Stonebird books on severe ME and caring now available to download for free Screenshot from Stonebird Facebook page (of Greg & Linda Crowhurst) stonebird.co.uk #MyalgicEncephalomyelitis #SevereME #SevereMECFS #SevereCFS #VerySevereME #PwME

The planned establishment of a #LongCovid outpatient clinic at the University Clinic for Psychiatry and Psychotherapy at Vienna General Hospital (AKH) will not be approved. AKH Vienna announced this on Monday afternoon in response to an APA inquiry." What a good, wise decision! #MECFS #PEM

To paraphrase Bob D: “You don’t need a track app to know that you are in a crash…” #PEM #pwME #ME/CFS

Everyone with a diagnosis of #ME #LongCovidME and every clinician working with these patients should have the right to this information (below). Why is it being withheld? Everyone knows neglecting cancer is extremely dangerous. Everyone with #ME deserves to know the same.

Impaired brain intrinsic connectivity in long COVID during cognitive exertion revealed by independent component analysis www.nature.com/articles/s41... "widespread nature of LCov connectivity abnormalities supports a hypothesis #longCOVID derives from brain-wide deficits” #NeuroPASC #CovidBrain

"LEARN about ME" This appeal from Mila Hermisson was the focus of our CME for the Austrian Society for #ME/CFS, designed in collaboration with @sabinehermisson.bsky.social. Severely ill with #MECFS, Mila traces words with her fingers, which her parents translate: Learn about ME.

🧸 Study recently connected “chronic absenteeism” to pediatric Long COVID 🩸 Study found that IgG isolated from people with ME can destroy mitochondria in endothelial cells 🧠 ADDRESS-LC (assessing Bezisterim), has opened two more study sites #LongCOVID research updates: bit.ly/464c7Eh

WelcoME to a life with ME aka #ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)[1] is a complex, chronic, multi-system disease that significantly impairs one’s function and quality of life.[2] From @physio-pedia.com More resources here: @physiosforme.bsky.social

Why covid-19 is “a vascular disease masquerading as a respiratory one” Rapid Response to BMJ 2026; 392 doi: doi.org/10.1136/bmj.... (Published 09 February 2026) Nicola J. Boyd

What COVID-19 Does to the Body (10th Edition, February 2026) www.panaccindex.info/p/what-covid... Via @panaccindex.bsky.social

One day maybe medicine will realize that what are now called mental diseases, are in fact due to systemic inflammatory processes which affect the brain and everything makes much more sense if the medium & long term sequelae of all infections are accounted, researched and treated… New-Onset OCD and

More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...

[TW Unpopular Opinion] I'm not sure that making certain training modules "mandatory" is necessarily the right thing to do. Often the problem is a lack of basic *core* training because of entrenched views and stigma, and a lack of any basic services. Those issues need addressing first.

The Mestinon/LDN Life Improvement Trial (LIFT) is seeking eligible research participants now within 300 miles of Brigham and Women’s Hospital at Harvard Medical School. Learn more about the LIFT: https://clinicaltrials.gov/study/NCT06366724

Leonard Cohen - Everybody Knows (Official Audio) Everybody knows that the dice are loaded Everybody rolls with their fingers crossed Everybody knows the war is over Everybody knows the good guys lost Everybody knows the fight was fixed The poor stay poor, the rich get rich That's how it goes

This is potentially not good for #pwME in light of this possible pathoMEchanism: www.meresearch.org.uk/overview-of-... Key Pathophysiological Role of Skeletal Muscle Disturbance in PASC & #ME/CFS: Accumulated Evidence @scheibenbogen.bsky.social et al. Feb 2025 pubmed.ncbi.nlm.nih.gov/39727052/

2 of 2 Myalgic Encephalomyelitis: International Consensus Criteria (ICC) - Adult and Paediatric #PwME #MyalgicEncephalomyelitis

Myalgic Encephalomyelitis: International Consensus Criteria (ICC) Adult and Paediatric #PwME #MyalgicEncephalomyelitis 1 of 2

"Because the world is so full of death and horror, I try again and again to console my heart and pick the flowers that grow in the midst of hell." Herman Hesse

I’ve cared for young women dying of cervical cancer. It’s devastating and largely preventable now with the HPV vaccine. When a vaccine prevents cancer, the question isn’t whether to re-examine it, it’s why would we hesitate? #medsky #oncsky #obgynsky

Dr. Jarred Younger explains E. A. Worthey’s lab latest eye opening research paper: A precision approach to understanding #ME/CFS Uncovering the genetic architecture of ME/CFS: a precision approach reveals impact of rare monogenic variation link.springer.com/article/10.1... @lizworthey.bsky.social

"I remember the newspapers dying like huge moths." -*Fahrenheit 451*

Erst kommt das Fressen, Dann kommt die Moral. Happy Birthday Bertolt Brecht!

