Miles W. Griffis
@mileswgriffis.bsky.social
📤 5392
📥 529
📝 339
Co-founder/editor
@TheSickTimes.org
Columnist
@HighCountryNews.org
[email protected]
#LongCOVID
reposted by
Miles W. Griffis
Eric Topol
about 1 hour ago
Where are the Covid nasal vaccines for the US to block infections and transmission? Here's yet another with a very good profile in people for mucosal immunity and high neutralizing antibodies in all participants (from China)
www.nature.com/articles/s41...
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Intranasal vaccine combining adenovirus and trimeric subunit protein provides superior immunity against SARS-CoV-2 Omicron variant - Nature Biomedical Engineering
A combination of adenovirus-vectored and subunit protein intranasal vaccine enhances immune response against SARS-CoV-2 variants in animal models and humans.
https://www.nature.com/articles/s41551-025-01517-2
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Melissa Sweet
about 10 hours ago
"The ultimate betrayal of genocide is not only committed by those who do the killing, but by those who avert their eyes. Genocide requires not only perpetrators, but bystanders as well."
johnmenadue.com/post/2025/09...
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Genocide betrays the living and the dead
Genocide scholars Damir Mitric and Jill Klein have deep personal and professional experience in genocide and repercussions across generations. As the world watches in horror as the genocide in Gaza co...
https://johnmenadue.com/post/2025/09/genocide-betrays-the-living-and-the-dead/
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betsy ladyzhets 😷
3 days ago
ICYMI: We recapped yesterday's HHS Long COVID roundtable event and related announcements. Will be adding more comments from patient advocates to the story today.
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Elizabeth Spiers
8 days ago
But one frustrating thing is that I've been trying to get people who actually have resources to fund progressive media and no one's writing checks. So a few of us with platforms say these things and get brigaded because there aren't enough of us and we have to absorb more threats as a result.
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It's ME(Jaime)
4 days ago
Fast, excellent reporting! Thanks to the folks at The Sick Times.
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betsy ladyzhets 😷
4 days ago
NEW: RFK Jr.'s HHS has committed to prioritizing Long COVID, but it's unclear if the agency will dedicate new funding to research and supports.
@mileswgriffis.bsky.social
and I recap what we learned at today's roundtable event for
@thesicktimes.org
:
thesicktimes.org/2025/09/18/k...
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Kennedy’s HHS commits to Long COVID, but without clear funding - The Sick Times
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
https://thesicktimes.org/2025/09/18/kennedys-hhs-commits-to-long-covid-but-without-clear-funding/
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📣: Today the government committed to prioritizing
#LongCOVID
, but didn't announce any new funding - a major ask of advocates and researchers.
@betsyladyzhets.bsky.social
& I reported on today's Long COVID roundtable for
@thesicktimes.org
⬇️
thesicktimes.org/2025/09/18/k...
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Kennedy’s HHS commits to Long COVID, but without clear funding - The Sick Times
Following two roundtable discussions with leading researchers and government officials — but limited patient engagement — HHS announced a public awareness campaign and medical resource platform
https://thesicktimes.org/2025/09/18/kennedys-hhs-commits-to-long-covid-but-without-clear-funding/
4 days ago
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betsy ladyzhets 😷
4 days ago
Getting ready to watch the livestream; it seems to be starting a few minutes late. I can't promise a full live blog but will do my best to share major updates here (while
@mileswgriffis.bsky.social
and I also work on our write-up).
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Denis - The COVID Info Guy
5 days ago
“I’m not getting less, I’m getting more long COVID referrals,” Faux said at the time. “I’m still seeing people from other states in my rooms because they don’t have access to long COVID clinics.”
#LongCOVID
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C.H. Romatowski
5 days ago
Does feel like this is… well if not a conscious attempt to split off the LC community’s solidarity with the rest of public health, at least at serious risk of producing that outcome :(
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betsy ladyzhets 😷
6 days ago
Today
@thesicktimes.org
: In Germany, the pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports. Those clinics are harming people with Long COVID. By Sophie Dimitriou:
thesicktimes.org/2025/09/16/g...
