Here‘s some facts 👏 Not everything is down to your metabolic state. Remember viruses?! We do. #LongCovid

#GeneralPractice #NHS www.bbc.co.uk/news/article...

#LongCovid …as opposed to post-Covid (recovering from severe acute Covid) without Long Covid…

30% OFF BE SEEN #LongCovidAwarenessDay is coming 28/02-01/03 get 30% off all LongCovidSOS merch & help fund our work at the same time Wear your support Start conversations Push for proper recognition & care This is #LongCovid visibility. Together. longcovidsos.myspreadshop.co.uk

Help break the stigma around #LongCOVID: share your story by writing an op-ed! To help demystify the process of writing and pitching, we hosted a free webinar with expert guests Torie Bosch, Funmi Okunola, and Madeline Miller. Watch now, or share with a writer friend! bit.ly/4s1qJxb

Prolonged nature of Long Covid - since 2020 ✔️ Impact on work - not able to work ✔️ #LongCovid

Exciting to read about some of the expensive ME/CFS & long Covid research planned in Germany (using some of€500 million budget) including that using long-term samples which allow comparisons of samples before and after developing the conditions www.helmholtz.de/en/newsroom/... #LongCovid #MEcfs

From @davetuller1.bsky.social The Times covers another severe case, Guardian has a non-triumphalist piece about "brain-retraining" and ME/CFS (it seemed to work completely for a while, and then came another relapse), and more: virology.ws/2026/02/27/t... #MEcfs #LongCovid #CFS #PwME

The new @departmentforedu.bsky.social guidance on ventilation and air quality is a step in the right direction. We welcome the recognition that clean air matters in school, something LCK has been campaigning on since the start of the pandemic, when we saw first-hand the direct and #CleanAir

I asked googled a question: ‘People’s experiences of healing through alternative practices can be very meaningful - how can we get them to understand that this was more likely correlation than causation?’ #LongCovid

We have a special panel for the children on our Wall. We will never forget them. ❤️

💚💚💚💚💚💚💚💚💚 www.bbc.co.uk/news/live/cp...

Edited clip from German TV: 14-year-old Philipp developed ME/CFS following a Covid infection. He hasn’t been to school in a year and barely sees his friends. His mother says we have never felt so helpless in our entire lives. #MECFS #LongCovid

„Darüber hinaus mehren sich Hinweise auf einen infektions-assoziierten Anstieg an neu diagnostizierten Symptomkomplexen, Organschäden und chronischen Erkrankungen, was zur fortwährenden Public-Health-Relevanz von Long COVID beiträgt.“ Langsam kommt es an und wird breiter kommuniziert sehr gut.

- ..out of 100 patients in hospital with COVID, 45 would have been admitted to hospital without COVID and been infected during their stay. montrealgazette.com/opinion/lett...

Assessment of dynamic cerebral blood flow changes during cognitive tasks in patients with post-COVID-19 syndrome dx.doi.org/10.1093/brai... Screenshot from latest Science for ME weekly update #LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Healthcare workers with Long Covid — join our SHH-UK online peer support group.   🗓 2nd & 4th Tuesday ⏰ 11:00–12:00 (UK)   Safe space. Shared understanding. No pressure.   Join: teams.microsoft.com/...   Email [email protected] for reminders.   #LongCovid #PeerSupport

'Conclusions: Long COVID not only places a great burden on those affected and their relatives, but also has unpredictable long-term consequences for public health and the healthcare system.'

‘Die Behandlung erfolgt symptomorientiert; das Vorliegen von PEM sollte dabei ausdrücklich berücksichtigt werden.’ #LongCovid

Because it needs saying, over and over again it seems: #LongCovid #ME

A very important article. Many people are aware that medical care for the physical symptoms of Long Covid is lacking. It is less well understood that people who have Long Covid and mental health needs are also often ill served by the therapists they approach. #LongCovid

Thanks for getting in touch. We are indeed particularly interested at present in people able to get to us for a blood test. Also, please bring your ‘healthy control’ friends. Contact: [email protected]

The recording of our event last week on pitching and writing op-eds about Long COVID is now available on YouTube and on our website! @thesicktimes.org youtu.be/9qS6yFwP0OY?...

This graphic series on young people and #LongCovid looks really good. www.lshtm.ac.uk/research/cen...

If you want just one illustration of how differently #LongCovid and #ME are being treated in the UK and Germany: I just searched BBCiplayer and German ZDF for ‚Long Covid‘ - iPlayer 0 results, ZDF 133 results; ‚ME/CFS‘ - iPlayer 24 results, none having anything to do with ME, ZDF 35, all related

Worth catching up on if you missed this @daltmann.bsky.social how can you get involved in the Rosetta Stone Study as a patient, is it only for people who can travel to London, or are there remote options? #LongCovid #ME www.bbc.co.uk/programmes/m...

1) In his interview with David Tuller, Prof Jonathan Edwards gives some background on his open letter that criticises the British Association of Clinicians in ME/CFS (BACME). The discussion is about a change from rehabilitation to long-term care by physicians.

