Chris Ponting @cgatist.bsky.social and Binita Kane @binitakane.bsky.social are obvious examples of people who are excellent on media broadcasts and in print. Would Amal Rajan and the MSM interview them with a counter argument to Suzanne O’Sullivan’s book. One that validates #ME and #LongCovid?

Lord O'Neill, Economist and former Conservative government minister, has called Brexit a “colossal economic shock” that is causing "more permanent damage” to the British economy than the current energy crisis is likely to. Isolating ourselves from the largest free market was a mistake.

To be clear, we totally can pretend it's not our war on the simple basis that it isn't.

Suzanne O’Sullivan was on the BBC Amol Rajan podcast saying #LongCOVID is psychosomatic for a large proportion of patients. I’ve written a response highlighting a number of problems with this claim on X, which can be viewed via this webpage: twitter-thread.com/t/2040085001...

..The aim, says the Times, is to reduce the number of hospital outpatient appointments by 30 million p/a. And the government, in a quite breathtaking example of political spin, is presenting this as “good” for patients - as though all those people who’ve been waiting months or even years..

BREAKING: 🇫🇷 Presidente de Francia, Emmanuel Macron: “We have decided not to authorize the overflight of U.S. military cargo aircraft bound for Israel. I want to be very clear with President Donald Trump: France is not a subsidiary logistics base. "

#pwME Where would you be if you could get out of your house or out of your bed? Post as many photos as you want. My house is about 1/4 mile to the left of this photo taken from Swift’s Hill, Slad, Gloucestershire. I haven’t been up there for over 30 years!

🟨 Print Edition — Farage’s Staggering Side Hustles Nigel Farage has spent more than 1,113 hours – or 140 working days – on his various other jobs since being elected to Parliament in July 2024. https://subscribe.bylinetimes.com/edition/84/farages-staggering-side-hustles

🧵/ The NHS is about to undergo one of the most radical – and scandalous - changes in its history. From 1st April (the public are the fools in this), GPs will be contractually obliged to seek remote “advice & guidance” from hospital clinicians, making it even harder to see an NHS specialist.

The colonialism of clowns.

A cruel penalty’: disabled people face lower benefit payments if conditions not deemed lifelong. A backbench revolt fought off previous govt attempt to cut disability benefits. Same needed again. No attempt to cut corporate welfare - auto, steel, Internet, energy, shipbuilding receive subsidies.

Most of the clinics don't follow NICE guidelines. This is an incredibly helpful #QuietRiot podcast episode that does a deep dive on ME and long covid in the UK, and the holes in the NHS "care" are mind blowing.

Difficult to think of a more humiliating moment for the US. Certainly worse than Iraq or Afghanistan. You have to go back to the fall of Saigon to find anything comparable.

Ever wonder why most of the media provide wall-to-wall coverage of everything the far right does or says, while ignoring far bigger rallies and events and far more interesting discussions elsewhere on the political spectrum? There's no mystery. It's because they want the far right to triumph.

The BBC is covering the U.S. No Kings demonstrations in full but not a word about the half million demonstrators against the far right in London. Not a single word! It’s almost as though our national broadcaster and indeed our government are far right puppets.

Yet another position that's almost identical to the policy promoted by English fascists in the 1930s. There seems to be a kind of ideological homing instinct at work. Before long, the entire package will be back in place. www.theguardian.com/environment/...

QR Special: The cruelty of Long Covid 👩‍⚕️ The brutal physical, mental, emotional, social & professional impact 😳 HOW many affected? 🚑 The battle to be taken seriously With @mrkennycampbell.bsky.social & Claire Higham 🎧 open.spotify.com/episode/1YGg... 🍎 podcasts.apple.com/us/podcast/t...

QR Special: The cruelty of Long Covid 👩‍⚕️ The brutal physical, mental, emotional, social & professional impact 😳 HOW many affected? 🚑 The battle to be taken seriously With @mrkennycampbell.bsky.social & Claire Higham 🎧 open.spotify.com/episode/1YGg... 🍎 podcasts.apple.com/us/podcast/t...

Huge thanks to Claire @longcovidadvoc.com for this excellent & hugely important @quietriotpod.bsky.social episode on #LongCovid where #ME is also frequently mentioned Big thanks also to @mrkennycampbell.bsky.social for his interest & understanding, we need more journalists like him #pwME

The solitary darkened silence of an #ME world. Purpose - to survive, despite the best efforts of many in power to crush us. We are inconvenient. In a world that simply values productivity we cannot produce We wait, with faltering hope, for change. Angry at the endless dismissals.

This was such an important paper, and I was dismayed when it did not have the impact that I hoped it would. But unfortunately, that is the way it usually goes for post-publication "debate", when the vested interests are in bed with the journals. #PACEtrial

'Discrimination': Noun: "the unjust or prejudicial treatment of different categories of people". This Labour government should be ashamed.

Dr O’Sullivan writes and says outloud what, the majority of health professionals seem to believe. Hence the halting of the DHSC care plan and hence the frightening lack of care or interest for the plight of #ME and #LC sufferers.Looking through her own narrow window she sees us all as psychosomatic

I wrote about the findings from the inquiry about the impact of the pandemic on the NHS, and the mistakes of the first year. I hope it makes you angry - it should make us all angry. open.substack.com/pub/christin...

