Miles W. Griffis
@mileswgriffis.bsky.social
📤 5614
📥 573
📝 436
Co-founder/editor
@TheSickTimes.org
Columnist
@HighCountryNews.org
[email protected]
#LongCOVID
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Miles W. Griffis
Heather Hogan
1 day ago
Seems like a pretty cool time to donate to
@thesicktimes.org
, a newsroom where two of the best humans I have ever met call the shots!
the-sick-times.fundjournalism.org/donate/
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Sabrina Imbler
4 days ago
whenever people ask me how to become a science writer, I refer them to the
@theopennotebook.bsky.social
. it's the best guide to becoming a thoughtful, ethical science journalist. all donations will be matched through the end of the year, will you join me?
www.theopennotebook.com/15thannivers...
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The Open Notebook's 15th Anniversary - The Open Notebook
For 15 years, The Open Notebook has been the trusted home for journalists worldwide who cover science. What started as an experiment to demystify the craft of science writing has grown into a vital, g...
https://www.theopennotebook.com/15thanniversary/
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Artie Vierkant
7 days ago
Didn’t set out to make Covid Year Six our longest yet but then again it’s not every year all your mortal enemies—people who’ve been subjects of the podcast’s ire for nearly its entire run—all get drafted into the government at once to take a sledgehammer to anything they can find
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Hannah Buttle
1 day ago
🆘No other outlet is reporting on the Long COVID crisis with the compassion or veracity of
@thesicktimes.org
. 💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...
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Alt CDC (they/them)
3 days ago
Journalists need to ask Trump why the US is reviving the Tuskegee experiments, this time on babies and why he is okay with that. Ask Bill Cassidy as well.
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New in
@thesicktimes.org
this week: Delfina Marchese reports on Long COVID in Colombia. One of the few studies is testing “cognitive rehabilitation therapy,” which recently failed in a U.S. trial.
thesicktimes.org/2025/12/16/d...
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Despite Long COVID’s ongoing impact, research in Colombia is limited - The Sick Times
One of the few Long COVID research studies in Colombia is testing cognitive rehabilitation therapy. This approach recently failed in a U.S. clinical trial.
https://thesicktimes.org/2025/12/16/despite-long-covids-ongoing-impact-research-in-colombia-is-limited/
5 days ago
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The Sick Times
6 days ago
On Monday, HHS hosted an event that announced new initiatives for Lyme disease. The roundtable followed a similar event on Long COVID, which still hasn’t led to action. Read more from
@betsyladyzhets.bsky.social
and
@mileswgriffis.bsky.social
:
bit.ly/4p0BQnA
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The Sick Times
7 days ago
After a couple of weeks of uneven increases, COVID-19 spread is now clearly going up in the U.S. across most major metrics and most regions. We have also passed the CDC’s threshold for flu season. Read
@betsyladyzhets.bsky.social
's full COVID-19 trends report:
bit.ly/4qfBlqJ
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Our team at
@thesicktimes.org
covered yesterday's HHS Lyme Disease Roundtable and recently updated the story to include all speakers present at the discussion. Read on for a recap, new government initiatives for Lyme, and Kennedy's debunked conspiracy theories 🤦♂️
thesicktimes.org/2025/12/16/h...
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HHS hosts event and announces new initiatives for Lyme disease, but advocates are skeptical about follow-through - The Sick Times
The Lyme disease roundtable followed a similar event on Long COVID, which still hasn’t led to action on the disease
https://thesicktimes.org/2025/12/16/hhs-hosts-event-and-announces-new-initiatives-for-lyme-disease-but-advocates-are-skeptical-about-follow-through/
6 days ago
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Max Kozlov
6 days ago
INBOX: Former NIAID director Jeanne Marrazzo is suing the Trump administration. She alleges the NIH violated her constitutional rights and illegally fired her after she blew the whistle on actions that jeopardized public health and violated federal law.
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Billy Hanlon
7 days ago
The Sick Times: 'Despite Long COVID’s ongoing impact, research in Colombia is limited' By Delfina Marchese 'Despite Long COVID’s impact, there are no specialized clinics or government attention, and only a few research studies are being conducted in Colombia'
thesicktimes.org/2025/12/16/d...
