NEGLIGENCE

Incredibly excited to announce that our proposal to create Emergency Department guidance for #MECFS & #LongCOVID has received a generous grant from the Whittemore Peterson Institute! I'm working with longtime colleague @grachstephanie.bsky.social, plus Dhairya Jarsania and Kimberly Rogers at Mayo.

The US government has targeted thousands of parents for deportation since Donald Trump took office in January 2025. A Guardian analysis of government records has found that, during the first seven months of his presidency, the administration arrested the parents of at least 27,000 children. 🧵

The Sick Times: 'Long COVID advocates demand biological research at a conference in Paris' 'We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event' Written by Miles W. Griffis thesicktimes.org/2026/05/05/l...

I recently made it to my roof deck after 2 long years. I wrote about my deep gratitude for the progress I’ve made as a Long COVID patient against the backdrop of my hunger for more. I dream of a life I’ve lost, even as I’m thankful for the one I have. www.thegauntlet.news/p/i-see-the-...

BIG news: The proposed border wall through Big Bend National Park is off following months of bipartisan backlash.

It is so hard to watch the journalism crisis hit your favorite publications. We need way more nature/biodiversity reporting, not less!

I think an uncomfortable truth we have to sit with that Biden's CDC had the same rhetoric. Obviously, what RFK Jr says here is horrible but pervelance of eugenics is a both party problem.

Prof. Carmen Scheibenbogen eröffnete die International ME/CFS Conference 2026 mit einem Appell an die anwesenden Forschenden von #MECFS. #MECFSConf2026

The Sick Times' executive editor @mileswgriffis.bsky.social spoke with the two organizations behind the viral moment where advocates interrupted speakers at the #LongCOVID EU Project event. bit.ly/4cXtNVY

Public health officials and the media are communicating as if there were only two possible outcomes to hantavirus infection: death and full recovery. This is despite already existing evidence that hantavirus, like many other viruses including COVID, has severe post-acute sequelae.

Men's Health: 'Millions of People Live With Long COVID. This Researcher Is on a Mission to Find a Cure' 'Six years ago, Dr. Michael Peluso and his team launched a first-of-its-kind long COVID tissue bank and have been working to understand the disease ever since' www.menshealth.com/health/a7113...

🦠 As the media discusses Hantavirus, they continue to ignore the risk of chronic disease, learning little from lessons Long COVID. A 2005 study found "survivors" had extreme fatigue, cognitive dysfunction, kidney issues, and more at least five years post-infection. cdn.mdedge.com/files/s3fs-p...

Long COVID advocates interrupted a recent research conference in Paris. We spoke with the two organizations behind the action that went viral on social media. "We will attack all the projects...that psychologize Long COVID," they said. thesicktimes.org/2026/05/05/l...

For @slate.com & @economichardship.bsky.social, I reported on how chaos and changes surrounding SNAP benefits are taking a toll. People described endless fear and worry over feeding their kids, where their next meal will come from, and whether SNAP could become even more difficult to access.

Three passengers dead after suspected hantavirus outbreak on cruise ship

Video from Gaza City shows flames rising after an Israeli attack targeted a group of Palestinian civilians near Al-Jalaa Roundabout in the Al-Oyoun area in northern Gaza City.

Long Covid & ME, two of the most common & severely disabling chronic conditions in existence, don’t qualify for work exemptions. This will be devastating to our already drowning community #FrailAndFurious

💔 Researchers found themes of clinical neglect and broad institutional failure in the written memorials of over 500 people who had ME 🩸 A new study found microclots in the blood of children with Long COVID 💊 A third cancer drug is being trialed for Long COVID This week's research: bit.ly/4tHfFpy

Think about how little Washington is paying attention to this & then imagine if any other nation did it. Israel just kidnapped nearly 200 people from around the world in international waters near Greece. And it did what many are calling "piracy" all to defend its other crime: its blockade of Gaza.

Let’s help David reach his goal!

Today: Baby rattler hiding under the mesquite. Bat wings glowing in the moonlight.

The latest episode of #StillHere is out now! We spoke with reporter Jamie Ducharme about her feature on the underreporting of #LongCOVID around the world. The episode also features advocate Mlindeni Gabela, on the stigma of the disease in South Africa. thesicktimes.org/2026/04/30/p...

A big thank you to @brittashoot.com for this lovely story about the small team of volunteers working to rephotograph all 500,000 panels of the AIDS Memorial Quilt. Pro tip: have tissues handy. www.kqed.org/arts/1398904...

