Steroid hormone profiling reveals altered adrenal androgen production in endometriosis We performed steroid androgen profiling to measure androgen concentrations in serum from healthy controls and women with laparoscopically confirmed endometriosis. We found that women with endometriosis had a

Most #pwME are undiagnosed or wait years to get diagnosed. Even those who have been promptly diagnosed, frequently are not properly advised a/o supported to avoid #PEM like the physiological & cumulative plague that it is. Extreme pacing is the only #ME/CFS #ICD-10G93.3 #G93.32 #ICD-118E49

Do people with ME know this is what you’re supposed to do? That if you’ve reduced your activities enough, you shouldn’t have symptoms?: “stop all activities, rest intensively until they are symptom-free, and then dose everything they do to prevent the symptoms from returning.”

Among 595 participants (median age 46 years [IQR 38–56]; 73% female), 341 (57%) reported ocular symptoms. Pre-pandemic comorbidities were similar between groups. Participants with ocular symptoms had lower EuroQoL visual analogue scale health scores (median 40 [IQR 30–59] vs 51 [IQR 39–70],

Implications of RNA virus persistence for post-acute sequelae and chronic inflammatory syndromes Here, we review advances in our understanding of the mechanisms driving the persistence of viral products and viruses traditionally considered to cause acute infections, as well as emerging evidence

🎉 Big news: for the first time since 2003, #MECFS will be inc as a separate condition in the Aust Burden of Disease Study in Dec 2026. Being counted matters, and this milestone helps drive recognition, policy, funding & research. Read our press release: zurl.co/LaHJa#MECFS #CountME #EmergeAustralia

Cricket, warm beer and excess mortality are the markers of national character. This week's column is about the ignorance, snobbery and cruelty in the billionaire press, triggered by last week's heatwave. And about the grim condtions children now face in schools. www.theguardian.com/commentisfre...

It's a collective psychopathy, which treats disabled people, elderly people and people with long-term conditions as disposable. We see it in the Covid-19 pandemic. We see it in the heatwaves. Their deaths are inconvenient reminders that a favoured policy is disastrous. So they must be dismissed.

After I wrote last week's column, I learnt that a neighbour with severe disabilities, an extremely tough & resourceful woman who lived to the full, died in the heatwave. Everyone here is devastated. I can scarcely express my anger towards a mindset that treats people like her as collateral damage. 🧵

Maeve was forced to limit her activities by the progression of the disease. If, as soon as the ME began to manifest, she had received current medical advice and medical treatment for orthostatic intolerance, she would have known that she had to limit her activities to prevent further progress from

Bob Dylan Performs in Greenwood, Mississippi - July 6th, 1963 (Audio) youtu.be/1ydtKh3NJ7Y?...

As part of the consortium, Fraser and Western computer science professor Mark Daley and their teams will investigate changes across immune function, metabolism, hormonal regulation and mitochondrial activity – namely the processes that cells rely on to generate energy. #ME/CFS #pwME

“This @horizoneu.bsky.social grant is a very welcome milestone in ME research and will for the first time provide the support needed to develop collaborative multidisciplinary research across Europe for the benefit of patients.” 💬 Professor Simon Carding

🆕 New study to seek out microbial triggers of ME/CFS Our researchers are launching a new study funded by @investinmeresearch.bsky.social into the links between Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and infectious microbes. buff.ly/3LONWa9

Sis Months In: Here Is What We Have Built Togerher #ME/CFS #LongCOVID @meactnet.bsky.social @exceedhergrasp1.bsky.social @grachstephanie.bsky.social www.meaction.net/post/six-mon...

What is MySuppleHub? MySuppleHub is a community-driven supplement encyclopedia that pairs neutral, research-backed summaries with real, anonymous experiences from people taking the same supplements as you. HT Mike Snyder PhD (Stanford) mysupplehub.org#/

I am incredibly proud to announce that I have been named a winner of the 10x Genomics Clinician Researcher Accelerator Program. Securing this award is a massive personal and professional milestone. This backing is pivotal for my ongoing research at the ME aka #ME/CFS Research Clinic (MERC) and the

Learn more about @disabilitypolicy.bsky.social and submit a policy piece! Produce Policy. Build Power. www.disabilitypolicyfoundry.org

Growth has failed to eradicate poverty or to promote wellbeing. Poverty is not inevitable. It is manufactured. Our op-ed with @deschuttero.bsky.social @jayatighosh.bsky.social @thomaspiketty.bsky.social @kateraworth.bsky.social @jasonhickel.bsky.social www.theguardian.com/commentisfre...

Poverty is a policy choice that starts with how we design our tax systems. In @theguardian.com, #ICRICT co-chairs @josephestiglitz.bsky.social & @jayatighosh.bsky.social and commissioner @thomaspiketty.bsky.social join 350+ signatories: rewrite the rules that manufacture poverty. #TaxJustice

Research Appreciation Day 2026 – Research Highlights from. @meresearchuk.bsky.social 5 July 2026 Since the last Research Appreciation Day on the 5th of July 2025, researchers involved in ME Research UK-funded studies have made great strides in their work, including: #ME/CFS

The NHS was founded 78 years ago today. It was built after the devastation of the Second World War when the country was bankrupt - but when the people demanded a society built on fairness and dignity for all. Today, we must defend the right to healthcare and rebuild our social security system.

