The Long Covid Innovation bill will be heard next in the Maryland Senate! 🥳 If you sent your story already, you can increase your impact by reformatting w/ the Senate bill number (SB0392) and uploading again Tues 2/10 8am-6pm! And if you needed a little more time, here it is! Instructions:

Incredibly grim horrifying stuff in this article from @propublica.org, but I was deeply relieved to see that the baby who nearly died of COVID + RSV has been released with her family, and appears to be doing okay www.propublica.org/article/life...

1/ ProPublica collected handwritten letters in mid-January from children held at the Dilley Immigration Processing Center, the same facility where 5-year-old Liam Conejo Ramos was taken. Hundreds of kids are still detained. We’ll let the children’s words speak for themselves. 🧵

sure, it can kill you* and it can also kill you** but have you considered that it can also kill you***? * suggesting you do it yourself ** filling your low-income neighborhood with pollution *** facilitating deadly medical errors

Almost half a billion people w/ Long Covid around the world w/ around half of them meeting criteria for ME. I’m sure it’s fine that only 33 doctors in the UK have learned anything about managing the life-threatening severe end of this horrific disease. It’s totally not going to get anyone killed /s

if anyone knows (or is) an editor at a uni press who is looking for crossover books about social movements, please let me know! i've got a fairly nonacademic book that nonetheless makes some theoretical contributions that needs a home.

You’ve seen the halftime show … now read my friend Petra’s new book from @dukepress.bsky.social about how Bad Bunny became the global voice of Puerto Rican resistance! 👏🏽👏🏽 www.dukeupress.edu/p-fkn-r

I have not watched any of this yet because I am trying to finish a writing deadline*, but wow I can't wait *and also because my Spanish is C- at best and I want to watch it with someone who can help me pick up on more of the references lol

I'm sorry but the "nuance" sign is hilarious and also WHAT THE FUCK re journalists

"Should the government kidnap 5 year olds and deport them? We asked seventeen ethics professors and they each said yes and wrote a long report about it. We asked seventeen normal people and they said what the fuck"

"expired dicks" LIKE WHAT ICE AGENTS ARE HEY-OOOOOOOO

Anyone on my network familiar with social supports in Canada, specifically in Edmonton, where a disabled autistic guy might turn for help? He’s about to lose housing and internet access. He’s brilliant but physically hurt, and he’s about to be on the street in this winter.

Here is a clip of the poem from Renee Good's ceremony: bsky.app/profile/kc-m...

There is a graphic photo going around of a protestor/protector near the Whipple building being slammed to the ground, bleeding from a head wound. The protestor is wearing an Aura with a Sip valve, and I can't help but wonder if they are medically vulnerable. I hope they are okay and being supported.

I keep saying the reason respirators draw so much ire is that they make invisible disabilities visible. The responses people are the same as what people talk about for any other mobility aid - skepticism ("do you really need that"), disdain ("why is someone like you visible in public"), sometimes

No.+21 years of illness I've never heard of anyone with ME/CFS, POTS and now Long COVID, having access to any kind of food support outside of what family or partners can provide. I've never heard of any charities that provide any kind of functional support or do volunteer work with the community.

They denied medication to this baby who had BOTH covid and RSV, nearly died, and also presumably infected lots of other highly vulnerable children.

If you're involved in any work where you interact with people in immigration detention....please wear a mask.

Another related question I'd love to study: How many pwME/LC need help with cleaning and are not getting it? What percentage of those people have faced housing insecurity as a direct result (e.g. failing inspections, threatened with eviction because the apartment is dirty or cluttered)? #NEISvoid

Marisa Kabas is continually proving that you don't need Substack in order to have a successful newsletter. Leave that Nazi transphobe hellscape

Another note from occupied Minneapolis, I'm doing something I also did 2 weeks ago and genuinely thought to myself "well the federal government didn't murder anyone this time so I can factor in less time for traffic" and I don't want this to be normal????

putting this here. Who’s bringing food to people with long covid who are too weak to cook or are you just condemning them for ordering delivery? Are you masking up to visit friends or making them sicker or just abandoning them? There is a precedence for community care in the face of gov abandonment!

personally i have never actually known of a single person with ME/CFS actually getting help from a charitable organization for any reason whatsoever (including myself)

Would love to get funding to formally study this at some point (Also curious to see answers to Elana's post!)

