"Many disabled people in media, myself included, owe a debt of thanks to Alice, whether she helped us personally or indirectly by fundamentally reshaping the culture around us." Very much agree with these words by @sesmith.lol on Alice Wong. disabilityvisibilityproject.com/celebration-...

Oudone Lothirath missed four out of five chemotherapy appointments while in ICE detention and received no medical care there. Now he will likely die in a matter of days. www.startribune.com/how-ice-deta...

🦠 More than 150,000 deaths from COVID-19 went uncounted in the U.S. 👩🏽‍⚕️ Researchers have found that up to 60% of healthcare workers may have Long COVID 🧠 A small clinical trial is recruiting to test PENFS in children #LongCOVID research updates: bit.ly/4bBzM24

In case you needed any more proof that the institutional transphobia and pro-genocide ideology reaches up to the executives of the NYT, here is their PR account issuing yet another blatantly false fact check.

RECOVER-TLC is hosting another webinar today, sharing updates on the Long COVID clinical trials program. I will do some live blogging here and might have further writing at @thesicktimes.org (if they share anything newsworthy).

Still working on this piece! DM or email me if you would like to comment on the new HHS Long COVID site.

To mark today's celebration of life for the great Alice Wong, we're publishing a series of remembrances from those who knew Alice and were impacted by her lifelong disability justice work. She is forever missed. Read part 1 of our series at discojourno.com/featured-spe... ID in comments.

Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms www.medrxiv.org/content/10.6... 1/

Today @thesicktimes.org: @maddidellplain.bsky.social dives into how people with Long COVID experience pregnancy. There's relatively limited research on this so far, but we can learn from ME and more studies are underway. thesicktimes.org/2026/03/24/i...

"ME patients can sometimes short-term push outside our energy envelope, but as one physician said, if you do that it’s like borrowing money from the mob – you will pay and then some. This is most often how people with ME worsen and die. ... Don’t let bias and prejudice steal your hope."

It’s not a coincidence to me that #BrainInjuryAwarenessMonth and #LongCOVID awareness happen together. The cognitive symptoms my patients describe overlap in real, meaningful ways… and deserve the same validation, research, and treatments. 🧠

😷🌴 Reporting on the California Long COVID & IACCI Clinical Implementation Forum in Santa Barbara A small group of providers, researchers, & pwLC are gathered here for an afternoon of talks on treating the disease and strengthen partnerships.

Super grateful that @thesicktimes.org republished my Canary op-ed l.gourl.es/l/56898fa8cc... and the include the CTV campaign. I've been really struggling so this is a lovely bright light #myalgicE #disability #sicktimes #Canada #longcovid

“I don’t think the American public has a sense that the food on our table is being produced by immigrant workers under conditions that would make Upton Sinclair turn over in his grave.” @genoways.bsky.social reports from the JBS strike in Greeley, Colorado.

New Zealand: "More than 400,000 Kiwis may have experienced long COVID since the pandemic began." "By mid-2025 a significant portion of the adult population had developed ongoing symptoms following a COVID-19 infection, with around 185,000 people still living with those symptoms." #LongCOVID

I'm working on a story for @thesicktimes.org looking at the new HHS Long COVID webpage and what else federal health agencies have done to address the disease since RFK Jr.'s roundtable event six months ago. DM or email me if you have comments; Signal info is in my bio for more secure tips.

Mood for 2026, (the artist is Ainsley Drew, on Instagram)

To make exploring currently available treatment options for #Long COVID easier, @patientled.bsky.social and @rthm.bsky.social collaborated to create a treatment guide. bit.ly/3PIr5tY

6 years ago today I went on my last run (pic left) — today I’m 36 and I’ve spent my entire 30’s with #LongCovid struggling to walk up and down the block, or work more than 1-2 hours a day. Heres 4 things I never thought I’d lose at this age:

Today @thesicktimes.org: our big roundup of global events & actions for International Long COVID Awareness Day! With a special focus on Austin, TX, the latest city to formally recognize the day. thesicktimes.org/2026/03/17/a...

An estimated that 2.1M Canadians are living with #LongCOVID and 600k are missing work or school as a result. Most have no access to trials. Only 38 are enrolling in Canada with less than 4.5k total participants. For #LongCOVIDAwarenessDay, I looked at funding and trials.

The U.S. is weaponizing global health aid. Countries that agree to incarcerate "deportees" get deals. Those that don’t get cut off. CECOT is the prototype.

“Governments modelling abandonment and cruelty in a time of crisis signal support to fascist, eugenicist and Nazi logic. This follows past research showing pandemics can give rise to fascist political economies. People and groups fighting for equitable democracy must challenge COVID minimization.”

