I know that too many people are wishing that things were different, especially now on Christmas Day, but I hope you find even a tiny moment of peace and love today and much more in the future ❤️

Thinking of all the #pwME who are alone over Christmas & New Year, who wont be able to see family & friends I'm so very sorry Please know that you aren't forgotten, some of us will still be here online & we can get through this time together, as we always do Sending love🌟💙🌟

Their demands are reasonable, their treatment is disgraceful. The government's intransigence is killing the #PalestineAction hunger strikers. Just as its complicity has assisted the genocide in Gaza. It needs to wake up right now to the moral consequences. www.theguardian.com/uk-news/2025...

Delighted to hear that The Invisible Doctrine, the film by @peterhutchison.bsky.social and @lucas-sabean.bsky.social, is being offered free to view on YouTube for the holiday season. It's all yours! youtu.be/gR4eSEetKP0

Another very deserving entry in our advent calendar! Thanks @georgemonbiot.bsky.social for everything you’ve done to bring the issue to light and uncover the #GreatestMedicalScandal 🙏

December 17th. Thank you for being #ThereForME, @georgemonbiot.bsky.social! George is a well-known journalist who has focused on uncovering the reality of the “greatest medical scandal of the 21st Century”. Nominated by Carole B @cabruce.bsky.social#ThereForME ✨

Thank you. My MP, @simonforstroud.bsky.social had a prior engagement but asked me to send his apologies. If you come across him in the tea room you might like to mention the APPG to him. He is a GP and would be a very valuable voice in the ME cause.

There is one overriding political problem, from which all others follow. Until it is addressed, every policy advanced by governments is window dressing. www.theguardian.com/inequality/2...

The thing I still can't forgive Corbyn for is the generational harm he caused by enabling Brexit. When Starmer is gone, hopefully soon, I will feel the same way about the profound harm he has caused by making it palatable for the Far Right to ditch human rights norms. It will be his shameful legacy.

The root of everything we are experiencing today. Yet governments are complicit in perpetuating this situation, apparently unable to move beyond their outmoded beliefs . www.theguardian.com/inequality/2...

I signed the letter calling for the release of Marwan Barghouti. Overnight, I've received some 2,000 attack emails, identical text but different purported senders and subject headers. Still coming through now. Other signatories also getting it. Definitely an op. www.theguardian.com/world/2025/d...

Nigel Farage appears to equate Alf Garnett - a satirical 70s character intended to lampoon racists - with hissing "Hitler was right" to boys at school. I wonder if he's missing the point www.prospectmagazine.co.uk/politics/uki...

“Je suis Bernard Manning,” claims Nigel Farage. And so he is. But not quite in the way he meant. www.prospectmagazine.co.uk/politics/uki...

Last chance to register for our webinar on the Earth Rover Program, starting at 14.00 GMT. Intro by the brilliant Kate Raworth, then explanations of the concept and the science by some of our scientists and technicians. Register to obtain link. Hope to see you there us02web.zoom.us/webinar/regi...

"These results confirm that #ME is a deeply polygenic & biologically heterogeneous condition with at least 4 major disease mechanisms implicated by genetic signals Neurological dysregulation🧠 Inflammation🔥 Cellular stress response⚠️ Calcium signalling🚥" #pwME precisionlife.com/news-and-eve...

#ME people. Do ask your MP to attend this if at all possible. @simonforstroud.bsky.social any chance you might be free?

Or maybe diagnosis is at last catching up with the crises so many have been enduring, which have for so long been minimised, dismissed or ignored. share.google/1aKjHRJ596x6...

I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture. They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1

Huge congratulations @catherinehale.bsky.social such an important and useful article on ELC especially for #ME and #LongCovid patients.

Hansard for the Westminster Hall debate yesterday on #ME hansard.parliament.uk/commons/2025...

Just digesting the Westminster Hall debate: Government support for people with myalgic encephalomyelitis #ME #pwME Many, many thanks to @tessamunt (Wells and Mendip Hills, Liberal Democrat) for setting up the debate. Tears here, hearing our stories spelled out. Thoughts?

📺 Westminster Hall Debate on ME today at 16:30 #ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME You can tune in here 👇 www.parliamentlive.tv/Event/Index/...

I had a great conversation with the wonderful @zackpolanski.bsky.social on his podcast. Do please listen in. I don't think you'll have heard anything quite like it. And there's a LOT more here than the title suggests. podcasts.apple.com/gb/podcast/h...