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Despite Long COVID’s ongoing impact, research in Colombia is limited - The Sick Times
One of the few Long COVID research studies in Colombia is testing cognitive rehabilitation therapy. This approach recently failed in a U.S. clinical trial.
https://thesicktimes.org/2025/12/16/despite-long-covids-ongoing-impact-research-in-colombia-is-limited/
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Death Panel
7 days ago
In our latest, we look back at 2025, a year where normalization slipped into naturalization, as a cadre of villains who rose to prominence on the back of covid denial took the reins of the federal government to play out their revenge fantasies. It’s Covid Year Six.
www.patreon.com/posts/145947...
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Covid Year Six (12/15/25) | The Death Panel
Get more from The Death Panel on Patreon
https://www.patreon.com/posts/145947049
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📣 "Nevra’s story is not an isolated tragedy — it [shows] how ME patients of color in the Global South are systematically excluded from research, advocacy, media representation, & life-saving care." A new Q&A with ME advocate Nevra Elis & her support network:
thesicktimes.org/2025/12/15/m...
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis - The Sick Times
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME...
https://thesicktimes.org/2025/12/15/medically-neglected-and-structurally-erased-international-network-appeals-for-me-advocate-nevra-elis/
8 days ago
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The HHS roundtable on Lyme disease has just kicked off. RFK jr. opened the discussion by stating Lyme disease has greatly affected his own family, citing his and his sons' experience with the disease. "We have to make it safe for children to go back into the woods.”
www.youtube.com/watch?v=U3il...
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Lyme Disease Roundtable
YouTube video by U.S. Department of Health and Human Services
https://www.youtube.com/watch?v=U3ilMz3Y0J4
8 days ago
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Melissa Gira Grant
8 days ago
ICE and CBP, among others, have violently retaliated against ICE Watch in part because the agencies correctly understand what many do not: Organized neighbors are mounting an effective defense, and an organized movement is a formidable adversary. My new feature:
newrepublic.com/article/2042...
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Inside Chicago’s Neighborhood ICE Resistance
Residents have organized a formidable network to protect immigrant communities from Trump’s brutal deportation program. Their efforts are making a genuine difference.
https://newrepublic.com/article/204225/chicago-neighborhood-resistance-ice-immigration
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Dr. Thrasher wants you to pre-order The Overseer Class
9 days ago
Noticing that Democrats are passing “right to die” laws before passing “right to housing” or “right to healthcare” laws
www.nprillinois.org/government-p...
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Gov. JB Pritzker signs 'right-to-die' legislation for terminally ill people to end their lives in Illinois
The new law, which takes effect next September, opens the door for people 18 or older with a terminal diagnosis to be prescribed a fatal drug.
https://www.nprillinois.org/government-politics/2025-12-12/gov-jb-pritzker-signs-right-to-die-legislation-for-terminally-ill-people-to-end-their-lives-in-illinois
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Billy Hanlon
9 days ago
Hawks Get Concerning Injury Update On Kristaps Porzingis 'Porzingis..will be 13th game he has not played this year..due to illness..' '..he believed he was over POTS..his illness woes..could be a sign that he is feeling some of the more lasting effects of the condition'
heavy.com/sports/nba/a...
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Hawks Get Concerning Injury Update On Kristaps Porzingis
The Atlanta Hawks will be without Kristaps Porzingis against the Eastern Conference-leading Detroit Pistons on Friday, December 12.
https://heavy.com/sports/nba/atlanta-hawks/hawks-injury-update-kristaps-porzingis/
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Sage
11 days ago
The Sick Times does extremely important work reporting on studies and news relevant to the
#ME/CFS
#pwME
and
#LongCovid
communities. I have become a monthly supporter, and encourage you to do the same if you can.
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Morgan Leigh Davies
9 days ago
Please please support if you can. This site does vital work.
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Julia Métraux
10 days ago
Reboost Nasal Spray has been found to contain mold.
people.com/nasal-spray-...
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Nasal Spray Recalled Nationwide for ‘Life-Threatening Infections' and Potential Mold Contamination
A nasal spray that was distributed across the United States has been recalled due to its potential to cause 'life-threatening infections,' according to the U.S. Food and Drug Administration (FDA).
https://people.com/nasal-spray-recalled-nationwide-for-life-threatening-infections-potential-mold-11868624
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vee.soy
11 days ago
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues. Responses are anonymous!
cryptpad.fr/form/#/2/for...
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Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
https://cryptpad.fr/form/#/2/form/view/MezZGPyRpqCYyg0ZP2nD-ve04HJCiylvUvXQ9Ga0e7c/
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Miranda
13 days ago
My first piece for
@thesicktimes.org
! In response to
@brittashoot.com
's reporting on LC/ME specialists opting out of insurance in order to “spend more time on patient care rather than administrative work,” I argue that administrative work IS patient care, especially for people living in poverty.
