For disability pride month, everyone be nice to me!!!!

My father isn’t autistic. He just does math for fun, doesn’t like to socialize, has meltdowns, and once told me that he feels different than people because he doesn’t have normal emotions

We wanted to understand why a Jewish candidate defeated another Jewish candidate in one of America's most Jewish congressional districts. So we talked to three Evangelical Christians at a gun show in northern Idaho.

I am once again going to direct folks to this article I wrote in 2023 about LC and other chronic illnesses being subjected to “skepticism” by the most odious people in the media conversationalist.org/2023/04/19/l...

There’s so many reporters who have blood on their hands by enabling vs fact checking the freedom to infect disease spreading corporate profits health officers on covid, on Covid being airborne, and the true risks of long Covid LC risk is cumulative by the third infection 38% have LC

Media outlets defending the interests of the capitalists who pay staff salaries: "Look, the bosses need you all to get back to work, so we're handing the microphone to an aviation reporter & a professor of religion to tell you all why your so-called Long COVID symptoms are really all in your head.

it is truly perverse working in an industry in which some of the most respected outlets insist the illness many of their own colleagues have is not real

any other fields in which we notice this happening? could there by a deeply rooted infrastructural incentive problem within media? "it's literally impossible to say" says the third columnist you encountered lying in a drunken stupor with their head in a storm drain on your way home

It absolutely is a real illness-and we know it.

There's no question, *except* among some science deniers and media dipshits. When antibodies from long COVID patients are injected into mice, the mice get long COVID. Obviously not psychological, but one wonders if people could get long COVID from a blood transfusion. www.cell.com/cell-reports...

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Hoping folks like @rebeccasolnit.bsky.social @mehdirhasan.bsky.social @weeklyshowpodcast.bsky.social @johngreensbluesky.bsky.social @lastweektonight.com read this article and help us get more (adequate) coverage of LC IACC neuroimmune diseases 🙏🏻. #GreatestMEdicalScandal #JohnVsJonVsME

@edyong209.bsky.social you got a shoutout in this article bsky.app/profile/jews...

It’s like living in a dystopian matrix - you’re really ill but you’re being told it’s all in your head. You try to fight this fictionary world view only to be trapped by the 4 walls of your bedroom. Feel so much grief for pwME and LC

Climate scientists will recognize this playbook. Controversialize science that isn’t controversial by platforming a small group of “skeptics” who generally have little to no expertise in the subject, in order to delay necessary action at the price of countless lives.

National corporate media have created a controversy—”is Long Covid a real medical disease?”—which never existed in any serious form among the experts who research Covid. fair.org/home/media-w...

ICYMI new from me: The science keeps progressing into Long Covid but the propaganda is stuck in 19th century hysteria

Fair: 'Media Won’t Stop Psychologizing Long Covid' By Justine Barron (h/t @jewstein3000.bsky.social) fair.org/home/media-w...

Excellent article with lots of important history and context about #LongCovid and #ME/CFS in the media. A must read!

Patients, clinicians and researchers have called out media outlets for years for hiring writers with little to no experience in #LongCovid using pseudoscience to push harmful pet biases and misinfo (even when presented with expert research debunking their claims) Must read ⬇️

"[WIRED] has not responded to questions from FAIR about the article, including about whether it was factchecked." 🫣 A great deep dive into the media's troubling, six year trend of spreading false and harmful information on Long COVID, by @jewstein3000.bsky.social fair.org/home/media-w...

NEW ARTICLE from me for @fairmediawatch.bsky.social. "Media Won't Stop Psychologizing Long Covid" An overview of this unfortunate propaganda trend in the media since 2020, including where it comes from and what it gets wrong. fair.org/home/media-w...

The last season of “The Bear” is probably gonna be horror genre. That’s the trajectory from light comedy. Maybe a real bear

When it comes to thinness or curviness or straight hair or curly hair or make up or no make up being popular, I find that if you can hang on 5 or 10 years whatever you have going on will be popular again. I just zone out for the years I’m not on trend.

Josh Turek hopes to represent the needs of Iowans and disabled people as a US Senator. At @motherjones.com , I wrote about Turek's run at the time of brutal Medicaid cuts, which he was on as a kid. He has a good shot at being the Iowa Democratic Senate nominee. www.motherjones.com/politics/202...

