We haven't had an honest accounting or reckoning across any part of the political spectrum - left to right. One of the most disillusioning periods for me seeing people who claim Leftist politics ABSOLUTELY SPRINT to abandon the sick and vulnerable. It has rearranged a lot for me.

Not just the rich and that's also something to sit with.

Yep. The rich cis white men who hold enormously outsized power over our world aren’t being equally brutalized by infection associated chronic conditions, by medical gaslighting, by having their healthcare premiums skyrocket, by being kicked off Medicaid

The casual ableism & willful ignorance after we hoped so hard you would learn about the horrors of infection associated chronic conditions & #GreatestMEdicalScandal & devote just a bit of airtime to educating the public… Kinda heartbroken, really #JohnVsJonVsME @weeklyshowpodcast.bsky.social

Imagine going up to the sole person on a boat wearing a life jacket and saying “hey are you drowning?” That’s how dumb you sound to regular maskers.

Years almost over, but the ability to experience our beautiful world isn't. Second best sunset murder of crows of my life tonight. Impossible to capture the full glory with one camera person at a singular location. 🪶

I’m actually not #OneOfTheTwo people out there #SaltingTheVibes in my respirator, because my post-viral disability has left me homebound. So thanks @weeklyshowpodcast.bsky.social for making the world just a little bit more hostile for my kids, #TwoOfTheTwo out there trying to protect their mother.

#OneOfTheTwo Jon Stewart mocked for masking. Because Covid destroyed my body & my life. There are ~half a billion people with #LongCovid around the world. Why would anyone assume they’re too special to become one of us?

'Snuggles' by contemporary UK printmaker Sarah Morgan #WomensArt #Sunday #Winter

I’ve slept with my chihuahua in a single, a full, & a king size bed. It doesn’t matter. I’m always teetering the exact same amount off the edge

Ruth Wilson Gilmore's definition of racism gets at why it's not something that can be ignored: "the state-sanctioned and/or extralegal production and exploitation of group-differentiated vulnerability to premature death". --- THE PREMATURE DEATH part is not something that can be "ignored"

What if liberal pundits repeated stuff like “triple the NIH budget” instead of “lol, look at those weirdos who don’t want to get a devastating, untreatable, grossly underfunded disease whose rate has increased 15x due to COVID” #GreatestMEdicalScandal @weeklyshowpodcast.bsky.social

We need those who claim to be “left” to stop punching down on the disabled, covid cautious and immune compromised. Masking is resistance. It’s community care. The ruling class wants you sick and weak so you won’t fight back. Healthcare is being gutted. There’s never been a better time to mask

Seems like a pretty cool time to donate to @thesicktimes.org, a newsroom where two of the best humans I have ever met call the shots! the-sick-times.fundjournalism.org/donate/

John Oliver has said this explicitly FYI That without local news he couldn't do his show (and to his credit, he's pretty good about crediting his news sources)

Happy and/or miserable Christmas! It's ok to feel miserable at Christmas, lots of people do. Try not to feel bad about feeling bad, your feelings are normal and human. If you're feeling jolly that's ok too!

I’m like 10 for 10 at this point so you can call me Dr Fraser. Being female &/or having a female predominant disease teaches you very quickly that the only way to get care is to do the legwork yourself

Please sign for everyone with Long Covid & ME who Congress is trying to kick off Medicaid!

There’s a difficult irony that many people would really rather not have to think about this (ie what started in 2020 that’s clearly still happening)… but willingness to confront it is also the best way to reduce your odds of ending up on this chart + having to think about it all the fucking time.

Things are Terrible, but this isn't. Be weird.

My 14-yo-son has recreated the climax of Back to the Future in gingerbread and I thought you should know.

It's that time of year, of light and darkness, at a magical, mysterious, inspiring place: www.gov.ie/en/office-of...

