New product review out! I discuss my experiences with a deep tissue massage roller stick that was recommended by a well-known physical therapist influencer. Please like, share, and comment to help me grow my channel! youtu.be/g6GFDfxxEtk?...

My walking continues to progress in a positive direction! I am now able to walk back and forth to the bathroom, to the kitchen, etc. w/o assistance. I am also starting to string together tasks. So, go to the bathroom and then walk over and open up my curtains in the morning.

Made some quick energy bites to use up my remaining peanut butter powder. Threw some chia seeds in there. We will see how that goes lol. Glad I doubled the recipe, bc it didn't make many!

Made homemade tomato soup last night. 🍅 It tastes amazing! I think next time though, I'm going to make it in my instant pot. That way, I can easily double the recipe. And maybe I would roast one or two pounds of the tomatoes in parallel, so I could still get that same taste.

More spiders. Pulled back my covers to get out of bed, and found a big black spider underneath. 🥶 RIP fella. 🕷️🔥 I turned my dehumidifier back on, hoping that will help. I had turned it off, because it's heavy to empty. And, we're almost at the point of being able to open windows, so

I have just killed 3 spiders by my bed in the span of 10 minutes. Had one hanging over my head last night. 😭 Hate spiders. Doubt I'll sleep tonight.

Donated some of my engineering and science textbooks today. Felt good getting rid of them, and lightening my load of stuff.

Just finished the first book in the Twilight series (I never read them growing up). Really enjoyed it. Moving on to the second!

I've seen a lot of COVID cautious people interested in finding other like-minded peeps to date. Something that was started over on X, might be good to start over here. They started a hashtag called #CautiouslySpeedDating, and the originator said it was okay for me to try to start it up over here,

Better do your jobs.

Friends - Office Depot has 3M auras for BOGO 40% off. Definitely not the best deal I've seen on them (I've gotten 20 CT for $16), but decent.

A new recipe video has been posted on my Panicked Foodie channel. Pizza Enchiladas! Enjoy! ♥️ youtu.be/O67ikRjUGy0?...

New video posted on The Panicked Diaries Channel! Kind of a silly topic I suppose, but a lot of us bedridden/bedbound folks have plushies to keep us company. I go over different collections, and which ones I think are the best! #Disabled #Bedbound youtube.com/watch?v=MG4r...

Alice Wong's Celebration of Life is TOMORROW, March 25, 2026 from 11am-1pm PT.

New recipe video coming out this Friday!

Cheesy Kielbasa, Pasta, and Vegetable Casserole A dump and bake recipe! Perfect for chronically ill people who don't have a lot of spoons, but want an easy and filling home cooked meal. #EasyMeals #EasyRecipes youtu.be/KRrXkR4O3rU?...

Day 32 of me relearning how to walk! I stepped foot on the treadmill for the first time. I also give some tips on how to incorporate this into your rehabilitation routine, if you are also relearning how to walk! #Disabled #RareDisease youtu.be/J4DZAVtJqX4?...

A new video on my walking journey is dropping today (Wednesday) at noon, on The Panicked Diaries YT channel!

Hoping to make some homemade granola soon. 😋

JUST TOOK MY FIRST STEPS WITHOUT ANY MOBILITY AIDS!!!!

Can't believe how pretty my province is right now all lit for Long Covid. A powerful reminder that this issue is far from gone 🩵 Photo credits: 📸 Long Covid Foundation BC Parliament Science World/BC Place Canada Sails of Light With thanks to @cancovsoc.bsky.social #LongCovidAwarenessDay

Created a new dish tonight. Recipe dropping this Friday on my YT channel! Also found a way to video the recipe while keeping my unshowered a$$ out 😅

For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks. We hope this will be useful for journalists, policymakers, patients, & others! /1

We are aware #LongCovidAwarenessDay isn't the easiest of days. So instead of asking you to do anything we thought we'd give you a present! 🎁 You can download for FREE our medical binder here 👇 🖇️https://www.longcovidadvoc.com/toolkit

I did a quick product review of some facial cleansing pads that I had purchased by Desert Essence. Trying to maintain personal hygiene while bedridden w/o in-person support, is a challenge. Facial wipes help to keep part of my body clean. #ProductReview #DesertEssence youtu.be/U8YNPWJQaAs?...

Okay so after some research, I have come up with the following list for possible sneakers to relearn how to walk in: I have underpronation and significant heel pain. The list of contenders are: 1. Asics Gel-Nimbus 25 2. Hoka Bondi 9 3. New Balance Fresh Foam x1080v14 4. Nike Vimero 18

I think I might be far enough along to try getting on my treadmill... Going to attempt that in the next few days I think. And I will walk at a slow speed, for only a few minutes and see how that goes. The heel area of my Brooks sneakers are definitely a problem though.

