The project organizer, Adrienne Andres, is a textile artist from Manitoba, Canada whose narrative practice sits at the intersection of traditional craft and contemporary art. I feel blessed to have met Adrienne and her awesome Mom via @renegaderesearch.bsky.social.

We're are considering this meds, symptoms, other stuff tracking app in some upcoming research projects!

The Forget-M.E.-Not collective quilt is a venue to highlight the art, lives, and stories of people living with M.E. so they may be more seen and heard. The project enables participants to represent their story of how their lives have been impacted. forgetmenotquilt.ca/participate

So many TZA Community members live w gut disorders, often comorbid, so we really appreciate that there are docs specializing in the neuro and gut connection (treatment). DYK: GERD, IBS, Functional Dyspepsia, and Gastroparesis are common comorbidities for folks w #EDS and #HSD 🩵🦓🩵 #chronicillness

The recording of the roundtable with Dr. Spiritos is now posted to our YouTube channel! youtu.be/cyQqOygkSMo

Join us today, Friday March 27 at 1 pm ET! Let's get ready to rumbllle! Or un-rumble, if that's what your stomach needs 😅 Registration link: us06web.zoom.us/webinar/regi... We'll talk all things brain and gut in #LongCovid and #MECFS with neurogastroenterologist Dr. Zac Spiritos!

If you haven't registered for our event with Dr. Zac Spiritos on Friday, do it now! ✨ us06web.zoom.us/webinar/regi... Mast cells, POTS & other dysautonomias, the vagus nerve, visceral hypersensitivity, celiac, IBS, mold, inflammation reduction & more

Have questions about our #LongCovid #MECFS project #TheNicotineTest, led by project investigator @unitedstatesian.bsky.social? Read @thesicktimes.org coverage by Astra Lincoln in 2025 on the project's first round of research (helped by @tessfalor.bsky.social) thesicktimes.org/2025/10/17/n... 1/2

Did you catch @iflscience.com covering our Mechanical Basis research paper published last fall? Our paper explains how infections caused pathological processes and brainstem abnormalities in both #LongCovid and #MECFS Check out the article by Laura Simmons: www.iflscience.com/what-causes-...

Just 4 days away now. Hope people are enjoying Dr. Zac's Instagram/Tiktok for frequent short videos with music & humor to teach about POTS, Hypermobility, fatigue, brain fog, post infection issues, GERD, silent reflux, burning tongue, IBS, and MCAS, MCAS, MCAS. On Friday we get at least 90 mins.😀

Thank you to @betsyladyzhets.bsky.social of @thesicktimes.org for featuring Renegade Research's #LongCovidAwareness2026 X Space community discussion last week in their roundup of events honoring, helping and advocating for people suffering from #LongCovid thesicktimes.org/2026/03/17/a...

Don't forget to register for our Clinician's Roundtable this Friday with neurogastroenterologist Dr. Zac Spiritos! If you have #MastCells #MCAS #MACD #Mastocytosis #HaT #Histamine on the mind, you'll want to learn about the brain-gut connection and treating gastric impacts! Register ⬇️ #MedSky

This is next week! ✨ Don’t forget to register ✅ Subscribe to the Renegade Research YouTube channel to watch the recording later if you can’t make it: m.youtube.com/@renegaderes...

Happening in one hour, at 4 pm ET today! Tune in here: x.com/i/spaces/1nK... Please drop by if you have #LongCovid, treat it, study it or caregive for someone with Long Covid as we honor #LongCovidAwareness ❤️‍🩹

In 2022, I counted more than 400 healthcare centers in the U.S. offering Long COVID care. @delfimarchese.bsky.social followed up three years later, and found many of them have closed... or at least failed to respond to our inquiries. Her investigation for @thesicktimes.org: clinics.thesicktimes.org

Really interesting, worth watching! #LongCovid #ME

I’ll be cohosting this on Tuesday! Drop by if you have #LongCovid, it would be great to hear your voices and how you’ve been doing, LC friends ❤️‍🩹

