Call to action: Congress has extended Telehealth until January 31,2026. This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Call now using our call script: www.meaction.net/telehealth #Telehealth #PwME #MECFS #LongCovid

Dear friends and kind souls: Please help as you can today! 💛 With gratitude, Cynthia Johnson #StandByMEcfs #StillSickStillFighting gofund.me/0d803d22

Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today! #StandByMEcfs #StillSickStillFighting #MEcfs #pwME #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono

Today, hundreds of millions face #MECFS & #LongCOVID without FDA-approved treatments. Until December 2, your support goes 3X further to advance critical research and bring us closer to answers. 💙Donate today: ow.ly/rZEb50Xr8wI.

This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground. Remember, HOPE is a sweet rebellion. #MEAction is a lantern in the darkness. We can only continue our work with your support. www.meaction.net/lantern-in-t...

Our annual two-day celebration of the craft of writing for film and TV returns on December 5-6! Tickets for WGFestival 2025 are on sale NOW! ✏️✨ Visit wgfestival.org to learn more and secure your pass today!

Not Hard to Understand Start from this point: We all want to get better. It’s not hard to understand: We all want to get better. Just to be very clear: We all want to get better. Proceed accordingly. It’s not hard to understand. Words/Image ©Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs

You are not forgotten I see your faces, I know your names, I remember your stories. #StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #GlobalVoiceForME #EndMEcfs

To learn more about ME/CFS, check out: Bateman Horne Center (www.batemanhornecenter.org). MEAction Network (www.meaction.net), Open Medicine Foundation (www.omf.ngo), Solve M.E. (www.solvecfs.org) #StandByMEcfs #StillSickStillFighting #MillionsMissing

Stand By ME/CFS! Please watch my Stand By ME/CFS video. Hear my story. I suffer from ME/CFS along with millions of others. We need your voice and support. Become an ally in 2025! #StandByMEcfs 2025 #StillSickStillFighting since 2009 #MillionsMissing of all ages www.youtube.com/watch?v=s9cM...

If you have a bit extra to spare: Cynthia Johnson @minetodo.bsky.social has had #MyalgicEncephalomyelitis since 2009--she'd already survived #breastcancer-- and still needs help w/ her medical and everyday expenses. #pwME #chronicillness #NEISVoid www.gofundme.com/f/financial-...

Please help us wish @wilhelminaj.bsky.social a very happy birthday! Wilhelmina is a force in our community. We would not be where we are without her. We are truly honored and touched by her gift which will be matched! #pwME

I am celebrating my birthday by making a donation to @meactnet.bsky.social to keep the struggle going in these difficult times. Here’s how to join me in supporting this essential work. www.meaction.net/lantern-in-t...

Today is my 78th birthday. When I first became ill in 1983, I was 33. I was 38 when I was diagnosed and attended my first support group meeting. Since then, I have worked with many wonderful people in the fight to make ME/CFS respected, funded, researched, understood, treated and, we hope, cured.

I am a strong supporter of advocacy that holds our government responsible for treating our illness with the same urgency as any other major health crisis. I trust the dedicated staff and volunteers of @meactnet.bsky.social to continue this fight, even when I can only fight from bed.

It was my pleasure to be interviewed last month by students who are part of the Young Citizens of the World program. Their thoughtful questions sparked conversations about humanitarianism, music, photography, and nature. Watch our full interview on YouTube: www.youtube.com/watch?v=w91R...

We'd like to invite you to the next webinar in our series about the intersection of universal healthcare with EVERYTHING. Our Veterans webinar is the day after veterans day! HEALTH CARE FOR ALL WHO SERVED Reinforcing the VA, not replacing it. Wednesday November 12th, 6:00 PM

Join a virtual conversation with Grist.org Senior Staff Writer Anita Hofschneider and Yurok attorney, activist, and author Amy Bowers Cordalis to talk about her new book "The Water Remembers." Register for this free online event: buff.ly/IPiz6Xu

“Part 2 of Navigating Clinical Uncertainty” - practical strategies for bridging the patient-provider communication gap suggested by US clinicians, a caregiver and person with ME/CFS. Wed 12 Nov 5pm UK Register in advance. tinyurl.com/x3w8jbdj

HAVE YOU SEEN THIS MAN? The Umatilla Tribal Police Department is seeking the public’s help to find him.

Registration is now closed, but if you already registered (or you’re just curious) and want to check out our updated conference program or attendee guide, please check out our website. icancme.ca/research/202...

#ICanCME2025 is happening this week! This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far. And please be patient with us this week if we run into any issues. 🤞💙

💙 Triple Giving November (TGN) is returning! From Nov 1–Dec 2, every dollar you give to OMF will be TRIPLED (up to $500,000) to advance #MECFS & #LongCOVID research. Learn what to expect during TGN here: ow.ly/oJb550XkvOB.

