Join PHAN and @airsupportproject.bsky.social on Feb 5 at 12 noon ET for a discussion led by Long COVID advocate Chimére L. Sweeney, founder of The Black Long COVID Experience, on how Long COVID is affecting Black people and how Black leaders and advocates are shaping COVID-aware responses today.

Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.

💉 FDA granted expanded access to the stem cell infusion RegeneCyte for Long COVID 🌍 New study found that Long COVID isn’t being consistently captured around the world 💊 A phase two trial for LC-associated POTS is testing 2-HOBA #LongCOVID research updates: bit.ly/4qfLpzC

"It bothers me that people often don’t even blink at what I share, glossing over the serious ramifications of what one SARS-CoV-2 infection did to my life. I hold years of knowledge, research, & pain inside me." Powerful new essay by @wanderingkayli.bsky.social 🙌 thesicktimes.org/2026/02/02/s...

Despite Long COVID's toll on millions of children, there are only a handful of clinical trials that include them. @spichaksimon.bsky.social reported on three upcoming pediatric trials. Co-published with @19thnews.org! thesicktimes.org/2026/02/03/l...

There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon. This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:

Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. Read this week's full COVID-19 trends report: bit.ly/4tgFVqY

New — I spoke to eight people who were present at the ICE protest on Saturday in Portland, Oregon when federal agents deployed tear gas and rubber bullets into a crowd of families, children, elderly and disabled people, and their pets. These are their stories:

One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX

Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS

Last week, bedroom producer and electronic musician Sebastian “Sebass” Gisperg released his third album. The EP, titled “700,” takes its name from the 700+ days Sebastian has spent 99% bedbound with myalgic encephalomyelitis (ME). Check him out on our IG: www.instagram.com/p/DT-2geSD-_q/

I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following: (1/3)

Very excited to say that 404 Media's zine about ICE Surveillance is here. If you ordered a print copy, I put it in the mail last week. If not, we of course think the info inside is very important so here's a free PDF. We also translated it into Spanish: www.404media.co/icezine/

Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.

NEW: The @wired.com Security desk put together a comprehensive guide to filming ICE—with tips for reducing risk at the forefront. No paywall, but please consider subscribing to help find these kinds of resources. And stay safe out there. www.wired.com/story/how-to... www.wired.com/v2/offers/wi...

I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.

Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum. www.instagram.com/reel/DUI-ZWu... www.facebook.com/share/v/16vX...

ah yes, it is famously the role of the L.A. police chief to veto state law because he doesn't like it that is exactly what we (do not) elect him to do

In our latest, we’re joined by @melissagiragrant.com to discuss how Minneapolis is fighting back against state violence with extraordinary acts of community care, Melissa’s reporting on ICE surges across the county, and ICE paying a visit to our own home soundcloud.com/deathpanel/d...

“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.

NEW: The Israeli military today accepted the Gaza Health Ministry's estimate of 70,000+ killed. But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats. Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.

Finally got around to a bit of research I'd been meaning to explore, and: There is no documented instance of an ICE officer being identified and assaulted while off duty because he wasn't masked. www.pbump.net/o/ices-excus...

Not just any journalist, she won the goddamn Triple Crown of broadcast journalism (an Emmy, a Peabody, and a Murrow) in 2024 for her reporting on Gaza. This is textbook censorship of the highest degree

A consistent theme of ICE: murdering people and/or denying them life-saving care. “I have learned that Karam’s experience of medical neglect there is pervasive…detainees refer to C.C.D.F. as a “torture chamber” and “hell on Earth”” www.newyorker.com/news/the-led...

This is some of the best reporting I've read in years.

The Trump administration formally withdrew federal guidance that required pharmacies to dispense methotrexate. Chronically ill people may face more challenges in getting this drug for their health. My latest for @motherjones.com. www.motherjones.com/politics/202...

#LongCovid #ME

A great article about clinics closing by @brittashoot.com with @thesicktimes.org! Please give it a read.

Today @thesicktimes.org: big story by @brittashoot.com examining the Metrodora Institute, a clinic for “neuroimmune disorders” like Long COVID and myalgic encephalomyelitis that made big promises to patients... then abruptly closed. thesicktimes.org/2026/01/27/m...

