So far going through a failing state is the ol' other people filming collapsing social systems until you're the one filming the collapsing system vibe I'm not particularly in to

I am very tired of the Anxiety Dream Greatest Hits Reel. Some of them are so worn-out that even as I am dreaming them and dream-terrified and desperate, I'm like, this again? Really? You know you could just stop having this horrible dream right??

It is being reported on the ground in Cuba that everyone on a ventilator at this hospital died overnight. As a Cuban, I'm devastated.

For people who are concerned about having their devices seized at US airports starting Monday when ICE "assists" the TSA, EFF has this guide: www.eff.org/deeplinks/20...

I didn't know I needed a drag old time string band called Tradwife Stringband but I do! They're just the thing! They're awesome!https://youtu.be/7SZvbesmX4A

A great loss for the whole M.E. community and especially his son. The absurdity and cruelty of a highly disabling disease which has been recognized for decades as a bona fide illness - since 1969 by the WHO - and yet the gravity of which seems only to be fully grasped by some close to #pwME. #ME/CFS

#PwME #MECFS #LongCovid

I love this story so dang much.

Some good news!

Absolutely love that there's a Clean Air Network "Covid Safety for Workers" workshop in this program! Heckin heck yeah baby!

5 days away! Register at the 🔗 in our bio.

Este fin de semana habrá traducción en directo al español para todos nuestros talleres. 💫 We will have live Spanish translation for all of our workshops this weekend!

WHAT IF YOU LOST HALF THE HOURS IN YOUR DAY? YOUR WEEK? YOUR YEAR? #ME/CFS causes a 50% reduction in pre-illness activity (at least). Every COVID infection increases your risk. It can happen to anyone. Practice self care & protect your community. Wear a mask This & more ko-fi.com/saltydyke/shop

Someone just said "if no one's coming to save you, no one's coming to stop you either". And that my friends has been floating through my brain for a hot minute 😇

Part of getting through the day is being self-aware enough to know that you are being impacted and maybe triggered. It doesn't have to be a story just like yours. It can be totally different, but reminds you of your own story. Maybe you're going to be worse at your job or whatever today. That's ok.

Also, as a brandnew #babyvegan, I'm so grateful to have access to Heura foods. Especially the mind-blowing #vegan chorizo. I wish I had started sooner, but I am glad I started this year.

$417 remaining to raise for new bifocals and eye exam 💸💕 #helpsky #disabilitycrowdfund #tipaNative

Read this alt text.

Of all the things I wish I had known to lead me to go #vegan sooner, the top two: 1. Your palate adjusts and you start really enjoying plant-based foods. 2. Empire/capitalism have built a culture of ridiculing vegans because plant-based eating is a real threat to imperial structure.

Ein Bericht über den Protest zum #LongCovidAwarenessDay, wo es auch um #MECFS ging. Bemerkenswert, wie lange manche Stakeholder weiter aggressiv den inadäquaten Status quo verteidigen. Gewinnen tut dabei niemand. www.derstandard.at/story/300000...

There are some 3,000 patients on dialysis machines in Cuba who are at risk of dying from a prolonged blackout.

Goddam!! Weep with those who still weep!!

23 years ago today: Israel killed American peace activist Rachel Corrie by running her over with an armored bulldozer. She was wearing a high visibility vest and protesting Israel’s destruction of homes in Gaza. An Israeli court ruled the incident was an accident. en.wikipedia.org/wiki/Rachel_...

"Smartphones are essential tools for sex workers. Yet after 20 years of widespread use...many have no idea key features that can reduce privacy and safety risks exist. Here's a list of five smart features sex workers should know about..." tryst.link/blog/five-ip...

#MECFS durch C19 war in der Tat Worst Case mit Ansage. Und dass Prävention von Aerosol-übertragenen Infektionserkrankungen angesichts dieser häufig Infekt-getriggerten Erkrankung so gar kein Thema ist, verschärft den Worst Case anhaltend. #LongCovidAwarenessDay www.zdfheute.de/wissen/mecfs...