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Germany’s “Reha” clinics aren’t set up for Long COVID. And patients are reporting harm. - The Sick Times
The country's pension insurance system pushes people to go through rehabilitation (“Reha”) clinics before they can access disability supports.
https://thesicktimes.org/2025/09/16/germanys-reha-clinics-arent-set-up-for-long-covid-and-patients-are-reporting-harm/
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betsy ladyzhets 😷
5 days ago
Just announced: HHS Secretary RFK Jr. is hosting two "roundtable discussions" about Long COVID tomorrow at 2 p.m. ET.
@thesicktimes.org
will be covering the event and reactions from the Long COVID community. (Reach out if you'd like to send us comments during or after!)
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Patient-Led Research Collaborative
5 days ago
Great
@thesicktimes.org
article on 3 upcoming
#LongCovid
trials on JAK inhibitors. PLRC did patient engagement and helped shape 1 of the 3 here, REVERSE-LC (baricitinib) led by
@weselymd.bsky.social
— who also used our scorecards for patient engagement!
thesicktimes.org/2025/08/05/t...
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Three clinical trials for Long COVID are testing JAK inhibitors to treat immune dysregulation - The Sick Times
Three separate trials are testing the immunomodulator drugs abrocitinib (Cibinqo), baricitinib (Olumiant), and upadacitinib (Rinvoq). All are JAK inhibitors, which target specific inflammation pathway...
https://thesicktimes.org/2025/08/05/three-clinical-trials-for-long-covid-are-testing-jak-inhibitors-to-treat-immune-dysregulation/
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J. Offir, PhD
6 days ago
Not a great time for disability justice. The CDC "has revoked permission for employees with disabilities to work from home...and paused approving reasonable accommodations for new applicants seeking to work from home." Employees "were not given detailed... 1/2
www.statnews.com/2025/09/16/c...
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CDC temporarily revokes remote work approvals for employees with disabilities
The CDC revoked permission for employees with disabilities to work from home, at least temporarily.
https://www.statnews.com/2025/09/16/cdc-temporarily-revokes-remote-work-approvals-disabilitiies/
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The Sick Times
6 days ago
😷📊: The latest COVID-19 data offer conflicting information about whether or not we’ve passed the peak of this year’s summer/early fall surge. Read the full update here:
tinylink.net/nGCo6
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Dr. Lucky Tran
6 days ago
I appreciate that Gov Hochul has implemented orders to protect vaccine access, but she has supported mask bans and is not wearing a mask while getting vaccinated. “Believing in science” does not mean picking and choosing only what it is convenient for you.
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Writer and comedian Ryan Ken turning looks while accepting their fourth Emmy last night 😷🧡
7 days ago
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betsy ladyzhets 😷
9 days ago
Tabling on behalf of
@thesicktimes.org
today at the NYC Anarchist Book Fair! We have free masks as well as Sick Times merch and Long COVID info. Will be here at Ave C & 9th St in the LES all day.
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"There's no requirement to take part in this whitewashing campaign. Refusing to join in doesn’t make anyone a bad person. It’s a choice to write an obituary that begins “Joseph Goebbels was a gifted marketer and loving father to six children.”"
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10 days ago
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sarah jeong
10 days ago
🗣️🗣️🗣️🗣️ Trans people are "a vulnerable minority group that has been widely demonized. Any good journalistic practice would involve nailing down accuracy to avoid making things worse." –
@lopatto.bsky.social
www.theverge.com/politics/777...
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The WSJ carelessly spread anti-trans misinformation
The Wall Street Journal’s fuckup while covering Charlie Kirk’s killing needs more than an editor’s note.
https://www.theverge.com/politics/777630/wsj-trans-misinformation-charlie-kirk
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Ruth Ann Crystal
10 days ago
Wow! A must-read article from
@atranscendedman.bsky.social
on the need for combination therapies (mAbs + antivirals and/or + JAK inhibitors +/ gut tx) for Long COVID. Long COVID is probably caused by multiple different mechanisms & phenotypes are complex. Viva The Long COVID cocktail!