1) An overview of positive developments in ME/CFS research 👇 The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent. bsky.app/profile/mecf...

Evelien’s story nmcb.eu/stories/evel...

Thank you to Evelien and everyone who worked so hard to help make this possible. Read more: europeanmecoalition.com/e-7-5-millio... Full speech: youtu.be/zcPmrIqK4hs?...

Nearly 7 years later, the EU has awarded €7.5 million to a major #MECFS biomedical project. The result of years of advocacy from a small group of patients, organisations, researchers and supportive MEPs.

“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.” Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019.

#LongCovid #ME bjgplife.com/the-long-tai...

“My understanding of ME aka #ME/CFS was shaped by that book and the subsequent dearth of training in this condition, but my experience over the last 6 years has radically altered my perspective. I have been confronted with symptoms that I wasn’t prepared for at all through my medical training

@vincentvanunen.bsky.social thank you for the follow, I’m so glad to reconnect w/ researchers like you here 🦋 Also, FYI Gastrointestinal symptoms correlate with core clinical features and systemic inflammation in myalgic encephalomyelitis/chronic fatigue syndrome link.springer.com/article/10.1...

Excited to share our new paper in @mucosalimmunol.bsky.social ! How do CD4 T cells behave directly inside inflamed intestinal tissue in IBD? Find out below 🧵! paper: sciencedirect.com/science/arti...

Preload failure and small fiber neuropathy are associated with persistent dyspnea following acute pulmonary embolism: Insights from invasive cardiopulmonary exercise testing More recently, growing data from invasive CPET (iCPET) identifies reduced right atrial (RA) filling pressures and impaired

Brain’s waste-clearing ability impaired in #ME/CFS patients The brain’s waste clearance system is impaired in people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) which can lead to various symptoms including brain fog, Griffith University researchers have discovered 🇦🇺

The Akureyri Clinic, in collaboration with Landspítali – The National University Hospital of Iceland, is participating in a major European research project on ME. 🇮🇸 #ME/CFS #pwME @mefelag.bsky.social @nikosuvisto.com @horizoneu.bsky.social

I think the significance is that gastrointestinal symptoms should not be viewed as merely incidental in #ME/CFS. In addition to the strong difference in IBS prevalence, GI symptoms were in general far more frequent and more severe in ME/CFS patients than in controls. That does not mean every person

Women doctors against war – some pioneers: Medicine, Conflict and Survival: Vol 42, No 1 www.tandfonline.com/doi/full/10....

– Not buying it. I crossed the road yesterday and I was fine. #longcovid #postcovid #ableism #satire

– Our door is always open! #longcovid #postcovid #ableism #accessibility #satire

June round-up. This month’s scribbles from the wayside. #longcovid #ableism #satire

– Surely you had pre-existing conditions? #longcovid #ableism #satire

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity Highlights Lower within- and between-network connectivity on MRI in post-COVID individuals. Lower connectivity in patients with high neuroinflammatory activity on PET. Lower connectivity in

SICK & LEFT BEHIND What's the state of care in 2026 for people with #ME/CFS and Long COVID in Berlin 🇩🇪? We asked our community and received over 150 responses in less than 48 hours. We're breaking down 1063 answers, in German and English: this is an emergency signal. survey26.berlinbuyersclub.com

iPSC-Derived Myogenic Progenitor Cells from People with ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential Dao Nguyen School of Medicine, Deakin University orcid.org/0000-0002-24... #ME/CFS #iPSC-DerivedMyogenicProgenitorCells assets-eu.researchsquare.com/files/rs-100...

☀️ As The Sick Times approaches our 3-year anniversary, we’re shifting from a startup to a more sustainable newsroom, in it for the long haul. And we’re marking that shift with a summer sustainability fundraiser. 🌱 2 weeks, 200 new Supporters? Help us grow? the-sick-times.fundjournalism.org/donate/

This is the full piece by @sunsopeningband.bsky.social @thesicktimes.org thesicktimes.org/2026/06/12/w...

Thank goodness there's an outlet dedicated to Long Covid while the media (including me) has moved on for various reasons, eg this from @sunsopeningband.bsky.social "When our understanding of a disease lags far behind the need for explanations, biology becomes a matter of one’s own perception."

iPSC-Derived Myogenic Progenitor Cells from People with #ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential www.researchsquare.com/article/rs-1...

Exploring differences in protein cargo of extracellular vesicles from ME/CFS patient plasma compared to healthy controls #ME/CFS #pwME #EVs www.sciencedirect.com/science/arti...

Tryptophan Metabolism and Aryl-Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #ME/CFS #Dysbiosis #Tryptophan onlinelibrary.wiley.com/doi/10.1002/...

Deficient TRPM3-linked mitochondrial Ca2+ influx in natural killer cells associated with myalgic encephalomyelitis/chronic fatigue syndrome #ME/CFS link.springer.com/article/10.1... Conclusion The results demonstrate that altered TRPM3-mediated cytosolic Ca2+ influx may significantly impact Ca2+