We continue to see lessons about post-acute viral illness not learned. We never see warnings about those who will have long-term sequelae. 'Long Flu' has been dismissed as 'not a thing' by some Drs. But ME can be triggered by a wide range of viruses. www.bbc.co.uk/news/article...

Exulansis -the moment you simply give up trying to explain the in‑between. 📖 This article gives voice to the silent struggle of families living with #LongCovid, where recognition, care and empathy often fail them. www.longcovidadvoc.com/post/exulans...

🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025): 👉 Long Covid with ME/CFS isn’t the same in women and men - biologically. 👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos. Let’s break it down layperson style 👇

🔥This is a killer quote by @tinywriterlaura.bsky.social in 'Awakened': 👉denoting when the CDC 'renamed' ME to CFS in 1988 after the outbreak in Lake Tahoe. #pedanticzebra

Many thanks to @davetuller1.bsky.social for the chance to chat about my book and its resonance with #MECFS, #LongCovid, and the war on disabled people (For those interested in reading more, pls check here: link.springer.com/book/10.1007...)

🗞️PRESS RELEASE: UK Workforce Strategy by Sir Charlie Mayfield Overlooks Long Covid, Ignoring Serious Public Health and Economic Risks. 🖇️ tinyurl.com/2rewc475

1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity. But it never mentions Long Covid. Not once. Not the pandemic either. That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇 🔗 www.gov.uk/government/p...

Anita is attempting to walk 140 miles by the end of December with Long Covid. Whilst the motivation is admirable we are seriously concerned about the impact on her health, as she is describing symptoms of PEM. www.bbc.co.uk/news/article...

There are 2 articles in the Guardian: 1️⃣ stating that exhaustion is at EPIDEMIC levels 2️⃣ "The UK’s productivity crisis is one of the biggest challenges facing our economy and long-term health conditions in the workforce are a major factor in this" 🤦‍♀️Neither mentions #LongCovid

👋 Community Help! Compiling good sources that were countering the GET/CBT narrative in ME before 2012. Any suggestions?! Can be papers, media, advocates, doctors. #pwME #MEcFS #longcovid Any boosts appreciated - 💙🔄 💬

We're kicking off our biggest fundraiser of the year by participating in NewsMatch, a national campaign to support newsrooms across the US run by the Institute for Nonprofit News. We need your help to keep telling #LongCOVID stories. Will you donate today? the-sick-times.fundjournalism.org/donate/

We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word www.scripps.edu/news-and-eve...

🎃 HALLOWEEN SPECIAL 🎃 Our shop has been tootling away & a huge thank you to those who have supported it! 🖇️ longcovidadvoc.shop

UK Covid Enquiry, article in The Mirror newspaper www.mirror.co.uk/news/uk-news... Screenshot from latest Chronic Living Therapy @chronicliving123.bsky.social e-newsletter chroniclivingtherapy.com/5-elsewhere-... #LongCovid #LongCovidKids #LCKids @longcovidadvoc.com @lammasleaves.bsky.social

We've signed. It's long past time when N95s should be the norm not the exception. Patients & staff deserve to be protected & safe.

🗞️Extract from Washington Post interview with @philippullman.bsky.social 🖋️It's still concerning the impact #LongCovid is having on writers. 🔥PEM, fatigue, pain & cognitive dysfunction are brutal companions for this vital profession. 🖇️ www.washingtonpost.com/books/2025/1...

🐦‍⬛More fantastic M.E. representation in 'Awakened' by @tinywriterlaura.bsky.social our autumn 🍂 read for the #pedanticzebra book club #booksky

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Excellent article by @martin.bagot.bsky.social that covers: 👉 How severe #LongCovid can be in children 👉 The existing culture that assumes psychological influence in poorly understood illnesses - like GWS & M.E Thank u to all who shared their story #covidinquiry 🖇️ www.mirror.co.uk/news/uk-news...

🗞️Excellent article about Johnson at the #CovidInquiry @thecanaryuk.bsky.social Covers: 👉 Neglected voices of children 👉 Downplayed dangers 👉 Rooted in psychosomatic culture of M.E 👉 Need for air filtration & prevention

@martin.bagot.bsky.social on the Covid Inquiry, LCA featured "Inquiry chair Baroness Hallett has described the impact on children as "severe and, for many, long-lasting", and the Long Covid Advocacy group has called Mr Johnson's actions as a "failure" Full article👇 www.mirror.co.uk/news/politic...

Boris Johnson Faces COVID Inquiry as Long Covid Children Demand Recognition and Accountability. He's called Long Covid: 👉 B*ll*cks 👉 Made up like "Gulf War Syndrome" It's time for answers... Our #PressRelease: www.longcovidadvoc.com/borisjohnson...

August 1995, Daily Telegraph.

Boris Johnson Faces COVID Inquiry as Long Covid Children Demand Recognition and Accountability. He's called Long Covid: 👉 B*ll*cks 👉 Made up like "Gulf War Syndrome" It's time for answers... Our #PressRelease: www.longcovidadvoc.com/borisjohnson...

🇨🇦 Canada Health, a federal dept, have released Guidance that states: 👉 SARS-CoV-2 is airborne The benefits of 👉 Respirator masks 👉 Ventilation & filtration 👉 HEPA &! Quality infection control guidance Full document 👇 t.co/TjWPnP2MPX

O'Sullivan like Wessely have the dual roles of: ⚠️psychologising illness ⚠️telling us about the 'dangers' of over diagnosis Each is vastly alienated from reality Our article on O'Sullivan 👇 www.longcovidadvoc.com/post/the-suz...

