Can you sign & share our letter to HHS? freakinfrail.org Thank you to the 1600 who have signed! Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.

these LDN trials are so indicative of some of the root issues of clinical design for lc :( having LDN trials at even 1.5mg is so far removed from the actual process for people w lc or me. Patients are having to be their own chemists titrating up from .1mg... meanwhile trials are not reflecting that

Been trying to meet this goal for a several years now. Please consider donating if you are financially secure & safe, if not to me then one of the many others who could use help. I am grateful to everyone who’s helped me make it this far. Look out for each other & stay gold. gofund.me/068be4f08

I am convinced in the future we will look back and realise the sheer unimaginable folly of letting a virus that can cause immune dysregulation and cognitive dysfunction in humans infect and re-infect the global population over and over again. Worse still, that we encouraged it.

If you’re currently masking, kudos & thank you for staying the course, for choosing to protect yourself & others, for your resolve in the face of adversity.

❤️ #ConnectingGaza @thellpsx.bsky.social bit.ly/eSimsRUs

If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues. Responses are anonymous! cryptpad.fr/form/#/2/for...

Reminder: you should absolutely start wearing the best mask you can find in public spaces, even if you stopped before. We have no public health at the top level & repeat infections have ravaged immune systems. If someone gives you a hassle, say "even if it's just a cold, I DON'T WANT THAT EITHER!"

Once you are symptomatic it’s too late to protect those around you, let alone yourself. Mask early, mask often.

“Long COVID had taken hold of my life, and its impact was profound and unrelenting,” - Leslie Lee III Rest Well.

Today is a great day to start masking! Protection against Colds, Flu & Covid! Check to see if you have a local Mask Bloc! maskbloc.org

This is the only headline I found that didn't want me to tear my hair out (I would have deleted strict) , but it's going to be a two-tier system for vaccine access. The states that made their own healthcare compact to ignore FDA shenanigans and kids in states that haven't.

Spain may bring back indoor face mask rules as flu and COVID cases surge. Health leaders will meet on Dec 3 to decide whether masks should again be required in hospitals, health centers, and possibly other crowded indoor venues like cinemas or theatres to help reduce transmission. archive.md/2ySDF

Dear anti-mask, covid deniers why not head on out there and live your life with all the gusto you reserve for harassing strangers on social media. Don’t waste your precious time arguing with the likes of us. Living well is the best revenge! 🎉

“Dozens of low-quality trials on exercise in Long COVID haven’t provided any answers and potentially harmed trial participants, and many never ended up publishing their results.”

llps.substack.com/p/alice-wong.... what is remembered lives. @pipagaopoetry.bsky.social and me wrote our assess off on our Crips for eSims memory song for our beloved @sfdirewolf.bsky.social . #AliceForever

My birthday is coming up and as it gets closer I will post links to the people, places and initiatives I will be trying to raise money to support. I hope you’ll join me. A Gaza Giving Circle will be one. chuffed.org/project/hope...

Canadian COVID Forecast Nov 8 - Nov 21, 2025 CANADA VERY HIGH [no change] About 1 of every 118 people is infected. Compared to lowest point of pandemic in Canada: -Infections: 7.6 x higher -Long COVID: 6.0 x higher -Hospitalizations: 10.4 x higher -Deaths: 12.2 x higher

Canada spends less per person on disability benefits than the US, has minimal RGI housing and has no SNAP program. Poor disabled Canadians are kept in destitution 50% below the poverty line and pay market price for all their needs. Direct Aid saves lives. Solidarity with our cousins to the south.

Excited for day two of the excellent @icancmeresearch.bsky.social conference! Starting now! #ICanCME2025

And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...

“Every infection increases the risk for heart attacks, strokes and heart disease; for new-onset diabetes; for cognitive decline and dementia; for deregulating the immune system; and for reactivating viruses like Epstein-Barr or shingles.” thetyee.ca/Analysis/202...

Canada spends less per person on disability benefits than the US, has minimal RGI housing and has no SNAP program. Poor disabled Canadians are kept in destitution 50% below the poverty line and pay market price for all their needs. Direct Aid saves lives. Solidarity with our cousins to the south.

CBC is platforming unproven pseudoscientific brain retraining programs for #LongCOVID. In reality, some people recover others do not, no matter what they try. This approach lays the blame on patients who don't get better because they're not trying hard enough.