Excited to join @longcovidjustice.org to learn about their new Long COVID oral history website! The launch event on 5/6 at 4:30pm ET will include reflections from project organizers and participants about their experience in creating a community-centered, people’s history of Long COVID. #ScholarCrip

🎾🦠 This winter Raducanu stated she was having lingering effects from a virus. We don't have many other details, but it is clear the media ignores the risk of infection associated chronic diseases and all we've learned from #LongCOVID/& the COVID-19 pandemic. thesicktimes.org/2026/04/28/p...

We also won an Award for Excellence in Health Care Journalism, from the Association of Health Care Journalists. We won third place in the consumer/feature division for our Long COVID clinical trials series.

Recently, the accrediting body for U.S. medical schools quietly published updated standards that no longer explicitly require med schools to teach about health equity. In my piece, I argue that this rollback harms us all & that medical schools have an obligation to keep teaching this content.

For your information, approximately 2,700 children, including relatives of mine and my wife’s, are still missing beneath the debris of destroyed homes in Gaza.

Because @nationalacademies.org decided to bend the knee and host a session with Jay Bhattacharya and some of his fellow travelers, they tarnished a meeting on the important topic of scientific integrity even before it began. 1/

So eugenics, then? Pure fking evil. Health care is a human right, and I will (possibly literally) die on this hill.

1/ While most of #MSM is still asleep at the wheel, some small #Media outlets/publications continue to do an excellent job of raising awareness about #COVID & #LongCOVID. For example, the @thesicktimes.org - thesicktimes.org/write-for-us...

Thrilled to announce that I was selected as a National Press Foundation fellow. I plan to report a story on how workplace accommodations can be helpful for people with Long Covid as they deal with grief in changing with functioning. If this is you, please reach out at [email protected]

BREAKING: Our #LongCOVID clinical trials series for @thesicktimes.org won an award for Excellence in Health Care Journalism! Many thanks for the recognition, AHCJ, and congrats to all of the awardees 🙏 healthjournalism.org/awards-for-e...

The ADA was signed into law in 1990 why are people still acting surprised that they need to make things accessible. And OF COURSE the Trump admin is delaying rules that already took way too long.

People with #LongCOVID are experimenting with transauricular vagus nerve stimulation (taVNS), with mixed results, ahead of medical guidelines. bit.ly/4vLOHhV

~53,000 military personnel died in combat in WW1. ~45,000 other soldiers died from the flu. #PeteHegseth may be ignorant of history, careless about the lives of those in uniform, but the army remembers. www.army.mil/article/2104...

Today @thesicktimes.org: Writer Corina Maller examines transauricular vagus nerve stimulation (taVNS), an intervention many people with Long COVID and ME are trying with mixed results. thesicktimes.org/2026/04/21/a...

Mustafa Talat developed #LongCOVID after working the first COVID-19 wave in a hospital in 2020. Without clear diagnostic criteria, he received no diagnosis despite limiting symptoms. The system that trained him to diagnose couldn’t acknowledge what had happened. bit.ly/4vFu9Yz

After Condé Nast's decision to close SELF, I spoke to chronically ill women about what the women's health site meant to them. "We have to acknowledge chronic illness as a politically, culturally, and socially marginalized category" Latest for @motherjones.com. www.motherjones.com/politics/202...

With so much in Los Angeles falling apart, that Karen Bass is investing her political capitol on hiring 510 more police officers is wild.

Reporter @octoberk.bsky.social is working with The Sick Times on an investigation about the experience of #LongCOVID in prison, which will also highlight how people outside of prisons can advocate on this issue.

This is what Israel has done to Bint Jbeil, my hometown in southern Lebanon

It’s hard to express how important Iris was to ACT UP’s scientific development. She was the catalyst who started it all. Iris Long, Scientific Mentor to AIDS Activists, Dies at 92 www.nytimes.com/2026/04/17/h...

Spoke today at the AAP/ASCI/APSA Joint Meeting in Chicago about Long COVID, the impacts of patient collaboration, and the progress our field is making. Very grateful for the opportunity to spread the word and for the organizers to include a patient on the panel!

"I developed Long COVID while practicing medicine. The system had no place for me" "6 years later, COVID-19 continues spreading, killing, and disabling people, but many of my colleagues ignore it. Last December, a colleague said, “We can’t keep doing this. COVID is basically over” archive.md/CLP40

I'm working on a story for @thesicktimes.org about RECOVER clinical trial results that have been shared so far (from the VITAL, NEURO, and AUTONOMIC studies), and am looking for people in the #LongCOVID and IACC communities to share what they think of the findings. DM or email me!

This is a huge honor both for me and for our whole team at The Sick Times. Thank you INN!!!

📣GREAT NEWS📣 Just spoke to Hill champions: your hundreds of calls & emails are making such a difference, they've extended deadline for Senator sign-on to #FundLongCOVID Dear Colleague letter to MONDAY APRIL 20 10am ET! More @lccampaign.bsky.social details incoming, senators now signed: 1/x