While SNAP is in limbo between politics and courts, grocery stores and apps have offers for both SNAP recipients and people who want to donate food (e.g. Instacart Community Carts). Would’ve been great if these businesses had advocated against politicizing SNAP with the shutdown, but here we are.

😭💔 😷 #CovidIsNotMild Reposting with alt text

I get these fact-checks re tylenol/Autism lawsuit but what is very much needed is messaging of "If you think your kids' autism diagnosis is that devastating, please seek help before your child feels the effect of your anti-autism views."

We are offering one time payments to disabled folks in the South who will not receive their SNAP benefits this month. If you need help, please find more information and details at ndsdj.org/snaphelp. If you’d like to donate to the fund, go to ndsdj.org/snapdonate We take care of each other ❤️

“Leaders not Tweeters” is the rebrand America needs.

If you're going to volunteer at a food bank because of the current times, please consider wearing a mask when helping distributing food. Even if they're not wearing a mask themselves, poor people have enough to deal with right now, getting an infectious disease just adds to the burden.

I know a lot of people (cough Millennials) feel like they need to START a thing, START a food bank, build a little free food pantry. My friends, my loves, my dears. Don't start. JOIN. These exist. They have community ties! They have some funding! Accountability! Regulations!

Feeding America has a page where you can input your zip code and it'll show you all of the food banks near you overlaid on a map. If you need it, it's there. If you don't need it, think about donating money if you have it and your time if you don't. www.feedingamerica.org/find-your-lo...

I love this whole thread that looks at how things associated with femininity (like decorating the front porch) are important for relationship building which is vital for community organizing.

What if all the rich members of Congress donated their salary to their local food banks....

Sen. Jeff Merkley is still speaking on the Senate floor, continuing a marathon speech he began last night. oregoncapitalchronicle.com/2025/10/22/r...

Actual @lastweektonight.com is here? Resharing an advocacy thread from last year! :D

Brb just writing a screenplay about a struggling inflatable costume factory in a wholesome but dying American small town that unexpectedly helps save democracy, and democracy saves it right back.

We know a lot of people are wanting to participate in actions or protests right now. #MEAction has a Protest Guide for those with ME or other energy-limiting chronic disease to help! Find it here: www.meaction.net/_files/ugd/b... #pwME #MECFS #ChronicIllness #protest #spoonie

I’m on Day 4 of a migraine, but that’s nothing compared to what people are suffering from USAID cuts, unconstitutional deportations, illegal military actions, and the loss of healthcare access. Thanks to @meactnet.bsky.social for the perfect #MECFS protest shirt. #NoKings Douglasville, Georgia

Block. Do not engage. They are here ONLY to get engagement, why the fuck would you give them the one thing they came here to get

US Government accounts have arrived on Bluesky. Block on sight. Protect your digital space. Be aware that the DHS account in particular is known to quote dunk on regular people to encourage their followers to harass them. The detach quote function will come in very handy here…

Here’s a list: bsky.app/profile/did:...

I see protest discourse is hitting the feed again ahead of No Kings—idk man, go, don’t go, …but if you do go make sure to link up with an org that’ll help you get into longterm organizing and if you don’t go, make sure to link up with an org that’ll help you get into longterm organizing

Wanna to go to a virtual No Kings rally that focuses on healthcare (with a side of "vaccines are good, actually" and "eugenics is bad, actually")? Organized by disabled folks who can't go to an in-person event. Join Saturday at 2:30pm Pacific time, zoom link: us06web.zoom.us/j/8467741742...

You know when your symptoms and the adrenaline spike together, so you text a family member everything you know about joro spiders and read 30 different smoothie recipes, because you don’t want to sit with the symptoms, or doomscroll, and you shouldn’t move a muscle? #MECFS

This made me tear up. What wonderful news!

You simply cannot do as bad a job by accident as these ppl do on purpose Start an advocacy campaign, run for something-- you have something they don't An earnest desire to help, to change things for the better. Compassion and integrity

We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! www.meaction.net/_files/ugd/b... It includes planning an accessible protest & attending an in person protest when you have ME or similar. #pwME #Protest #MECFS #ChronicIllness

Today @thesicktimes.org: Armani Guerra shares his personal experience with Long COVID, and how it led him to start the first-ever case competition for IACCs at the University of Michigan's business school. thesicktimes.org/2025/10/03/l...

The child of the shooter who attacked my faith community on Sunday is a victim too. He has medically complex, expensive needs and has lost his father. Please help me #DoSomething and raise funds to help him. I am grieving, but we can still make one thing less bad. www.givesendgo.com/helptheSanfo...

