Our latest @thereforme.bsky.social blog includes our reflections on the Final Delivery Plan for ME and a rundown of some of the media coverage. We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!

After 3+ years of waiting the Final Delivery Plan for ME is being released today. Our comment 👇

I'm so grateful for the support of the other carers I know. It means the world to be understood and to be able to be there for each other. I'm a little less lost with them in my life 🙏💙

It’s official: the @libdems.org.uk are #ThereForME ! 🧡 Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day. They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan

Was hoping to see my MP on this list.

EXC - 42 MPs have signed a letter to Keir Starmer saying the disability cuts are “impossible to support” PM is facing biggest rebellion of the parliament over welfare vote MPs call for pause and rethink until fuller impact assessments can be done in autumn and warn disabled people are frightened

If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you. 👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...

The UK government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with Long Covid and ME/CFS. We've launched a survey to gather your insight 👇

Great to hear our @oonagh_cousins and #ThereForME Ambassador @binitakane.bsky.social on @bbc5live.bsky.social this morning! Clip here courtesy of @abrokenbattery.bsky.social👇 youtu.be/9Wh6lIEYZcg?...

Powerful story on @bbclooknorth.bsky.social about Dr Alexis Gilbert. “"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer," www.bbc.com/news/article...

📢 MEDIA OPPORTUNITY Do we know anyone who has borrowed money, taken on debt or sacrificed basics to finance private care for ME or Long Covid - and who would be able to talk to media about it? We can share more details by DM.

We’ve been so moved seeing the #FundThePlan videos over the past few weeks. Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign. We’d love your help making some noise with it 🙏

Today's #ThereForME blog post is from @nickbenton.bsky.social, who has experienced some improvement from Very Severe ME. He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves. www.thereforme.uk/p/stuck-at-t...

We’d love your help asking allies in your life, and the wider world, to get involved and stand with people with ME as we ask the government to #FundThePlan. We’ve even got a new template script for the occasion 👇

We’ve been amazed watching the incredibly powerful #FundThePlan videos being shared by people with ME and carers. It’s clear PwME want change. Now we’re asking allies, whether friends, healthcare workers or public figures, to join us. It’s time for #FundThePlan: Ally edition

Dear @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social. My partner is missing from his life. Please, #FundThePlan 💙 #MyalgicEncephalomyelitis #LongCovid #lyme @thereforme.bsky.social

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

Yesterday’s news was disappointing but not unexpected. With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps. More from us tomorrow on how you can fight back 💪 #FundThePlan

Support for ME isn’t just for Christmas! Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today. www.thetimes.com/comment/colu...

The piece also quotes today’s op-ed from @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social on the need for an ambitious delivery plan 💛 bsky.app/profile/ther...

Our co-founder @karenlhargrave.bsky.social quoted in @thetimes.com today on news this week that no additional funds are planned for the new ME delivery plan. www.thetimes.com/uk/healthcar...

Today’s #ThereForME blog is from an anonymous healthcare worker She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like. www.thereforme.uk/p/designing-...

We made a #valentines card for @ashleydaltonmp.bsky.social 💙 #ThereForME #forgetMEnot

Today we’ve written to @ashleydaltonmp.bsky.social - sharing congratulations on the new role and asking for commitment that the new delivery plan for ME/CFS will remain a ministerial priority. Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.

Our latest #ThereForME campaign update is out today! Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇 www.thereforme.uk/p/campaign-u...

@newsagents.bsky.social it's really hard hearing you talking about covid being an episode in the past. The lockdowns are over but covid persists and is affecting many many people. Some of us have to live effectively like we're in lockdown to avoid infection cos it's simply too risky to health. 🙃

Early morning love poem.

In today’s #ThereForME substack we share some of the feedback we received from the community about your priorities for the new Delivery Plan for ME/CFS. 6 things you’d like to see in the delivery plan 👇 www.thereforme.uk/p/six-things...

I wish when you get a notification from bluesky and click on it that it would take you to that message or post instead of just open the app. @support.bsky.team

@karenlhargrave.bsky.social and I have written a blog on our hopes for the government’s Final Delivery Plan for ME and other Infection Associated Chronic Conditions like Long COVID ⬇️

📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME. Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised. www.thereforme.uk/p/a-delivery...

So excited to share these messages of hope & solidarity for 2025! Huge thanks to all who contributed. #TheRedTreeandME #myalgicencephalomyelitis #LongCovid #pwME open.substack.com/pub/theredtr...

Our #ThereForME campaign updates are back! As 2024 comes to a close, @karenlhargrave.bsky.social reflects on the work we’ve done this year and what we’re looking forward to in 2025. www.thereforme.uk/p/campaign-u...

Yes, I’m definitely #ThereForME. Too many #pwME live with darkness. We’re all poorer for it. It’s time for @DHSCgovuk and @NHSuk to finally give #ME & #LongCovid the response they deserve.

Dec 22: It’s Rachel Parris, English comedian, musician, actress and presenter! Her message: “I wish peace, relief, support and to be heard. I hope Santa brings you real help, systemic change and JOY where possible.” #PatientSafety #pwME #pwLC #ThereForME

Come on you lot! This one's suuuuoer easy! 💪

Dr Ranj has spoken about his experiences with #LongCovid. "We call it brain fog colloquially but that probably doesn't do it justice [...] essentially you're losing the executive functions of your brain." www.express.co.uk/life-style/h...

Dec 20: It's TV doctor Dr Ranj Singh! Dr Ranj is also an author and columnist, and has appeared on #Strictly. His message: “You are so much more than your condition. And you deserve to be heard. Merry Xmas, Dr Ranj x” #PatientSafety #pwME #pwLC #ThereForME

@karenlhargrave.bsky.social has summarised the findings in this 🧵 bsky.app/profile/kare...

Our campaign's first bit of media coverage this year came from @eleanorhayward.bsky.social, who followed up with this story about @oonaghcousins.bsky.social (ft. a very glamorous photoshoot!) Read more about #ThereForME HQ member Oonagh's story 👇 www.thetimes.com/uk/healthcar... #ThereForME#PatientSafety

Enormous support from these awesome journalists! 🙏

Yay, my MP supports #ThereForME! Thanks, @steveracemp.bsky.social 🙌. Hope we can find time to chat soon!

A big thanks to Steve Race for joining our multi-colour coalition of #ThereForMPs across the house 🙌 ❤️💛💙💚 #ThereForME

We're so very grateful for all the lovely messages today! Thank you for the support! As Karen said, it's been a binfire of a time personally, so your messages have really adjusted the cheer balance! Much love 💕

Ok, so I'm not a poet, but something about the act of shampooing my partner's hair silently in the dark yesterday made me want to have a go. (Don't laugh)

Note to self: best to avoid talking about the downs of being a loved one's carer to normals. They won't get it, suggest it's a problem you've created, try to fix you, and you'll feel worse. No, I have not made being a carer my identity.

It's been an incredible five(ish) months of #ThereForME! 🙌 In case you missed it, this is where it all began earlier this year 👇 www.thereforme.uk/p/welcome-to...

I think lots of you guessed right!

Who do you think is behind door number 17? #ThereForMEAdventCalendar

Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.