I wish they said explicitly that there's $5 billion in emergency reserves they're refusing to use instead they're happy to let people - mostly children, the disabled, and elderly, starve.

“Aria, 27, first noticed her hair falling out after she had Covid in 2021. “It started receding at the temples,” she says, adding that, after two further bouts of Covid, the hair on the side of her head is now fluffy and sparse." x.com/haziethompso...

Don’t leave anyone behind.

A government that will lie about everything from warfare to welfare isn’t going to make an exception for an ongoing pandemic. Covid is not over.

Twenty one pages of questions to start a disability application vs one page for MAID.

We're going to talk about c19 today and I'm going to ask you all in advance to not zone out like you do when we're talking about it in person😑 Covid not "a cold" - it attacks every system of the body, making it weaker to every other kind of infection. There's another illness that does similar.

Canada lacks data on children & youth with Long COVID, unlike the 6M in the USA. This insightful and timely article shows how multi-site pediatric data sharing works with consent, governance, and secure systems. ped-rheum.biomedcentral.com/articles/10....

Had a Stellate Ganglion Block yesterday. Procedure was straightforward with no unexpected adverse effects. Some heaviness on the left side of my face. No crash (yet haha) Told not to expect much from the first shot & that the second & third would reveal any possible benefit.

California to make and sell its own low cost insulin…a 5 pack will cost around $55 No one should have to ration meds No one should fear financial ruin because they need meds When Frederick Banting sold the patent for insulin, he made it $1 A Canadian, he said life saving meds were for everyone

“Extreme fatigue that turned mornings into catatonic nightmares. Brain fog that made memories slippery. Incessant vomiting. It all kept her out of class, stuck in the nurse’s office — or out of school entirely.” www.rollingstone.com/culture/cult...

The temporary ‘inconvenience’ of wearing a mask should be closely weighed against the seemingly permanent ‘nuisance’ of losing everything you have while laying riddled with illness, helplessly bound to a bed that has become your prison.

We should do our best to isolate from our pets if we find ourselves infected! www.cidrap.umn.edu/covid-19/nea...

Covid continues to quietly disable the brains, organs & immune systems of the population. Folks are actively discouraged from protecting themselves & their communities. The already less than adequate supports available are being dismantled. MAID is on the rise. This is a cull.

“If we assume, conservatively, that it takes 12 to 15 years to develop acceptable therapeutics for Long COVID, and then another 18 years for them to reach clinical practice, people my age — and yours — will have passed before they get help. We need to accelerate this.”

“Children who have Covid twice are at double the risk of experiencing long Covid.” “The findings, published Tuesday, challenge the perception that Covid cases in children are “mild,” as well as the notion that re-infections do not carry the same risk” www.independent.co.uk/news/health/...

“Covid is not benign in children. In January, a review highlighted the wide-ranging impact of long-Covid on children and adolescents, including persistent respiratory, cardiovascular, neurological, gastrointestinal and psychological symptoms.” archive.ph/2025.09.24-0...

Covid is known to have long lasting imapcts regardless of previous health status. www.theguardian.com/sport/2025/s...

"New national data reveal that food insecurity worsens long COVID outcomes" In a surprising turn of events access to nutritious food helps lessen the impacts of chronic illness. Let's study secure housing next. s/ www.news-medical.net/news/2025091...

My hair My skin My teeth My lungs My heart My kidneys My brain My immune system My thyroid My nails My energy My vision My nervous system My hearing All things damaged by a ‘mild’ covid infection. Mask up. Look out for each other.

This amazingly brave LGBTQ+ refugee and her baby arrived in Canada today, and will need lots of financial help to get trauma treatment and settled in. Please donate!!!

Why does Rebeka have to beg for 50c while a fucking white racist lady can raise $750 000 for yelling racial slurs at a Black child in a park? Rebeka is a Black non-binary cancer patient who needs financial support to access healthcare. They're not even asking for a huge amount. Help them????

Them: We don’t know why everyone is so sick. Me: Fallout from multiple Covid infections? Them: Yeah, probably. Me: That’s why I mask. Them: Smart move. Me: Maybe you could think abou… Them, walking away: Oop, gotta run. Take care…