Excellent visualization of the true distance between the Earth and our moon: #artemis #AGoodPlace Source: www.reddit.com/r/BeAmazed/s...

I wrote this for a friend who needed a low cognitive load explanation of genes and genetic variants to help her understand a genetic report. Sharing in case it helps anyone else 🧬 - Genes 🧬 are like recipes that tell the body how to make something - We all have the same set of genes

Thrilled we have this new Comment out in @thelancetinfdis.bsky.social, arguing that to give Long COVID scientists more incentive to incorporate patient expertise throughout the research process, LC papers should all be subject to pre-publication review by patients. Free to read w/registration!

referring to under-researched woman-predominant illnesses as “complex” is like, a journalistic microaggression or something

Kay Ryan

about to touch down in dc so i wanna tell a brief story about how a trip to idaho changed me forever

Happy national poetry month 🖤

This is my favorite climate change chart. Japanese monks, aristocrats, and emperors kept meticulous records of cherry blossom festivals for 1,200 years and accidentally built the world's longest climate dataset.

Calling all feminists: Babes, wake up. The charts in this paper are scream-worthy

🏳️‍⚧️ It’s Trans Day of Visibility #TDOV, and we need to keep talking about the fact that trans people have some of the highest rates of Long COVID & associated conditions (LCAC) in the U.S. Check out our webinar (co-hosted with Trans Equity), plus more resources in the thread! youtu.be/TWD9S9bSup8?...

Play is the work of children. It’s how they process the world around them and practice adult skills. In the photo below, children in Gaza are reenacting a funeral procession in play. (The photo is a screenshot I took from an even more heartbreaking video via AlJazeera.)

Every single patient at the breast health center today was masked, which surprised me in a good way that they got the memo to protect themselves. None of the employees were masked though…

Someone just liked this post out of the blue & I’m so glad because I had completely forgotten about #MillionsMissingFlowers where we’re invited to share endangered flower art on the last day of the month, in solidarity with the millions missing from ME around the globe

Oakland friends: AMY HILLYARD has been missing since Wednesday. She was last seen near her home in Cleveland Heights--if you have a camera, check your footage!

Yep, we know how this goes. When it becomes clear “normal” isn’t coming back, the new normal will be normalized & everyone sacrificed to it will be silenced… ad nauseum until only the most privileged are left scratching their heads about how “the vibes are off”

I keep having to gently suggest to friends that it might be worth considering LC and not chalking everything up to perimenopause. Very cool how every area of negligence in the western medical world is brought to the fore because of Covid.

Some #LongCovid news—Rep. Valerie Foushee has introduced a resolution to recognize Long Covid Awareness Month! 🧵 on how you can support this resolution—and help pave the way for further action!

#TripleTheNIHBudget is the only NIH budget proposal that actually makes sense if you prefer not to watch your loved ones suffer & die from horrific diseases like cancer, Alzheimer’s, etc

As someone who—after a disabling Covid infection—can no longer attend protests, volunteer, lend my film skills to environmental groups, help my neighborhood’s anti-ICE efforts, etc, please wear a mask tomorrow!

If you don't have a crew for No Kings in Oakland and you don't mind walking with faith groups, I'll be in the leading contingent with a big STOP MASS DEPORTATIONS banner that could use some extra hands.

John got ME the year I was born & for 40 years has suffered enormously & missed out on an entire life while being treated as an unreliable witness to his own body. Now the same thing has happened to me w/ some of the people closest to me blaming me for my disease. How much longer will we allow this?

🧵 If you missed the @meactnet.bsky.social/ @solveme.bsky.social zooms this week & you're not sure what you missed, have no fear! There are really just 3 actions. The first 2 take less than a minute & allies are invited to join. If you care about human health & dignity, join us! #MECFS #LongCovid

Allies welcome! Just check the box for “Patient Advocate or Community Member.” If Drs had been educated on ME & diagnosed me properly, I could have avoided a life destroying train wreck. I needed to be told “you have a neuroimmune disease that gets worse w/ overexertion & infections. Avoid them.”

It really is fckd that we keep sacrificing ppl’s health to Long Covid while either looking the other way or openly mocking them. That hundreds of millions are sick & getting sicker from reinfections & we think that’s fine? That we don’t even TRY to stop it from happening to kids. Antisocial as hell.

