Wondering how to meet your nutritional needs while taking a GLP-1 for chronic illness? Here is the recording of a webinar on this topic: youtu.be/0nVY7cALW2U?... This is an educational resource (not medical advice) & if any of the information is not up your alley - feel free to leave it. 1/2

New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue. 🔗 news.griffith.edu.au/2026/01/28/a...

This is simply insane - demanding the removal of a perfectly safe preservative will require changing the entire production and distribution pipeline. For no reason whatsoever. While the money is held up, tens of thousands of children are at risk of dying from preventable diseases.

Good!

2 million! The scale of people that this review reached is incredible I can only imagine what the next 3 years of researching and publishing on Long COVID has in store for us 🎢

Please help us spread the word. We are hiring postdoctoral fellows in Clinical Epidemiology and Pharmacoepidemiology. Details and application via Indeed.

This has implications for energy limiting conditions, which force folks to increase sedentary time & decrease physical activity: www.thelancet.com/journals/lan... "...increases in moderate-to-vigorous intensity physical activity of 5 min/day might prevent up to...10% of all deaths..."

“In genetics and complex disease research, scientists often apply what is known as the extreme phenotype strategy … Studying those at the farthest ends of the spectrum amplifies biological signals and accelerates the discovery of causal pathways and potential drug targets.”

"If we truly want to understand this disease, it is these patients, the ones most severely affected, whom we cannot afford to leave behind. They are not beyond the reach of science; they are where real progress begins." 1/2

If you haven’t read Alice Wong’s memoir yet, the ebook is on sale for $1.99 today at @bookshop.org ! Link: bookshop.org/p/books/year...

This post is dedicated to anyone who is considering re-starting masking in public: "from October 2022 to September 2023, there were an estimated ... 101,300 deaths. From October 2023 to September 2024, there were an estimated ... 100,800 deaths." jamanetwork.com/journals/jam... 1/2

Podcasters & social media folks - take a look at this opportunity to do important work with amazing humans!

Important safety update among the info synthesized here: "...these analyses do not demonstrate an increased risk of suicidal ideation with use of GLP-1 medicines, with the majority of analyses revealing a similar or lower risk for incident or recurrent suicidal ideation..." doi.org/10.1038/s415...

Meighan fights SO hard for the Long Covid community—please share/boost/donate if you’re able 🩵

Excellent paper. I really hope #LongCovid researchers implement these recommendations.

Out today - our recommendations for Long COVID clinical trial design, focusing on currently available outcome measures: www.sciencedirect.com/science/arti... We make 5 overarching recommendations for Long COVID clinical trials: 1) thorough characterisation of baseline disease 1/3

Holiday gathering reminder 🎁 If your guests test w/rapids twice before the event, 48 hours apart, it’ll catch 63% of Covid cases even if they have no symptoms. Testing 3x improves that to 79%! This is how we curb the annual January surge that gave me Long Covid—thanks for protecting yr community 🤍

Great piece by Eric Topol!! A must read.

Important new, large (N>28,000 women) randomized clinical trial of breast cancer screening: age-based vs risk-based by polygenic risk score, genomics "opportunity to modernize screening" jamanetwork.com/journals/jam...

Thanks to the Long COVID community, eligibility screening for LoCITT-T is now closed, 41 days after it oopened. We'll share more about what's ahead on 12/17 at 2:30 eastern / 11:30 pacific. scrippsresearch.zoom.us/webinar/regi... For those who have taken the screener but not consented yet... 1/2

I'm consistently impressed by the crucial content @thesicktimes.org publishes (yes, their end of year fundraiser is still going on if you want to support and/or share the-sick-times.fundjournalism.org/donate/)

There are a lot of horrifying things happening in the world, but it is a special kind of infuriating that someone in an official government role would waste time on this "petty" (as Rachel Levine called it) act when they should be addressing the numerous legitimate challenges our nation is facing.

We're hosting a LoCITT-T update webinar on 12/17 at 2:30 eastern / 11:30 pacific. We've received a lot of questions about what the experience might be like for those who believe they're receiving the placebo. We'll answer those & more. Register here: scrippsresearch.zoom.us/webinar/regi... 1/2

Fewer than 50 slots left in this Long Covid trial (down from 1000!) They’re especially hoping to enroll folks from North Dakota, Mississippi and Puerto Rico, as well as more BIPOC participants. To sign up: longcovid.scripps.edu/locitt-t/?ut...