#medsky
😷🛟
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💊➕: Combination therapies effectively treat a variety of disease & conditions.
@atranscendedman.bsky.social
writes that a cocktail of drugs is necessary for Long COVID. "Single-drug approaches feel almost quaint in the face of such biological complexity."
thesicktimes.org/2025/09/12/s...
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Stop looking for a silver bullet. Start mixing the Long COVID cocktail. - The Sick Times
Here’s what keeps me up at night: If some people are finding relief, why aren’t we scaling what might work? And why aren’t we trying multiple interventions at the same time?
https://thesicktimes.org/2025/09/12/stop-looking-for-a-silver-bullet-start-mixing-the-long-covid-cocktail/
10 days ago
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betsy ladyzhets 😷
10 days ago
Today
@thesicktimes.org
, on the heels of this week's RECOVER-TLC workshop:
@atranscendedman.bsky.social
argues that we urgently need combination therapy trials for Long COVID.
thesicktimes.org/2025/09/12/s...
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Stop looking for a silver bullet. Start mixing the Long COVID cocktail. - The Sick Times
Here’s what keeps me up at night: If some people are finding relief, why aren’t we scaling what might work? And why aren’t we trying multiple interventions at the same time?
https://thesicktimes.org/2025/09/12/stop-looking-for-a-silver-bullet-start-mixing-the-long-covid-cocktail/
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Miles W. Griffis
Oni Blackstock, MD MHS
11 days ago
I spoke with
@capitalb.bsky.social
about how limiting booster eligibility will worsen already existing COVID-19 inequities. “Limiting booster eligibility risks further compromising the already fragile health status of many Black Americans,” Oni Blackstock...previously told Capital B.
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COVID Hits Black Americans Harder. New Vaccine Limits Increase the Risk
Regulatory disorder at the CDC leaves it unclear who will be eligible for the shots and whether the vaccine will be free.
https://capitalbnews.org/cdc-covid-vaccine-access-florida-vaccine-mandates/
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betsy ladyzhets 😷
12 days ago
Many thanks to everyone who followed along on our live blog yesterday and today, and to the Sick Times team for putting it together (these articles are a huge collaborative effort)! We will continue to closely cover the RECOVER-TLC initiative -- please reach out with any tips or questions you have.
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C.H. Romatowski
13 days ago
Michael Peluso slide from the RECOVER-TLC conference today. ADRD = "Alzheimer's Disease and Related Dementias" As someone affected, I am actually relieved to hear someone be straight about this: Long Covid "brain fog" is dementia. Enough soft-pedaling; it's a crisis.
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betsy ladyzhets 😷
12 days ago
A note on access, from
@thesicktimes.org
's live blog of the RECOVER-TLC meeting: Despite attendance from many Long COVID community members — and despite taking place amid a COVID-19 surge — the workshop has not prioritized acute COVID-19 precautions.
thesicktimes.org/2025/09/09/l...
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The Sick Times
12 days ago
The two-day RECOVER-TLC workshop on new
#LongCOVID
clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times:
bit.ly/4giPmAi
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Julia MV
13 days ago
With $300M, RECOVER-TLC reported being unsure whether they can fund more than the 4 trials announced today after a year of planning. This is shockingly inefficient. They should be able to run a platform with at least 10 trials. Patients & taxpayers deserve more urgent & effective action.
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betsy ladyzhets 😷
13 days ago
NEW
@thesicktimes.org
: RECOVER-TLC announces new clinical trials, responses from the Long COVID community are mixed. "Overall if [the first] round of trials was D grade, I’d put this in B- territory," said
@loscharlos.bsky.social
.
thesicktimes.org/2025/09/09/r...