This is a great mega-thread of some of Alice Wong's greatest bangers

Please do this today, right now!

If I magically woke up 100% better tomorrow I would still be extremely not OK. I would still have lost my whole life & my ability to relate to or trust most humans. Getting my body back would bring the potential of rebuilding a life, but I’d be doing it from scratch & from a place of enormous trauma

Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms www.medrxiv.org/content/10.6... 1/

The ME/CFS Advocacy Week Kickoff Call just ended. @solveme.bsky.social will be sharing the recording! The 2 main things to know: 1. Register to participate & everything you need will show up in your inbox. tinyurl.com/MEActionAdvo... 2. Save this quick start guide. www.canva.com/design/DAHEr...

I got a grant in college to drive from VA to CA & back, interviewing interesting people along the way. And spent most of the summer after grad school driving all over the southwest with my cat, sleeping in the car. Her favorite place in the world was Vegas—so many lights!

Every time I tell my Persephone joke they send me back to hell for 6 months

it’s a lot of words for a sticker, but I’m going to try to make it happen

Your last saved meme is your moral philosophy

I forgot I had this photo saved in my meme folder and I’ve been laughing about it for five minutes now.

A strategy I am recommending to people who don’t want to mask all the time is always in healthcare facilities and public transportation, AND if you see someone in a mask, put yours on. The first helps protect spaces high risk people may have no choice but to go, the second shows them support.

Yesss. The gaslighting actually just makes the fire more intense but the shaming sometimes quiets me a bit before I burst through containment again

New Medicaid rules will require 80hrs of work/month unless ppl can prove they are “medically frail” or have a serious or complex medical condition. #MEcfs / #LongCOVID should be exempt from the new onerous work requirement. PLEASE SIGN so more people don't die. 👇 actionnetwork.org/petitions/fr...

Sending love and care today to people who kept/are keeping their SA a closely guarded secret. Sending love and care to people who shared/are sharing their SA in the hope of creating more justice or safety for others. All the choices are bad. You are good.

It makes me want to tear down the whole idea of Great Men forever. It is way past time. No more streets named after Great Men. No more buildings. No more stories with single heroes in them. The movements were never about them anyway.

They want to make us criminals for needing to pee. Please understand that this is the tip of an agenda designed to give trans people two choices: house arrest or imprisonment. Either we lock ourselves inside or they lock us up and forcibly detransition and torture us. This is exterminationist.

well that went way deeper than I was expecting

“most recalls are voluntary at the FDA's request. And most companies comply due to fear of litigation. But recently I've seen more refusals, notably by supplement manufacturers and other "health food" companies.” Seems bad.

ME, MCAS, & Dysautonomia can all look like this & rates are through the roof now bc of Covid. If therapists don’t catch up they can cause so much harm. And they can’t rely on clients’ doctors to diagnose either… they need to not only learn about the conditions but also how marginalized they are

How the Covid Disinformation Ecosystem was established Network mapping the international network's development in 2020, with a particular focus on the UK. open.substack.com/pub/counterd...

“You’re not just becoming disabled,” said Elle Seibert, 31, who has dealt with debilitating fatigue and cardiac symptoms since 2020. “You’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.” www.latimes.com/science/stor...

This is a great resource for up to date info on LC risks, comorbidities, prevalence, biology, and more!

The last Oscar glass ceiling is in danger. Another reason to love Ryan Coogler: He has ONLY hired female cinematographers: Rachel Morrison (Fruitvale Station, Black Panther), Maryse Alberti (Creed), Autumn Durald Arkapaw (Wakanda Forever, Sinners).

If people are interested in being a part of our personalized medicine #MECFS #LongCovid #Genomics research study, we have added additional information on how to go about that here: sites.uab.edu/cgds/mecfs-c...

On #LongCovidAwarenessDay — I think the most important thing to understand is that it’s still happening: “I got COVID for a 3rd time in 2025 (I'm vaxed, boosted & took paxlovid)... Boom #LongCovid. Can't climb due to PEM. I haven't climbed in almost a year.” “COVID… is still causing disability.“

It’s #LongCovidAwareness Day. Especially to non/not yet affected folks, please take 3 minutes to watch & sit with what #LongCovid stole from us. Then multiply each of these losses by millions of people around the world 💔