Want some simple ways to resist fascism? Wear a mask. Donate to mutual aid. Go to a local library. Support community fridges and food banks. Plant a garden. Deliver groceries. Provide a ride to and from doctors appts. Participate in neighbourhood ICE watch. Show up for others.

Some people are saying it's Tuesday and I'm going to be honest as a journalist: YOU CANNOT FACT CHECK THE RAPTURE

Somehow @seanpaulmahoney.bsky.social your screenshots make this more hardcore, but here is Elizabeth "Biiiitch, do something yourself! Taylor... fyi @queerdance.bsky.social 🌈❤️

📣: Today the government committed to prioritizing #LongCOVID, but didn't announce any new funding - a major ask of advocates and researchers. @betsyladyzhets.bsky.social & I reported on today's Long COVID roundtable for @thesicktimes.org ⬇️ thesicktimes.org/2025/09/18/k...

Starting my day of radical rest off strong by smashing a glass bowl, slicing my fingers, & getting blood & millions of tiny glass shards everywhere 🥴

Our own #DoSomething at #MEAction: help ✨save telehealth!✨ Telehealth is vital for people who are immunocompromised or severely ill. A doctor's visit can set a patient with severe ME back weeks or even months. Join us tomorrow at 12pm PT / 3pm ET at the call party-- RSVP below, and please share!

im getting really tired of everything being bad bc like 12 ppl can't fill the hole in their hearts despite being billionaires

Friends with ME/CFS! The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion! Takes ~15 mins but you can save and come back if you need a break. If you could also share this, that would be a huge help!

This also applies to folks doing on the ground coverage for events don't have the time. Ask for help and folks are happy to tap in. @alt-text.bsky.social is also useful for getting alt text for primarily text-filled images. There's no excuse!

My friend Heather Smith remarked to me recently that young women are urged to “never stop picturing their murder.”

[Scribbling on his notebook] "So, you're telling me the public trans-port he used to get there was a bus that had a trans-mission? Hmm..." [Giving you the most vapid, intense stare at the air in front of your face you've ever experienced]

I feel like I’m saying “the tooth fairy isn’t real,” but yeah, there’s no disability fairy who comes around to help you when you become disabled. If you’re lucky, maaaaybe your parents will help?

Sacrificed my weekly shower to be able to change my sheets. I dream of having clean sheets & clean hair at the same time

The more words I see on here that I don’t understand, the more relief I feel at missing out

We're kinda getting a feel for why Jen Layden, head of the CDC's Office of Public Health Data, Science & Technology, wasn't happy there: "HHS has put on ice a CDC project that would make information about dozens of diseases available in near real time.... 1/2 www.medpagetoday.com/special-repo...

Please read this! A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself. "I gaslit myself, pushed myself, gave myself the wrong advice" Source: www.reddit.com/r/covidlongh...

Thinking more about the quiet violence & deaths than the loud ones 💙🕯️

Michael Peluso’s team at UCSF is looking for pre-Covid #pwME in the SF Bay Area. I've heard great things about their Long Covid work and suspect this study will be fruitful!

📢 Our team at @thesicktimes.org is live blogging the NIH workshop on new Long COVID clinical trials. Follow along today and tomorrow! thesicktimes.org/2025/09/09/l...

Kay Ryan 🖤

🚨Ok, folks, we need to deal with this again, right away. 🔹️Telehealth expires on Sept. 30. That's in 3 weeks. 🔹️What happens to Medicare will 100% happen to private insurance. No one's telehealth is safe. ☎️ CALL your Representative & tell them to vote yes on H.R. 4206, aka the Creating... 1/5

But what if my own disability prevents me from adding alt text? More good news! Just add #Alt4Me and a lovely volunteer will add alt text (reply or quote post) for you after the fact! (no alt)

Bluesky, I need to tell you about two salads I made recently, no lettuce involved and you need to promise me that you will not dismiss them out of hand bc they are VERY DELICIOUS. But they do require top notch plums, peaches and tomatoes. Do not attempt with subpar produce. There are better methods!

