Interested in participating in research into #ME/CFS #LongCovud #Fibromyalgia? Sign up to OMF’s new global studyME registry!

A promising case series using combination antivirals for #LongCovid - thanks to the authors for doing and sharing this, here’s hoping for an RCT follow up 🙏

ThereForME campaign update #pwME #pwLC @thereforme.bsky.social open.substack.com/pub/therefor...

New Mexico has issued a public health order that removes federal restrictions to COVID-19 vaccine access so that pharmacies in New Mexico can vaccinate people of all ages and risk profiles. Every state need to do this!

Resources for Caregivers (M.E.), from @chronicliving123.bsky.social chroniclivingtherapy.com/resources-ca... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME

TREATME: the Open Medicine Foundation's Mammoth ME/CFS and Long COVID Treatment Survey Results www.healthrising.org/blog/2025/07... Includes a summary plus an audio version of the full article & separately of the summary #LongCovid #MEcfs #CFS #PwME @openmedf.bsky.social @cortjohnson.bsky.social

#MEAction will be hosting a Community Watch Party for this year’s Severe ME Artists Project Video Gallery on Thursday, August 28th at 4 pm PT/7 pm ET. We are trying to offer as many ways to view the art as possible. RSVP: www.meartistsproject.com/event-detail... #pwME #SevereME #Art #Artist

Great to see the #DecodeME study covered by @theguardian.com @scienceweekly.bsky.social … plenty of discussion of how this *could mark a turning point for research, disappointingly little (nothing) on how this can’t happen until the dearth of funding is addressed 1/2

Good work Bluesky 🤓 #academicsky

More. More. More. "A total of 8,462 individuals have used [BfB's] digital platform to register complaints with Ofgem. The public has until Friday to voice their opinions on the application, after which Ofgem will decide whether to grant Tesla a licence." ~AA www.liverpoolecho.co.uk/news/uk-worl...

Protect yourself and your loved ones

It isn’t a cure but it is a marked step forward in understanding why some people suffer so badly from post viral syndrome ME Ponting & colleagues uncovered eight “signals” in genetic code where people with ME tended to have markedly different gene variants compared with the general population.

Amazing news of forthcoming trials to test anti-spike mAb’s in #LongCovid and #PostVac 🥳 Lead by @putrinolab.bsky.social @michaelpelusomd.bsky.social and Amy Proal in collab w Invivyd, the manufacturer of Pemgarda.

ooh there's a NEW Dr. David Systrom video even though I am very familiar with the topics he is discussing, LDN and and Pyridostigmine, I never miss anything he presents because if anyone is going to come up with treatments or cures for #LongCovid / #meCFS it might be him, always cutting-edge stuff

A mechanistic proof-of-principle for persistence of pathogen fragments driving aspects of chronic Lyme #ME/CFS #LongCovid

Florida, USA: People who had COVID at anytime & recovered (no persistent symptoms that started with acute COVID) are sought for $4m CDC-funded study. ME/CFS-aware researchers want to compare #longCovid to #MECFS but need controls Survey link: redcap.nova.edu/redcap/surve... Please share widely 🙏

A new #LongCovid clinical trial is enrolling for bezisterim, an investigational anti-inflammatory drug that crosses the blood-brain barrier. It has been studied in neurological & neurodegenerative disorders, including Alzheimer’s & Parkinson’s. 1/

This is a really important and brilliantly delivered presentation from @binitakane.bsky.social. *please* watch, share, and urge your MP to get involved. We can and must make this change happen #ME/CFS #LongCovid #GreatestMedicalScandal

Fantastic new initiative from @ruthbrooker.bsky.social to get clean air for kids in schools. This simple action can have so many benefits… Starting in Bristol - help it spread nationwide! #pwME #pwLC #CleanAir4Kids www.cleanairforkids.co.uk

The IRA detonated a 3,300lb lorry bomb on Corporation Street, Manchester, at 11.20am #OTD 1996, the biggest bomb detonated in Britain since WW2. Four coded warnings meant that no one died, but 220 were injured and damage to the city's retail and commercial core was extensive.

There's a rare moment - with abortion rights increasingly under attack - to decriminalise abortion. Please use our easy tool to write to your MP asking them to support NC20, Stella Creasy's amendment. Please use and share in your networks. action.goodlawproject.org/decriminalis...

This is so cool. I’m pleased to share version 1 of our new dashboard for displaying data from our wastewater metagenomic project. This is a collaborative projected between MU, U. Wisc, and SecureBio; funded by Inkfish and Open Philanthropy. 1/ lungfish-science.github.io/wastewater-d...