🌟 Kick off a TRIPLE MATCH Fundraiser for OMF! 🌟 Follow this link to launch in as little as 60 seconds: www.omf.ngo/digital-fundraising-toolkit/. ALL donations to your fundraiser will be tripled between November 1 -December 2, 2025! #MECFS #LongCOVID #pwME #pwLC

Join us on Tuesday November 4th for our webinar discussing the success of Taiwan's National health insurance program, and the lessons we hope to bring forward with Oregon's system! November 4th, 6 PM, with Dr. Chunhuei Chu, Dr. Rebecca Schoon, and Dr. I-Ming Parng of Taiwan's National Program.

Join us November 4th for our discussion with leaders in Taiwan's National Health Insurance System, and people on the forefront of Oregon's move to universal health care. Taiwan has had the best rated healthcare system for years. Oregon has the best chance to move universal health care.

Don't let the grim reaper steal your health insurance! CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases. Congress is tackling these very issues during the govt shut-down - they need to hear from YOU! See our call script 👇.

Proud of #MEAction for fighting to #SaveMedicaid & the #ACA so creatively this Halloween! We've got an advocacy action for you! You don't have to have #MECFS or #LongCOVID: this is a fight for all of us. Read through this 🧵to find out how to participate 💪 youtu.be/E-8B0NpENtk

Creepy baby me says....Congress stop playing tricks with my healthcare! #MEAction's Ben HsuBorger shares his self-proclaimed creepy baby photo to help spread the word that right now is a scary time! Contact Congress today! Tell them we do not accept this HealthSCARE! www.meaction.net/medicaid

It’s Halloween-time, but we shouldn’t actually be living in a horror movie. Congress is fighting over healthcare cuts that will make access to medical care a nightmare for working families, small businesses & people with disabilities. Call Congress: www.meaction.net/medicaid #SaveMedicaid #ACA

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME Via Lu Baker Art instagram.com/lubakerart

“Veiled" 2007, by Julian Lennon Limited Edition Archival Photographic Prints Available *Note: Red background is part of graphic and not included on prints for purchase. www.artsy.net/artwork/juli...

Social Security Administration disability claims evaluation changes may deny benefits to hundreds of thousands of people and harm older adults more, per a new study SSDI eligibility for new applicants may decrease by 20% and up to 30% for workers aged 50+ www.aarp.org/social-secur...

🎥 Recordings Available: Community Symposium on the Molecular Basis of ME/CFS 👉 Access them here: ow.ly/Aw2G50XcIIO #MECFS #pwME

On Tuesday, OMF brought together Directors from all our Collaborative Research Centers for a monthly meeting to exchange insights and advance research on #MECFS and #LongCOVID. Pictured: CRC Directors, Linda Tannenbaum, Danielle Meadows, and Maureen Hanson.

Dear friends and kind souls: Please help as you can today! 💛 With gratitude, Cynthia Johnson #StandByMEcfs #StillSickStillFighting gofund.me/0d803d22

The Fall 2025 BHC Newsletter is out! Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal. 📖 Read now: https://bit.ly/4onikSe #MECFS #LongCOVID #BatemanHorneCenter

🦦 The Elakha Alliance Science Symposium held virtually is TOMORROW, Monday October 27th! 🌊 We have an important schedule update to share: Due to the federal government shutdown, Heather Coletti from the National Park Service will be unable to present. Register: bit.ly/EAScience25 | #seaotters

This month, in accordance with federal rules, Oregon will start adopting new eligibility criteria for SNAP that will likely impact at least 313,000 people. On top of that, current recipients may not get their benefits at all in November due to a prolonged government shutdown.

🎉 We’re just 1 WEEK away from the annual Elakha Alliance Science Symposium - happening Monday, October 27th from 9am–4pm PST! Join us virtually on Zoom to hear the latest updates in #seaotter conservation from experts around the world. 🌎 Register: bit.ly/EAScience25 | #seaotters #wildlife #oregon

🎶: "Love Don't Let Me Down" (LoFi) 📷: Source Photo (without lyrics), "Bloom" (2023) www.artsy.net/artwork/juli...

🧬Science Wednesdays A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq #pwME #pwLC #BH4

#pwME when researchers begin building on each others' work, we know convergence is happening and a testable theory is emerging. Hope is shining, albeit dimly, help is coming. Stay strong. www.youtube.com/playlist?lis...

The one in six Oregonians who rely on federal SNAP food and nutrition assistance to pay for groceries each month will be left with nothing in November due to the ongoing government shutdown. oregoncapitalchronicle.com/2025/10/20/s...

We know a lot of people are wanting to participate in actions or protests right now. #MEAction has a Protest Guide for those with ME or other energy-limiting chronic disease to help! Find it here: www.meaction.net/_files/ugd/b... #pwME #MECFS #ChronicIllness #protest #spoonie

Stretching 250 miles along the coast of British Columbia, it’s the largest intact coastal temperate rainforest on Earth! In our latest Story Immersion, travel through Perry’s photos and words to learn about this fragile ecosystem. Take a look at the full photo essay: buff.ly/rznlTtt

It's time for Oregon seniors on Medicare Advantage to shop around www.thelundreport.org/content/its-...