The origin of the name Rilo Kiley is incredible

All, You can find a link to each talk today from the Community Symposium on #MECFS in the thread below-- at least until 4pm, when we reached my limits! Click on the first post for each talk to open that thread. 🧪

Sitting in my car before an appointment watching three people across the street like a fucking psychopath because they’re wearing KN95s & I’m so starved for human contact just seeing them is helping me feel better 🫠

There is a lot for disabled people to be enraged about. I partnered with artist Finnegan Shannon on #DisabledRage public art. All graphics are downloadable & feel free to share and wheatpaste all over your community disabilityvisibilityproject.com/disabled-rage/

“like the moment, driving on bad ice, when it occurs to you your car could spin, just before it slowly begins to spin, like the moment just before you forgot what it was you were about to say, it was like that, and after that, it was still like that, only all the time.”

I’m not active on fb but I do still belong to a lot of different chronic illness groups there & it’s really striking how much mis/disinfo is still spreading even in the face of 10/10 veil lifted MAHA ableism. it really speaks to how medical neglect breeds distrust & opens the door to charlatans.

No worries if not

The algorithm has been feeding me a lot of “avoidant” & “narcissist” content & it’s… really dehumanizing? 😬

Wish I was able bodied enough to do shit on my own & not be forcefully dependent on others for the fulfilment of basic needs due to the absence of a livable disability income. I don't think ppl appreciate how fucking demoralizing & frankly scary it is to always have your life in someone else's hands

I will die on this hill: it isn’t hard to say “at the height of the pandemic” or “at the start of COVID” during a podcast interview. Producers, hosts, don’t let your guests say “during COVID” like this thing is over. Correct them. Ask them to say the sentence again. This is your job.

❤️ Wouldn't surprise me one bit if Italians are the ones finally doing it

Are there many #pwME still active on here? I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙 Would love to know who's around! 😊

The Guardian has today printed the names, and where possible, images, of all the media workers killed in Gaza, as part of an international day of action involving more than 150 media organisations. www.theguardian.com/global-devel...

Submit your questions to RECOVER-TLC conference! What Qs do people have about the trials? Mine: will all participants be evaluated for ME/CFS in order to do subgroup analysis on outcomes for that phenotype of Long Covid?

This should be the lead story in all major national news outlets. Public health people prefer to stay out of the limelight unless there is no other choice. I can’t overstate how bad things have to be for 9 former CDC directors to band together and pen an op-ed in the NYT warning the entire country.

“Blood is thicker than water” is the shortened version of “The blood of the covenant is thicker than the water of the womb” The way we have been using it is the exact opposite of the actual meaning +

Going all in for Covid Awareness. If you want to help get the word out please pitch in. $5 goes a long way. gofund.me/7817f5f5 If you’d like to help support my work, and more billboards please do so, we need to educate the public now. #covid19 #backtoschool #longcovid #mentalhealth #teacher

A new chronic *probably lifelong*, extremely uncomfortable*, *socially stigmatized*, *incredibly isolating*, & *unimaginably restricting* illness. Now what was it that you don’t like about masking?

If she yawns & you don’t say “biiiiiiiiiiiiiiig yawns for little Mabes,” are you even alive?

It’s true though 😭

Can anyone recommend an #MECFS & #POTS knowledgeable doctor in the DC area?

#LongCovid #mecfs #NEISVoid we're all fucking tired of rfk, let's join public health workers in calling for him to be removed for inciting violence and trying to kill even more people by dismantling public health www.statnews.com/2025/08/15/c... 🧵 low 🪫 alternative to calling in the next post:

Help needed from LC pals! The CURE ID survey, where you report meds and supps you’ve tried, is reopening! If you’ve reported before, they’d love more info on what *didn’t* work for you, and what you’ve tried more recently. And if you’re new to this, they want you to join in! Overview below:

I’ve never read Elizabeth Gilbert but her mere existence used to kinda taunt me, like why aren’t you living more authentically bitch??… or at least reading about it lol. But the key to feeling behind in life & art consumption may be… just wait. It worked for Harry Potter & Neil Gaiman at least

Call your senators/rep! RFK Jr has got to go 🙅🏻‍♀️