👏 Rolling Stone "We’ve been beat up and chewed up, no one’s taken account for what they’ve done, and it’s not fair, because he’s falling through the cracks,” she says of Dakota." Open access 🖇️ archive.ph/0CwNs

Some good news 🥳 The first phase of installing air filters in all London schools is underway. 🙏 Thank you to @london.gov.uk & all campaigners involved #cleanair is possible! More info 👇 www.london.gov.uk/media-centre...

URGENT (Sydney, AU): A person with very severe ME is rapidly declining (BMI 13). They need a doctor who can immediately organise jejunal feeding to stabilise them. If you can help, or know someone who can, DM us right now. Please share widely. This is time-sensitive.

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

Let's break down the failures of Gavin Williamson: 🚸 LACK OF PLANNING John Coles, former senior DfE official descibed the lack of preparation for school closures "an extraordinary dereliction of duty" /1 @ukcovid-inquiry.bsky.social

Excellent article by @bilson.org.uk & Drayak about the urgent need to withdraw the dangerous @rcpch.bsky.social FII guidance ⚠️Instead of support for complex care the system is primed for suspicion The need for co-produced evidence based frameworks is vital Campaign details👇

An interview with University of Edinburgh's Chris Ponting @cgatist.bsky.social about the PRIME project to increase ME/CFS research infrastructure; virology.ws/2025/10/13/t...

🧪 New research in paediatric #LongCovid showing microclots 👨‍🔬David Walt's lab at Harvard & Massachusetts General Hospital have devised an objective test 👇 www.researchsquare.com/article/rs-7...

The Sick Times: 'Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.' By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White thesicktimes.org/2025/10/10/v...

TW - distressing But it shows the level of hubris, privilege, denial & fabrication that exists in the higher echelons of power The Royal Colleges have been historically deeply problematic with ME To witness the same with vulnerable children to Covid is on form but v disturbing @rcpch.bsky.social

⚡ Important thread by fearless community champion George Monbiot! Highlighting the very real consequences of Simon Wessely's campaign to deny vulnerable people care. Neurodiverse people are now in the firing line 😕 👀 One to read

Media flurry about the biomarker test for ME. 🧪 It's a promising discovery stage study but what needs to be done to turn this into a validated biomarker?! 🧵 🖇️ translational-medicine.biomedcentral.com/articles/10....

The pressure is working. Labour MPs calling for a rapid review of JCVI's Covid vaccine eligibility Write to your MP with CEV's easy template 👇 www.clinicallyvulnerable.org/post/labour-...

In Elsevier's textbook 'The Scientific Basis of Fatigue' this inaugural chapter is a meaningful step forward academically for #ME Co-authored by @exceedhergrasp1.bsky.social & folk from @batemanhornecenter.bsky.social it brings in the new paradigm we need in medical education. 👏👏👏 Well done all!

On LBC, callers Ann and Annie told Natasha Devon that the rise in long-term sickness is linked to long Covid — and compared the lack of support to what people with #MECFS have faced for decades (10 mins) youtu.be/BoVpKmsTNFY?...

💙📚 Our autumn read is 'Awakened' by @tinywriterlaura.bsky.social Elliot shows her dedication to ME representation by including it on page 1 with this cracking quote. One that many of us can relate too 🖤 #pedanticzebra #booksky

😷 Amazing @specsaversuk.bsky.social ! Booked an at home eye test - requested to be told if anyone was symptomatic. A lovely lady said the opticians carry masks & OFFERED that they mask! In shock! Respect • Protection • Validation It's not that hard!

🙌 It was reassuring to be part of a National Stakeholder Meeting with @johnmcdonnellmp.bsky.social today with a: 👉 full, fabulous room of brilliant advocates 👉 expertly led by Dr Rae Duncan. Key issue - how do we overcome the bureaucratic refusal to act on reducing the risks of Covid? 💡Ideas?!

Simon Wessely doing what he does best: 👉 Saving the government money by giving authority to manipulating diagnoses so benefits, care & responsibility can be avoided. The reality of the ground of trying to get dx/care for ADHD/ASD is a nightmare www.pslhub.org/blogs/entry/...

📺 Important clip from the Covid Inquiry from @cvcev.bsky.social about the issues for children & families in education: 🚸 Safety - gov did not recognise airborne transmission 🚸 Flexibility 🚸 Politicisation of masks - that has led to stigma & even safeguarding

🧪 New research from Japan on Cognitive Impairment in #LongCovid using PET imaging 🖇️ academic.oup.com/braincomms/a...

🚸 As the COVID-19 Inquiry continues it's focus on children, it's worth remembering that the pandemic reinforced the 'greatest medical scandal of the 21st century' (Monbiot) Not only has it been a crisis of #LongCovid but also #ME CLoCK study 👇 open.substack.com/pub/longcovi...

🚸 Massive study in The Lancet of nearly half a million children & young people. ⏫ Increased risk of multisystem complications incl. POTS, kidney injury, arrthyhmias & myocarditis 👉 This is why Violet was furious @loosewomen @kayeadams 🖇️ tinyurl.com/45x4633e

Seren is a young person who lives in a really vulnerable household. Everyone should listen to her story. 💙💜💗 #educationANDlives