What happened to the idea that therapists let you talk? I've tried a bunch and they all interrupt, push unsolicited opinions, and make it about themselves. Am I longing for whatever the Freudian model was?

What happened to the idea that therapists let you talk? I've tried a bunch and they all interrupt, push unsolicited opinions, and make it about themselves. Am I longing for whatever the Freudian model was?

Gov. Gavin Newsom portrays himself as a resistance leader—though in his budget proposal, he is once again attacking Medicaid funded home care that helps disabled people live independently. My latest for @motherjones.com www.motherjones.com/politics/202...

I summarized it: wear an n95

I just saw “One Battle After Another” for the first time, and my strong opinion is that it had no right to use the Tom Petty song “American Girl.” Some movies have a definitive claim on certain songs, and that one was taken. It would be like using the piano exit to “Layla.”

The RECOVER trials immediately made me nervous when one focused on graded exercise - a “treatment” for ME/CFS that’s been shown to harm patients and lower their energy baseline, sometimes permanently. The video games on is just 🙄. If video games cured LC I’d be an Olympic athlete by now.

You realise your brain is very ordinary where on the one hand you read “caught hantavirus after they said hello” and on the other hand “expert says it takes prolonged close contact for transmission”… My brain doesn’t do that kind of gymnastics.

For World ME Awareness Day, I talk about this damned disease and why producing the @BubblePeoplePod podcast was possibly literally killing me!! www.tiktok.com/t/ZTkT4gxaG/

Top 5 embarassing moments in journalism includes @kenklippenstein.bsky.social thinking he’s hunting down some important story by trying to get to the truth of why an old person has a hand tremor

My birthday trip to the movies, for the first time in 8 years, has me reflecting on mega corporations and accessibility! Of course. (Yes I wore an n95) #thedevilwearsprada #thedevilwearsprada2 www.tiktok.com/@bubblepeopl...

Drew Barrymore and Kelly Clarkson are doing if white women were about to tear off their own skin and reveal something underneath that white women haven’t been yet, but they’re still keeping on the skin Just a vibe I had

I’m having my owner Richard Linklater film festival if anyone wants to join or talk about Richard Linklater films

That article in The Cut about that woman who broke up with her friends over Wegovy? That’s how people treat disabled friends all the time. https://www.tiktok.com/t/ZTk4w7LJS/

These ducks are finding twigs and leaves and building some kind of fort in the lake. I don’t know what’s going on but it’s making me cry!!

“This is what the face of a daily opioid user looks like.” @juliairzyk.bsky.social is brilliant!! Link to full episode in next post https://youtube.com/shorts/DOqsPBnFNJM?feature=shared

This week, I am so excited about my episode with @juliairzyk.bsky.social! She is a talent agent and a disability rights lawyer! We talk about how Hollywood is more disability aware, its Covid response, ableism at Disneyland and.... Opioids for chronic pain! podcasts.apple.com/us/podcast/b...

Offer still stands! Had a few take me up on it.

Apparently there's a thing where baristas will give decaf when customers are assholes. I shared information on how caffeine can function as medicine to prevent migraine, seizure, fainting, etc. They laughed at me but I tried! Assholes deserve mistreatment but not physical harm!

Yesterday was the anniversary of Freddie Gray's death. I published a book in 2023 that includes never released evidence of his cause of death and how it was covered-up. I offer a free PDF copy of my book to anyone interested! Please email me. [email protected] www.amazon.com/They-Killed-...

Wrote about this episode and why we don’t have more comedy about chronic illness. (And why “The Pitt” writers should watch “The Golden Girls.”) https://open.substack.com/pub/justinebarron/p/what-tv-today-could-learn-from-the?r=2nkdyh&utm_medium=ios&shareImageVariant=overlay

This week I talked to @mileswgriffis.bsky.social, editor of @thesicktimes.org, about "The Golden Girls," MECFS, queer communities on Covid, doing journalism while disabled and much more. Link to full episode and story below. www.youtube.com/shorts/SPx5q...

i need a few miracles with money to keep survivin like aaaaaa a few thousand would save me from everything tryna consume right now, and all the stupid thing most people w jobs take for granted ( hah ha ha like medication and not living in a car soon) SHARES HELP TOO !!!!!! please share this !!

I hate trump, the pedophile, just give me a minute while I vote for this rapist over here to save democracy.