The Long Covid groups are calling for: 1. Proper data on how Long Covid affects work and income 2. Economic and welfare policies that reflect the realities of Long Covid 3. Lived experience to be built into decision-making

‚I can‘t keep pretending anymore‘. It shouldn’t feel this unusual to hear somebody actually say all this out loud. Can the media please take a leaf out of his book. We need to hear this again and again and again.

@emendenhall.bsky.social Can I just point out that in Chapter 4 of the e-book ‚Invisible Illnesses‘ there is a factual error - ulcerative colitis is called a form of irritable bowel syndrome or IBS, in fact it is a form or INFLAMMATORY bowel DISEASE, or IBD - an important distinction

#LongCovid This article got me thinking…

Official response from the German federal minister of health Nina Warken to Robert F. Kennedy jr.

#LongCovid #ME There is a new book out called ‚Invisible Illness: A History, from Hysteria to Long COVID‘ by the anthropologist Emily Mendenhall. Her starting point is the ‚crip term‘ ‚bodymind‘. For anyone wanting to read this book, here some context:

#LongCovid #ME There is a new book out called ‚Invisible Illness: A History, from Hysteria to Long COVID‘ by the anthropologist Emily Mendenhall. Her starting point is the ‚crip term‘ ‚bodymind‘. For anyone wanting to read this book, here some context:

#NHS www.theguardian.com/society/2026...

@lisanoren.bsky.social @stenhelmfrid.bsky.social @bmhughes.bsky.social @davetuller1.bsky.social Some Swedish researchers are hard at work to revive the pseudoscience of "illness prone personality" of Eysenck, now considered unsafe, as well as the BPS model (hysteria), applied for long covid & ME.

Related to Eysenck’s theory of illness prone personality, it has been known for a while it was based on fraud, but only recently his studies were deemed unsafe and retracted. But his ideas linger in some corners of research. retractionwatch.com/2025/12/03/n... journals.sagepub.com/doi/10.1177/...

The World Health Network’s open letter to WHO, signed by over 2,300, calls for respirator use as the standard in healthcare to protect patients and staff. Read here: whn.global/a-call-for-t... The letter emerged from work initiated through the Unpolitics meeting last year.

Over the last five years of working on #LongCOVID “we were to some extent reinventing the wheel and finding things out that people had talked about in ME for years before and felt they hadn't been listened to” Professor Danny Altmann on BBC Inside Science #MECFS

Brilliantly revealing article. Women! Witches! HYSTERICAL in BOLD It would be laughable - if we were really further on 56 years down the line… #LongCovid #ME

#LongCovid 1/2

‚When their moods were good (…) they usually felt better. But which comes first? Do they feel better because their mood improves, or does their mood improve because they feel better? The researchers say they don't know.‘ I wonder if they asked the patients 🙄 #ME

Danke Prof Scheibenbogen @scheibenbogen.bsky.social und Prof Schomerus @geschom.bsky.social #LongCovid #ME www.dgn.org/mediathek/vi...

So, if the viruses don't get us, the heart disease will.

There's a new, really important preprint looking at how well the current seasonal flu vaccines induce antibodies against the current H3N2 variants (subclade K), driving the massive surge in infections. Let's look 🧵

‚Pläne? Ein Luxus‘ Man kann nur Pläne machen, wenn es eine realistische Chance gibt, dass man sie einhalten können wird… #LongCovid #ME

Letter about the Richmond 2nd December 1988 article from Celia Wookey. GP Magazine, 6th January 1989. #myalgicencephalomyelitis #myalgice #mecfs

Keine neuen Erkenntnisse, aber trotzdem wichtig, es in Erinnerung zu rufen. ▶️ #POTS kann chronisch und deutlich beeinträchtigend sein. ▶️ Es kommt häufig zu Fehldiagnosen und langer Dauer zur korrekten Diagnose. ▶️ Und es muss behandelt werden! www.autonomicneuroscience.com/article/S156...

Viele Texte aus der Rubrik „Klassische Mythen“ sind jetzt auch in leicht verständlicher Sprache verfügbar! www.geschichte-statt-mythen.de/Einfache-Spr... #Geschichtsrevisionismus #GeschichteStattMythen #FakeHistory #LeichteSprache #Barrierefreiheit

The Guardian, UK. 6th January 2023. #longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs

Information from 2 large NHS ICBs (Grtr Manchester & Derbyshire) in the 2025 NHS GP Patient Survey: ~5% responded to say they thought they had Long Covid, and a further ~10% were not sure. That's *huge*. Particularly concerning as ICBs are now *cutting* services.