So many stories about people considering MAiD because of poverty. I recognized the story about being grabbed by a man who coughed in her face and realized I follow her on tiktok and instagram. gofund.me/be6e5596b

Please give this a boost if you see it, I’m far behind the amount of financial support I need to do this trip plus a second trip for surgeries (if February tests finally prove surgical eligibilities) And unfortunately more tests and appointments are needed, because so much is happening to me

Not reading this ableist shit but as someone who has “jetway jesused,” did you know Covid is causing a dramatic increase in POTS, a condition that can make it impossible to stand in one place without fainting, but may otherwise allow you to walk just fine?

You want your Auntie Anne’s pretzel to taste like you remember in 1993 but it doesn’t. Not at all.

Wow big Long Covid news!

This 🧵 is important & I want to highlight: They are going to give kids in an Guinea-Bissau a placebo for Hep B even though it's already proven to be safe. These white supremacists are putting African children at risk to support a thesis we know is wrong. They do not value Black lives.

🫣

Become ungovernable

Realized I’ve been treating the holidays in my head as if I’ll have a break from work & will be able to tackle the to-do list I’m buried under since I’m not going anywhere or doing anything, completely forgetting I don’t have a job because I’m too sick & there are no holidays from sickness 🙃

I'm giving a talk next week and you're invited! ✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨ The talk is donate-as-you're-able, and 20% will support #MEAction. You can sign up to attend here: us06web.zoom.us/meeting/regi...

Steve isn’t here anymore, but he always posted this picture on Hanukkah so I thought we could carry on his tradition and remember him.

Do not assume that everything they set out to do is inevitable. They have been successfully fought on multiple fronts, from courtroom wins that have actually stuck to city and state governments that haven't backed down, to activists in the streets organizing against their violence.

This seems like a bodily autonomy issue until you realize it's a cost-cutting incentive for healthcare. This doesn't change if you have socialized healthcare-- it only changes who's footing the bill, and the government is not kinder than the for-profit healthcare system.

Theoretically, everyone deserves the right to do what they want to their own bodies. But in practice, these laws lead to further devaluation of disabled lives. They invariably lead to people choosing MAID because they can't afford healthcare, cajoled into this cheaper choice by an uncaring system.

Emily Oster—the only Emily I’ve ever hated lol & who blocked me on Twitter in early pandemic days for questioning her “kids need to be in school, who cares about Covid” stance—just popped up on my Insta feed promoting an essay on Long Covid. Interesting 🧐

"What sounds like an obscure bureaucratic shift is, in reality, a direct attack on the women who make up nearly the entire nursing workforce & who hold together America’s fraying healthcare system." #IllnessPolitics msmagazine.com/2025/12/03/t...

I got a little good news today & the moment of happiness plunged me into PEM 🫠

It would be really hard to lose The Sick Times - they do work for our community that no other outlet can replace. Please consider a gift to them. They are asking for so little and do so much.

We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters. The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/

Sadly, ME and Long Covid have taken another bright light. Megan was creative, spunky, intelligent, kind, and beautiful. In the end, she was barely able to exist because of severe ME and Long Covid. Please don’t let anyone convince you that viruses are harmless #RIPMegan🕊️

Indianapolis Star, November 22, 1918

Definitely a must-read. "Every creature on earth has approximately two billion heartbeats to spend in a lifetime. You can spend them slowly, like a tortoise and live to be two hundred years old, or you can spend them fast, like a hummingbird, and live to be two years old."

Covid isn’t mild & Long Covid isn’t a decreasing threat

I studied abroad in Sicily one summer & learned enough Italian to kinda get around okay but all I remember now is “ahh, ciao bella! You wan to sucka my deek?” 😅

I mean, I too dislike the NYTimes & would like a pat on the back for all the medical exams I’ve had to take

This shit is gonna happen globally now. There are a ton of reasons why digital rights activists were always dead set against enforcing real ID for using the internet.

Realized I’ve started to be chronically ill in my dreams. I never used to be. Feels like a sad watershed moment. But it made me reflect on another moment like that: the last time I felt angry at my body. I haven’t felt that in forever—just loving, protective, & sorry I didn’t treat her better sooner

Chinook salmon swimming back home after 7+7 lifetimes 😭 abc7news.com/post/salmon-...