5) The BACME model and clinical care is still based on the same idea of rehabilitation as 30 years ago, only with the worst parts about GET and deconditioning cut out. And it's being justified by a unfounded dysregulation model. ME/CFS patients deserve better than this.

“More on the Controversy over Invisible Illness” by David Tuller virology.ws/2026/02/16/t... Screenshot from latest Science for ME weekly update #LongCovid #MEcfs #CFS #PwME

M.E.: "How it can shrink one's world, bit by bit" by Kornelia Paulsen (who no longer appears to be on X or IG). #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #SevereME

Mild #ME? I work PT 2 days/week, yet keep missing shifts because #PEM hits hard. People who’ve been here warn me I’m playing a dangerous game, one that cost them. Healthcare or health? Hell of a question to have to ask, isn’t it? #PwME #LongCOVID #MEcfs

#pwME URGENT - looking for someone ME literate who can sit with Savannah in hospital in London from 4:30pm TODAY for a few hours. Travel will be reimbursed. Please share widely #SaveSavannah #SevereMErgency @tomkindlon.bsky.social @abrokenbattery.bsky.social @drelke.bsky.social

Great to see this. Should be interesting. BBC Radio 4 Tuesday February 24th at 9.30am Inside Health: “Is the tide turning on ME research”? (28 minutes) www.bbc.co.uk/programmes/m... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Brain retraining has done nothing for this woman‘s ME/CFS. How she could come to the conclusion that brain retraining is not nonsense, I don’t even understand from that article. What does she think it has done for her relapsing and remitting condition?? #ME www.theguardian.com/society/2026...

‚Lots of doctors suggested that if I practiced trumpet and exercised more it might help me recover, but then I obviously crashed and the pain got worse.‘ This is PEM - post-exertional malaise. #LongCovid www.lshtm.ac.uk/media/97541

Advice for doctors and teachers, and anyone working in healthcare and education, on how to support young people living with Long Covid. From the illustrated guide: ‚Living with Long Covid: A Young Person’s Guide‘ #LongCovid www.lshtm.ac.uk/media/97541

Sensible advice on pacing. From the illustrated guide: ‚Living with Long Covid: A Young Person’s Guide‘ Recommended to anyone, young or old, with or without #LongCovid www.lshtm.ac.uk/media/97541

34 page ‚graphic novel-like‘ guide (freely accessible) on what it’s like to live as a young person with #LongCovid - this will resonate with anyone with #LongCovid, recommended to anyone with or without #LongCovid !! www.lshtm.ac.uk/media/97536

"Epic Disaster" is the headline of this Süddeutsche Zeitung article about Long Covid and the rigidity of the German medical system. The lack of knowledge dissemination among primary care physicians and the need for an in-person diagnosis for those who can't leave the house are two major challenges.

This!! #LongCovid

These people are poison. They will unleash racist thugs on the streets of this country and call it security. They will subjugate us to the US and call it patriotism. They must be stopped. There is no more important task in politics.

COVID/Climate Change. Sadly we are still here… this is the attraction of populists.

✉️ Strong Open Letter from Bull, Edwards & Crawford in response to BACME's 'Guide to Therapy' 2025. 👉 Dysregulation theory speculative 👉 Vague active therapy rec that serves BACME more than patients 👉 Deceptive jargon In essence = BACME should be shut down 🖇️ tinyurl.com/373hbbc5

1) Prof. Jonathan Edwards, Michelle Bull (physiotherapist) and Joan Crawford (psychologist) have written a open letter to the British Association of Clinicians in ME/CFS (BACME). They argue that new BACME guidance has "no evidence base and will perpetuate outdated practices"

Muss die über die Kubicki-Sache nachdenken, weil sich selbst als progressiv verstehende Psychosomatiker*innen Leuten wie mir vorwerfen, "biologistisch" zu sein, und Körper-"Geist"-Dualismus zu betreiben und sich daraus wahrscheinlich wieder für einige ergibt, dass die Psychosomatik recht hat 😵‍💫 1/

Social Media Verbot für schwer chronisch kranke Kinder wie mit ME/CFS bedeutet übrigens den Verlust jeglicher sozialer Teilhabe. Die liegen dann einfach ohne jeden Kontakt zu Gleichaltrigen in ihren Betten. Nur um das auch nochmal ergänzt zu haben.

“Kafka pursued the relentless hope that the next sanatorium would enable him to live his life with more strength and less pain. We associated the word “Kafkaesque” mainly with politics; this might be because we have forgotten about tuberculosis.” 😮‍💨 (This reads like how many suffer from Long COVID)

Clip 2 from Austrian TV report about Samuel ME/CFS was largely ignored in Austria until Covid. The hallmark symptom is that exertion can make the illness worse. Many doctors are completely unaware, even though patients have been saying this for decades. #MECFS #LongCovid

An ICE style agency should be enough to make any person not vote for Reform. Trumps policies are causing suffering and harm to many people. This is their only policy. Then they want to destroy the equality act and ECHR. No civilised country would behave this way.

In the past FOR WHOM?? #LongCovid