‚I also spent every day for over two years conscientiously following the article's advice to pursue activity (…). It seemed to me, as a doctor, that this was the logical way to recover from a debilitating post viral state, but it did not work.‘ IT DID NOT WORK. 1989. #LongCovid #ME

"Being physically able to walk a 5k should not be a prerequisite to be able to travel by air." THIS! Also even more people have POTS, MECFS and new disabilities now thanks to long covid.

A great article with ideas how to make airports/flying more accessible for people with mobility issues - in stark contrast to the bout of recent articles shaming people using special assistance at airports. They had succeeded in me feeling uncomfortable and judged for having to use it. #LongCovid

Ein aktueller Überblick zur Rolle von Ivabradin bei #POTS. Die Evidenz ist (noch) eher dünn, und trotzdem ist es im Sinne von Therapieversuchen wichtig, korrekte Diagnostik zu machen. Gerade auch bei #MECFS und #LongCovid. journals.lww.com/cardiovascul...

1/ Excerpts of a thread shared on X, by @resiapretorius.bsky.social, on a recent preprint that examined "pre-pandemic #POTS and #LongCOVID, using deep analysis of the insoluble microclot fraction of blood" - threadreaderapp.com/thread/20063...

Eine neue Studie von Forschern der Harvard University und des Beth Israel Deaconess Medical Center liefert Erkenntnisse darüber, warum manche Menschen sich nie vollständig von COVID-19 erholen. Menschen mit Long COVID weisen im Vergleich zu Genesenen einer SARS-CoV-2-Infektion …

1) 🇸🇪 A Swedish study of 111 ME/CFS patients found reduced levels of vasopressin, a hormone that regulates water retention. Low vasopressin could lead to low blood volume and some of the orthostatic symptoms that ME/CFS patients report.

There‘s nothing better than a bit of history to gain perspective on the present 😃

#LongCovid #ME

Guter Artikel zum Buch - aber warum das Bild, das Masken tragen lächerlich macht (total beschlagene Brille, echt jetzt?!) #LongCovid 1/3

Brilliant - the profound versus the profane 😂 www.theguardian.com/travel/2025/...

More on integrity in public life… www.theguardian.com/us-news/2026...

Interesting finding from #LongCovid study by a CDC team “Our finding that a lower MVPA [moderate-vigorous physical activity] level was associated with more improvements in outcomes in the long-term seems to suggest some benefit from reduced activity.” formative.jmir.org/2025/1/e77644 #PostCovid

Respect. Declining an offer of personal recognition and using it to highlight the plight of disabled people, many of whom have no voice. That’s integrity. We need so much more of it in public life. Disability charity chief condemns UK government as she rejects MBE www.bbc.co.uk/news/article...

The ‚choices‘ Americans have to make in relation to healthcare insurance. ‚Choosing‘ not to pay for healthcare insurance ‚we barely use‘ - in effect gambling that you won‘t get ill. Anyone can get ill. Terrifying. Americans brace to start New Year without healthcare www.bbc.co.uk/news/article...

Beginnen wir 2026 mit der wiederholten Erinnerung an die Stakeholder, dass #MECFS eine in allen Aspekten beeinträchtigende Erkrankung ist. Manche medizinische, präventive und soziale Maßnahmen könnten aber schon *jetzt* helfen. Man muss nur wollen. journals.plos.org/plosone/arti...

A big thank you to everyone who did anything, big or small, for the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome +/or Long Covid cause in 2025 (including simply sharing messages on social media). 👏 Together we can make a difference. 👍 #MEcfs #LongCovid

1) We’ve just published our review of the most interesting ME/CFS studies of 2025. It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS. A brief overview of the studies that caught our eye.

#LongCovid #ME

For me as a ‚foreign medic‘, one of the most rewarding aspects of working in the NHS has been the opportunity to meet people from around the world. Where else do you get such direct exposure to so many other cultures. Shame on those who want to destroy all that. www.theguardian.com/society/2025...

Not directly about #LongCovid, but relevant… www.theguardian.com/lifeandstyle...

Elke Hausmann @drelke.bsky.social on Exercise and “The Salt Path” bjgplife.com/what-does-th... Screenshot from AMMES December 2025 newsletter #LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

After a hard day's work putting up the Christmas lights - the reward! Turning them on. We will never forget our lost loved ones. ❤️

Reading this excellent book by @bmhughes.bsky.social , particularly Part III is highly recommended to anyone with an interest in #LongCovid and #ME, with @georgemonbiot.bsky.social getting more than one mention 🙏

1) This factsheet for medical professionals received a lot of response and discussion. Some people felt it was dismissive of several findings in the ME/CFS field, so I want to give some more background and context.