What great presentations, illustrative slides, and a valuable discussion! Thanks to our panelists @resiapretorius.bsky.social @dbkell.bsky.social and Drs. Jordan Vaughn and Jill Schofield Thanks to our audience for your questions! The link to the YouTube recording is in the final post on this 🧵⬇️

You can now watch the recording of our Research Roundtable “Hypercoagulability, Clotting, Microclotting, and Blood Issues in ME/CFS and Long COVID” posted to our YouTube channel: youtu.be/FygtEROEqXE

What great presentations and illustrative slides. What a valuable discussion! Thank you to panelists @resiapretorius.bsky.social @dbkell.bsky.social Jordan Vaughn and Jill Schofield. We'll post recording link soon. We were about to wrap at 2 hr 50 min when webinar accidentally ended. Sorry.

Also if you have blood and long Covid or ME/CFS symptoms or study or treat them, maybe come to the research roundtable on blood and blood vessel issues webinar on Fri 3/13 by @renegaderesearch.bsky.social. See their pinned tweet.

Happening now! ✨ Jump in to learn more about how these conditions are caused, symptoms and pathways, testing and possible treatments! 🩸

TODAY 3/13 at 1 pm EDT 📢: The Hypercoagulation / Microclotting / Blood Issues Research Roundtable 2 weeks from today 3/27 at 1 pm EDT 📣: The Gut-Brain Axis and Mast Cell Connection Clinical Roundtable. Sign up at @renegaderesearch.bsky.social events page: renegade-research.org/events-list

TODAY! Roundtable of experts on research, tests, & Tx (anticoagulants & more). 🩸Hypercoagulability 🩸Microclotting 🩸Antiphospholipid synd. #TeamClots #MECFS #LongCovid #APS Join: us06web.zoom.us/webinar/register/1417709311549/WN_pA2epNjuSm2jn3852eeCNQ Recording: youtube.com/@renegaderesearch

Please donate to #TheNicotineTest, to fund the second round of research for this project - the Zeffy crowdfunding link is in this post ⬇️ Follow @thenicotinetest.bsky.social to learn more and support - Troy Roach, the project's principal investigator, explains the 3 years+ ongoing project's efforts

In 2 days… Two of authors and others who study micro clots and blood issues in ME/CFS and Long Covid @resiapretorius.bsky.social and @dbkell.bsky.social are headlining a research roundtable. 1pm. Friday the 13th. Check @renegaderesearch.bsky.social the host’s pinned tweet to register.

This event is in two days! Register now to attend: us06web.zoom.us/webinar/regi... If you can't make it, we'll post the recording to our YouTube later, so subscribe to be notified: www.youtube.com/@renegaderes... #TeamClots #Microclots #MECFS #pwME #LongCovid #APS #Clotting

We get to watch and maybe ask questions of champions of our conditions discussing microclots, antiphospholipid syndrome, and hypercoagulabilty and symptoms that come from those, plus treatment. Bring your friends!

I love that the paper mentions PPAR agonists! Maybe we'll hear more at Roundtable with @dbkell.bsky.social & @resiapretorius.bsky.social (+ Dr. Vaughn + Dr. Schofield) + some very awesome panelists. Fri MAR 13 1 pm EDT US by @renegaderesearch.bsky.social us06web.zoom.us/webinar/regi...

Recording of Sleep Dysfunction and Breathing Mechanics, a Clinician's Roundtable with Dr. Avram Gold. We learn via data & renegade discussion about Obstructive Sleep Apnea (OSA), Upper Respiratory Airway Syndrome (URAS), how you don't have to be a snorer, and more. www.youtube.com/watch?v=R6XN...