This week we were informed by DHSC, alongside other organisations, that DHSC and NHS England have delayed discussions on commissioning a specialised service for very severe ME until April 2027. This means yet another year without NHS care for people with very severe ME. (1/3)

"Another year without NHS care" - only for those Severe #pwME lucky enough to be able to avoid the hospital. But the NHS has been starving at least one Very Severe person this year. That's not "No healthcare" It's "If you can't avoid hospitalisation, NHS will try to kill you with their prejudice."

Allies welcome! Just check the box for “Patient Advocate or Community Member.” If Drs had been educated on ME & diagnosed me properly, I could have avoided a life destroying train wreck. I needed to be told “you have a neuroimmune disease that gets worse w/ overexertion & infections. Avoid them.”

For reference: iykyk - these are the relevant sections of the #MEDeliveryPlan

Ex-Amazon appointed to head Competition Regulator Ex-Google appointed to head BBC HMRC hands deal to AWS Starmer regularly meeting with those ‘tech giants’ over the last 12 months, has really paid of for some, but don’t mention corruption or cronyism

If you are able, you can get involved by writing to your MP about joining the All Party Parliamentary Group on Long Covid, the closure of Long Covid clinics and the need for investment in research for Long Covid. A template letter is available on our website, link here: shorturl.at/qDd2K

Like many in the ME community I’m deeply disturbed at the news that DHSC is pausing work on a specialist service for very severe ME until April 2027. It’s been good then to be able to talk with minister Sharon Hodgson, and Carolyn Leary from Forward ME. The very understandable concerns are heard.

“This isn’t just about my livelihood – it’s about justice for the lough before there’s nothing left for the next generation.” The slow murder of Lough Neagh—the largest lake on the island of Ireland & across the British Isles—is a tragedy and a travesty. Go go Declan Conlon.

The lack of education about #ME to HCPs is not an oversight, it is a carefully planned strategy by those who continue to undermine anyone or anything that might change things for #pwME Our own personal oligarchs maintaining and gaining power while we rot in our beds.

Bloody hell. From secretly-funded lobby groups masquerading as ‘think tanks’ (who continue to dominate our discourse despite Liz Truss demonstrating the dangers) to a secretly-funded political party. Should have seen that coming.

@tessamunt.bsky.social I wonder if you’ve seen this. David J Black wrote a series of articles on #ME Well worth reading, particularly this one for you as it refers to fairly recent goings on in Parliament.

The endless exhaustion and frustration of having to explain #ME and PEM to health professionals who are not convinced is heartbreaking and aggravating beyond belief. They should know, they should be disturbed and interested enough to get themselves informed and then help us. Act please!

Painting by Winifred Nicholson 1893-1981 Poem by Frances Horovitz 1938-1983 A graceful antidote to the world news. (poor photographs due to dimmed light….due to #ME!)

www.scottishlegal.com/articles/dav... David J Black: PACE-gate. Have we been Waddelled? 16 Mar 2022 www.scottishlegal.com/articles/dav... David J Black continues to investigate the biggest medical scandal of the 21st century #pwME #MyalgicEncephalomyelitis @longcovidadvoc.com

The strikes on Akrotiri and Diego Garcia were both within hours of the UK escalating, and publicly announcing support for the illegal US-Israeli war on Iran. Starmer and a handful of colleagues are making decisions that belong in parliament. Not often a fan of Max H. but imo he’s right here:

Utterly the wrong call. Step by step, this embroils us in an immoral, illegal, illogical war.

Govt has refused to answer questions on whether it has the ability to approve or refuse individual targets for US strikes from UK bases, and whether banned cluster munitions are being loaded at UK bases. US bombers flying out of UK bases to strike Iran are avoiding European airspace.

The Green MPs and Peers have written to Keir Starmer to urge for an end to the UK's involvement in the US and Israel's illegal war. Under international law, the UK is obliged to have no involvement in illegal military action, including the use of UK bases and UK-made weapons.

Europe spent years debating whether the energy transition was affordable. Spain quietly answered the question: gas now sets its electricity price in only 7% of hours. Strategic autonomy doesn’t arrive via summit communiqués. It’s built in advance — in wind farms, solar parks, and grid investment

Iran's FM just told UK Foreign Sec: letting US use our bases in “participation in aggression.” @Keir_Starmer lets RAF Fairford become launchpad for bombs on Iran while swearing we’re neutral. This is offensive 💥💥💥 So dangerous!

Donald Trump is a bully. US forces should not be using our UK bases and we shouldn't be dragged into Trump & Netanyahus illegal war. @CarolineLucas speaking with such moral clarity on #BBCQT.

1. One of the things I mention as a secondary issue in this week’s column is a lie so deeply embedded in official narratives that we seldom even notice it: capitalism = “free markets”. In reality, capitalism is *the opposite* of the free market. A short 🧵. 1/8 www.theguardian.com/commentisfre...

The message from Farage is clear. If you're a British Muslim wanting to peacefully exercise your right to pray in public then you're a threat to the nation. If you're a convicted far-right rioter who was part of a violent street mob then you'll get a personal message of endorsement

I long for the day when first class Drs don’t have to say, “I feel really helpless when I see them” meaning #LongCovid or, later #ME patients. We need Drs to demand more research and treatment options. More like @DrAmirKhanGP who come out and talk about us publicly. 🙏

Stonehenge this morning.It’s the Spring Equinox. 💚🙏

So Orr has confirmed that if you vote Reform you'd better have enough money to pay for US-style private health insurance. Because US healthcare is all you'll get. And you'll get the bankruptcy and horrendous death that goes with it. #bbcqt #nhs #reform