We’re quickly learning that our checks, balances, and separation of powers were always dependent good faith, and therefore incapable of preventing destruction wrought by the very sort of shameless, arrogant, mad president they were designed to contain.

Did you know that Medicaid isn't called 'Medicaid' everywhere, to the point that ONE out of THREE people who are on Medicaid don't ✨know✨ it? So how can they be incentivized to fight for their healthcare if they don't know it's their healthcare? (Alt in the comments, it's a lot!)

I just signed a @theactionnetwork.bsky.social petition: Protect Medicaid Access for People with ME/CFS and Long COVID. Sign here: actionnetwork.org/petitions/fr...

I’m just gonna keep saying “triple the NIH budget” until it sounds like common sense.

The sane people of the US have been saying the same thing since 2017.

This is really excellent.

In a scathing review, the top US medical journal's editorial board warned that the "destruction that Kennedy has wrought in 1 in office might take generations to repair."

This man is giving me hives. 1. Any drug is unsafe at the wrong dose. Tylenol and Benadryl overdose are both serious and potentially fatal. “Unsafe” is not a meaningful metric here. 2. If you think the average American can correctly self-manage antibiotic use you’ve never worked in healthcare.

At 3:26pm a runner was seen smiling after seeing a French flag at the fire tower. #BM100

Now TWO left: Damian Hall and Sébastien Raichon. #BM100

Fire tower and the conditions the runners are dealing with. Freezing fog and the bone chilling cold these conditions create. The high moisture content and cold conditions wick away and pretence of warmth from even the best gear #bm100

In addition to the rain, fog is rolling in. Now the Barkley is just playing with the runners. #BM100

Three of the five runners from loop 1 have returned to camp. There are still 2 runners on loop 1, 3 runners on loop 2, and 4 runners on loop 3. #BM100

The 2026 Barkley Marathons began with one of the strongest fields ever. The starting field came from 15 Counties as well as 15 States, and included ten women. The course seemed not to care. Over 70% of the field is done. #BM100

“I’ve never protested before - but I just watched 4th & 5th grade kids run away from our own government.” 😕🇺🇸💔 (From @crindivisible.bsky.social )

From ME Action GA’s @erinmarilee.bsky.social on the Barkley fundraiser: “We’re pledging a $1 donation to the Open Medicine Foundation for every loop completed in the race. Every dollar donated moves us one step closer to a cure! Celebrate human endurance with us!” More donation info to come!

Our executive director, Laurie Jones is sending out some love this Valentine's weekend- in the form of refurbished Visible bands! Those of you who won have been notified via email and the first round of bands are on their way! Thank you to Visible! #PwME #StopRestPace

Gotta say, the language of the Barkley is one of my favorite things about following this race❣️ #BM100

Knee Guy has begun loop 2. Five runners are on loop two; 35 runners are on loop 1. #BM100

Two French Guys have finished loop 1 in 10:07:46 and 10:08:10, one of whom stopped to put trash bags over his shoes prior to crossing the creek. 🤦‍♂️ #BM100

The documentary is about a quirky, mysterious endurance event in the foothills of Tennessee. You will walk away from this event a superfan of Barkley and fired up about the challenges we can conquer. Save the date and RSVP here: www.eventbrite.com/e/mecfs-bark... (3/3)

We’re hosting a virtual watch party of the documentary, “The Barkley Marathons: The Race That Eats Its Young.” There will be prizes, trivia, and the reminder that humans can do impossibly hard things and have joy too. (2/3)

Hi Meeps! I've been off socials for awhile, but I'm back to invite you to a party! After big funding losses for the #MECFS community, we need a pick me up. We would love to introduce you to ME Action Georgia’s favorite sporting event of the year - The Barkley Marathons! (1/3)

ICE Make Me Sick! Tell Congress to stop bankrolling ICE violence while slashing our healthcare and home care: makesmesick.org?source=blues...

Our newest timeline tracks actions that hamper our ability to control the spread of infectious diseases, making the US and the rest of the world more susceptible to disease outbreaks, including global pandemics: unbreaking.org/issues/infec...

The people who live with ME/CFS did not greet Long COVID with surprise. They greeted it with recognition. Gratitude to @darthfoo.bsky.social open.substack.com/pub/centerle...

