The air conditioning at the Delaney Hall concentration camp failed today, so now people are roasting inside as temperatures rise above 100 degrees. It's so hot they can't breathe.

Dear Friends of Cynthia Johnson and kind souls: Please give as you are able today. Timely help is urgently needed this week. Both new and ongoing health issues this month! With gratitude, Cynthia www.gofundme.com/f/financial-...

A loud and painful reminder that COLLEGE-EDUCATED Black women bore the BRUNT of job loss last year cc @epi.org.

My first post about that Wired piece: virology.ws/2026/06/09/t...

A politician that wanted my vote would rage against AI slop. It’s destroying so many communities built in good faith, with no expectation of profit, by people that just wanted to knit the world back together. Travesty so few have anything to say.

Hope all #chronicillness patients will join me in supporting this @standupforscience.net comment drive to keep politics out of scientific research. For so many of us, lifesaving cures and medicines hang in the balance.

Watching this was so moving because I never saw anyone nurse Maeve like this. It was all left to me, alone, round the clock for seven months - including during hospital admissions. I couldn't do it all. We needed help. There was no help. Getting her out of hospital was the best help, but without a

Welp *USDA CONFIRMS DEADLY SCREWWORM IN US CATTLE

The purpose of the left ought not to be to love America, but to reimagine a way America could be worth loving.

What's worse, it will only reinforce the author's false premise that Long COVID "advocates" are the reason this "cure" isn't being explored. Oh, but it is. In piece after piece after piece of unsubstantiated pop-sci drivel. Dear @wired.com Cherry-picked anecdotes do not science make. #pwME

He could do this because NIH grant proposals are reviewed and approved by scientists based on the value and quality of science produced by a lab. A PI's personal politics don't come into it, and that's how it should be. The world has seen the alternative and it isn't pretty. Lysenkoism sucks.

Very bad news. Screwworm appears to have made it to Texas, as was predicted. These parasites eat the living flesh of cattle, cause horrible pain, and can ultimately kill them. Yesterday, USDA Chief Brooke Rollins categorically denied that screwworm was close to the border.

5/ 🔺️❗️You can help fight this! First, make a public comment at www.regulations.gov. Put OMB-2026-0034 in the search bar. Look at prior comments, then submit your own before 7/13. (Do it now, so you don't forget.) Next, sign here to tell your MoCs you're PO'd: agu.quorum.us/campaign/163...

🚨This is very, very bad news. Below, find details & two 📢 action items to fight this proposed rule. "Under the new rule, peer review would not be eliminated, but political appointees — not necessarily scientists — would be required to review grants before awards... share.google/ko7DMqjdlf97...

Work 15 hours just to buy ONE box of tampons as an incarcerated person. America.

A really important story about new details Trump officials released on Medicaid work requirements: www.statnews.com/2026/06/03/m...

Climate change has put the oceans in deep trouble, and now the Trump admin is ditching a $368 million deep-sea monitoring system. www.cnn.com/2026/06/03/c...

In one of the craziest hacks recently, here's how hackers tricked Meta's AI into giving them access to a wave of Instagram accounts. They simply asked. Watch more and subscribe here: www.youtube.com/watch?v=MsAt...

My unfiltered comments: “It’s easier in a lot of cases to get the right to die approval than it is to get the disability support...what are we even doing as a society?” ... The cumulative number of LC cases is also increasing, according to the study, which Vogel said is “exactly what we expect.” 1/2

Peptide companies have been doing AI-engine optimization by spamming the biohackers subreddit to manipulate ChatGPT and Google.

I’ve been thinking a lot about the shifting baseline concept as applied to everyday life. People in their 20’s now have no memory of highly functional systems, products (from blenders to sweaters) that were so well made you could hand them down across generations, or even helpful customer service.

This is a helpful guide! If you haven’t made a comment yet, please do! Even—especially—if you’re not a scientist!

🧵OF KEY CONCERNS We've now read Alan Levinovitz's WIRED piece on Long Covid. Our concern isn't that it discusses psychological theories. Our concern is that it repeatedly conflates criticism of evidence with creating a "climate of fear". Those are not the same thing. /1

1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME

Share a story by @swastrosarah.bsky.social in memory of Maeve Boothby O’Neill: www.smileforme.org.uk/shareastorymaeve 🩵

Articles like these launder how utterly asinine brain retraining programs are, priming credulous readers to hate patients when they should abhor the programs. Here’s a Buzzfeed article about Lightning Process. www.buzzfeed.com/tomchivers/i...

