💙 We have had a pretty intense #longcovidawarenessmonth so will be having a quiet few weeks to recoup If you missed our advocacy: 🎙️a super talk with @putrinolab.bsky.social on Medical Education 🎁 a gift of a medical binder to you 📣 podcast with @quietriotpod.bsky.social Catch up with links👇

Hundreds of thousands of disabled people will have their benefit almost halved if the government assesses their condition might one day improve. Charities warn the move could cause large-scale hardship, including “destitution.” My report in tomorrow’s Guardian: www.theguardian.com/politics/202...

Huge thanks to Claire @longcovidadvoc.com for this excellent & hugely important @quietriotpod.bsky.social episode on #LongCovid where #ME is also frequently mentioned Big thanks also to @mrkennycampbell.bsky.social for his interest & understanding, we need more journalists like him #pwME

Extremely glad we managed to shine a light on this disease which could easily affect any of us. Please do have a listen 🎧 👇

🙌 Fab interviewing from Mr Kenny Campbell. 🎧One to listen too on @quietriotpod.bsky.social as we come to an end of #longcovidawarenessmonth

To mark the end of Long Covid Awareness month, we spoke to someone living with it and campaigning to be heard.

To mark the end of #LongCovidAwareness month Claire from LCA talks on a special Long Covid edition of @quietriotpod.bsky.social We cover PEM, POTS, ME, History, Hysteria, Ventilation, Clinics, Covid Inquiry, Impact on children & more! 🖇️👇

The layers of harm the biopsychosocial model has done to patients, medicine, families & society is profound Excellent clip 👇

This week we were informed by DHSC, alongside other organisations, that DHSC and NHS England have delayed discussions on commissioning a specialised service for very severe ME until April 2027. This means yet another year without NHS care for people with very severe ME. (1/3)

🙌 Good to see mainstream acknowledgement that viruses cause long-term health issues "we are beginning to realize that there is this whole world out there that we had absolutely no insight into.” #longcovid time.com/article/2026...

📖 ONE 2 READ: Excellent article on the pioneering work of @cvcev.bsky.social 👉 How they changed the culture, practice & output of the #covidinquiry They modelled masking & didn't wait for permission Outstanding advocacy 💙

💙 Our condolences to David J Black's family after his passing. Obituary about his life below. His writing about ME was top notch, please see his articles on the Scottish Legal site 👇 We hope his book on ME can still be published post-humously www.scottishlegal.com/articles/dav...

Today is 9-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from #CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial Free: researchgate.net/publication/... #MEcfs #PwME

🧵1/The UK COVID-19 Inquiry has confirmed something many have been saying since 2020: COVID-19 is spread through the air. This matters. Because how we understand transmission determines how we protect people. LCA Press Release: www.longcovidadvoc.com/covid-inquir...

📺️ Fascinating Clip on how Politics, Health Sector and Medical Education intersect with @zackpolanski.bsky.social 💚 @dramirkhangp.bsky.social rightly points out that pressure is needed from policy to institute change in medical education. You can check out our interview 'On Medical Education' 👇️

💚 Thank you to @zackpolanski.bsky.social and @dramirkhangp.bsky.social for discussing Long Covid on @boldpolitics.bsky.social for #LongCovidAwarenessMonth Excellent discussion that includes the lack of care & investment for people with Long Covid, ME, Fibro and other complex illnesses 🖇️Full clip👇️

Reminder of this excellent resource bringing together the growing scientific literature on Covid - it has a search function, if you are interested in any particular aspect #LongCovid www.ncbi.nlm.nih.gov/research/cor...

⚡️Right to Try⚡️ One key change @putrinolab.bsky.social would make if he had a magic wand would be prescribing freedom, especially in countries like the UK & Australia, for off-label meds. Full interview 'On Medical Education' 🖇️ 👇️ #LongCovidAwarenessDay

⚡️Every Infection Matters⚡️ Here @putrinolab.bsky.social talks about the: 🔹impact of each viral hit 🔹how the longevity gurus are missing this key factor 🔹the impact on students in his class Full vid 'On Medical Education' 🖇️ 👇️ #LongCovidAwarenessDay

⚡️Long Covid is not disappearing! We still need prevention, action and research. 📺️ Full interview with @putrinolab.bsky.social 'On Medical Education' 🖇️ 👇️ #LongCovidAwarenessDay

We are aware #LongCovidAwarenessDay isn't the easiest of days. So instead of asking you to do anything we thought we'd give you a present! 🎁 You can download for FREE our medical binder here 👇 🖇️https://www.longcovidadvoc.com/toolkit

Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

⚡️The power of medical education! 30% of clinicians thought Long Covid wasn't real. After 90 mins of @putrinolab.bsky.social class 0% thought it wasn't real! 📺️ Full video: On Medical Education 🖇️👇️ #LongCovidAwarenessDay

👩‍🔬 Preprint from Putrino, Proal, Van Elzakker + claims robust evidence that spike in gut is not immunologically inert. 🦠Spike in all but a symptomatic state signature in those with LC. 🧪25 gut biopsies 👉8 with Long Covid 👉5 healthy controls 🖇️ tinyurl.com/243szsjh

🇺🇸 The HSS has released a hub for Long Covid. 👌The good news is the Cohen Center's (led by David Putrino) Guidelines for IACI is on there! 👌More good news is that we will sharing & streaming about Medical Education with David Putrino on #LongCovidAwarenessDay www.hhs.gov/longcovid/in...