I have posted a new recipe video over on my Panicked Foodie YouTube channel, for Almond and Tapioca Flour Oatmeal Raisin Cookies. These were really really good. It makes about 24 cookies, and I smoked through them in 2 days. 😅 Bit of a cookie monster. 🍪 youtu.be/2nJi1tsVKac?...

Going to restart the book "Around the world in 80 trains." I had tried reading it when I was first getting sick, but had a hard time concentrating because the pain was so severe. Very excited to get back into this book, because it was really good. And, I've also always wanted

NY will create all kinds of bogus laws and regulate everything right down to how many pieces of toilet paper you're allowed to use, but they won't actually regulate the right things. Like why are our electricity costs highest in the nation? wyrk.com/dark-skies-l...

I've got a huge gap on my resume due to chronic illness and probably will never be able to get a job again (if I ever got well enough), and this guy is out here committing crimes and is immediately hired. 🤣🤣

Just finished reading "The Spellshop." Took me forever to finish, because of the fatigue. The first roughly half of the book was a bit of a grind and I almost gave up on it. The second part of it was decent. 3/5 stars for me.

The reason why Trump is doing this, is because of his frontotemporal dementia. One of the clinical signs, is that the person likes to give out their favorite thing to lots of people "close" to them. This is a dementia behavior, along with many others that he is displaying.

Tonight was the first night my PT exercises for my legs felt "good." Like I was doing PT in a normal, healthy body (which is not true obv, because I still have an "untreated" DVT in my stent restricting 60% of the flow area). Also readjusted the forearm crutches, bc I forgot how tall I am.

Has anyone else seen a massive deterioration in their speech-to-text on their phone? Mine now regularly misses words, misspells things, etc. It's gotten really bad the past few months. Not sure what's going on? And I don't always have the energy to correct things.

A Moderate Risk has been issued with a 15% CIG2 Hatch area. Confidence is increasing that any storm in this environment will have the potential to produce EF3+ tornadoes. Take today very seriously. @myradar.bsky.social #ilwx

It costs 0$ to share a Black disabled queer small business! It could lead to my next sale. I sell pins, stickers, compression gloves, artist gloves, hip braces, wrist braces, compression socks, cute bags, walking sticks (selling fast!!) & more! Store: Bibipins.com

The “long covid is going away on its own“ myth was started by an influencer named “Health Nerd” who is an Australian epidemiologist who thinks US kids shouldn’t be vaccinated against COVID-19 (cuz AUS/UK don’t) and that NYC should have ran unethical RCTs on hospital visitation in 2020. Not science.

The Trump DOJ has been taking down Epstein files. The massive tranche of files the Justice Department currently maintains is more than 65,000 pages shorter than what the agency initially released, according to a CBS analysis — and the number continues to fluctuate.

he moon setting through the archway of St Michael's tower on Glastonbury Tor. Photo taken this morning before sunrise.

SARS-CoV-2 Infection Linked to Higher Thyroid-Disease Risk www.medscape.com/viewarticle/...

Ready-made salads are my jam. I do wish they were a little bit bigger and a little bit cheaper per lb though. I feel like these are part of the solution to eating healthier, bc they lower the energy and time barriers.

One of the things I was not prepared for as an adult, is how little effort some people put into maintaining friendships/relationships while simultaneously expecting them not to fail. I don't get it. Do people think it's acceptable if you're healthy and able-bodied, to only text once every 6

I know that I sound like a broken record but I think once this society was ok with accepting mass covid deaths just to be able to eat at Applebees then all bets were off.

you: [stressing for days to send the perfect single email] billionaires: hi, . w=en r we mee&ting to do iLlegiL stuff , . ?

Just found out today that she had passed away. 😭 If you're not familiar with her work, you can find videos of her work on Tik Tok.

And that settlement better be in the billions. I kind of wish we had a separate "literature" class for scientists and engineers, where we read and discuss cases like this. Literally had zero idea this happened, until like 2023. 😭 www.cbsnews.com/amp/news/nov...

Happy Black History Month! It costs 0$ to Repost a Black disabled queer small business! It could lead to my next sale. I sell pins, compression gloves, artist gloves, back braces, knee braces, wrist braces, compression socks, cute bags & more! Store: Bibipins.com

Stormy sky and daffodils. Photo taken this morning in Glastonbury about an hour before sunrise.

It seems all Kansas-issued trans drivers' licenses are invalid, effective tomorrow It is now illegal for trans people to drive a car until they surrender their license at a DMV (that most will need to drive to) and have it reissued with the wrong gender marker This was never about woman's sports