Not sure what if anything has this coming up again, but yes can also confirm that "Black Trans Texas Connection" is not real. Had some interactions with them a few years back and confirmed with local organizers that it's a scam.

Bluesky working hard on Christmas to mark as spam a newborn baby in the Holy Lands

Second this recommendation! Fantastic book that's still very relevant

an urgent update: Sahar messaged me and Odai has been in the hospital since last night. He’s very ill and the situation is unbearable—they dearly need $500 for medicine, food, and ongoing care. whatever you can give, please do. no child should have to endure this. www.gofundme.com/f/urgent-aid...

Tracey is the absolute best of this community. If you don't recognize her name or her story, you may recognize the beautiful long covid awareness ribbon that she designed. Please help her stay housed and alive.

They don't know how to use Acrobat.

🚨JOB ALERT🚨 Enjoy writing clever headlines and assigning one-of-a-kind stories? Have an eye for detail and a knack for turning rough copy into sparkling prose? We're looking for another editor to join our small but elite team covering New York City news and culture: hellgatenyc.com/hell-gate-is...

I try not to engage in treatment discourse because I'm just not that qualified beyond the basics, but this protocol has been on my radar for awhile and I think folks should be wary. People desperately want something to believe in, and when a well-known pwME expresses that something helped them,

This was a fantastic article that continues to be relevant. I really hope ME advocacy folks, especially in the US, will read to understand just one of many reasons that our causes intertwine

We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters. The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/

I can't stop reading the coverage, and the comments, because I know this is how people will be talking about folks that I love 💔

The Health Resources and Service Administration (HRSA) has issued a proposal to stop tracking Long COVID at community health centers - making it much more difficult to track trends and identify disparities in access, diagnosis, and treatment in community health. MEAction comment: ow.ly/4z1j50XLH4i

this is the first winter since 2016 that as a survivor i do not have an ESA dog in my life. i have no family. my ESA dogs (one passed in 2023, and Esmé 11/30/25) helped me when no human would or could. they helped me survive over a year of homelessness beginning in 2020. please share. i am alone.

if the mta sold F/M swap merch they'd be funded for the next decade

I'm screaming

Oh hey a good annual reminder that I’ve got a Bluesky starter pack full of agents on here. Go follow away.👇🏽

Well said. Long covid folks, I know we are desperate for any kind of recognition, but please do not accept scraps from this guy who is fundamentally not on our side

Well this is deeply alarming

i can’t give blood for like 5 reasons but if you can, please do. not only is it lifesaving in trauma situations but medicines can be made from blood, like the one that keeps me from being bedbound half the time

I didn't know Megan personally, but a caregiver friend of mine was mutuals with her and told me the news. She sounds like someone I would have liked a lot. There have been so many ME deaths this year, and I have to assume it's like this every year and I just wasn't paying as close of attention. 💔

I'm so angry about this. No-one with #LongCovid should be made homeless. No compensation. More destitute as the years pass. No treatments. @teamlabouruk.bsky.social @longcovidsos.bsky.social @ashleydaltonmp.bsky.social @joplatt.bsky.social @greensagainstcovid.bsky.social bsky.app/profile/ston...

California folks with ME/CFS, your input is needed!

I'm giving a talk next week and you're invited! ✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨ The talk is donate-as-you're-able, and 20% will support #MEAction. You can sign up to attend here: us06web.zoom.us/meeting/regi...

I don't know anyone who has this much experience *and* is still well enough to work, lol. But a very cool job going if you know anyone who should apply! www.typeinvestigations.org/about/jobs/

This is really a must-read account of the dire situation of so many people who are severely ill with severe ME and Long Covid. The headline focuses on doctors, but the text makes clear it’s incumbent on all of us to put a stop to this abandonment.

Read this from brilliant comrade @crookedneighbor.bsky.social and then immediately logged into mychart to handle provider messages <3

My first piece for @thesicktimes.org! In response to @brittashoot.com's reporting on LC/ME specialists opting out of insurance in order to “spend more time on patient care rather than administrative work,” I argue that administrative work IS patient care, especially for people living in poverty.