HYPOTHESIS AND THEORY article Front. Physiol., 01 February 2026 Sec. Striated Muscle Physiology The potential causes of myasthenia and fasciculations in severely ill #ME/CFS patients: the role of disturbed electrophysiology Klaus J. Wirth Klaus J. Wirth, Jürgen M. Steinacker

Uncovering the genetic architecture of #ME/CFS: a precision approach reveals impact of rare monogenic variation Results Findings revealed marked genetic heterogeneity, including large-effect rare and more common variants. Implicated pathways included ATP generation, oxidative phosphorylation, fatty

The German Accident Insurance (Deutsche Unfallversicherung) forces people with #MECFS to undergo diagnostic tests as part of the evidence gathering process for expert opinions, tests that can be extremely harmful to the patients – my exclusive investigation @riffreporter.bsky.social is available ⬇️

Things are not as easily understood nor as expressible as people usually would like us to believe. Most happenings are beyond expression; they exist where a word has never intruded. Rilke, Letters to a Young Poet

In a cohort of 3305 patients, neurological symptoms were reported in 35.4% cases.3 A recent longitudinal study further demonstrated that patients with long COVID may experience heightened neurological risks that remain for 2 years.4 Notably, several of these neurological symptoms resemble those

A harrowing account of applying for care funding for severe ME #LongCovid #ME

As Karen points out in her blog, the lack of (or extreme difficulty obtaining) CHC funding for people with very severe ME is another failure of the #MEDeliveryPlan. The Plan simply does not mention it. Astounding. 😖

Super Bowl viewers Sunday speculated that 5-year-old Liam Conejo Ramos appeared in the halftime show. In fact, he has been in hiding with his family. “He can’t sleep well at night. He wakes up three or four times a night screaming, ‘Daddy, Daddy,’” Liam's father Adrian Conejo Arias, said.

1/ ProPublica collected handwritten letters in mid-January from children held at the Dilley Immigration Processing Center, the same facility where 5-year-old Liam Conejo Ramos was taken. Hundreds of kids are still detained. We’ll let the children’s words speak for themselves. 🧵

6/ “When I arrived every night I cried and now I don’t sleep well, I felt that being here was my fault and I only wanted to be on vacation like a normal family.” 9-year-old Maria Antonia Guerra Montoya, detained on her way to Disney World, spent 113+ days at Dilley.

"Addressing these legacies is, we believe, essential not just for the health and well-being of patients and providers but for the credibility of medicine itself." https://lareviewofbooks.org/article/medical-education-yale-university-american-eugenics-society-legacies/

“Collection of Handwritten Letters from Children in Detention Center” sounds like an exhibit in the Holocaust Museum.

New analysis links flu vaccination to 18% lower odds of heart attack The findings of the meta-analysis draw on data from more than 23 million people. www.cidrap.umn.edu/i...

This appointment took place in 2021. Looking back, the situation infuriates me. I cannot comprehend how, at nineteen years old, I was expected to eloquently articulate an experience which often lies beyond the powers of language. Havi Carel, a philosopher who studies illness through a

FOI response shows uptake of ME/CFS e-learning from the government delivery plan: • Intro: 371 • Community care: 101 • Severe ME: <50 From a workforce of ~188k doctors & ~423k nurses This is the problem when training is “promoted” and not mandatory.

This study is so well done and I can't wait to see the results. Highly encourage people with ME and those who provide health care for them to participat: restandmecfs.com

Wow. 733 measles cases so far this year. At this rate, 2026 will far exceed 2025, the worst year for measles in decades Only 6 cases this year were imported from abroad. This is a domestic problem that will grow FAR worse when the babies going unvaccinated on RFK's watch admin go to kindergarten.

SMH. RFK's CDC measles dashboard has a lead image of flights coming into the US from abroad -- as if other countries are to blame for our skyrocketing measles numbers. >89% of cases last year were home-grown and >92% of cases this year. This is a US problem that needs domestic solutions.

Previous infection with a common childhood virus could carry clues about lifelong health. A recent Nature paper describes a novel method used to analyze genetic and health data from 750,000 people, including 245,000 AllofUsResearch program participants, to learn why some people develop certain

Conclusions The findings support #ME/CFS as a complex neuroimmune and autonomic multisystem disorder and demonstrate that symptom clusters map onto functional (as in organic) biological systems. Mechanism‑aligned symptom subgrouping may facilitate pathophysiology‑guided diagnostics, stratification,

By the 17thC, painting citrus with fidelity was a quiet test of skill. That lineage runs to still-lifes by Eliot Hodgkin: modest things, directly centered and made with restraint but with vibrant colour. This from 1971.

ME initiatives across Europe Spain’s Neglect of Myalgic Encephalomyelitis Is a National Disgrace Across Europe, governments are finally beginning to take myalgic encephalomyelitis (ME) seriously. Iceland has launched a dedicated working group for ME, Long COVID, and POTS. Switzerland is building a…

Our study identified significantly elevated glutamate and N-acetyl-aspartate levels in long COVID and #ME/CFS patients compared with healthy controls. No significant differences in brain neurochemicals were observed between the 2 patient cohorts, suggesting a potential overlap in their underlying

Researchers can now apply: The ME/CFS Research Foundation is launching its Research Funding Programme 2026. 🇩🇪 €2 million for biomedical #MECFS research in Germany. Application deadline: April 30, 2026. 🔗 mecfs-research.org/researchfund...

Fascinating preliminary finding: Correa-da-Silva et al. see a near-complete loss of CRH-neurons in 5 postmortem brain samples of people with #MEcfs, not seen in many controls. A corresponding loss of cortisol in the cerebrospinal fluid was also observed. www.youtube.com/watch?v=30Dk... (7-13mins)

2) The focus of the call is on: - Disease mechanisms behind key ME/CFS symptoms such as post-exertional malaise (PEM) - Biomarkers for diagnosis and prognosis - Innovative, disease mechanism-targeted drugs and treatment approaches

1) 🇩🇪 Scientists and clinicians based at institutions located in Germany can apply for the 2026 research funding programme of the ME/CFS Research Foundation. €2 million is available for new research projects. The deadline for submitting proposals is 30 April 2026.