In a statement, CBC told me: "After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done." Will update the story with this soon.

Unlike politics, there’s no such thing as public health centrism. It’s evidence-based radicalism. It’s all about change towards health justice and equity, not tinkering around the edges trying to keep everyone happy. Such notions, my friends, are rather radical and there’s no shame in that.

Get your flu jab ASAP this year - if you’re not eligible on the NHS, it‘s thankfully much cheaper privately than the COVID vaccine. Appointment today ✅

1/2 Vielleicht ein Hörtipp? "Die teure Epidemie – Wie Long Covid und ME/CFS die Gesellschaft belasten" #LongCOVID kommt übrigens von #COVID19, der Krankheit, die SARS-CoV-2 (auch gern verniedlichend "Corona" genannt) auslöst. Und #COVID ist nicht vorbei. #MECFS www.swr.de/swrkultur/wi...

🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025): 👉 Long Covid with ME/CFS isn’t the same in women and men - biologically. 👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos. Let’s break it down layperson style 👇

Man muss sich bei #MECFS vom Hilflosigkeitsnarrativ lösen, das manche Stakeholder vor sich herschieben, um sich vor der Verantwortung einer normalen Versorgung zu drücken. "Man weiß zu wenig", um systematische Angebote zu schaffen, ist letztlich vor allem eines: lächerlich. 1/7

chronic.market/chronic-illn... Fiction, self-help, nature, creativity, poetry, memoir, cookery, children’s books… Have a look, put them on your wish list, buy copies as gifts, talk about them, share the link - please lend your support in whatever way you can! 📚 📖 #chronicillness #mecfs #books

More thoughts on PEM. #LongCovid #ME

#LongCovid #ME

‚Europeans recognize Zohran Mamdani’s supposedly radical policies as ‘normal’‘ Radical, extreme left, socialist?? No, ‚normal‘. www.theguardian.com/us-news/2025...

After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab. youtube.com/@brokenbattery

The early flu season in England continues to build, while the latest Covid wave continues to recede. Latest UKHSA hospital admission data up to 27 Oct.

‚If you‘re disabled, you‘re not ill.‘ Where does chronic illness and disability secondary to chronic illness fit in here?! #LongCovid

Many thanks to @davetuller1.bsky.social for the chance to chat about my book and its resonance with #MECFS, #LongCovid, and the war on disabled people (For those interested in reading more, pls check here: link.springer.com/book/10.1007...)

1/ "I think there’s a collective amnesia right now about #COVID-19" - Via @violetblue.bsky.social www.nature.com/articles/d41...

Regarding the biopsychosocial model for ME/CFS: My role as a psychotherapist should be small. It only becomes large because the biological causes are not researched and the social consequences are not mitigated. www.spiegel.de/gesundheit/d... #MECFS #PEM #NoGET #NoRehab

This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended. His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work

We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood. The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵

1/4 www.theguardian.com/commentisfre...

I tried to ‚recover at work‘. I failed. I really didn’t want to feel like a failure, so I hung on in there for longer than I probably should have, had my health been my only concern. #LongCovid

Ein weitverbreitetes kulturelles Missverständnis besteht darin, psychologische Deutungen von Krankheit von Haus aus für "progressiv" zu halten – in Abgrenzung zu einer kalten, "seelenlosen", auf das Körperliche reduzierten Medizin. Es ist an der Zeit, dieses Vorurteil zu korrigieren. 🧵

Zohran Mamdani’s victory is one for humanity- within New York AND America AND the West. and the wider world needed to see it. It’s about the community of people who care about humanity deeply - and it’s part of a new wave coming in to break the old sclerotic media-political positions.

6️⃣ Yes, this is a multifactorial problem - aging population, NHS backlog, cost of living, austerity. But ignoring Long Covid and the sustained impact of repeat infections while omitting worker safety (clean air, infection control) is a public health disaster in motion

1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity. But it never mentions Long Covid. Not once. Not the pandemic either. That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇 🔗 www.gov.uk/government/p...

New Trial By Error Interview--with Irish psychologist Brian Hughes @bmhughes.bsky.social -- Links: crowdfund.berkeley.edu/project/47768 & www.youtube.com/watch?v=0K75... Screenshot is latest update David Tuller @davetuller1.bsky.social has sent out by email to previous donors. #MEcfs #LongCovid

Clip from @davetuller1.bsky.social’s interview with Professor @bmhughes.bsky.social about his new book, Psychology’s Quiet Conservatism. He explains how the psychogenic framing of illnesses like #MECFS and #LongCovid has shaped care and policy, often as a way to cut costs.

