We summarize the current challenges anā¦
https://www.sciencedirect.com/science/article/pii/S235239642500533X
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Dael Norwood
5 days ago
This is an effort to limit DEās subsidy of ICE contractor Avelo Airlines. Bc the DRBA is an independent agency jointly administered by NJ & DE, the DE leg canāt directly tell it what to do - but Rep. Gorman & Sen. Seigfriedās two bills will accomplish quite a lot using the power they do have+
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Catherine Rampell
6 days ago
I'm told that HHS has just terminated all funding agreements with the American Academy of Pediatrics. Here's a letter HHS sent canceling one of the grants, relating to work on birth defects. Canceled because the project "emphasizes equity, diversity, and inclusion as key foundational components"
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lauren
6 days ago
he also kind of gets everyone's asses again in this follow up with the washington post
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Walker Bragman
6 days ago
NEW: On a podcast last month, FDA Commissioner Marty Makary: - said HIV āvery likely came from a lab.ā - said Lyme disease came from a labāāa high degree of probability.ā - said the so-called āMontauk Monsterāāa bloated, dead raccoon carcassāwas proof āmad scientistsā were doing experiments.
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FDA Commissioner: HIV āMay Very Well Have Come From a Labā
During a recent podcast appearance, Dr. Marty Makary promoted lab origin conspiracy theories involving HIV, Lyme disease, and one dead raccoon.
https://www.importantcontext.news/p/fda-commissioner-hiv-may-very-well
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death cult
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7 days ago
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i genuinely do not understand the various ways people capitalize POTS. Other than capitalizing every letter, none of the variations I see out in the world make sense to me
7 days ago
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Ed
3 months ago
I guess this has probably already gone viral somewhere but I am simply dying at this picture of a bear that looks like it hired a photographer to do a glamour shoot
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Britta Shoot
8 days ago
art is from the 2023 book Yenebiās Drive to School and including a wheelchair user & a masker is the representation that basically everyone cool in my life wants so shout out
@sfpubliclibrary.bsky.social
š„¹
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Yenebi's Drive to School
Dreamers meets School's First Day of School in this vibrant story that puts a whole new spin on one loving family's morning drive to school.Every morning, I'm up at four o'clock.I brush my teeth, get ...
https://www.chroniclebooks.com/products/yenebis-drive-to-school?srsltid=AfmBOop2CQJelVD6uZbbbUJWseKyGy3_G8HjqPizzkVRJyLF9d2XR8xW
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Britta Shoot
8 days ago
would anyone like to discuss the fourth quadrant of this SFPL bookmark I picked up TODAY?!
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jamelle
8 days ago
i have said this before but if you are actually interested in influencing people beyond a narrow circle of too-online journalists you will be making direct to camera videos on tiktok, instagram and youtube. if you primarily post on text-based social media then you're just dicking around.
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What if we kissed at the credit card exclusive promotional comedy show
9 days ago
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David Tuller
12 days ago
Can you actually lie to participants in a clinical trial and still pass ethical review? It seems so, at least at Western University in Ontario, Canada.
virology.ws/2025/12/11/t...
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Trial By Error: In Protocol for Long COVID Exercise Trial, Investigators Advocate Lying to Participants | Virology Blog
By David Tuller, DrPH Researchers are planning yet another trial of a rehabilitative exercise program for Long COVIDābut, in this one, they propose to lie t ...
https://virology.ws/2025/12/11/trial-by-error-in-protocol-for-long-covid-exercise-trial-investigators-advocate-lying-to-participants/
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not too late to try this on the 321xlr
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12 days ago
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It's ME(Jaime)
12 days ago
This is one of the best synopses of Symptoms Syndrome I've ever read š
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wild that in the year 2025 the california state tax agency makes me change my password multiple times a year
12 days ago
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Walker Bragman
12 days ago
SCOOP: Academy Award-nominee Liam Neeson narrated a recent anti-vaccine documentary that glorifies RFK Jr.ās rise to power. In the film, Neesonāa UNICEF Goodwill Ambassadorācalls the COVID-19 vaccines ādangerous experiments.ā
www.importantcontext.news/p/liam-neeso...