Check out this helpful resource from our friends at @batemanhornecenter.bsky.social! #pwME #disability #UnitedForME

'measles outbreak at the child prison' seems entirely avoidable, it's really the kind of thing that only happens if you do several unthinkably evil things on purpose all at once

The Guardian: 'Public health crisis unfolding in Minneapolis as residents avoid healthcare' 'Providers are arranging home visits and telehealth as neighbors pick up prescriptions, groceries and diapers' www.theguardian.com/us-news/2026...

This implies death. Mass death. Caused directly by the decision of the White House and M*sk (then a top White House official) to recklessly obliterate—not reform—our overseas assistance capacity.

THIS is why ICE makes me sick. THIS “It is a health issue. When people are too afraid to seek care, diseases worsen and emergencies increase and people die unnecessarily,” Maalimisaq said. #iceout www.theguardian.com/us-news/2026...

ICE Make Me Sick! Tell Congress to stop bankrolling ICE violence while slashing our healthcare and home care: makesmesick.org?source=blues... #MECFS #LongCOVID

PBS: 'Sadness, anger and exhaustion grip Twin Cities after latest killing by federal agents' 'But anger over the conduct of ICE and the Border Patrol is high. And a federal judge is deciding whether the immigration crackdown can continue.' www.pbs.org/newshour/sho...

Ta-Nehisi Coates: With the killings of Renee Good and Alex Pretti, "Trump has clarified an inconvenient fact—the culture war is an actual war"

"Of the grants that were terminated or frozen, more than 800 were related to infectious diseases." I've suffered an infection associated chronic illness for more than 3 decades. And I'm one of millions. #MECFS #millionsmissing #LONGCOVID

Trump has been in office for one year. We at @nature.com did a deep dive looking at the administration's disruption of science in numbers. Take a look—the numbers are staggering. By me, @dangaristo.bsky.social, Jeff Tollefson, @kimay.bsky.social, & help from @noamross.net @scott-delaney.bsky.social

You cannot separate out climate from the rest of society and social issues. You cannot separate out climate from the rest of society and social issues. You cannot separate out climate from the rest of society and social issues.

The Sick Times: 'Severe people may hold answers to Long COVID. They must be included in research.' Written by Sevda Sarikaya thesicktimes.org/2026/01/13/s...

Every year on December 16, I think of my friend Cindy Siegel Shepler. She was a person with #mecfs and a chronic illness warrior. I miss her. Rest in power, Cindy. www.cnn.com/2020/06/07/h...

Atlanta friends! Don’t miss this free concert experience on Dec. 13 for those living with chronic illness, including long COVID, and their family members, caregivers and health care providers. Masks will be available and encouraged. For those who can’t attend in person, there will be a livestream.

Atlanta Friends: Reserve a spot now for Joshua Roman's Immunity tour coming December 13! #longcovid #mecfs www.eventbrite.com/e/joshua-rom...

CDC's @drdebhoury.bsky.social calls on Congress to act. "It is a purposeful reshaping of CDC away from evidence-based practice & toward ideology-driven governance...I did not resign to make a symbolic point. I resigned because staying silent would have made me complicit." time.com/7338714/dr-d...

We have a safe vaccine that's proven its worth over three decades. We have a strategy that works. Now obstetricians, pediatricians, insurers, state health departments & others should stand up for fact-based care, protect our children and not mess with success. We must keep protecting our children.

Take action TODAY! Are you a medical provider in need of a concise but helpful CME? Are you a patient wishing your clinicians knew more about ME, aka ME/CFS? We have a CME for you but it is only available until Oct 1. Sample language & link: docs.google.com/document/d/1... #MedEd #CME #MECFS

I was like 5 hours into an emotional breakdown when i had my first bite of the strawberry pie from @rachelriggs.bsky.social cookbook In Good Health, and my goodness! I have never been so fully transported by a bite of food. What a bright, sunny dessert! The whole family is raving.

“No one in the world holds a grudge like me.” OMG this woman might be my platonic soulmate.

Join us in wishing our Scientific Director @exceedhergrasp1.bsky.social our best as she participates in this week's Stanford ME/CFS conference! Sending our best to all participating! Community Symposium is Sept. 5th at 8 am PT. Register: stanford.zoom.us/webinar/regi... @openmedf.bsky.social #pwME

It is true HHS cuts to CDC HR are causing real-life problems. 👀Let's be clear, #DOGE DID THIS! 👀 We want other fed worker stories added to highlight the struggles of probationary employees & short term employees. They are struggling without jobs, insurance, IT threatening police reports, & more.