Lovely working with you too @louisekenward.bsky.social and thank you for sharing.

theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social

Available to buy now: One Red Leaf at a Time Greetings Cards. All proceeds go to our #MEcfs research @uoe-igc.bsky.social. Thank you @drjogreer.bsky.social & Dr Clare Raynor! theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime

open.substack.com/pub/theredtreeandme/p/one-red-leaf-at-a-time-greetings?r=4yhsbn&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true #OneRedLeafataTime #TheRedTreeandME is fundraising for research into #MyalgicEncephalomyelitis at The University of Edinburgh, led by Professor Chris Ponting.

Helping turn hope into action Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting. open.substack.com/pub/theredtr...

Here's a short happy-go-lucky 🎶 parody about the way that Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard". youtu.be/FDiXrd-R68U It's called: "Measles and Polio Down in the Schoolyard."

So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME

The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment. #SevereME

Hero to #pwME Dr Nigel Speight is fundraising for @medicalaidpal.bsky.social & cycling from Lands End➡️John O'Groats "With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight 🔗👇 www.justgiving.com/page/arthur-...

💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII. This broad model is embedded within healthcare yet is NOT backed by evidence. Capturing highly vulnerable families whom the medical system is failing. It is discriminatory & damaging. We need change.

1/3 📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients" Full article (paywalled) 👇 www.thetimes.com/uk/healthcar... ⬇️

Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise

This is a really important and brilliantly delivered presentation from @binitakane.bsky.social. *please* watch, share, and urge your MP to get involved. We can and must make this change happen #ME/CFS #LongCovid #GreatestMedicalScandal

Thanks to @mediumwhite.bsky.social for the breakdown: bsky.app/profile/medi...

Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid

speaking with such moral clarity, exposing the deep moral and political failure of mainstream media and politics and their dehumanizing disregard in the face of what is happening in Gaza m.youtube.com/watch?v=Hk1W...

The Freedom Flotilla sailing toward Gaza is not just carrying life-saving aid. It is carrying solidarity, hope and our shared humanity.

La Freedom Flotilla s'approche de la bande de Gaza. Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !

Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/

Check out One Red Leaf at a Time: an international art project - launched by The Red Leaf Creative Collaborative. Read more about it here: theredtreeandme.substack.com/p/one-red-le... #PwME #MyalgicEncephalomyelitis #art

Calling all chronically ill artists and allies to help @drjogreer.bsky.social with this beautiful project: 'One Red Leaf at a Time', bringing awareness about #ME Myalgic Encephalomyelitis, and the need for funding for research. More information here: theredtreeandme.substack.com/p/one-red-le...

theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime #TheRedLeafCreativeCollaborative #TheRedTreeandME #MyalgicEncephalomyelitis #LongCovid #pwME

1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME. A main focus will be on research, with several guest speakers. Ask your MP to attend! More details below ⬇️ #WorldMEDay

Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness - take a look at the link to next week's concert too - substack.com/home/post/p-...

#pwME #MyalgicEncephalomyelitis #bluesundayconcert2025 #meawareness @meresearchuk.bsky.social @smileformecharity.bsky.social

Really pleased to have contributed a guest post to @drjogreer.bsky.social 's The Red Tree & ME. #Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS substack.com/home/post/p-...

#BlueSunday The Tea Party for ME Online Concert Registration / Donation here: bit.ly/bluesundayco... #pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS @meresearchuk.bsky.social @smileformecharity.bsky.social

theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME

'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁 @sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...

“El plan de entrega para mí es una oportunidad para invertir en su futuro y revertir generaciones de abandono. Por eso, por favor, ayúdennos a mantener la esperanza y #fundtheplan”

Who’s ready for Day 2 of #FundThePlan? The community shared so many powerful videos yesterday. Keep shooting your videos and joining in however you can 💙 Lots of action yesterday in the other place. We’d love to see it take off here too! 🦋

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

Yesterday’s news was disappointing but not unexpected. With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps. More from us tomorrow on how you can fight back 💪 #FundThePlan

30 yrs have been wasted on a psychological approach to #MECFS that led to stigma, abuse, and serious harm. It was abandoned by NICE due to bad science. Wes Streeting & @ashleydaltonmp.bsky.social The Delivery Plan is an opportunity to undo the damage and research treatments #FundThePlan

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades #FundThePlan @ashleydaltonmp.bsky.social & @rthonwesstreeting.bsky.social

#FundThePlan and help millions of #ME sufferers worldwide to regain their lives. Superb care for my bouts of cancer. Nothing for 32 years of severe ME.

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

Mums done a good job! We hope you enjoy and take a read - Caroline ♥️

theredtreeandme.substack.com/p/the-red-tr... Inspired by #TheRedTreeandME & Dr Lucinda Bateman @batemanhornecenter.bsky.social @carolinefricker.bsky.social has delicately crafted & introduces The Red Tree Warriors: “We know you are suffering and will continue to fight for you.” Dr Lucinda Bateman

Dr Clare Rayner, a member of The Red Leaf Creative Collaborative, shares with The Red Tree and ME her stunning art work, 'Reflections'. View or subscribe for free. #pwme #myalgicencephalomyelitis #TheRedTreeandME open.substack.com/pub/theredtr... #oneredleafatatime

Link to letter with signatories here. Every healthcare professional who signed this is an ally. But we need the political will to make this happen. www.thereforme.uk/p/world-pati...

Thank you @drjogreer.bsky.social for bringing hope to everyone suffering with #MECFS and #LongCovid. We see you, and we are fighting together. No government will silence us. Infectious disease research is more critical than ever. We will keep fighting! 💪 theredtreeandme.substack.com/p/more-messa...

Thank you so much @daniellebeckman.bsky.social for this wonderful message of solidarity for people with #myalgicencephalomyelitis #TheRedTreeandME Please subscribe to theredtreeandme.substack.com for free for more messages of hope and solidarity

More Messages of Hope and Solidarity for 2025 open.substack.com/pub/theredtr...

Q: Why isn't @GwynneMP pushing for #CleanAir to reduce transmission of #Covid during the ongoing pandemic and to reduce the number of ppl developing #LongCovid #LongCovidKids? A: Andrew supports the opinion that Covid is NOT predominantly transmitted through the airborne route. #CovidIsAirborne

Thank you so much @binitakane.bsky.social and @karenlhargrave.bsky.social #ThereForME for all your work on this. I hope the charities will follow your leadership and clear messaging about hopes for the Delivery Plan. #MyalgicEncephalomyelitis #LongCovid #pwME

📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME. Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised. www.thereforme.uk/p/a-delivery...