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RECOVER-TLC announces new Long COVID clinical trials, receives mixed reactions from patient community - The Sick Times
Some Long COVID advocates and researchers, including those who advised the National Institutes of Health’s initiative, say RECOVER-TLC isn’t living up to its promised ambition.
https://thesicktimes.org/2025/09/09/recover-tlc-announces-new-long-covid-clinical-trials-receives-mixed-reactions-from-patient-community/
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📢 Our team at
@thesicktimes.org
is live blogging the NIH workshop on new Long COVID clinical trials. Follow along today and tomorrow!
thesicktimes.org/2025/09/09/l...
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Live blog: RECOVER-TLC workshop on new Long COVID clinical trials - The Sick Times
Researchers and advocates meet near the National Institutes of Health (NIH) campus this week in Bethesda, Maryland for the second RECOVER-Treating Long COVID (TLC) workshop. The two-day event will off...
https://thesicktimes.org/2025/09/09/live-blog-recover-tlc-workshop-on-new-long-covid-clinical-trials/
13 days ago
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betsy ladyzhets 😷
13 days ago
Good morning from Bethesda, MD! I am here for the RECOVER-TLC workshop, set to announce new Long COVID clinical trials.
@thesicktimes.org
is live blogging the meeting, and I will have a news feature about the trials later today.
thesicktimes.org/2025/09/09/l...
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Live blog: RECOVER-TLC workshop on new Long COVID clinical trials - The Sick Times
Researchers and advocates meet near the National Institutes of Health (NIH) campus this week in Bethesda, Maryland for the second RECOVER-Treating Long COVID (TLC) workshop. The two-day event will off...
https://thesicktimes.org/2025/09/09/live-blog-recover-tlc-workshop-on-new-long-covid-clinical-trials/
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Dr. Lucky Tran
14 days ago
PSA: Please remember to wear a well-fitting mask when you’re at the pharmacy getting vaccinated (or are there for any other reason). I really appreciate anyone taking a step to protect themselves by getting vaccinated, but you put yourself at unnecessary risk if you don’t wear a mask while doing so.
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Walensky is one of the reasons many people lost trust in the CDC, as she failed to follow the science on COVID, shortening quarantines at the request of corporations. And, she failed to educate the public about the risks of Long COVID. This set the stage for further corruption at the CDC.
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15 days ago
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Julia Doubleday
20 days ago
Those of us with Long COVID have been grievously harmed by our government’s failure to implement disease control measures. That same government's denial of COVID's dangers has also created massive stigma around our illness, redoubling that harm. My latest:
www.thegauntlet.news/p/long-covid...
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Long COVID stigma adds insult to injury
It's weird having an illness a lot of people simply don't believe in
https://www.thegauntlet.news/p/long-covid-stigma-adds-insult-to
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The Sick Times
17 days ago
How do you get people to care about COVID-19? Here’s what Zaina Fairey has learned as an organizer.
bit.ly/4ngZxaK
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📣 Over 60 leading ME & Long COVID researchers are calling for research and drug development. "The burden of inaction will continue to bring great suffering to many people and place a heavy burden on societies, economies and healthcare systems."
declaration.mecfs-research.org/en/declaration
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ME/CFS Research Foundation
ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.
https://declaration.mecfs-research.org/en/declaration
18 days ago
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Miles W. Griffis
The Sick Times
19 days ago
The flurry of 70 human infections over the course of 11 months, followed by an abrupt halt, makes scientists wonder how many people may have had H5N1 since February without the public being informed. Read more from
@lygianavarro.com
:
bit.ly/45NqwF8
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Eileen Clancy 🧿
19 days ago
What are people so upset about? So far, "an estimated 450,000 people have died because of the abrupt cuts to the United States Agency for International Development (USAID)."
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betsy ladyzhets 😷
20 days ago
Today
@thesicktimes.org
: Community health worker Zaina Fairey shares advice on getting others to care about COVID-19. "It would be easy to turn my back on those people and give up on community organizations that minimize COVID-19. But that’s not me, and that’s not what being in community means."