Distinct immunity protein families mediate compartment-specificneutralisation of a bacterial toxin https://www.biorxiv.org/content/10.1101/2025.05.31.657152v1

Fantastic to see such positive reports emerging from clinical use of GLP-1 RAs (ozempic et al) for #LongCovid. Alongside @zalaly.bsky.social’s research and new GLP-1 RAs coming to market, hoping this avenue into long Covid, #ME/CFS and #MCAS research and treatment will really take off soon

The case for ending all fishing and mining on the 'high seas' www.nature.com/articles/d41...

Concern over planning bill amendments www.theguardian.com/politics/202...

A single immunization with an intranasal vaccine provides effective protection and sustained immunity against highly pathogenic avian #influenza viruses in animal models #H5N1 #birdflu #vaccines

Jon Stewart is a legend & the way this show is trying to explain to a mainstream audience the gravity what is happening in the US is amazing. It was both thrilling & terrifying to be part of it. Thank you @TheDailyShow 👏 www.youtube.com/watch?v=vG7C...

Check out our latest preprint! We show that the same antibacterial toxin requires different immunity proteins depending whether it’s intra or extracellular

To mark the 1st day of my 4th year without Alice I have an announcement: I’ve joined up with a determined group of women working to change the narrative around trans people. Women standing in solidarity with our trans siblings. Our first step is to ask cis women to read and sign our open letter ⬇️

Registration and abstract submission for Staphylococcus Great Britain and Ireland 2025 are open until 30 May 2025: shop.le.ac.uk/conferences-...

Labour promised to restore nature. ❌ Instead, their Planning Bill contains a licence to destroy it. We offered solutions. We’re done waiting. Part 3 of the Bill would gut the laws protecting our most precious habitats & species. Without significant change, it must be scrapped.

🎧 If you like a politics podcast and haven’t yet found Quiet Riot, you’re a year late to the party! Informed analysis and insight with warmth and humour from the brilliant @sturdyalex.bsky.social and @pimlicat.bsky.social Give it a listen!

#MECFSAwarenessMonth – Day 22: Conclusion Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.

“PEM is a core requirement for diagnosis of ME/CFS and is pathophysiologically distinct from fatigue, deconditioning or depression and worsened by graded activity.”

MAKE NOISE ON THIS ONE‼️ They didn’t just deport him—they sent him to CECOT in El Salvador. Agelviz came here legally through the refugee resettlement program—fully vetted. But when he landed in Houston, CBP snatched him over a tattoo: a clock and a rose. No charges. No record. Just a suspicion.

I’ve just nominated my cardiologist @sunny-rae1.bsky.social for this award. She offers proper care and a real ray of light to those of us #pwLC #pwME lucky enough to live in the north east. If she’s your cardiologist, please consider nominating her. #pots #dysautonomia tinyurl.com/5n8pjuzx

Today is #WorldMEDay. ME is a chronic, complex and often misunderstood condition that has a huge impact on patients. People with ME have been let down for decades - it's time for that to end. Our @libdems.org.uk letter to the Government 👇

Tweet of the day

Today is ME awareness day. Please read and share this thread to understand more about ME (Spoiler - it’s much more than ‘chronic fatigue’ or ‘low energy’) 1/2

Why trying to out-Farage Farage is just never going to work for Labour. The most hardline, anti-migrant set of policies from any UK Government in recent years and the Daily Mail still portrays it as a betrayal

#DeepSeaMining - NO! We cannot destroy the last relatively pristine havens of #Biodiversity. We have so little knowledge of what is there www.bbc.com/future/artic...

404,000 pairs of shoes. One invisible illness.👟 This is what ME looks like in the UK: thousands lost to a disabling illness. Symbolised by shoes that stretch around London. 🛌Yet there is still no effective care Time for action! @ashleydaltonmp.bsky.social #MEAwarenessDay #MillionsMissing

Read our joint statement here: tr.ee/TsXPjMdu1A #pwME #pwLC #MyalgicEncephalomyelitis #FundThePlan @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social @joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social

👋Now is the time for action @rthonwesstreeting.bsky.social Collaborative and united effort on #MEAwarenessDay from the community 🙌 #StrongerTogether 💙

Clip from Re:News segment on #MECFS: “Waking up it’s like you’ve been hit by a truck. Everything’s shaking, vibrating internally. My brain feels inflamed, it’s like you’ve got a concussion.”

SOS Save Our Science #MECFS has been grossly underfunded since the beginning of time. MECFS is one of the few illnesses, along with #longCOVID, that just the act of living and existing makes you sicker. It is a cruel disease that can rob you of everything. 1/3

SOS Save our support systems Save our science Save our society There are #MillionsMissing from their lives due to #ME/CFS and #LongCovid Join the protest today! @meactnet.bsky.social 1/2

If you are able, please consider joining in on the #MillionsMissing action today. The livestream will start at 12 pm EST. See the RT post on other ways to join in from home! A great way to participate as an ally, is to RT people's stories, and help their voices circulate. Many incredibly

I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses. Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue #May12 #MEcfs #PwME