That trash Wired article is a poor way to start a day.

And my own take on some of the key points in what OMB/Vought is trying to do here: "If you wanted to cripple science research and were disappointed that Congress continued to fund it, this is the sort of document you would produce."

Please help this wonderful Indigenous artist, who is disabled, keep herself & her family safely housed. Fundraising for survival every month is excruciatingly stressful. Chip in what you can, & repost to spread the word. So that Kia & her kids know that they matter, & we care. Thank you!!!🌺🌺🌺

It’s 2026 and the only tamales my grocery store carries are Hot Tamale cinnamon candy. It’s an outrage.

This is bad. Submit a public comment and urge your state to sue and fight back against implementation of these federal rules: https://elizabethginexi.substack.com/p/summary-of-key-changes-in-ombs-proposed If implemented we won't have science anymore, just another political arm of the […]

Labeling entire accounts “adult” and hiding them, no matter what they are posting, will inevitably suppress vast amounts non-explicit political speech around sex work and censorship. The accounts most likely to speak out about over moderation are the ones first to experience it — the whistleblowers

Anyone can submit a public comment in response to the Trump Regime's plan to destroy science in the United States. Fuck it, this is important enough — I'll take general questions, provide help with specific comments, etc. just @ me on here. 🧪

Great ?, let's run through it 🧵 Content won't matter to Russ Vought's OMB, they're not on the level. Possibly a large enough number of sufficiently powerful actors submit comments opposed, their combined *political power* could cause Vought to retreat. But it won't be prose that does it

• Submit a comment opposing the destruction of 🇺🇸 science; • Pressure every org, professional body, association, uni, etc. you are affiliated with to submit the strongest possible comment opposing this calamity (highest ROI move for most of us) • Make sure your electeds see those comments 🧪

Okay, fine, so he sent sexual texts to multiple women other than his wife, made awful comments about rape online, and got a Nazi tattoo, but what are you gonna do, not vote for him? www.nytimes.com/2026/05/30/u...

Slipping in a Friday executive order directing the CDC to no longer recommend kids get vaccinated for: -hepatitis A & B -meningococcus -rotavirus -influenza -Covid-19 I’ve seen all those diseases. They can be devastating and fatal. The vaccines have miniscule risks. This will kill kids #WarOnKids

My Go Big or Go Home thoughts for this Saturday: I make the case for why we should consider amending the Constitution to create a fourth branch open.substack.com/pub/asharang...

tl,dr; Scientists no longer allowed to use federal funding to publish, attend meetings, or talk to the public. They cannot collaborate internationally. Grants can be cancelled for any reason, at any time, political appointees have a final say over what gets funded, and who gets funded.

What on Earth?! This video is from Greenpeace. 💔

In this newsletter I outline important actions to take. 1. Submit a comment opposing the rule change. 2. Contact state legislators to ensure states are engaged with the impact at the state and local level. 3. Contact members of Congress. 4. Spread awareness. This rundown is a great source:

🆕 Study recruiting participants to explore potential links between infectious microbes and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 🦠 Find out more about eligibility. Please RT and share! Participation is voluntary and no financial incentives are provided. ➡️ buff.ly/KjXMBlp

Just a reminder that immigrants inside Delaney Hall are on their ninth day of a hunger and labor strike in protest of inhumane conditions and this was Governor Sherrill’s response last night:

Did you participate in this Vyvgart clinical trial for #LomgCOVID? If so, Mt. Sinai needs your blood to analyze a potential autoimmune biomarker that might help millions.

🧵 Public science in the US has taken some heavy hits over the last year, but the White House OMB is proposing a series of changes that will result in a TKO for science as we know it unless we fight back. Here's what's happening, and why it matters. 1/n

Now, for the "good" news: these are still proposed changes! They have not yet gone into effect. The public comment period is now open, and will run through July 13. You can file a comment about this proposed rule changes here: www.regulations.gov/document/OMB...

In honor of Julia, too sick to attend. Image 1 sign inspo @ Sunniva Innstrand on IG & David Wojnarowicz. Like HIV/AIDS crisis, neglect of ppl w/ ME is public health failure. Sign petition protect Medicaid c.org/2jXD7kFHMk @meactnet.bsky.social #FrailAndFurious #MillionsMissing #MEawareness26 #pwME

this is a brilliant summary of a terrible terrible policy. It is absolutely not an understatement to say this will destroy US science.