Praise God for the Black pastors, I leave church sundays feeling like ima go super saiyan

Too many sugar cookies :(

I can’t believe there are bad reviews for stranger things

My family is not at all proactive about covid precautions. They rarely mask in their day to day (they do at doctors and transit). I wish it was different. But in the last 2 years I’ve set an expectation that they cannot have access to me unless they wear N95s properly AND test.

Oh the masks they are wearing are these! usually they wear vflexs but they wanted to wear the can99s for better protection. when I quant fit tested these, they had a better fit score, and my moms face is pretty similar. If you have big lips warning, they are not comfortable in the slightest lol.

Made my parents double swab today cuz they wanted to spend time with me 😂 made them take rapid flu tests and COVID plus life’s. i do not play about my health anymore. Glad they understand. My dad was like sheesh and I was like 🤷🏽‍♀️ All negative & now my moms whoopin my dad at pool 😜

If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues. Responses are anonymous! cryptpad.fr/form/#/2/for...

Anyone on my skyline on ihss in California ?

Anyone on my skyline on ihss in California ?

UNIVERSAL HEALTHCARE NOW.

In our latest, we look back at 2025, a year where normalization slipped into naturalization, as a cadre of villains who rose to prominence on the back of covid denial took the reins of the federal government to play out their revenge fantasies. It’s Covid Year Six. www.patreon.com/posts/145947...

Parents dropped by! We didn’t spend Christmas together bc my nieces are sick and they were with them. so they came to just drop off my gifts. Grateful for my papr and can99s so we could see each other in a ventilated space briefly

Hey everyone. My far right family members bought my dad a hat that basically looks like he fucking works for ice. I’m heart broken bc hes a vet and is proud and they really set his ass up for failure. Can anyone recommend a nice army vet that doesnt make him look like uncle tom?

I don’t mean to sound extreme, but I don’t think we should have torture camps for people with criminal records either.

I know it’s bad but I keep eating these sugar cookies with vanilla icing on it… I can’t stop 😭 they’re so good lmao

A lovely family from my local ME Action chapter came to help make my lunch yesterday and they bought me a gift… it turns out it was one of those expensive large ugg fuzzy throw blankets 😭 I’m currently drinking tea under it right now. So grateful for kind strangers!

I’m starting to get crows feet and honestly, I love it. 🥹 a reminder that I have smiled so often in life.

It’s my first Christmas alone and conscious (prior years I was alone but had v severe me) and I felt lonely last night but feeling much better today. I enjoyed the sun, called my friends and family, and made vegan sugar cookies with vanilla icing. watched corny rom coms and am at peace ❤️

Mrs. Grinch ♥️💚

my mom insisting they come when they're sick bc "i cant spend christmas alone". girl IM CHILLIN id rather spend every single christmas alone then have covid over christmas EVER again tf. lmao. talm bout "we will just come in side masked". girl what D: not in this apartment protect ur boundaries lol

good news, my siblings care enough about my health to tell me my nieces are sick and they wont be coming to visit. bad news is they exposed everyone in the family so NO ONE is coming. i cant get caregiving last min and have to figure out how to take care of myself for a few days over Christmas. 😭

had a convo with my caregiver about body dysmorphia and struggling as someone who became a non ambulatory wheelchair user & she told me about how it felt transitioning. and it was just such a beautiful conversation on disability, being trans, and self love/hate. feeling like ur body is not urs

these LDN trials are so indicative of some of the root issues of clinical design for lc :( having LDN trials at even 1.5mg is so far removed from the actual process for people w lc or me. Patients are having to be their own chemists titrating up from .1mg... meanwhile trials are not reflecting that

My best friend/ex roommates engagement went well, she said yes 😍😍😍 beaming with joy

for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!

Good day. We're at $75/$260. If you could RT that would be awesome. Would love to wrap this up for them.🙂

me after spending hours trying to write bill language that is going to get chopped n skr3wed by the assembly committees anyways

you guys idk how are we gonna do this for another three years?