'Born from the ashes of the Second World War, when the world had witnessed the catastrophic consequences of unchecked state power and the abandonment of human dignity, the Convention represented a solemn promise: never again.' #ECHR @andrewcopson.bsky.social humanists.uk/2025/11/04/e...

As humanists, we should resist this false narrative and ask: what would happen to ordinary people if protections of the ECHR were removed by the very people in power we are supposed to be protected from? #ECHR #ECHR75

Pinker war mal ein wirklich prägender Denker. Jetzt hat er sich in seltsame anti-progressive Kulturkämpfe verstrickt und schimpft auf Klimaschutz. Hier ein schmerzhaft schlechtes WELT-Interview. Atmen wir tief durch und sehen wir uns das mal an. (Thread)

Ein Interview zu einem telemedizinischen Programm bei #longcovid . Ich habe da als Betroffener mitgemacht und kann kurz etwas beschreiben aus Patientensicht. 1/

Remember, Covid is airborne - and we know thanks to this woman. #LongCovid www.theguardian.com/australia-ne...

🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries 🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10 🎨 Poster Title: “Understand We Need Your Support”

Geht ans Herz. @margaowski.bsky.social schreibt gnadenlos ehrlich über die erdrückende Last von #PostCovid und #MECFS. Krückstock, Duschhocker, Rollstuhl – und oft ein Pflegedienst. Verteidigt eure aktiven Leben, mit einem Atemzug kann alles vorbei sein. www.apotheken-umschau.de/krankheiten-...

1/1 Realität für Betroffene von schweren, chronischen Erkrankungen wie #MECFS oder #LongCovid? Trotz gesicherter Diagnosen und gutachterlichem Ausschluss von psychischen Gründen werden Betroffene u.a. von der DRV weiter mit "Funktionsstörungen" traktiert und psychiatrisiert:

Anita is attempting to walk 140 miles by the end of December with Long Covid. Whilst the motivation is admirable we are seriously concerned about the impact on her health, as she is describing symptoms of PEM. www.bbc.co.uk/news/article...

PEM, das zentrale Merkmal von MECFS, ist kein neuer Begriff. PEM wird aber zunehmend verfälscht, von #MECFS entkoppelt und bestenfalls als postvirale Belastungsintoleranz verharmlost. Damit wird das zentrale Krankheitsmerkmal von #MECFS verwässert und umetikettiert, Reha und #GET werden möglich.

Thank you. #LongCovid

If you're a National Trust member, it's that time of year again: Midnight tonight is the deadline. It's a shame people have to keep doing this to keep a toehold on historical truth in this country, but here we are. Voting link: www.nationaltrust.org.uk/who-we-are/a...

This was a painful piece to write. I love horror, but it doesn’t always love me back. I wish I didn’t have to write this, but it keeps happening, often from people who should know better Tl;dr: we need more disabled writers/directors so we can tell our own stories 🙏 Please share

‚Ein Virus, das mehr kann als gedacht‘. Wäre schön, wenn sich das endlich mal rumspricht 🙄 #LongCovid

Klare Botschaft: aktivierende Therapie ist bei #MECFS schon alleine deswegen nicht evidence based, weil unklar ist, wie viele Teilnehmer*innen an den entsprechenden Studien überhaupt PEM hatten. Alte Diagnosekriterien zu "CFS" fordern PEM nicht. 1/2 medscape.com/viewarticle/...

Thank you! #LongCovid #ME 1/2

This suggests not only the need for stress management in self-care programs, that can only ever take us so far, but the need for concerted efforts, for example by the healthcare or benefits systems, to be organised in such a way as to not cause ADDITIONAL stress for patients. #LongCovid

Thank you for saying stress and worry are ADDITIONAL triggers. That is definitely my experience, I manage better with less stress, not all being avoidable (that‘s life). Too many people are suggesting that stress is somehow causally involved in #LongCovid. Avoid stress = manage better, NOT cure

From the critical review of Gabor Mate‘s work on trauma and illness by Nick Haslam

#LongCovid #ME

Medscape: 'The Off-Label Treatment That Helps Many With Fibromyalgia' 'Low-dose naltrexone (LDN)..is said to relieve the chronic pain, fatigue, and brain fog...' 'Further research shows pain improvements in other conditions, like Crohn’s disease and Long COVID' www.medscape.com/viewarticle/...