A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who 1/

This whole thread is so good and relatable. The lack of support, the incredible community of sufferers, the radical reorienting of life and purpose, the incredible suffering at the mild/privileged end of the spectrum and what that implies for the very severe/marginalized end of the spectrum.

The thing about all of this as a ND person and as a person with an infection-associated chronic illness: all of this feels like a bad doctor's visit where the clinician swears that the most important thing is that you as the patient "feel heard" It's not. It's that the patient BE HELPED.

Jimmy Kimmel was taken off the air after our government threatened a private company with retaliation, marking a dark moment for free speech in our nation. More than 400 artists across our nation signed on to say: We refuse to be silenced by those in power.

👉 REPOST CALL TO ACTION!: BOYCOTT T-Mobile! 1. They are hosting Trump's new "Trump Mobile" on their network. 2. They partnered with Elon Musk's Starlink. 3. They lobbied for "Trump's Big Beautiful Bill" 4. They ended DEI for Trump's approval on 2 major acquistions. MORE HERE: tmobileboycott.org

We called Disney+ last night and cancelled our Disney/Hulu/ESPN bundle. I’m a disabled stay-at-home-mom of twin 3-year olds. To say we watched a lot of Mickey Mouse Funhouse, Clubhouse, and Bluey would be an understatement. If even we are cancelling, you know they’re feeling it. #BoycottDisney

RFK Jr, who is causing unprecedented damage, is deeply unpopular with the public. Democrats absolutely need to demand his firing as a basic minimum for supporting any effort to fund the government.

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it's so funny to see America's health insurance companies be like "look. If there's one thing we love it's denying you care. but we ran the numbers - and we cannot BELIEVE we're saying this - and it's cheaper for us to just pay for the vaccines than deal with you going to the ER."

I was like 5 hours into an emotional breakdown when i had my first bite of the strawberry pie from @rachelriggs.bsky.social cookbook In Good Health, and my goodness! I have never been so fully transported by a bite of food. What a bright, sunny dessert! The whole family is raving.

I am leading a discussion tomorrow with a politically diverse group and I am feeling the weight of that task. So we went to a reservoir to watch birds and feel peace. AND WE SAW MUTE SWANS!!!!! They don’t live here. This is our first errant bird sighting! Take that, big scary universe!

The news is bleak, but months ago I planted native spotted bee balm in my yard and this week the flowers finally bloomed and now they’re crawling with giant baby native carpenter bees! So yay! One tiny step towards restoring a healthy ecosystem.

Know your rights, Illinois. Stay safe and stay informed.

Tylenol/autism stuff is bad for many reasons, but it will be used to push the idea that pregnant people shouldn't have pain relief. Women's pain is already dismissed.

I’m attempting to watch this with both 3 year olds underfoot. Twin A is drawing a picture of the Eiffel Tower for me. Twin B is providing a running commentary on my freckles. But the obvious care the panelists have for patients still comes through loud and clear.

We spent a long time today trying to find novovax in states near us that can actually offer covid vaccines. Illinois, if you offer vaccines, we will come. We will spend money in your towns. We’ll visit your petting zoos, baseball stadiums, and outdoor eateries. Please do this.

This is a very powerful letter from a current CDC employee.

We can’t just wait 2~4 years and hope to win free and fair elections. This is something Blue states can and should do now: form a new intrastate body to fund science research. We can’t save science in the whole country, but we can hold onto a large chunk.

❤️ this whole thread. This study was done 3 years before I got sick. The first sign something was wrong was I got slower and sicker during my 4th season of track & field instead of faster and stronger. No one recognized it as the tale-tell sign of PEM. What if school coaches learned to spot this?

Is there a US org that has: 1) a list of k-12 schools with indoor air quality good enough to reduce infectious disease spread? 2) suggestions for what to ask for / how to advocate if your kids’ school doesn’t have tip-top #IAQ? I’m sure it’s out there, but I’m struggling to find it.

The "Big Beautiful Bill" will take away insurance from 17 million people, mostly from people on Medicaid. I want to tell you how losing Medicaid would impact me directly.…If I lost Medicaid, my parents would have to sell our house… #disabled New post on my blog: www.whitneydafoe.com/mecfs/?post=...

I've seen some posts suggesting day drinking to deal with today's news, and I want to offer some suggestions for how to get through today if you don't want to drink, or use drugs. I'm going to suggest these things as someone who hasn't drank or taken drugs in over 9 years. I hope they help.