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Liam Neeson Narrates Anti-Vax, Pro-RFK Documentary
The Taken actor can be heard calling mRNA COVID vaccines ādangerous experiments.ā
https://www.importantcontext.news/p/liam-neeson-narrates-anti-vax-pro
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We did it, folks
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13 days ago
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(cw: death, violence) Some horrifying local news relevant to Long COVID, as reported by
@missionlocal.org
. Ward 86 is the HIV clinic run by members of UCSF's LIINC research consortium.
missionlocal.org/2025/12/sf-w...
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Times have changed at Ward 86,Ā but clinic space has not. After S.F. hospital workerās killing, that looms large.
Ward 86 was the first outpatient HIV/AIDS clinic. After the killing of social worker Alberto Rangel, it's clear it was never built for safety.
https://missionlocal.org/2025/12/sf-ward-86-hiv-aids-hospital-stabbing/
13 days ago
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it really doesn't take much to have a spine, and it really is disappointing how many leaders won't do the minimum. across all sectors
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13 days ago
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Ezra S
Julia MV
13 days ago
I'm consistently impressed by the crucial content
@thesicktimes.org
publishes (yes, their end of year fundraiser is still going on if you want to support and/or share
the-sick-times.fundjournalism.org/donate/
)
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jam
13 days ago
Hey my phone updated and I don't like it. Has this ever happened to anyone
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COYOTE
13 days ago
From bizarre to maybe TOO sexy, find out what furries think of the Bay Areaās spread of sports mascots. āļø
@reveleth.com
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Bay Area Sports Mascots Ranked by the Ultimate Experts: Furries
Everybody has an opinion on mascots, but what do the real masters of the fur think?
https://www.coyotemedia.org/bay-area-sports-mascots-ranked-by-the-ultimate-experts-furries/
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Lmao
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14 days ago
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Ezra S
Danielle Beckman
19 days ago
What are we going to do about the millions of people who are not recovering nor dying after an acute infection event? Will we continue to pretend they don't exist?
#LongCovid
#MECFS
#LymeDisease
#PANS
etc, etc š
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Ezra S
Julia MV
14 days ago
We're hosting a LoCITT-T update webinar on 12/17 at 2:30 eastern / 11:30 pacific. We've received a lot of questions about what the experience might be like for those who believe they're receiving the placebo. We'll answer those & more. Register here:
scrippsresearch.zoom.us/webinar/regi...
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You are invited to join a webinar: Long COVID Treatment Trial-Tirzepatide (LoCITT-T): TBD. Registration is required and after registering, you will receive a confirmation email about joining the webin...
In this session, we will share updates on how the Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is progressing and discuss why continued engagement from all study participants is important for gen...
https://scrippsresearch.zoom.us/webinar/register/WN_o1XdvBpcRwOmEj3Su_Ge6A
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Ezra S
alison š³ļøāšš“āā ļø
15 days ago
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Liz
15 days ago
I don't know how you square saying this stuff about Olivia Nuzzi with the fact that the CDC decided to stop recommending birth doses of the hepatitis b vaccine days ago. The stakes here are children's lives.
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Oh wow. Iām one of the 152
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16 days ago
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Ezra S
heather
16 days ago
trying to understand the 2020s without the lens of long covid is like trying to understand the 1930s without understanding the massive amounts of disability caused by influenza and post-polio syndrome.
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Ezra S
drewtoothpaste
17 days ago
rfk is stupid and evil but in 2020 the CDC was literally telling us to wash our hands and sing happy birthday to stop an airborne disease from spreading. both things can be true
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also led the US government's exec branch Long COVID response.
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18 days ago
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Ezra S
Rusty Foster
18 days ago
The text generator generates text. If you ask it for persuasive text, it generates text that is more persuasive. The text generator cannot lie, or tell the truthāit just generates text. Every time we say āthe bot liedā we are misleading ourselves.
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i "upgraded" to macos 26 because of some performance issues I was having and boy do i miss being able to use all the space on my screen
19 days ago
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so close!
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19 days ago
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