Note also there are quite a lot of people who started but not yet finished enrollment, so if that’s you and you do want to participate, now’s the time!

“You are wasting taxpayer dollars by not having a scientific discussion... The best thing you can do is adjourn the meeting and discuss vaccine issues that actually need to be taken up. ... Your job as a committee is to look at the totality of the risks and benefits, the harms, the equity…"

Now >900 LoCITT-T participants. We're close to a last call for participants! Still hoping to enroll folks from ND, MS, & PR & more BIPOC participants: longcovid.scripps.edu/locitt-t/?ut...

A new review of post-infection syndromes, including #LongCovid, and its diverse immunologic manifestations www.cell.com/trends/immun... by @virusesimmunity.bsky.social and colleagues

If I had all the resources of the federal government and a particular interest in long-term follow-up studies of vaccine trials, I would simply DO long-term follow-up studies of all the vaccine trials we’ve already done.

This was surprisingly fun! Love that they included what proportion of your images have alt text (100% here!)

We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year! Support our work: patientresearchcovid19.com/donate/

Speaking of clinical trials, we were thrilled to help announce a new all-remote trial -- led by @julialmv.bsky.social, who is also one of our advisors. (5/10) thesicktimes.org/2025/10/30/w...

It’s #GivingTuesday! Will you help us get our fundraiser back on track and keep our #LongCOVID journalism going? the-sick-times.fundjournalism.org/donate/

Now >900 LoCITT-T participants. We're close to a last call for participants! Still hoping to enroll folks from ND, MS, & PR & more BIPOC participants: longcovid.scripps.edu/locitt-t/?ut...

Required reading if you care about someone with Long COVID: thesicktimes.org/2025/11/28/y... "It’s exhausting, having to constantly censor this part of myself... Avoiding the topic feels absurd — like I’m standing in quicksand, & we’re chitchatting over glasses of lemonade as I slowly sink."

If you have relatives with long covid and will be seeing them tomorrow (or won’t be because they have long covid) please spread the word about this trial of tirzepatide for LC. I’m enrolled, the anecdotes I hear from patients on it for other reasons are very encouraging.

There are >800 LoCITT-T participants, & >200 people who are eligible & just need to take one more step to claim their spot. There's time for new folks to join! We're particularly hoping to enroll folks from ND, MS, & PR & more BIPOC participants: longcovid.scripps.edu/locitt-t/?ut...

baby just posted his second ever tiktok! trying to spread the word about the @julialmv.bsky.social's amazing clinical trial. www.tiktok.com/t/ZTr2Rnwry/ if you are a tiktok user could you like and engage so it gets picked up? let's get this trial fully enrolled in record time!

We've enrolled more than 700 participants (of 1,000 planned) in 3 weeks to a randomized trial for treatment of #LongCovid

We are up to 688 LoCITT participants! If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials. We appreciate the community's help to spread the word: longcovid.scripps.edu/locitt-t/?ut...

A few charts we created for this analysis.

Not knowing about PEM is proof positive you don't know IACCs. Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.

I've been surprised to see how many Long COVID trials focus on exercise & how few measure PEM. Thanks to @spichaksimon.bsky.social for covering this in @thesicktimes.org "Testing exercise is “money down the drain” & won’t advance understanding of LC, experts say" thesicktimes.org/2025/11/21/l...

Wanna see a visual on the result of the Republican attack on public health? I’ve got you covered. This is from Pew Research Center’s most recent survey, showing a 27% drop in Republican support for school vaccine requirements from 2016-2025.

We are witnessing a poisonous effort to destroy what the vast majority of Americans know is a key pillar of public health. Vaccines are responsible for 40% of the reduction in child mortality achieved in the last half century.

If you're over legacy media, I've got great news! You can donate to our non-profit newsroom at @thesicktimes.org to help us keep investigating injustices, challenging powerful institutions, and offering a platform for those affected by the #LongCOVID crisis. the-sick-times.fundjournalism.org/donate/

Great to see this meta-analysis in BMJ: "Decentralised trials provide similar answers to clinical questions as traditional, non-decentralised randomised trials. They do not systematically overestimate or underestimate effect estimates, ..." www.bmj.com/content/391/... 1/2