This is going to be a great event! If there’s more clinician, research and patient interest then we’ll look at booking a follow-up panel 🩸

Join us March 13 at 1 pm ET (US) for a Research Roundtable with @resiapretorius.bsky.social of @suhealthsci.bsky.social @liverpooluni.bsky.social, @dbkell.bsky.social of @liverpooluni.bsky.social, Jordan Vaughn of MedHelp, Jill Schofield of @cuanschutz.bsky.social 🧵Registration link, research below

Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers. New panelists: Bela Chheda, MD, Inf. disease & internist Anil Rama, MD, neurology and sleep medicine Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center

Dr. Gold, Sleep Medicine / Pulmonary specialist, will speak at next @renegaderesearch.bsky.social Clinician's Roundtable. Sleep Dysfunction & Breathing Mechanics Friday March 6, 2026 at 1 pm Eastern US Free. Invite your networks interested in sleep. Sign up us06web.zoom.us/webinar/regi...

A 43 second video to promote our 4 March events! Doctors, researchers, patients, caregivers and other members of the public invited. For registration links, see our website Events page, our Bluesky timeline, or open our YouTube channel and look in the description. www.youtube.com/watch?v=QA5i...

Looking forward to this! See you there

This is this Friday! Register now so you don’t forget, #LongCovid and #pwME communities

Please join us for an X/Twitter Space Discussion for Long COVID Awareness Week on March 17 at 4 pm ET US! (in honor of Long Covid Awareness Day on March 15) Bluesky doesn't have a Spaces-like tool, so we can't host here Moderators: @isabelrb.bsky.social and @emilyrj.bsky.social X space link in 🧵

We have several projects in the works by our citizen/patient scientists! We made a Zeffy page for The Nicotine Test (a followup to our previous Nicotine Test project), to help the budget. PI Troy Roach.​ Donate to The Nicotine Test project and our other patient-led projects in this thread 🧵

I designed these! 💞 Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy ❤️‍🩹

Check out our new Bonfire merch for Long Covid Awareness! 😎 It's pretty PASC-tacular You can wear these every March or even year-round to get your advocacy on for #LongCovid and #MECFS 💪 Our merch store link: www.bonfire.com/store/renega...

Great events in March by @renegaderesearch.bsky.social Times ET US 3/06 12p sleep breathing Dr. Gold 3/13 1p hypercoagulability Drs. Vaughn, Pretorius, Kell 3/17 TBD X Space Chat 4 LC Awareness Week 3/27 1p neurogastroenterology Dr. Spiritos

Yes, indeed! We are a co-host for this event with Zac Spiritos, MD, neurogastroenterologist. He is the founder of the Ever Better Medicine (.health) clinic and can only take patients from IL or NC. We have a few of his patients in our support group who have been pleased with their care.

We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells Registration link below with info on Dr. Spiritos' work 🧵

Our next Clinician's Roundtable: Sleep Dysfunction & Breathing Mechanics with Avram Gold, MD, Assoc. Prof. of Medicine Stony Brook Friday March 6, 2026, 12 pm ET (US) Please share with clinician, researcher, patients networks! Will be recorded 🧵 Registration link with more about Dr. Gold below:

9/ Here's Joshua explaining it himself, with @doc4care.bsky.social & @isabelrb.bsky.social, in this @renegaderesearch.bsky.social video at 18m50s: youtu.be/4_a2WGQcRQY?... The knock-on impact to cAMP-PKA signalling in cells, suppressed (lower energy, etc), then swings up/down when in withdrawal.

It's always fun when work you've been part of makes it out of the ivory tower and into the popular press! Coverage of our paper on brainstem deformation in ME/CFS and Long COVID w/ @renegaderesearch.bsky.social. www.iflscience.com/what-causes-...

Wishing everyone as peaceful and PEM free holiday as possible. May the next holiday find you with exponential decay of suffering and an abundance of Joy.

We are so happy to see this update from @whitneydafoe.bsky.social! For those unfamiliar with Joshua Leisk and the Born Free Protocol, see our clinician’s roundtable with our Chief Medical Officer @doc4care.bsky.social and Josh about the protocol: youtu.be/4_a2WGQcRQY