🥰 pass it on

Can someone please tell me what brand of eggs to buy in California that doesnt taste like fish 😭😭 it’s so gnarly and it’s been the last three brands. I can’t take it!! it’s so gross

three things i learned today from my medicaid hearing: 1. apparently medicaid benefits are doled out sequentially meaning if you are eligible for full scope MAGI medicaid you are automatically NOT eligible for wdp 250%?... 2. medicaid state hearings do NOT let you retrospectively enroll in wdp 250%

i have a medicaid hearing right now. No one sent me a link. The email they gave me returns an error. And they say to call ten minutes before your hearing and put you on hold. I am so fucking mad.

So the guy down the street replaced a shift sensor but the car still will not operate in reverse so I need to start raising funds for either someone to assess the transmission in my 20 year old car or to put toward a new car. 😔🫠😩😭 V: colocha_rachel $: ColochaRachel Paypal via DM

the absolute anxiety and dread i have attending this court hearing without legal representation. im going to crash for like a month. im so over this shit. i hate being poor and i hate medicaid

tw: su*cide 🧵

writing policy is so hard bc you are trying to work within this bureaucratic legalistic framework that does not allow for the creativity & imagination you so want + that people need i have had a headache for a week over this fr. feels like ur just like adding a splash of water onto a roaring fire

for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!

today, i sat in my wheelchair for 3 meetings. i wanted to look professional for my meeting with staffers. the good news is i think our bill package will be introduced in January (i could weep). this is the first bill i've ever sponsored the bad news is girl wtf was i thinking sittin in that chair

I could really use some last minute clarification on something if anyone knows a lawyer who knows their way around Medicaid benefits (specifically the working disabled program) 😭 I have a question before my court hearing tomorrow afternoon, none of the public law centers got back to me 🆘

my dad disarmed an active shooter at his job and all he got was a pizza party from the company lmao. but the judge whose life he saved (he was shot once b4 my dad disarmed the man) sends him money every year and pictures of his family saying he's the only reason hes alive. so thats nice.

excited to read this!

Our next book will be _Echolalia Echolalia_ by @pipagaopoetry.bsky.social We'll start in January, so please order the book as soon as you can. If you're in the US, please consider ordering from @openpoetrybooks.bsky.social; proceeds go to @workshops4gaza.bsky.social/the Sameer Project

i'm a little late with the newsletter post, but as we approach finishing _Health Communism_ by @reallandsend.bsky.social & @avierkant.bsky.social this week, i want to update people interested in continuing to support The Sameer Project & @workshops4gaza.bsky.social also, new post you can read here:

hit a wall w/ writing up my research. feeling frustrated that my brain no longer works how i want it to. got through coding but trying to create themes... its like that higher level of processing is just dull. that leads to me feeling unmotivated to finish bc of frustration and sadness.

A little report on the march. ^^ ❤️ 📰 www.wlrn.org/law-justice/...

RFK Jr is very good at pandering to real concerns chronically ill people have while actually just being a conspiracy-obsessed, evil man.

i be tearing these dr's offices up. I just yell out "sorry, sorry". my wheelchair is a reclining one but it also has a leg stand bc I cant put my legs down or else i'll pass out (orthostatic intolerance). But i cannot fit into the doorways. YOU try to fit something horizontal into a vertical frame 😂

instead of making me get onto the xray table, they brought it to me :') i have had a really great experience w/ UCI Tustin. And everyone masks. Not N95's but at least its something.

ah yes, finally realizing it DOES rain sometimes in southern california, and that YES my powerchair battery IS right by the ground where puddles can reach :) :) :) :) :) :) :) :) :| :\ :(

At 27 responses! I am aiming for at least 50, 100 would be great. Here's a sneak peek of some of the ratings. I also spoke with a few doctors running LC & ME trials to get their take on legislative priorities! Please keep sharing :)