Richard Dawkins. Steven Pinker. Lawrence Krauss. Jonathan Haidt. Robert Trivers. Prominent atheists and scientists who have pushed anti-trans propaganda for years. They all had ties to Jeffrey Epstein. Some received huge research grants and island trips, and all of them benefited from their ties.

It's Leo's Towing--and they're doing a charity event with Lito's Burritos on Sunday 💜 www.facebook.com/share/186pVG...

I know there are a ton of needs being shared, but this one feels worth highlighting considering the ways in which observers are being targeted. Please help if you can!

Concentration camps are the defining issue in public health right now. Measles and TB outbreaks, healthcare being withheld as punishment for your race. It is not enough simply to turn the grants tap back on. To do so would make us the same as the Nazi scientists who discovered smoking causes cancer

I cannot sufficiently underline how despicable it is that the IOC has required Haitian Olympic athletes to remove an image representing the leader of the Haitian Revolution (against SLAVERY) from their uniforms.

Have they considered not being landlords then

If disability or health issues prevent you from making it to our munch, let us know and we will coordinate a drop off. This is for first time applicants of the Coins for Cuties program so we can try to help as many SWers as possible! DM us to apply.

PLRC member Dr. Copeland has launched a research study on rest, energy, & #MECFS — open to people with ME/CFS & healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. More info: restandmecfs.com

Four more people w/ #MyalgicEncephalomyelitis died this past week and no one except other #pwME is discussing it b/c most don't know. "Chronic Fatigue Syndrome" was a hideous misnomer from the start--crushing fatigue is one symptom out of 200--& the CDC failed miserably in coining the name in 1988

They abducted this person from Mayo Clinic and not even an elected rep has been able to get them the anti-rejection meds they need to not die AFTER AN ORGAN TRANSPLANT.

Discussing alternative IV sites (my hands are busted and they can never find a vein in the arms) and I had a horrifying but amusing thought: new cursed fetish genre?

He is a documented immigrant whose lawyer delivered the medication, but it's still being withheld. This is so dangerous.

the Barbara Kruger mural the chase is happening in front of reads: "WHO IS BEYOND THE LAW? WHO IS BOUGHT AND SOLD? WHO IS FREE TO CHOOSE? WHO DOES THE TIME? WHO FOLLOWS ORDERS? WHO SALUTES LONGEST? WHO PRAYS LOUDEST? WHO DIES FIRST? WHO LAUGHS LAST?"

The Washington Post gutted the health team which I helped to lead despite our stories being among the most widely read, impactful and adept at reaching new audiences.

If you want to donate to us, please donate to the heat fund instead right now, it is getting dangerously and critically low Venmo electric-tumbleweed ❤️

Publishing workers and trans people have been telling y'all this for like a decade

Despite everything, I am trying to organize a book tour for QUEER & HOW WE GOT HERE in late May and June. Who wants to have me? 💁🏻 perhaps your school or library has funds for me to give a talk or workshop?

Okay so...does anyone have any tips for keeping an IV line from coming out of one's hand? I have to somehow keep this from getting ripped out for the next 3-4 days...

Big picture we need to abolish the whole fucking system but thank goodness this is finally being done

With alt text

Hey #NEISvoid, if you have ME (whether self or professionally diagnosed), take V’s survey!

If you're a Post journalist who got laid off today: 1. [pats bench] come sit by us, is it time to go get that book deal?; and 2. even if not, I'd be happy to comp you a free year's subscription to "How to Glow in the Dark" if you reach out this week. neonliterary.substack.com?utm_campaign...

This goes to my longstanding soapbox: everything is a disability policy from housing to health care to urban planning to mass transit.

Finally getting IV fluids! Apologized for my messy apartment, and the nurse asked, "Who's helping you?" To which I was like, "No one" and then she was like "Where's your mom?" Very sweet, but man some people really cannot conceive of the idea that there are sick people out here who don't have help

Fuck yeah lol