Dr Nicola Clague-Baker, co-founder of Physios for ME, needs the help of people with ME. She is working on developing simulation training for health care professionals caring for patients with #SevereME and #LongCovid in hospital 👇🏼

There's still time to email your MSP(s) as part of #MEAction Scotland's ME Awareness Week campaign. We've already had some very encouraging responses from MSPs whose constituents have contacted them.

Good news for #WorldMEDay. Gov invests £4.75m in research. Congratulations to Action for ME, The University of Edinburgh, Decode ME Study, Oxford Nanopore Technologies, and the European Bioinformatics Institute (EMBL-EBI). www.gov.uk/government/n...#WorldMEDay#MilionsMissing #MEAwarenessWeek

This year, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week (11th-17th of May). Last year, in the final budget of that parliament, the Scottish Government earmarked £4.5 million

As part of their #MillionsMissing campaign this year, #MEAction UK are asking people to lobby their MPs on behalf of those with Severe or Very Severe ME.

The The Neurological Alliance of Scotland has asked us to share a survey being undertaken by The Migraine Trust to find out about people's experience of accessing migraine treatments. The survey should take approximately 20 minutes to complete.

NHS Lothian are setting up a new group for people with lived experience of ME and Long Covid, with the aim of helping to inform and shape future services. The group will be an online group and will be open to people in NHS Borders, NHS Fife, NHS Forth Valley as well as NHS Lothian.

#MEAction Scotland is pleased to report that, after lots of hard work including attending party conferences, meeting with all the major political parties and sending numerous emails, we have secured pledges on ME in three party manifestos. #MyalgicEncephalomyelitis #HealthEquality

As the 12th May is the first day of the newly elected parliament will meet, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week, which this year runs from the 11th-17th of May. #MyalgicEncephalomyelitis #MillionsMissing #MEAwarenessDay

𝗜𝘁'𝘀 𝘁𝗶𝗺𝗲 𝘁𝗼 𝗴𝗲𝘁 𝗿𝗲𝗮𝗱𝘆 𝗳𝗼𝗿 𝗕𝗹𝘂𝗲 𝗦𝘂𝗻𝗱𝗮𝘆 𝟮𝟬𝟮𝟲

BBC Radio 4 Feedback full segment. Listeners share their concerns about Dr Suzanne O’Sullivan’s claim that #LongCOVID is psychosomatic. Includes an interview with @NickyProctor (11 mins) youtu.be/Du4devaRH5w?...

Despite the fact that the DHSC's own final delivery plan (published July 2025) highlighted the URGENT need for specialist services for those with very severe ME #MyalgicEncephalomyelitis #VerySevereME #HealthEquality

Ask your MP to put a health quesiton down on why the DHSC have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest.

The DHSC paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at earliest. This isn’t acceptable @rthonwesstreeting.bsky.social! Sign up for our mailing list meaction.org.uk/sign-up for more news. #MyalgicEncephalomyelitis #VerySevereME

Another heartbreaking case of a very severe ME sufferer. Tomos is in Wales but there is nowhere treating the very severe anywhere in the UK. www.bbc.co.uk/news/article... #MyalgicEncephalomyelitis #VerySevereME

Children and young people may grieve changed abilities, missed milestones, friendships that slip, and a “before” life. Want to know how to help? Download this toolkit ➡️ bit.ly/4qCMCkL

In an election year, speaking to prospective parliamentary candidates is more important than ever. Last weekend, our volunteers spoke to three PPCs @snp.org Spring conference - @thewliss.bsky.social Kate Campbell and Steven Bonnar #MyalgicEncephalomyelitis #HealthEquality#MyalgicE#MyalgicE

Many children and young people take on caring roles without identifying as a young carer. This can mean key support they are entitled to is missed. Help make sure they’re supported effectively. Check out this toolkit bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

Children and young people affected by neurological conditions can hide the impact. This is known as “masking” and can delay support. Do you work with children and young people? Check out this toolkit ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

#MEAction Scotland thank @BenMacpherson for his tireless support since our launch in 2018. Due to his recent appointment as a Minister, Ben is stepping down as our official parliamentary champion. We look forward to working with our new SNP champion, @PaulMcLennan7 #MyalgicE

Neurological conditions can co-occur with anxiety, depression, behavioural change and more. Read our toolkit on how to support children and young people impacted by neurological conditions ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

At least 1 in 6 people lives with a neurological condition, including children and young people. The mental health impact of these conditions can often be hidden or misunderstood. Do you work with young people? Check out this toolkit @neuroalscotland.bsky.social bit.ly/4qCMCkL #BrainAwarenessWeek

Today is Long Covid Awareness Day. Now in its 4th year, this year's Long Covid Awareness Day focuses on the heart problems which can affect people living with Long Covid #LongCovid #ChronicIllness #LongCovidAwareness

During a busy day @theSNP Spring conference, #MEAction Scotland engaged with many MSPs, including Cabinet Secretary for Health and Social Care, Neil Gray, Minister for Public Health and Women's Health, @jennimintomsp.bsky.social and First Minister, @johnswinney.bsky.social#MEAction #MyalgicE #HealthEquality

Brain Awareness Week is coming soon. This year, we are raising awareness of the impact of neurological conditions on the mental health of children and young people. Watch out for our posts throughout the week. neuroalscotland.bsky.social #BrainAwarenessWeek #DontAssumeImOk

#MEAction Scotland volunteers recently met with staff from NHS Lothian to discuss its guidance for GPs who are considering referring patients to the ME/CFS clinic at Astley Ainslie Hospital.