Have been thinking about “immigration has been tearing this country apart.” Surely I’m not the only person to think that it isn’t true, but inflamed rhetoric about immigration by politicians is what is tearing this country apart and so statements like that only makes it worse.

Just to say how much I love and appreciate every one of the #ME brigade that post on here. Some can only watch and that’s ok, some have valuable information and that’s ok, some are scared and that’s ok, all of us understand and care and dare to hope for better days to come. 💙

Labour MP Simon Opher - "We should stop the boats because it's dangerous, and we should stop the scapegoating of immigrants because it's wrong and cruel. "Measures that create bureaucracy and insecurity do not offer clarity or strengthen control – they cost money, waste time and weaken the system."

"If you're not careful, the newspapers will have you hating the people who are being oppressed and loving the people who are doing the oppressing." Malcolm X. www.theguardian.com/commentisfre...

Climate breakdown is driven by a storm of lies. This lying is systemic, funded and coordinated, and operates across almost all media, old and new. This week's column argues that we cannot fight the climate crisis without also fighting the epistemic crisis. www.theguardian.com/commentisfre...

"Zealously Pro Palestinian party" Genocide is bad actually.

Let's stop subsidising destruction. This Govenrment need to stop standing on the side of polluters and instead tackle the cost of living crisis. Some of my thoughts on COP 30 👇🏼 bestforbritain.substack.com/p/cop30-must...

This was a diagram illustrating a piece I wrote in @prospectmagazine.co.uk in January 2024. Some faces have since changed but you get the general gist …

What you’re witnessing is a populist assault on the BBC. This is not an institutional scandal in any meaningful sense of the word. It is an attack on public service broadcasting. iandunt.substack.com/p/extra-edit...

Wise words in these turbulent times. Wise words for any time. Rainer Maria Rilka. Austrian 1875-1926.

After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab. youtube.com/@brokenbattery

1. The approach of mainstream Democrats is summed up in this astonishing February advice from the Democratic strategist James Carville: “Roll over and play dead. Allow the Republicans to crumble beneath their own weight and make the American people miss us.” www.nytimes.com/2025/02/25/o... 🧵

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📢 Exciting news! Today, we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.

The Big Survey is now live! It has been such a privilege to get to work on this with such a wonderful, inspiring team at @actionforme.bsky.social, including our brilliant Patient and Public Involvement Group, made up of people with lived experience of ME and Long Covid.

We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word www.scripps.edu/news-and-eve...

The fact that they belittle @zackpolanski.bsky.social and the Green Party surge just shows, I’m afraid, how out of touch mainstream politicians and media are with the longing for radical change and honesty that so many of us of all ages feel.

#ME #MEcfs

The Spectator and others have chosen (deliberately I suspect) to interpret this article as a desire to stop a future Reform UK government from legislating. My purpose is to stop *any* government crushing our fundamental rights. It’s just more urgent now. 🧵 www.theguardian.com/commentisfre...

So few researchers or medics of any kind have started from the lived experience of an individual #ME patient and seen the whole picture that is being presented. It may be unique and a very different and difficult way of working but it may be the only way forward.

This is the loveliest book. Cloth bound with words and drawings that are so healing. An antidote to so much of the horror of the world. 💛 @robgmacfarlane.bsky.social

Dr Clare Gerada has been appointed a crossbench peer in the House of Lords and is now a baroness — I’ve put together a short thread about her involvement in #MECFS. twitter-thread.com/t/1981309222...

Genuinely never realized why the pity response to disability is so uncomfortable, even frustrating, until I realized: it's because "ohhh how sad!" is about the listener. "By telling me that, you've made ME sad." It centers the listener, and even sounds accusative: you've burdened them. By existing

Delighted to welcome a Labour councillor defection to @greenparty.org.uk in Swindon! "Hope from social justice to the environment. Hope for a fairer society and cleaner natural world. Hope for equality and opportunity whilst living side by side with nature." swindonlink.com/news/greenco...

So many families, like ours, have been hugely enriched by the blending of people born far away with our own solidly English roots.

And now so many #LongCovid patients, children included, meet the criteria for #ME from which the world moved on last century as we were handed over to the psychiatrists whose job was to stigmatise us. It worked!

More archiving. This article by Kenneth Friedman compares the histories of ME/CFS and HIV/AIDS pmc.ncbi.nlm.nih.gov/articles/PMC...