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Miles W. Griffis
The Sick Times
12 days ago
🩸 A new study examines how COVID-19 impacts the immune system. 💶 The German government has announced over €500 million in funding for infection-associated diseases. 🧬 A preprint study found more than 250 genes associated with ME, 76 of which were shared with Long COVID.
bit.ly/44jnwiz
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Simon Spichak
11 days ago
I emailed the CBC ombud a complaint about the Gill Deacon segment that platformed the Lightning Process and brain retraining quackery for Long COVID. Here's their response:
simonspichak.beehiiv.com/p/my-complai...
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C.H. Romatowski
13 days ago
I think one reason things are still such a mess is trying to pretend something we’re still dealing with is behind us. Simply doesn’t work very well.
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Julia MV
13 days ago
I'm consistently impressed by the crucial content
@thesicktimes.org
publishes (yes, their end of year fundraiser is still going on if you want to support and/or share
the-sick-times.fundjournalism.org/donate/
)
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betsy ladyzhets 😷
13 days ago
Today
@thesicktimes.org
: "Having a doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifeline against neglect." By
@crookedneighbor.bsky.social
:
thesicktimes.org/2025/12/09/d...
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Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients - The Sick Times
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifelin...
https://thesicktimes.org/2025/12/09/doctors-who-refuse-to-engage-with-administrative-work-are-abandoning-their-poorest-and-sickest-patients/
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Jaime Green
13 days ago
Writers and editors, don't forget to nominate work for The Best American Science and Nature Writing! Deadline is 12/20 (for anything published by then). Info and submission form here:
jaimegreen.net/basn
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The Best American Science and Nature Writing — Jaime Green
https://jaimegreen.net/basn
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The Sick Times
14 days ago
COVID-19 trends for the last week of November are similar to the rest of the month: disease levels are increasing in the Midwest and Northeast, but less so in the West and South. Meanwhile, flu spread is accelerating faster than COVID-19 spread.
bit.ly/3MyjHQm
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Disability Culture Lab
14 days ago
Announcing our new Cross-Movement Disabled Leaders and Organizers Bluesky Starter Pack! With just one click, you can follow the whole collection of leaders, organizers, and organizations listed. Share this far and wide! Have anyone to recommend? List them in the comments!
go.bsky.app/7vLJSBW
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Prem Thakker ツ
15 days ago
NEW: Buried in the new defense bill is a policy to fill weapon “gaps” Israel gets as other nations embargo it. As in: citing "wartime" needs, the US armed Israel’s genocide. Nations responded by restricting weapons to Israel. Now, citing those very restrictions, the US may send Israel *even more.*
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US Defense Bill Would Fill Israel’s Weapons ‘Gaps’ Caused by Embargoes
The US armed Israel’s genocide. Nations responded by embargoing Israel. Citing those restrictions, the US may now send even more weapons to Israel.
https://zeteo.com/p/us-defense-bill-ndaa-israel-weapons-arms-embargoes
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Julia Métraux
15 days ago
Palantir's new neurodivergent fellowship is in fact bad because neurodivergent people participating in technofascism will not save us. Latest for
@motherjones.com
www.motherjones.com/politics/202...
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The problem with Palantir's new neurodivergent fellowship
Critics have accused the company of being technofascist.
https://www.motherjones.com/politics/2025/12/the-problem-with-palantirs-new-neurodivergent-fellowship/
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I love this essay about ebiking and Long COVID 🚴😷 “I hadn’t mentioned the internalized ableism. But Stacy knew. “It’s not giving up,” she said, “It’s not cheating. It’s a new kind of freedom.””
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17 days ago
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We don’t have to accept this dystopian hell
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17 days ago
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Simon Spichak
18 days ago
I'll be writing about
#LongCOVID
trials in kids for
@thesicktimes.org
. With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.
recovercovid.org/news/recover...
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RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
https://recovercovid.org/news/recover-tlc-invites-public-comments-upcoming-clinical-trials
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Elana Levin
18 days ago
It was an honor to have so many conversations w Leslie Lee on his podcast & mine. His being out about his LC status on every platform was extremely brave. There’s a social cost to being out about chronic illness & “salting the vibe”. Whether talking TV or pandemic, he was incisive & a truth teller
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Another enormous loss occurred in the
#LongCOVID
community last month. Rest in peace Leslie Lee III 🕊️
thesicktimes.org/2025/12/04/l...
