We are in the Meningitis B outbreak area with a teen in hospital from our school. 1 family has lost their child 🥺 3 colleges affected - private school has vac for all the yr group. State schools - nope. If @UKHSA had offered national vac program?! www.theguardian.com/society/2026...

🧮 Today's running total is 628 extra signatures & 18 orgs - whoot! 🎊 Although slightly confused by the brain retraining sign up that features Garner in their book! Delusion or mole?! 💙 Thank you for your support! Still time to sign! 🖋️👇

📰 Our concerns about Garner, Chalder & Carson at #RCPsychIC in the media. "The signatories state that these concerns are not abstract academic disagreements, but issues that directly affect clinical reasoning, service design, and patient care pathways."

Big thank you to @davidtuller.bsky.social for covering our open letter and our statement in full. 🧮 Count update: 526 signatures & 16 orgs have signed 🙌 There's still time to sign! 👇🖇️

Open letter urges Royal College of Psychiatrists to reconsider psychosocial approaches: to ME/Long Covid and align future care with NICE guidance, biomedical evidence and patient expertise. Sign Here: www.longcovidadvoc.com/post/open-le...

The ME Association have signed an open letter, written by the group @longcovidadvoc.com  to the Royal College of Psychiatrists, urging them to align with current evidence. Read more: https://meassociation.org.uk/2c77 #RCPsychIC #MECFS #pwME #LongCovid #MEAwarenessDay

Wow! Our morning total has come in another 10 orgs have signed and 175 peeps 🔥 💐 Thank you everyone! Signing link 💌 forms.gle/UCNpAs2d43yd...

Excellent letter. Thanks to all those involved. #MEcfs #LongCovid

⏰ We timed it - 28 secs to sign the open letter to the Royal College of Psychiatrists to join the modern age of medicine! #MEAwarenessDay

We are supporting @longcovidadvoc.com on #MEAwarenessDay on behalf of the #MillionsMissing & have signed their letter to @rcpsych.bsky.social You can add your signature using the link in the post below.

Please sign and share. This institution has far too much sway over a biomedical condition and is listening to the wrong people. Please help @longcovidadvoc.com make a difference on #WorldMEDay #MEAwarenessDay

🩵On #MEAwarenessDay we are sending an open letter to @rcpsych.bsky.social calling for alignment with current evidence. Supported by 20 organisations. +35 advocates, clinicians & academics! In democratic spirit we are offering a public sign-on opportunity 🔗👇️ #RCPsychIC #Garner

Guardian reports male Dr told female Hantavirus patient she was 'anxious' 🤦‍♀️ Wondering if a large proportion of medical school training is actually learning to tell women everything is anxiety? #medicalmisogyny www.theguardian.com/world/2026/m...

We show firm solidarity with the Anti-Psychosomatics Club! It's at the root of the harm for #pwME & #LongCovid Amazing to see the #liegenddemo images coming through. Our BPS 101 is nearly ready for pub! Enjoy a 🧵of protest 👇 bsky.app/profile/buec...

👉MDT integrated care is often spun as a holistic, non-harmful approach But it's often a veneer for inappropriate psychosocial framing 43% worsened Time for consultant/specialist nurse clinical care like Parkinson's "1st do no harm" H/T @bettinagrande.bsky.social

Looks like they missed the writing on the wall. Surgical masks instead of respirators for Hantavirus medical evacuation 🤦‍♀️ What could go wrong?! #HantaIsAirborne

It's too late for listening. We need ... to HEAR patients and ACT. 💙✊ It's not only doctors - it's politicians, journalists, policy makers, funders, researchers & more. We need a whole infrastructure to act & be funded. #MEAwarenessMonth

A recently published paper reported that incidence of ME/CFS peaks in adolescence and in early middle-age. I spoke with senior author Audrey Ryback, an immunologist at the U of Edinburgh, about the findings and what they might mean. www.youtube.com/watch?v=le0v...

🌱 It's the Big Spring Freepost in our store! 🛍️ Need some merch for #MEAwarenessMonth ? We have stickers, t shirts, mugs, notebooks, bags, water bottles! 👀 All profits go to ME Research UK and Polybio! longcovidadvoc.shop

📚💙 We are in the last month of reading the phenomenon that is 'Unwell Women' by Elinor Cleghorn. It has a decent section on ME! 🥳 Exciting news that we will be hosting a pod with Elinor at the end of the month. If you have a question please just add in comments. #pedanticzebra #bookclub

Excellent 🧵 Long Covid is not psychologically informed! It's: 🦠 Viral persistence 🧬 Immune dysregulation 🧠 Neurological 🫀 Cardiovascular ⚡ Mitochondrial 🧪 Autoimmunity Thanks to all the team involved.

🙌 Some good news - funding that is zeroing on on actually changing patients lives. Both Todd Park & Steve Pagliuca have family members affected by #LongCovid Donation link: polybio.org/lcci/

Elinor Cleghorn shares this image in Unwell Women. Stating that Gilman wrote one of the most important critiques of medical misogyny. That's true - The Yellow Wallpaper in 1892 #pedanticzebra /1

Grifters will grift 👋 @hodderbooks.bsky.social this deserves an urgent correction in Suzanne O'Sullivans The Age of Diagnosis.