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How do you get people to care about COVID-19? Here’s what I’ve learned as an organizer. - The Sick Times
As someone with Long COVID, it’s demoralizing to see people in my circles party and engage in COVID-risky behaviors while I sit at home. It would be easy to turn my back on those people and give up on...
https://thesicktimes.org/2025/09/02/how-do-you-get-people-to-care-about-covid-19-heres-what-ive-learned-as-an-organizer/
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The Sick Times
20 days ago
COVID-19 spread remains high across the U.S. as our summer surge continues into early fall. As a new school year gets underway, young children remain vulnerable: emergency department visits for COVID-19 were higher for children under 12 than any other age group in late August.
bit.ly/41y1HdG
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betsy ladyzhets 😷
24 days ago
Reminder that I'm working on a story about the upcoming RECOVER-TLC trials for
@thesicktimes.org
and would love to hear from more Long COVID community members about what they think of the apparent agent selections. Also interested in talking to people with experience on the working groups. (1/2)
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Melody Schreiber
25 days ago
"CDC basically imploded yesterday and now it’s truly in shambles,” said
@kkjetelina.bsky.social
. Also: vaccines? My latest:
www.theguardian.com/us-news/2025...
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RFK Jr faces calls to quit as CDC chief fired and senior staff resign: ‘an embarrassment’
Susan Monarez’s ousting and four top resignations follow vaccine confusion, leaving US health agencies in turmoil
https://www.theguardian.com/us-news/2025/aug/28/rfk-resign-cdc-susan-monarez-fired
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Walker Bragman
26 days ago
Let’s recap: ~3 weeks ago, a gunman, who believed the COVID vaccines were killing people, shot up CDC. Since then… - Kennedy criticized the agency’s COVID response. - NIH director Bhattacharya attacked mRNA platform. - FDA restricted COVID vaccine access - Top scientists are ousted at CDC
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Mark Zaid, Esq
26 days ago
Abbe Lowell and I represent CDC Director
#SusanMonarez
. Contrary to govt statements, Dr. Monarez has neither resigned nor yet been fired. She will not resign. We have issued the following statement:
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Melody Schreiber
26 days ago
Robert F. Kennedy is "an existential threat to public health":
www.theguardian.com/us-news/2025...
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‘An existential threat’: US health workers call Robert F Kennedy Jr a risk to public health
More than 750 health workers say Kennedy’s misinformation fuels violence and endangers lives
https://www.theguardian.com/us-news/2025/aug/21/health-workers-robert-f-kennedy-jr
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Prem Thakker ツ
26 days ago
UPDATE: With Reps. Mark Pocan and Lateefah Simon, 15 members of Congress are now calling Israel's genocide of Gaza a "genocide." A new poll shows 50% of US voters think Israel is committing genocide. 15 of 531 members of Congress agree.
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Who Says Israel Is Committing a Genocide in Gaza? Everyone on This List
After almost two years, more and more politicians, experts, and human rights groups are finally using the G-word to describe Israel's violence in Gaza, but the list is still relatively short.
https://zeteo.com/p/who-says-israel-committing-genocide-gaza-list-politicians-countries
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Brian Merchant
27 days ago
LAPD choppers are a malignant nuisance. They're harbingers of surveillance, operated *continuously*—yet the city's own data show they raise stress, impair cognition and burn 100,000s of gallons of gas. The best part? there's no evidence they deter or reduce crime at all. It's time to ground them.
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Ground the choppers
The LAPD's helicopter mania is both a policy disaster and a symbol of our malignant, badly functioning surveillance state.
https://www.bloodinthemachine.com/p/ground-the-choppers
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The AP, NYT, Reuters, WSJ, and many other mainstream press organizations are complicit in the genocide in Palestine. They don't even have the courage to condemn the assassination of their own reporters. Journalists - STOP writing for these publications. Readers - CANCEL your subscriptions.
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27 days ago
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