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Leslie Lee III, culture critic and Long COVID advocate, dies at 43 - The Sick Times
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. He was 43.
https://thesicktimes.org/2025/12/04/leslie-lee-iii-culture-critic-and-long-covid-advocate-dies-at-43/
19 days ago
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The Sick Times
19 days ago
Leslie Lee III, an educator, critic, and Long COVID advocate, died on November 10. “He was one of the few voices in leftist spaces that refused to buy into COVID denialism," Taylor Lorenz told
@mileswgriffis.bsky.social
. "He was such a strong voice..."
bit.ly/44MICG4
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The Sick Times
19 days ago
While all U.S. COVID-19 metrics remain at low-to-moderate levels as of mid-November, wastewater data show clear signs of this year’s winter wave getting started in the Northeast and Midwest. Read
@betsyladyzhets.bsky.social
's full COVID-19 trends report at The Sick Times:
bit.ly/4pgWQaD
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It's ME(Jaime)
19 days ago
And the hits keep coming for disabled folks, though this one has been a long time coming:
#CDC
employees are forbidden to WFH. There's no real reason for this, and it's especially cruel given that CDC offices were subject to gunfire just months ago.
www.statnews.com/2025/12/02/c...
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CDC staff with disabilities feel stranded as HHS implements new policy
CDC is asking employees seeking telework as a reasonable accommodation to return to the office until their requests can be processed under a new HHS policy.
https://www.statnews.com/2025/12/02/cdc-reasonable-accommodation-requests-telework/
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Miles W. Griffis
Laura Weiss
21 days ago
Medicaid is the bare minimum for people with Long COVID and other complex conditions. But instead of improving it, amid skyrocketing disability claims, the Trump administration is making it worse. The impact could be catastrophic. My feature for
@thesicktimes.org
:
thesicktimes.org/2025/12/02/t...
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The future of Medicaid is “really scary” for people with Long COVID - The Sick Times
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disad...
https://thesicktimes.org/2025/12/02/the-future-of-medicaid-is-really-scary-for-people-with-long-covid/
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Miles W. Griffis
The Sick Times
20 days ago
Tens of millions of Americans have
#LongCOVID
, a number we can only expect to grow as people become reinfected multiple times. Yet despite this increased need for healthcare, the government is slashing Medicaid. Read more from
@lauralew105.bsky.social
:
bit.ly/3MhxU48
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It's
#GivingTuesday
! We're far behind on our end of year fundraiser and are hoping to catch up by raising $10k today so we can continue our vital reporting on Long COVID and the ongoing pandemic. No donation is too small - can you help support us? 🙏😷
the-sick-times.fundjournalism.org/donate/
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Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
https://the-sick-times.fundjournalism.org/donate/
21 days ago
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betsy ladyzhets 😷
21 days ago
We really want to expand our work further in 2026 and beyond, but right now, we're just trying to keep afloat after a big grant concluded this fall. Help us keep paying ourselves and all the great writers we work with. Donations are doubled today and through the end of the month! (10/10)
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Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
https://the-sick-times.fundjournalism.org/donate/
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Miles W. Griffis
betsy ladyzhets 😷
21 days ago
It's
#GivingTuesday
. At
@thesicktimes.org
, our end-of-year fundraiser has been lagging behind; we're hoping to raise $10k today to get back on track. Here are a few recent stories that demonstrate our unique role serving the Long COVID community.
the-sick-times.fundjournalism.org/donate/
(1/10)
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gamera obscura
21 days ago
This is a harrowing piece, and it’s critical to understanding the breadth of targeted harm being done globally to the LGBTQ+ community, to sex workers, and to the poor.
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Long COVID Justice
22 days ago
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Long COVID Justice
22 days ago
It’s World AIDS Day today. We’re thinking about the practices our communities have developed to keep each other alive—and the shifts we need to see in public health, from small groups to large institutions.
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Dr. Lucky Tran
21 days ago
Not acknowledging World AIDS Day and engaging in COVID revisionism are straight from the eugenics playbook. One of the most effective ways of making people invisible is by erasing their history.
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Melissa Gira Grant
22 days ago
The end of PEPFAR and global cuts to HIV prevention and treatment are a longterm health crisis and an immediate, fast-moving economic crisis—not dissimilar from the ways that conservatives are waging war on queer and trans people by coming for their jobs:
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