Bovino’s retirement needs to be a cage. His command environment yielded Renee Good’s death, Alex Pretti’s death & Julio Sosa-Celis’ shooting. Failure to prosecute Bovino & everyone else materially responsible for these atrocities will be understood by ICE, CBP, etc as a green light for the next ones

Begging you not to let Wael’s Tarabishi’s story get lost amidst all the horrors. He was a 30 year old disabled man. His dad was his full time caregiver. ICE took his dad away. Wael said it would kill him. He said the fear was “real & immediate”. He died last week. ICE killed Wael.

If you're a health provider or health worker in Minneapolis, especially at a hospital, I'd love to talk for a story! [email protected] or Signal in bio

@pipagaopoetry.bsky.social and me were on @reallandsend.bsky.social's Death Panel podcast to talk about Crips for eSims for Gaza, "how disabled people built and sustained an internationalist solidarity mutual aid project under siege, grief + death." on.soundcloud.com/utzFoAVtN4OK...

there are so many gutting stories, but this one is hitting me extra hard. just imagining wael tarabishi slowly dying without his dad there to care for him because he was jailed by ICE makes me…i don’t have words. this country is disgusting.

The Sick Times: 'New RECOVER-TLC trials won’t enroll until summer. Nearly two years after the program’s launch.' Written by Betsy Ladyzhets thesicktimes.org/2026/01/23/n...

👇New Article There has been discussion about Simon Wessely’s interference in an article of Emily Mendenhall’s which impacted her book Invisible Illness Here we put this issue on the record and Mendenhall’s response to community concerns about her book #longcovid #pwME 🗞️🖇️ tinyurl.com/54mc7rks

I’m out here in Los Angeles, where hundreds have gathered in response to the ICE execution of Alex Pretti in Minneapolis. Chants and speeches underway here outside the Federal Building in DTLA. Working multiple cameras today so posts may be sparse

Alex Pretti took care of veterans as an ICU nurse. “He was a super nice, super helpful guy – looked after his patients," said @dimitridrekonja.bsky.social, who worked with Pretti both at the hospital and on scientific research. "I’m just stunned.” www.theguardian.com/us-news/2026...

News story @thesicktimes.org with updates from today's RECOVER-TLC webinar! thesicktimes.org/2026/01/23/n...

TELEHEALTH UPDATE: The House passed the Department of Health and Human Services’ funding bill yesterday, including telehealth extensions. Under the proposal, Medicare telehealth flexibilities would be extended by 2 years, until Dec. 31, 2027. They are not permanent so there is still work to be done.

RECOVER-TLC continues to move at a glacial pace, showing little urgency for people with #LongCOVID. It took a full year to identify the interventions for the four new trials (one of which was already existing.) The LDN trial *might* start recruiting in "late summer."

I'm watching today's RECOVER-TLC webinar, where NIH and FNIH staff are sharing updates on the agency's clinical trials initiative. Doing a bit of liveblogging in this thread, and we might have a news story up at @thesicktimes.org later if they announce anything noteworthy.

The United States has officially withdrawn from the World Health Organization. This is a shameful move that puts both Americans and people all over the world at greater risk from disease outbreaks, which require international collaboration to contain.

ICE has shrouded entire neighborhoods in Minneapolis in a toxic cloud of chemicals. Last year, I commissioned this story on @thexylom.com on the aftermath of Nepal's Gen-Z protests, where something similar happened. There are likely long term public health impacts in both cities for years to come:

she mentions it in passing but look up 'Starlight Tours', this is a method Canadian police have used to kill indigenous men for decades

A Mexican national died in a private prison run by ICE in Georgia last week. He was pronounced dead at 4:09 pm last Wednesday, after contract security staff found him “unconscious and unresponsive” in his room. This is what the Trump regime is contracting out—death for profit. . DHS funding bill

Abolish ICE

"These artists have helped me remember that my life is valuable and worth protecting." Grae Salisbury, an artist with #LongCOVID, rounded up some of their favorite illustrators who bravely explore the ongoing pandemic in their work. bit.ly/4jQ2gY9

Continuing its genocide, Israel has killed three more journalists with bombs paid by American taxpayers. Israel has now assassinated 270+ journalists in Palestine. Let’s not forget in September that they massacred 31 Yemeni journalists in a single terrorist attack.