🇺🇸 The HSS has released a hub for Long Covid. 👌The good news is the Cohen Center's (led by David Putrino) Guidelines for IACI is on there! 👌More good news is that we will sharing & streaming about Medical Education with David Putrino on #LongCovidAwarenessDay www.hhs.gov/longcovid/in...

Fantastic release for #longcovidawarenessweek 🔥 Pragmatic 🔥 Insightful 🔥 Hopeful Well done & thank you to all involved 💙

Reminder: SHH-UK Long Covid Support Group 📅 Tuesday 10 March (Today!) ⏰ 11:00–12:00 A safe space for healthcare workers living with Long Covid to connect and share experiences. Join here: teams.microsoft.com/... Email [email protected] for questions or a reminder.

👭 On #InternationalWomensDay we honour the women with Long Covid and ME and allies who keep pushing for truth, research, and care. ♀️Listen to women. Fund the science.

We had a prompt response from Pulse Today this morning stating they are investigating & have temporarily removed the program by Miller. We hope they do the right thing Thank you to all who mobilised swiftly on this esp @kschnickelfritz.bsky.social @michaeltikus.bsky.social Naomi Harvey & MEFoggyDog

A member of the community @kschnickelfritz.bsky.social has written an excellent template to send to your MP about the Pulse Today Course 👇 💌 tinyurl.com/4bf386jc If you can write directly to Pulse Today email is: 📧 [email protected]

⚠️ We have serious concerns about Dr Alastair Miller running a GP course for MECFS Diagnosis & Management for Pulse Today. Miller is: 🔹ex-chair of BACME 🔹reviewer of PACE 🔹GET researcher 🔹anti-NICE 🖇️ tinyurl.com/muvtjbda 📧 [email protected]

Our new article in honour of Alice Wong purruses: 🐯 Big cat vibes 🌋 Anger as love Two key themes of her writing in 'Year of the Tiger' Roar! 🐾 tinyurl.com/5e8d7fec

Wonderful to see Dianna Cowern's @thephysicsgirl.bsky.social first video up after 3 years. Sending all our best and that she is able to continue 🙏

@sharonhodgsonmp.bsky.social has been named Secretary for Public Health & Prevention. Sharon used to be co-chair on the APPG for ME c.2020 and has tabled numerous parliamentary questions about Long Covid and ME. A positive step forward. Congratulations Sharon! See links 👇

@sharonhodgsonmp.bsky.social has been named Secretary for Public Health & Prevention. Sharon used to be co-chair on the APPG for ME c.2020 and has tabled numerous parliamentary questions about Long Covid and ME. A positive step forward. Congratulations Sharon! See links 👇

More on OMf's bold BioQuest Study 👉 1000 samples 👉 Wide omics approach 👉 Cohorts of ME, MS, Burnout, Long COVID, depression to filter out bio signals of fatigue 👉 Hope to produce 5-20 biomarkers to identify subsets 👉 Phase 1 of 3 Good article 👇

Some good news! We do (🤞) seem to be at a turning point of decent research being funded for #ME See S4ME forum post for more details: 🖇️ tinyurl.com/msbft7e6

💌 Last FREEPOST before Long Covid Awareness Day You can get gifts, & advocacy boost tools like stickers, postcards, t-shirts 😎 🖇️ longcovidadvoc.shop

📚💙 A member of our book club on Fable has set up her own space, 'Endless Horizons' for teens living with disabilities to help build community and connection. If you know a disabled teen who would be interested here is the link! 👇

Every piece of media that frames the science & perception of ME as moving on - is important. A section here on how ME predominantly affects women. Although when asked about why ME has been dismissed the psychiatrists were given a free pass. #medicalmisogyny

If someone has sent you the 'brain training' article in the @theguardian.com (yes, while Savannah is being medically abused in a UK hospital 🙁) in hope of you being 'cured' - you can send them back any one of our articles on the subject. Psychologisation 101 👇 open.substack.com/pub/longcovi...

🥪Beware if someone serves you a baloney sandwich: Bread = Lots of über praise about how they believe you, your symptoms are 'real' Filling = Then comes the psychologising! Bread = More sympathy on how the illness has been dismissed & the stigma etc. 💣 Medical love bombing is medical gaslighting.

It's nearly March which means spring book club! We will be reading the utterly brilliant book 'Unwell Women' by Elinor Cleghorn. Join us on Fable for chat & connection 💙📚 🖇️ tinyurl.com/3r2ctufh

✉️ Strong Open Letter from Bull, Edwards & Crawford in response to BACME's 'Guide to Therapy' 2025. 👉 Dysregulation theory speculative 👉 Vague active therapy rec that serves BACME more than patients 👉 Deceptive jargon In essence = BACME should be shut down 🖇️ tinyurl.com/373hbbc5

🎉 Some Good News with the launch of SEQUENCE ME & Long COVID. Led by Ponting & Birney, this bold study is exactly the direction research needs to take. More details & donation link on Action for ME website: 🖇️ tinyurl.com/mr96dxj4

#LongCovid #ME

Excellent. I make cartoons to highlight these issues because psychologising by medics who really should know better is so hard to counter. There are some key phrases in this article that I’m sure I will return to again and again.

🌟The first in our new 101 back to basics series. In this article we look at Psychologisation. If there's a topic you'd like us to cover please let us know in the comments! 🎧 Audio available 🖇️ tinyurl.com/52vthd5b

The British Association of Clinicians in ME/CFS issued a "therapy guide" last year. Very unsatisfactory. Professor Jonathan Edwards and colleagues have responded in an open letter. I spoke with Professor Edwards about it. virology.ws/2026/02/20/t...