On #LongCovidAwarenessDay — I think the most important thing to understand is that it’s still happening: “I got COVID for a 3rd time in 2025 (I'm vaxed, boosted & took paxlovid)... Boom #LongCovid. Can't climb due to PEM. I haven't climbed in almost a year.” “COVID… is still causing disability.“

It takes relatively little disability to make the rest of the world consider you “disposable.” They won’t say it out loud, but their actions are clear. #DisabilityJustice #LongCovid

We are aware #LongCovidAwarenessDay isn't the easiest of days. So instead of asking you to do anything we thought we'd give you a present! 🎁 You can download for FREE our medical binder here 👇 🖇️https://www.longcovidadvoc.com/toolkit

At the beginning of the pandemic some disabled people felt hope. We saw inclusion and accessibility improve overnight. We saw accommodations put in place that we had spent years begging for. We saw the world adapt. That hope was ripped away during the rush back to normal. It still hurts.

Trump's health is obviously deteriorating and his appearance along with it. That's a tantalizingly easy visual metaphor to latch on to. But at time of weaponized eugenics I really wish folks who otherwise claim liberatory values would know not to reinforce the equation of health with character.

On this year’s long covid awareness day, I want more people to read and think about what the late Shafiqah Hudson said before it killed her. Because she was right, as usual, and also early, as usual. Perhaps too early for a lot of people to listen.

The rise of online vibrant events in early Covid offered a lot of hope for disabled/chronically ill people who have access issues attending IRL events (including going into a flare later). Anti-Zoom reactive sentiment pushed a lot of people into being more isolated again.

So I was vaccinated with the new shingles vaccine, both doses, in 2022. Last year I had a small shingles outbreak anyway, and now I have one again, despite being on a homebrew IMC-2 of Valtrex and Celebrex. Clearly my body is not operating at ideal parameters despite being Novid. #MECFS

Hey guys, I actually wrote some science fiction. It's a capstone to my AI series at Emptywheel, but it takes place in 30 years. COUNTS. emptywheel.net/2026/03/13/w...

Our hope is that this guide provides more clarity around the evidence base behind potential LC treatments, all in one place — that it helps patients evaluate the options available to them, & informs clinicians on the supporting evidence for off-label treatment in #LongCovid. /5

Fantastic release for #longcovidawarenessweek 🔥 Pragmatic 🔥 Insightful 🔥 Hopeful Well done & thank you to all involved 💙

Lilah is THE BEST so please consider hiring her!

Today is the 36th anniversary of the Capitol Crawl and disabled people are still fighting for basic rights in a society that's actively working to undermine them, surrounded by systemic disablism. (This is a corrected thread TY to the person who flagged that I said 26th, not 36th!)

GenAI being fundamentally based on a rejection of consent is obvious, but it's not as obvious that it destroys the inhibitions of the people who already reject consent. It makes them act in public the way they used to only act when cornering their employees by the punch bowl or in their office

There's a vaccine for tick-borne encephalitis in Germany; I got it last year for my collection, from our GP.

So I was vaccinated with the new shingles vaccine, both doses, in 2022. Last year I had a small shingles outbreak anyway, and now I have one again, despite being on a homebrew IMC-2 of Valtrex and Celebrex. Clearly my body is not operating at ideal parameters despite being Novid. #MECFS

It's shocking how common the reaction of many physicians to Long Covid has been "hey, they look like the ME/CFS, POTS and fibromyalgia folks we've dismissed for decades" rather than the obvious, rational "holy fuck that means common infections were the likely cause all along like they reported".

I feel like I have been in grief perpetually the past six years. I understand death is a part of life but many ghosts I am grieving were young people and also people I knew well. Needless death. COVID, drugs, and alcohol, violence. What is it like to not feel grief like this I don’t remember.

Also, the main SXSW venue is the convention center which is also covered by the bathroom ban. Trans people cannot safely attend this conference or event. But because 20 states have done this, people stopped giving a shit. It's just normal for them, not even an afterthought.

So please, if you can, I’d love to have this thread list pro-Trans everything. Creators, craftspeople, writers, artists, activists…if you or someone you know deserves some celebrating, bring it the fuck on, okay? Post links if you can. Buy stuff if you can. They hate when people stand up.

🚨🧵by @biff234523 on XTwitter, about fall 2026 #Novavax in the US: "2. It’s time to start contacting your independent pharmacies and providers and imploring them to place a reservation, to help ensure the widest availability." 🧵 (3-min read): threadreaderapp.com/thread/20312...

It isn't actually a privillege to have to try and scrape by on the instable proceeds generated through your patreon, gofundme, onlyfans or itch because you have been excluded from the formal economy. That is something that you have to do because the alternative is to fucking starve.

Ah hell. Rest in peace, Country Joe.