👌Bravo Bravo Non-violent action at European Long Covid Conference with a Psychologisation agenda "We are sick, we are disabled, and we are dying because of charlatans like you." Paul Garner spotted Full translation below 👇 🧵 1/

💡 "We should be as cautious with exercise in long covid as we have come to be in ME/CFS...I don’t know how often we need to continue to put our finger on that light socket.” @sunsopeningband.bsky.social GREAT article - completely debunks those trying to push exercise 🙌

Some good news. It was a close run thing but Robert Howard missed out on being President of the Royal Society of Psychiatrists by 1.07% Being an arch friend of Wessely & vile to people with ME & LC online with clearly delusional false psychiatric views of the condition - this was a near miss.

Excellent thread. The psych/neuro lot think they have discovered the mind-body link again. If only we knew all it took was repackaged patient blame and a good publicist. Old wine, not even new bottle - rather just steam off the old label and slap on another one.

👏Excellent commentary to @BBCR4Feedback by Helen Gibson, @tedmonroe91.bsky.social & @nickyproctor.bsky.social 🧪 It also shows the power of @DecodeMEstudy in refuting stigmatising, outdated & false views of people like O'Sullivan.

1️⃣ BBC Radio 4 is framing Suzanne O’Sullivan’s perspective as “radical.” It isn’t. It’s a familiar move: when medicine doesn’t yet have answers, the problem is relocated from the body to the mind. BBCR4Feedback is covering the response to Amol Rajan TODAY at 3.30 🧵

Just a note to say we are back from our mini-break 👋 Anything of note happen, anything you'd like us to be aware of?

Thanks to our partners, and to Claire Higham for such a clear and thoughtful discussion on ventilation in schools and Long Covid. You can find it on the information section of our YouTube channel along with the full episode. youtu.be/H9-7A_O-voE?...

💙 We have had a pretty intense #longcovidawarenessmonth so will be having a quiet few weeks to recoup If you missed our advocacy: 🎙️a super talk with @putrinolab.bsky.social on Medical Education 🎁 a gift of a medical binder to you 📣 podcast with @quietriotpod.bsky.social Catch up with links👇

Hundreds of thousands of disabled people will have their benefit almost halved if the government assesses their condition might one day improve. Charities warn the move could cause large-scale hardship, including “destitution.” My report in tomorrow’s Guardian: www.theguardian.com/politics/202...

Huge thanks to Claire @longcovidadvoc.com for this excellent & hugely important @quietriotpod.bsky.social episode on #LongCovid where #ME is also frequently mentioned Big thanks also to @mrkennycampbell.bsky.social for his interest & understanding, we need more journalists like him #pwME

Extremely glad we managed to shine a light on this disease which could easily affect any of us. Please do have a listen 🎧 👇

🙌 Fab interviewing from Mr Kenny Campbell. 🎧One to listen too on @quietriotpod.bsky.social as we come to an end of #longcovidawarenessmonth

To mark the end of Long Covid Awareness month, we spoke to someone living with it and campaigning to be heard.

To mark the end of #LongCovidAwareness month Claire from LCA talks on a special Long Covid edition of @quietriotpod.bsky.social We cover PEM, POTS, ME, History, Hysteria, Ventilation, Clinics, Covid Inquiry, Impact on children & more! 🖇️👇

The layers of harm the biopsychosocial model has done to patients, medicine, families & society is profound Excellent clip 👇

This week we were informed by DHSC, alongside other organisations, that DHSC and NHS England have delayed discussions on commissioning a specialised service for very severe ME until April 2027. This means yet another year without NHS care for people with very severe ME. (1/3)

🙌 Good to see mainstream acknowledgement that viruses cause long-term health issues "we are beginning to realize that there is this whole world out there that we had absolutely no insight into.” #longcovid time.com/article/2026...

📖 ONE 2 READ: Excellent article on the pioneering work of @cvcev.bsky.social 👉 How they changed the culture, practice & output of the #covidinquiry They modelled masking & didn't wait for permission Outstanding advocacy 💙

💙 Our condolences to David J Black's family after his passing. Obituary about his life below. His writing about ME was top notch, please see his articles on the Scottish Legal site 👇 We hope his book on ME can still be published post-humously www.scottishlegal.com/articles/dav...

Today is 9-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from #CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial Free: researchgate.net/publication/... #MEcfs #PwME

🧵1/The UK COVID-19 Inquiry has confirmed something many have been saying since 2020: COVID-19 is spread through the air. This matters. Because how we understand transmission determines how we protect people. LCA Press Release: www.longcovidadvoc.com/covid-inquir...

📺️ Fascinating Clip on how Politics, Health Sector and Medical Education intersect with @zackpolanski.bsky.social 💚 @dramirkhangp.bsky.social rightly points out that pressure is needed from policy to institute change in medical education. You can check out our interview 'On Medical Education' 👇️

💚 Thank you to @zackpolanski.bsky.social and @dramirkhangp.bsky.social for discussing Long Covid on @boldpolitics.bsky.social for #LongCovidAwarenessMonth Excellent discussion that includes the lack of care & investment for people with Long Covid, ME, Fibro and other complex illnesses 🖇️Full clip👇️

Reminder of this excellent resource bringing together the growing scientific literature on Covid - it has a search function, if you are interested in any particular aspect #LongCovid www.ncbi.nlm.nih.gov/research/cor...