Another weekend, another party conference. This time it was the Scottish Labour Party Conference, a single day conference which proved both busy and fruitful for #MEAction Scotland volunteers, Janet and Judith. #MyalgicEncephalomyelitis#MyalgicE#MyalgicE #HealthEquality

#MEAction Scotland has been contacted by the Long Covid service within NHS Ayrshire & Arran. They are asking the ME/CFS community to complete a short survey to help them design the new service they’re setting up with their share of the £4.5 million announced by the Scottish Government last autumn.

𝗜𝘀 𝘁𝗵𝗲 𝘁𝗶𝗱𝗲 𝘁𝘂𝗿𝗻𝗶𝗻𝗴 𝗼𝗻 𝗠𝗘 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵? Our thanks to MEAction UK volunteers Catherine and Jo for giving their time & energy to speak so clearly about ME. #insidehealth #MyalgicEncephalomyelitis www.bbc.co.uk/programmes/m...

#MEAction Scotland volunteers had a busy morning at the @scottories.bsky.social Spring Party Conference. They spoke to a variety of delegates including prospective parliamentary candidates, councillors, MSPs & an MP @brianwhittle.bsky.social @suewebbermsp.bsky.social @tesswhitemsp.bsky.social

A productive first day for #MEAction Scotland's volunteers at the Scottish Liberal Democrats Spring Conference. Today we have engaged with a range of prospective candidates as well as MPs and MSPs @mpsusanmurray.bsky.social @cajardinemp.bsky.social and @jamiegreeneuk.bsky.social#MEAction#MyalgicE

Only 3 days left! MEAction UK is looking for new trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG #CharityTrustee #MyalgicEncephalomyelitis

MEAction UK is working on a survey of #pwME with the University of East Anglia (UEA) Medical School to assist in developing a research application. For more Info & take part: meaction.org.uk/news/2026/02...#pwME #MyalgicEncephalomyelitis

NHS Highland have announced that its new virtual service for ME/CFS will be available "from spring" NHS Highland's full spending proposal is available to read here bit.ly/4a9Ium4 #MyalgicEncephalomyelitis#MyalgicE#MyalgicE #HealthEquality

Reminder! MEAction UK is looking for trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG #CharityTrustee #MyalgicEncephalomyelitis

A reminder that MEAction UK is looking for new trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG #CharityTrustee #MyalgicEncephalomyelitis

Remember to sign up for our UK mailing list to keep informed about our work. meaction.org.uk/contact #MyalgicEncephalomyelitis

Last autumn, #MEAction Scotland went to the Scottish Liberal Democrat Party Conference & spoke to journalist, Justin Bowie of @thecourieruk. We then put Justin in touch with our supporters. www.thecourier.co.uk/fp/politics/...#MEAction #MyalgicEncephalomyelitis

A reminder that MEAction UK is looking for new trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG #CharityTrustee #MyalgicEncephalomyelitis

MEAction UK is looking for trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. Read our Trustee Role Description shorturl.at/tZTMG #CharityTrustee #MyalgicEncephalomyelitis

Remember to sign up for our mailing list to keep informed about work. meaction.org.uk/contact #MyalgicEncephalomyelitis

#MEActionUK emailed @NHSEngland about incorrect info on its ME/CFS webpage. Our request will be 'added to their backlog for a member of the website team to pick up when there is capacity' bit.ly/3NoAFRF#MEActionUK#MyalgicEncephalomyelitis #HealthEquality

It's good to see BBC Inside Science covering Danny Altman's research at Imperial College funded by the ME Association. Coverage starts at 6.55.

We start 2026 by bringing you an article from The Press and Journal by Justin Bowie detailing Amanda's struggles with ME and disbelief and quoting a #MEAction Scotland volunteer. Read the full article here: shorturl.at/7mbuK#MEAction #MyalgicEncephalomyelitis #MillionsMissingUK

As we come to the end of 2025 it's time to thank you all for your support of our recent launch as a UK charity & all our amazing volunteers. Please find list of resources which we hope will be helpful over the holiday. meaction.org.uk/news/2025/12...

FLASHBACK! OFFICIAL LAUNCH OF #MEACTION SCOTLAND Kim Gurav, Emma Shorter and Janet Sylvester officially launched #MEAction Scotland As we launch as a UK charity, join us and help us fight for equitable research and treatment. meaction.org.uk

Flashback! October, 2017 - Unrest shown in Parliament. There is still much to do but, for now, enjoy our flashbacks and remember how much it took to get us here. ❤️ Sign up: meaction.org.uk/contact Volunteer: www.totalgiving.co.uk/donate/meact... #MyalgicEncephalomyelitis

Flashback! We held our first #MillionsMissing in Scotland! Other UK protests in Birmingham, London, Newcastle, Newry & the Isle of Man. Join us! meaction.org.uk/contact Donate/volunteer: www.totalgiving.co.uk/donate/meact...#MillionsMissing #MyalgicEncephalomyelitis

Flashback to 2016! In January 2016 we gathered over 15,000 signatures & the reply wasn't enough then or now. There is still work to do. Join us! meaction.org.uk/contact Donate: www.totalgiving.co.uk/donate/meact... #MyalgicEncephalomyelitis #MillionsMissing

Flashback to 2016! In January 2016 we gathered over 15,000 signatures & the reply wasn't enough then or now. There is still work to do. Join us! meaction.org.uk/contact Donate: www.totalgiving.co.uk/donate/meact... #MyalgicEncephalomyelitis #MillionsMissing