We're putting together an article summarizing advocacy and awareness efforts for #LongCOVID Awareness Day and Month 2026. Please share this form with advocates organizing events and actions! bit.ly/4sxqtpg

Just Israel killing more doctors, nurses and paramedics with impunity

Philly Philly representin’ this weekend! 👏👏👏International LC Awareness Day (March 15th) scrolling atop the @pecoconnect.bsky.social building! Check it out, if you are local.

we are losing so much talent, progress, and hope for no good reason www.vox.com/future-perfe...

NEW: People with Long COVID have waited 6 months for the HSS to release more info on their Long COVID plan. Today they released an extremely bare bones website. Much of the site is "coming soon"... after half a year. www.hhs.gov/longcovid/in...

"We designed the document to be a guided conversation starter for people with Long COVID & their clinicians...while we wait for the results of clinical trials." New op-ed on the PLRC/RTHM treatment guide from @leticiasaurus.bsky.social & @jencurtinmd.bsky.social. thesicktimes.org/2026/03/12/a...

ICYMI: Check out this incredible data visualization story on the shuttering of Long COVID clinics by @delfimarchese.bsky.social. Delfi reached out to 100s of U.S. clinics: only 30 responded, showing how difficult it is for people with Long COVID to access care. thesicktimes.org/2026/03/10/w...

Send us your thoughts, photos, voice notes (for our podcast), and more from Long COVID Awareness Day 😷 Whether you’re participating from home/bed or in person at an action, we’d love to hear from you!

Every day I read about events/atrocities/political developments that make me think "well, that's an unfathomable number," and yet I'm expected to go about my my life as though nothing has happened. The baseline level of dissonance we're intended to live with in the US is simply unreal to me.

In 2022, I counted more than 400 healthcare centers in the U.S. offering Long COVID care. @delfimarchese.bsky.social followed up three years later, and found many of them have closed... or at least failed to respond to our inquiries. Her investigation for @thesicktimes.org: clinics.thesicktimes.org

I see the "e-bikers are lazy and ruining cycling" discourse has arrived with the warm weather, and so let me just share this thing I wrote about how getting an e-bike after I got #LongCOVID gave me back one of the most joyful parts of my life that I thought was lost to me forever. bit.ly/48ohIH5

eZme Fern and their ten-year-old both have #LongCOVID, but they’ve discovered that even in COVID-aware spaces, they're excluded because of their child’s pre-existing disability. They argue that COVID-aware communities must provide safe spaces for generationally disabled families. bit.ly/4sAkobN

New from me at @motherjones.com: Today, @ericswalwell.bsky.social said he's working to help the family of a Deaf kid seek humanitarian parole so he can continue attending CA School for the Deaf–and his staff brought his hearing aids to Colombia for him to use. www.motherjones.com/mojo-wire/20...

We’re still murdering people in “drug boats” even as we start a new war in Iran. Six people today.

Appreciate former Sugreon General Jerome Adams pushing back on anti-mask sentiment on Twitter/X

🔬 Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID 🦠 Two new studies compare SARS-CoV-2’s long-term risks to those of the flu 💊 A small phase 1 clinical trial will test the safety of Pembrolizumab #LongCOVID research: bit.ly/4rV8DNf

DHS said that Ruben Ray Martinez was a threat. That he “rammed” their vehicles. Video evidence shows he was at a full stop and not a danger to anyone. They shot him three times and killed him. Just like Marimar Martinez, Renee Good & Alex Pretti. They’re lying to cover up murder.

Can you imagine how much pain this man must have been in? Haitian man dies in #ICE custody after family says tooth infection went untreated www.scrippsnews.com/us-news/hait...

ICE has arrested and detained a Nashville journalist who reported stories critical of ICE. She’s married to a U.S. citizen and has been seeking asylum here after fleeing death threats in Colombia because of her journalism there. They’ve already sent her to Louisiana.

Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏

So excited to join this stellar team!! Let me know what you wanna hear on season 2 of Still Here, and more importantly, WHO you want to hear from in the Long COVID community👀👀

Welcome, @melaniemarich.bsky.social! We’re so thrilled to work with you @thesicktimes.org on our podcast, Still Here!

Margot and Anne Frank died in Bergen-Belsen as a typhus epidemic killed 17,000 people

we protected my mom from COVID for 5 years. She caught it at the hospital during an outbreak in the dialysis ward (!!) and died 5 days later. we will do nothing with this information as a society

Oh, hey. Yesterday was the 1-year birthday of my piece The King In Black. It holds a lot of meaning and significance for me. A return to artistic and technical form, and a representation of living with Long Covid. Added bonus is a lot of you really like it too, which I sincerely appreciate.

Three brand-new resources, created by #YoungPeople and for young people, have just been launched, and we believe they have the power to make a real difference to the lives of #children and #families living with #LongCovid. www.longcovidkids.org/post/covid-m... #LongCovidAwareness #Resources