Sharing from a long-time organizing comrade. Their friend is housing insecure and trying to make it back to NYC within the next month for stable housing. Please support if you can!

If every one of my 3000+ followers could give Désirée $2, she'd exceed her goal for getting safe housing. I know that everyone won't see this, but if you do see it and have $5 or a bit more to spare, please consider it. gofund.me/cfd069ce3

I desperately want the shingles vax even though I'm "too young." Had chicken pox at 14 (unvaccinated--it was so rare at the time that the doctor called all their staff over to see what it looked like). Got a staph infection because of the open wounds. Staph infection gave me permanent nerve damage.

I'll be writing about #LongCOVID trials in kids for @thesicktimes.org. With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch. recovercovid.org/news/recover...

The white & classist oppression of many "COVID-cautious" people also helped push a mask bloc cofounder into houselessness. It's been almost a year & things haven't improved. They could use financial support ($ app: $PoetJaleane) if you're willing to share. bsky.app/profile/wort...

As people support me & @lizzietask.bsky.social w mutual aid — I can’t help think people haven’t been as generous w another survivor w a now over-the-rainbow bridge pup. The obvious difference is I’m white — naming that As someone inside because of mutual aid, I’m asking you to share (the post & $)

This man did a photo opp of himself destroying homeless people's last possessions.

For context Chalder was one of the primary investigators on the infamous PACE graded exercise therapy trial. She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT. She now has a study on #LongCovid showing up on Visible.

Kasey Bonifacio's 13 Days of Accessibility is a great way to dig into the Web Content Accessibility Guidelines, which are international standards used to measure accessibility. Kasey's resource makes WCAG more digestible. a11ycalendar.kaseybon.com

I have felt like vomiting every day for over a month, lost so much weight trapped in the yt racist, physical violence of Karen Traite & Joe Levy, whose initial offer to stay I declined. But their abuse violence shame is not mine to hold. Esmé, I am sorry I couldn’t get you out of there sooner.

I believe @sndesireecha.bsky.social is spot-on in her critique of the covid-cautious community here. A huge percentage of these people (many of whom are white, and all of whom I presume are housed) are really only interested in masking etc. as a way to protect themselves and their nuclear families.

Please read this full thread, donate to Désirée's GFM if you can, and show up for your homeless neighbors. This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop. gofund.me/6b8af16ac

Malone is now talking about the role of undocumented migrants in spreading measles. There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.

Not this shit again

All right, I know my inbox wasn't open for that long, but I am preparing to close for the year THIS SUNDAY, December 7. If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)

I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom

We’re discussing Grief, Stress, and Connection During the Holidays at the #MEAction Partner Caregiver support group meeting this Sunday, Dec. 7, from 12–1 p.m. PST / 3–4 p.m. EST / 8–9 p.m. All caregivers are welcome to join www.meaction.net/event-detail...

It's #GivingTuesday. At @thesicktimes.org, our end-of-year fundraiser has been lagging behind; we're hoping to raise $10k today to get back on track. Here are a few recent stories that demonstrate our unique role serving the Long COVID community. the-sick-times.fundjournalism.org/donate/ (1/10)

We really want to expand our work further in 2026 and beyond, but right now, we're just trying to keep afloat after a big grant concluded this fall. Help us keep paying ourselves and all the great writers we work with. Donations are doubled today and through the end of the month! (10/10)

Signed up to testify at two different City Council hearings today and tomorrow, and I can't find the Zoom link anywhere. Did they change the rules?

These ads are up all over the NYC subway btw

I've not been doing a very good job of hyping my own work, but I promise it's good and worth it. Read it. Love the lesbians and gay men and gendermonster queers who are all trying to figure out how to be immortal, love blood, and maybe each other: linktr.ee/lilyflowerbo...

Please help my friend, Mem, Mem is a black disabled person who is suffering from MECFS and Long Covid. They are trying to raise $1133 for rent before mon., Dec 1st. Any late utility or rent will result in termination of their lease. linktr.ee/torqu111 #MABoost #MutualAid #Thanksgiving #Helpsky